Epclusa Ruined My Life (Page 4)
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Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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Re: Kathleen (# 249)

Sorry to hear about rhumatoid arthritis my granddaughter has that she is only 9yr old,but very fragile ,I worry about my immune system I'm sure those direct acting anti vitals in Epclusa are to blame for both our problems,I had one appointment with liver dr before they started me on the poison,must have been in office with liver dr for only 5 min,I wanted to ask heaps of questions but before I knew it appointment was over ,with him reassuring me very few side effects,nothing that an aspro won't fix ,I think he said,an I would be ideal person to do treatment lol,all he was interested in was getting another sucker ( me ) signed up,never heard another thing from him ,( no support at all ) whenever I try to speak to someone at liver clinic they always say same thing" oh Epclusa wouldn't cause that problem " same as what you get !it was 42deg Celsius that's over 100 farenite yesterday ,very hard to handle with my breathing problems Evan with air con it's hard,but would be a lot worse if I didn't have it iguess ,only 32 today but tomorrow is going to be in 40s,that's Celsius temp farenite temp is over 100,(think that's right Celsius an farenite temperature hope you understand my ramblings ,whatever temp is not looking forward to heat,never use to worry me till I did Epclusa ,that's another reason I worry about immune system,how can the so called experts be so sure ,when it's only been around short time,truth will come out one day maybe then they will realise we were right ,must be starting to cool down where you are, great to hear from you as always!! Stay strong.

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Re: Lou (# 248)

Hi lou, I am ok. I just got results back. Look up NUCLEAR AB ser ,ql. I have rheumatoid arthritis and now autoimmune disease. I have been freaking out about it. Just found out. Will see dr next week. Epclusa killed my ability to fight off everything. I'll keep you informed.

Yes trump needs his nappies changed. He won't do any work. Sits all day at white house watching news and Twitter. I do believe he is close to conceding. World laughing at him / us. I'm sure he is embarrassed and humiliated and just lashing out. Being a lame duck president is proof of his failures.

Take care. Keep posting so people read the truth about Epclusa. Hope to hear from you soon. You are the second good thing to come out of this. First being zero viral load.

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Re: Kathleen (# 246)

Wow 35 deg nights that's hot !I hope they can give you something for pain in hands,Gilliard should be made responsible for all the pain they have caused, Australia not doing too bad with virus ATM,might have something to do with being summer hot weather, don't know what will happen when it cools down over here,so no lockdown at moment ,I try to wear masks if have to go out,can't believe how Trump won't accept things,I wonder if he had the virus or was it another stunt,did you read another message on this sight a woman had bad ailments after Harvoni I think and was asking if anyone had similar experiences ,try an keep in touch,if gets too hard don't worry ,I will keep posting ,the whole thing is too strange I agree I don't know this planet all the bad things ,just gotta try handle it I guess ,but it's getting harder , praying for you.

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Re: Lou (# 245)

So sad that covid keeping you from seeing grandchildren. Epclusa..the gift that keeps on giving.
Yes the kid got 2 million dollar bail. Doners are the creepy guy from My pillow and kid Actor Ricky Schroeder.
Staunch Republicans.
I dont recognize this planet.
So much misery.

So sorry you feel so badly. Make sure filter in your a/c is clean. It was 35 degrees last night and you are suffering from heat.
EPCLUSA IS BAD MEDICINE.
BE SAFE.

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Re: Lou (# 245)

Hi mate.
Thank you for encouraging words.
I just found out yesterday I now have an auto immune disease.
I did call a large law firm in SanFrancisco yesterday.
They are familiar with Epclusa as they already have clients like us.
I was made to understand that I will be deceased before a ruling but that will not interfere with my son being able to receive a settlement.
Lou I feel so poorly right now.
My hands and fingers hurt so badly it hurts to move them. Wake in morning and can hardly open them.
Epclusa is dangerous and refuses to explain their role in post Epclusa treatment.
How are you? Is your town on lockdown? In California we start a curfew today. Must be inside from ten pm until five am.
That won't bother me as I am never out at night.
The world has gone mad.
People refusing to wear masks.
They feel it a political problem . Im saddened by these ignorant self serving citizens.
They say covid a hoax. Because of crazy don. He is still kicking and screaming in his nappies as we die.
Take care of yourself and write when you feel up to it.
EPCLUSA is poison.

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Re: Kathleen (# 240)

Sorry to hear about your hands, I'm praying they improve for you, as if you haven't had enough bad luck, my breathing test wasn't good got about 1/3 lung function, makes this heat really hard, don't know what is worse winter or summer! Just heard that Rittenhouse house guy released from jail omg, I really hope you start feeling bit better. I had bad night yesterday. It was really hot day just made me feel sic then got instant stuffed up head bad cough no sleep, maybe had air con too hi, with my lungs maybe, can just thank Epclusa once again I think, drs won't admit will they, corvid 19 is really scaring me now, haven't seen my grandkids over 10 mths I worry about them as I worry about you my friend.take care.please

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Re: CatD (# 242)

Hi it's been about 3 yrs since doing Epclusa, my lungs are at about 50per cent or less plus so many other ailments numb feet nausea neuropathic problems just waiting for result of spirometer test, very interested in hearing other peoples experience. thank you

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Re: kathleen (# 238)

I have not posted in quite some time but took Harvoni 5 years ago and wish I never did. Sovaldi that is in both Harvoni an Epclusa seems to be the culprit of all our problems. After taking Harvoni, I lost 50% lung function, have severe small fiber neuropathy, tinnitus, 24/7 pressure headache, irregular heartbeat, fatigue, brain fog.....all showing up either during or shortly after treatment. Based upon what I have seen, at least 10% of those who take a Gilead product become permanently damaged, some very seriously with some actually dying even though healthy and vibrant prior to treatment. We were duped and people continue to be.

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Re: Kathleen (# 240)

Yea now trying for a couple. Worst human .
Yes went to dr yesterday and I now have something he can't explain.
My hands,wrists, fingers hurt so bay.
Epclusa strikes again. Epclusa is a monster drug.
On TV all channels on public announcement that curfew starts Saturday. From 10pm to 5am.
Stupid people won't follow rules. They will get covid and spread it.
I'm so sad about your lungs. I hope you can get to a point where life is worth living.
My pain in hands and fingers so bad. Hard to move them.
I do think Epclusa will continue to shows its true self as life goes on.
Take care of yourself. Thinking of you

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Re: Lou (# 239)

Hello. Glad your lungs ok. I just had my ultrasound to check for liver cancer.

I now have new problems. Both wrists and my fingers hurt to much. Eake and I can hary open hands. My knuckles and hands are so bad.
Epclusa has done a number on me. I had none of there issues before Epclusa. I think I talked another lady from taking it. Saw her at hospital. I told her about everything. I suggested she ask doctor for something else.

We are still in post election hell. We are laughing stock of the world. He hasn't been to a covid meeting in 5 months. Just hiding from public... he does not care if whole country gets covid.

Anyway just checking on you to see if you are okay. Too bad pharma won't contact us right? Be safe mate.

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Re: kathleen (# 238)

Just quick message ,saw specialist spots ok just scarring,lungs not good,who wants to live forever Afterall ,we've just gotta try hang in ,ok I'm similar to you ,happy bday, good luck thurs.still don't trust that floundering fish ,lol. ,I'd like him to try Epclusa !!!!

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Re: Lou (# 237)

Hi mate. Happy to hear from you. Pretty scary about your lungs.. Epclusa has caused many side effects. I n last 4 days my hands and joints in my fingers hurt. Hard to hold things in left hand. Ecplusa..the gift that keeps on giving. I never heard of Epclusa before I tried it. No warning me. No contact with me after they have read l of my posts I. This forum. I go for ultra sound Thursday which happens to be my birthday. Do you ever think that Epclusa has mentally pushed us to dispar? SOMETIMES I feel like giving up.

With biden being elected is so good for our country. Trump floundering like a fish on hot cement. Putting tweets that are calling the election corrupt. Our country does not fake elections. Only a psychopath could do what he is doing. Gonna start a go fund me to help pay trumps moving costs. He is asking his donors for six million dollars to help pay his legal fees. Man has lost his mind. An obese turtle lying on his back flailing in the hot sun.

Well mate take care. Thinking of you. Just know I truly care about you and your health so stay healthy for me.

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Re: kathleen (# 236)

Hi mate, how are you? I just can't believe these ailments I get since doing Epclusa treatment, I very rarely even had to go to drsnot like now, seems to be always another appointment, I did the breathing test last week, started off had to go get MRI done 9 am had to have no coffee or food or any puffers I usually depend on to get me moving in morning MRI was nerve racking enough hate getting injection of dye, then I had to wait till 10.30am to do spirometer test (breathing test )still no food or coffee Hy this stage I'm feeling bad anxiety, waiting to do test nurse informs me I could have used my medications plus had food as normal, someone got mixed up apparently!!* Time to do breathing test I failed miserably thought I was going to choke or pass out trying to hold breath then blowing air in metered hose type thing nurse stopped testing I had no energy from no meds or food hot drink ECT, so I'm not looking forward to seeing specialist tomorrow he is a very stern serious guy from India ( rarely smiles )he tells me if the spots on my lung have changed since last x-ray one was 17 mm and 8mm, don't know if that's big or small, probley Epclusa had something to do with it, like everything as you understand I'm sure I can't believe how my health has changed for the worse since treatment, and not one person involved with doing treatment could give a dam, an old friend I know gave me a vapour cigarette replacement thing it's apple flavour, I find it helps me a bit when I feel like cigarette, he buys on line as can't buy in Australia, and now for the super dooper great news no more Donald maybe!!!!! I was bit scared at first thought he was going to scan another win, then it started changing in Dems favour, good on Joe he brightened my life up, take care mate good luck with your appointments with drs

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Re: Lou (# 235)

Hii mate.
I get this weird thing since Epclusa that all of a sudden my body Jenks and I involuntary take a deep breath like a gasp.
It scares me. I have so many "quirks" since Epclusa.
My whole body has changed. Like I aged 10 years overnight.
Epclusa is poison and I implore all people considering Epclusa to do a much broader search before starting.

You and I were naive and desperate.
I hope others read this. Take care. Thinking of you and your health.

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Re: kathleen (# 234)

Hi I was just wondering if since doing Epclusa do you get body jerks or jumps ,I do usually when I'm nearly falling asleep ,I get body jerks ,IV dropped so many drinks when it happens,think it's called myoclonic jerks,I rang the liver people who suggested I do Epclusa ,but as usual said never heard of or numb feet they said it's probley just anxiety don't worry about it ,(in other words they just didn't know or care )I watched a documentary on Trump last night something like 18 women have tried to have him for assault !!scares me a bit how many people at his rallies supporting him, so hope it's not like the last election , everyone were sure he had no chance he can't be trusted too many $ ithink.??

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Re: Lou (# 233)

Well you have my full name now. I will try to send everyday a letter or symbol to follow. Yes Epclusa sure he c but made my life a living challenge daily. Worried about your lungs. Wish you would not smoke. You deserve some peace. Take this time to try other things, like reading. Do you like? If I had your full name and address I could send you kewl care (fun) packages. Rest, sleep well.

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Re: kathleen (# 232)

Thanks for fast reply, bit long before election, it's on tv a lot here even, people seem really interested, just about every night there's a documentary about Trump, really hope he gets voted out, a lot of people do, he kind of has an effect on every one, his a worry that he may start a war that will effect us all, I think whoever wins gonna be trouble in the streets protests ECT, I'm same as you I'm sure Epclusa has changed me, hard to get any motivation when nauseas no energy now this lung thing it's getting boring so wish they warned us instead of saying it's a wonder drug, I hope there's someone out there who reads what we say about Epclusa, still trying to think how I can pass on my email to you, I looked at calendar before and it's next Tuesday. I have to do MRI x-ray same day different hospital breathing tests, lucky appointment 11am I have to have nothing to drink or eat (no coffee)also not Evan use my puffer before doing test, gonna be hard usually have puffer first thing. Take care.

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Re: Lou (# 231)

Hi lou dont be discouraged about not smoking. It's hard i'm sure. Never smoked cigarettes. None of my few friends smoke but my son does. He goes outside to do it. I still smoke pot but its legal here and go to designated stores to get it. Helps calm me down.

Epclusa has changed the core of who I am. I don't recognize myself any longer. ..my personality has changed. No longer do I feel the need to be amongst people. I'm sure covid didn't help.

Sorry it's so humid there. Its end of October and still in the 90s here.

Epclusa made me sick for the three months I was on it and it made me feel reclusive. So sick didn't want anything or anyone around me.
Will write soon. Take care

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Re: kathleen (# 230)

Just got your message, yes I've been wondering how I could pass on my email, I've tried also, been thinking same thing about elections, there's been few shows on tv showing Trump. Can't believe how corrupt he is so full of himself plus rude, why does bad things only seem to happen to the good people?? We both have med appointments next month, can't say I'm looking forward to it, the air quality has been bad lately. High humidity usually above 80% not good for breathing problems, I've been trying to find out percentages of people with post Epclusa side effects, especially people over 50yrs old. Seems to be top secret unfortunately. Take care, I'm really having trouble not smoking. I know it's stupid, but since doing treatment my nerves have also suffered, specialist told me damage is irreversible to my lungs, since stopping cigs my breathlessness seems worse. Take care mate.

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Re: Lou (# 229)

Hi Lou. Country going crazy over upcoming election. Tv always about those ugly old white bigoted men. Some look one step away from grave.
Covid raising in 15 states to the point of too many. Hospitals overrun. Just because people won't wear masks. I mean who do they think they are? Intentionally infecting masses of people.

On top of that the side effects from epclusa making me crazy. Is it worth it to be alive when its so difficult? My life is a series of Epclusa usage.
Thinking of you my dear friend. Wish there was a way for us to email each other. Epclusa site knocked my text to you off because I put my email address in it.

Dinner time. Chat soon. Be safe. Think good thoughts.

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