Epclusa Ruined My Life (Page 5)
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Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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Re: Kathleen (# 210)

Hi mate,hope everything ok with you, as good as we can expect I guess,after the wonder med Epclusa that is destroying people's lives everywhere ! So sorry I ever took the poison,an not a thing we can do about it,I'm so sick of telling my dr my latest symptom,I'm sure he thinks I'm making it up,would love to swap places with some of these big pharma liver experts and drs so they experience the hell we have to put up with,since doing the Epclusa treatment not one person either from liver clinic or Gilliard have contacted me, these people are not interested in hcv people only $$$$$$$$my advice to anybody thinking about treatment DONT....

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Re: Lou (# 227)

Epclusa is bad stuff.
Side effects are worse than hep c.
Had hep c for at leadt 40 years undiagnosed.
Then found out and started Epclusa.
I felt like I was poisoned every day for 90 days.
It was pure terror.
Within an hour of taking it every day I would feel deathly ill for about 12-14 hours .
Im 16 months out and feel awful. Exhausted. Loss of hair. Need hearing aids because my ears now ring 24/7. My energy level gone.
My life was better before Epclusa.
Please read all you can.
Go to all hep c med forums.
Be informed.
I communicate with a wonderful man in Australia and we have been on this journey together for quite a while.
Please take time to read what we have to say.
I wish you well.
Keep us informed.

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Re: Elizabethgrace (# 226)

Hello, sorry to hear of your problems, it is very hard to say if you should do Epclusa, I hear so many different stories, even my dr I'm sure he does not understand, seems to be different for people some say very few side effects and cured the virus. But for me I seemed to get many things from losing hearing in one ear for a week. Lucky my dr put me on strong steroid med my hearing came back that was 2nd week of treatment, I finished treatment 2 years ago and often get nausea numb feet hands, very sore legs knees and I've had skin infections that needed antibiotics, lack of energy everyday.

I felt better before treatment, the liver people who put me on Epclusa said it would not have caused these problems, but having hep C for maybe 35 years probably caused all the ailments I have. They would not admit that Epclusa may have caused it!! Maybe it didn't, maybe because I'm 67 years old I'm getting these problems now, just seems strange to me that I felt a lot better before Epclusa. It's hard to say for me what you should do - how old are you and where are you? You may have better treatment where you live, every time I've rang the liver Epclusa people they just say I've never heard of that happening before, which is bit strange, as there are many forums with people having problems after treatment. And yes, I know of people who have suffered some have died, just not sure if from the lifestyle we had to live with hep C or the treatment. Sorry I could not help more. Ask me anything, if I can help you. I also have asthma and bad lungs now breathing problems an x-ray I had done found 2 spots on lung just waiting to see if they have changed shape, I am also nervous.

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Hello, i want to say i just found this sight today. I’ve had hep c since 2001 - i treated 2 x with interfuron with ribavirin, both times i has to stop as the side effects were so bad it almost killed me! The serving time i stores i ended up in icu for 10 days on a vent! I won’t go into details because it will just waste time, however my doctor is not wanting me to try Epclusa. I have auto immune diseases act up in the last 2 years which the day are from the hep c and this why they want me to do treatment again!
However I’m reading allot or very negative side affects from these new anti viral medications! I still have laying side affects from the first treatments! I never regained my energy or strength back and I’mSO VERY WORRIED about doing this Epclusa now! Though it would be awesome to cure the Hep c and have the auto immune problems disappear! They have already approved me for the drug and gave me my first meds- i discusses my concerns with the doctor but all she could say is all her patients did fine with little to zero side affects! If anyone had any info on this please let me know! My gut is telling me NOT to do it! I really don’t Know what to do!!! I’ve even heard of some getting cancer after the tx and dying??? Anyone know or heard of this also?

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Re: Lou (# 223)

Hi mate..
You and I have so many of same side effects.
I wonder if pharma reads what we write.
Sad Epclusa was not more up front about what to expect.
They kill viral load but kill part of us too.
Been a waitress 40 years and never felt exhausted like this until Epclusa.
Sorry you don't have friends where you live.
I havent seen my only 2 gal pals in 6 months.
Looks like don is quaking in his loafers. He knows he is through.
Take care.

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Re: Kathleen (# 222)

Yes I also get depressed since Epclusa treatment , anxiety exhausted everyday ,I make plans for the next day of jobs that I should do,but when I wake next day I haven't the energy or mental drive to do anything!this is since I did treatment,think I'm worse now IV got the spots on lung waiting, always waiting November is coming so fast ,I'm not sleeping properly worrying about stupid x-rays,worrying isn't going to change anything keep telling myself,lol,this is strange town where I live,unless you go to hotel never meet anybody ,I don't mind really not knowing anyone here,in fact proberly chat to you more then anyone ,these days, oh yeah nearly forgot ,I did loose hearing in right ear for 2 weeks just after starting treatment,but got it back after heavy doseing of a steroid med,ithink they should have stopped my treatment when that happened obvious Epclusa wasn't agreeing with my system.

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Re: Kathleen (# 222)

My feet have been really painful lately, no obvious marks just pain mainly soles an heal, just another symptom from the wonder med Epclusa. have to talk to my dr this week, only telephone calls no visits at all. I can say is feet are hurting he can't Evan see my feet, all he ever says is useless anyway. Not looking forward for November having more lung x-rays an breathing tests x-rays suppose to show if any change in lung spots from last x-ray I did, I'm just getting so sick of it as I'm sure you know how I feel. As for people reading what we say, hope Gilead is reading!!!! Unfortunately I can't send my email to you, been trying to think how I can.

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Re: Lou (# 221)

Read about harvoni. All the hep c drugs including Epclusa are basically the same thing. They just tweak a little.

Yea fly on the head was hilarious. Biden's team sold Pence fly swatters but sold out before i could purchase. They made 35,000 and sold for $10.00 each. Trump had a rally at white house today with 2,000 people. Mostly hispanic and blacks. He is trying to get their votes. It's too late Donald. He is so outta there.

Did your hearing get worse after Epclusa? Mine did. I had to get hearing aids about 5 months ago. Forgot to mention it to you. I swear I felt better before Epclusa. My main symptoms before I knew were flu type stuff that happened quite a few times. Now post Epclusa I'm a different person now. I get depressed but don't tell anyone. Oh well, what can I do?

Glad to hear from you. Always.

I wonder if people go to this site and read what we say? I hope so.

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Re: Kathleen (# 218)

Greetings,hope you are going ok ,I came across a contract you might be helpful looking into Poste treatment ,American liver foundation Harvoni forum,might help finding out about more people now suffering Poste treatment ,I also heard about disease called cryoglobulinea ( not sure about spelling ) but apparently it is found to be attracted to hep C,a lot of the symptoms I could relate to nerve damage ECT if you have time take a look,it was just by chance I read about it,you would think the liver experts or drs, nurses might have mentioned it,I guess you would have seen the fly land on pences head in the debate,I think the fly was noticed more then that rude pig pence ,I couldn't believe how he kept interrupting,can't believe how Trump is going on,just hope he doesnt start a war before he is thrown out, theve got a name for people like him over here ( drop kick ),hope everything is ok and your pets are good, lost my old dog last year I had to put him in a dog hotel just a big kennel really for a day last yr,picked him up that night ,next morning he couldn't walk then I noticed he had 2 poisonous ticks on him,by the time I got to a vet he had passed on unfortunately,at least wasn't in pain ,the guy at dog kennel refused to believe ticks came from his dodgy kennel ,I don't think I will get another dog I get to attached.stay safe.

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So.....anyone thinking of taking Epclusa needs to do a lot of research first. I am two years out and my life will never be the same. I'm 72. Female, non drinker, not drug user. I had a blood transfusion before they tested for cirrhosis. I did not even know I had it for about fourty years. They gave me three months of Epclusa and it changed my whole life. Every day I took it was like being poisoned. It was the worse feeling ever and since Epclusa I am exhausted every day and never sleep well. Please read all that you can.

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Re: Kathleen (# 218)

So good to hear from you,I was starting to get little bit worried ,!!,wouldn't be surprised if all was a plot to get votes because he knew he was going down in popularity ,I can't get over how trumpsters all have similar appearance ( redneck ) at least it gives me bit of faith in humanity ,that he may get kicked out,it's early in morning 2am so goodnight mate ,really great to hear from you and your ok .air cons good.!!

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Re: Lou (# 217)

Latest stunt. He just had secret service drive him around in circles in car to show "how sick he isn't". He deserves his illness. Country fed up.

He is going to lose big time and when he does,everyone he owes money to will be after him. His wife caught on tape disparaging having help with Christmas decorating at the white house. And saying how she hated going to border to see how her husband has locked up children.

They both deserve what they get. The whole family of thieves and liars are coming under scrutiny. Hope this finds you feeling okay. I know Epclusa will never allow us to be normal again so when I have good days I relish them.

Take care mate. Hope to hear from you soon. Stay inside. Stay warm. Eat well.

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Re: Kathleen (# 214)

Hi ,hope you are ok ,I guess you watched the debate ,lol ,talk about karma Trump picking on Bidden about wearing a mask often !!! now guess who's in hospital ,hope it's not just a stunt ,so he can say he beat it an come back two weeks before voting playing for the sympathy vote ,nothing would surprise me ,

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Re: Kathleen (# 214)

Praying you are safe , hopefully fires have stopped ,for you ,!warming up here I'm so not looking forward to it.take care.

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Re: Kathleen (# 214)

Hope you are ok, I've been watching the news, it looks so terrible hope you are in a safe place, starting to warm up here as well, it's so stressful continually heat an smoke really exhausting. I just watched news on tv, 250 dead, whales were washed up off coast of Tasmania, nobody seems to know what happened to them. Every day seems to be a new catastrophy, then Trump comes on the screen he looks oh so confident. I really hope I get to see him thrown out, thinking of you hoping everything ok for you, glad I got air conditioning connected, sure makes a difference.

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Re: Lou (# 212)

I will keep you close in prayer. Funny I tried to send you my email address and Epclusa texted me that I cant do that. They will allow us to warn whole planet about their poison. If I would not have taken it I might be living better.

No symptoms of hep c. Now you and I and God knows how many others are suffering. We were just about first human/lab rats. My life is now a series of bad days following bad nights.

Have to be prescribed ambien to sleep away my miseries. Temp cooling down here now. Fires outta control. Air quality sucks..literally. Take care Lou. Be well mate.

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Re: Kathleen (# 210)

Seems no body wants to say anything against Epclusa !!I'm just glad we grew up in a different time then this ,I liked 1900s less confusing ,IV had so many infections an skin problems since Epclusa ,I'm not looking forward to November when I find out about my lung issues ,wouldn't surprise me what happens after doing Epclusa ,the specialist didn't seem impressed with my lungs ,stay safe.

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Re: Kathleen (# 211)

Hi, I feel for you, just starting to get hot here. I'm so not looking forward to heat, seasons are definitely changing for the worse. They have started doing burn offs of large areas, supposedly to reduce fires in summer. Trouble is the smoke that happens with it, plus they burn sugarcane in spring and summer which is terrible sickly sweet smell. My car is covered in soot some mornings, the humidity is usually in 90s most nights, last night was terrible hard to breathe, have to close windows. Air isn't that healthy, I was awake at 2.30 again coughing?? A lot of people are hoping Trump gets kicked out over here, our stupid prime minister seems to get on with him oh dear!! They censored your email address, I'm trying to work out how I could send mine. Really hope you get some rain to put fires out. Seems everything is so corrupted these days, nothing surprises me with corrupt politicians, or drug companies big business etc.

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Re: Lou (# 209)

No blackouts yet. We try to not use too much electricity but living in California means heat over 300 days a year. I hate it here. Such predjuice/trump hate here... but everywhere. I'm putting in my email address. Not sure it will go through but its at the least that Epclusa can do.

{edited for privacy}

Editor's note: In accordance with our privacy policy, we are unable to publish email addresses since our forums are publicly viewable.

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Re: Lou (# 209)

Hi. Surviving but smoke so bad that it rains soot on cars and everything.

Talked to liver dr. Physicians assistant and she cant seem to grasp my exhaustion. I said Epclusa changed my life. I feel so cheated. She said talk to my pcp. Really?

Cooking dinner. Mundane but necessary. I hope your leg is better.

Think of you often my friend

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