Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 26) (Top voted first)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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Re: sandy (# 347)

I'm just curious will you let us know what type of pain you have and how and what are the problems that you having this pain

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Re: HOUSE (# 338)

Yeah, I've been on methadone maintenance because the pain management wasn't working at the time, and while I was on the methadone maintenance 70 mg daily I didn't even feel euphoric from it. I just felt normal. But when things happen - like a major car accident happened, I broke many bones cuz I have osteoporosis... I basically didn't feel the pain unless someone was injecting me with the morphine or or any other type of injectable medication from the hospital like Dilaudid.

Yeah, you don't need a jacket right into your vein ,it's probably going to get rid of your pain at the time but in pill form the highest I got was 300 mg of morphine sulfate a day which seemed to help me. Once they cut to 30 mg three times a day of MS Contin, that is a joke, so I tried to go back on the methadone maintenance program. They will not take me because they said I'm not an addict. I'm getting 30 mg a day three times a day. The problem is where I go in New York for pain management, they keep switching my doctor twice so far and eight / nine years, I'm afraid of eventually just want to get me off and I whatever I have loads of metal throughout my bones and my spine is all messed up w/ scoliosis + what not. It's ridiculous, so I don't know what the hell to do with that.

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Re: marin5 (# 336)

S*** I'm only 52. If I was 85 I would just sign myself into a hospice and let them know if I can't get any medication. I'd just kill myself, simple as that. I would never make it to 85 and I think if I live another 10 years like this, the result will be killing myself cuz I couldn't deal with life anymore. Read my other messages, anything that says dead on my name, for this access this site and see her problems I have.

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Re: Dead (# 366)

Man I’m freaking out my PM doctor just retired. And I am told that there are new laws in Florida that limit what and how much medicine that can be prescribed also many do not take my medicare. Melbourne Florida

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Re: Dead (# 370)

Hey genius, that was a link to an article that I read that was advocating to stop forced taper's and to let doctors decide what is best for patients in pain!

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Re: BL (# 7)

Yeah whatever medication you got especially if it's an opiate just put it under your tongue and just suck on it keep it under your tongue and don't suck it just keep it under your tongue it work the best

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Re: Terry (# 372)

Yeah unfortunately that's right even in New York it's basically whatever equal to 90 mg of morphine daily is the maximum dose for any doctor will naturally destroy probably less than that or nothing at all the opiate matter orbit or probably something very minimal at. But with the problems I got I still get 90 mg of morphine daily cut down from 300 so

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Re: HOUSE (# 363)

Yeah I think most opiate use is. I know that by now.

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Re: Dead (# 328)

Yeah so it didn't work out that bad after all. The idiot's insurance gave me $1,174 and my 97 Corolla had a small dent and the rear quarter that I got most of it out but I don't really give a damn about it. So, I'm ready for the next idiot to hit my car. I hope they have insurance cuz so far I made couple of thousand off the car in five months of idiots out here smashing into it so little. Then long as it stays somewhat and looks like it's a low miles older vehicle lucky then you to pay I want somebody to total it out make it so it's still driveable and don't look like it's totaled out that's the whole idea because in New York people are driving like big a-holes. They are all on drugs playing with their phones acting like morons drinking. In Long Island New York Suffolk County.

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Re: Vintage Lady (# 387)

New York's the same way.

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Re: etech (# 411)

I don't believe that at all. I'm pretty sure President Trump has been informed about chronic pain patients and the need for legal medications that work to provide a quality of life these people otherwise wouldn't have. It sounds like you've come across more propaganda people are constantly spewing to try and make people hate the President. I've written to my senator several times about this problem of lumping in chronic pain patients with drug abusers and I have letters from him that everything is being done to assure chronic pain patients aren't looked at as dope heads. We all need to be writing to our elected representatives and making them aware this is an "opioid crisis" in name only and is really just more drug abuse and honest, law-abiding citizens are being dragged into this fight unwillingly. One thing I know about President Trump is he has great empathy for the suffering of people at all levels. I started keeping a log of the time I take my Vicodin pills and the hours in between doses. My pain is intense but varies. I've found the "log" has also prevented me from taking pain pills too soon since I don't allow myself to take any pills if at least 8 hours haven't passed. I've also found that even more than before, my "30 day Rx" lasts even longer than it did before.

Here's the thing, according to all the lunatics against "big pharma" that "THEY" are making addicts out of people and need to be punished, I can say I am not an addict and ONLY use the Vicodin to control pain. How do I know I'm not an addict or addicted? I'm almost 74 years old and I've been taking Vicodin since age 45. My medical issues have gotten worse over time, NOT better, but when I am in intense pain (more so now than ever before), I can count on my Vicodin to alleviate the pain. When I was 45 I went days at a time without sleep. I considered suicide on numerous times. My doctor said he was worried if he gave me a narcotic Rx I would become addicted. I asked him, which would be worse, me dying from lack of sleep (it does happen) or committing suicide for a lack of quality of life or having a semblance of life and becoming addicted to a narcotic drug. He wrote the Rx for Vicodin. What has happened is people think pain relief should be instant and they take too many pills and they do become addicted and run into other problems. I don't blame "big pharma" for that, I blame doctors for not properly educating patients about narcotic drugs and how to prevent addiction. People that "self medicate" are not helping our cause. They take too many pills, use up the 30 Rx way before 30 days are over and then start looking for other sources of pain relief. If people were properly educated about how to take their pain pills we wouldn't have this problem. "Take 1 tablet by mouth every 4 hours as needed for severe pain. Max daily dose=6 tablets" (right off my bottle of pain pills) is total BS. Using my log, I generally take only 4 pills in a day.

There are days I go 20 hours without taking a pain pill and never go less than 8 hours because I tough it out if it hasn't been 8 hours. My Rx is for 7.5-325 pills. I've had stronger dosages in the past but didn't like how they made me feel. The directions on the bottle should tell patients relief will not be immediate, do not take more than 1 pill in less than 4 hours or 8 hours or whatever it takes to get and keep pain under control. I also recommend people keep a simple log to look at when taking pills. Basically, I write down the time I am taking my pill and in between the last time I took a pill I write down how many hours it was in between taking pills. I keep this going down in a column and can get 3 columns to a half sheet of paper and then turn the sheet over to continue on the other side. There are times I'm in pain, look at the sheet and its only been 6 hours since the last time I took a pill so I will wait for the 8 hour mark. If you're addicted, no way in hell a person will wait in pain to take a pill. The addiction will over-ride the need for pain relief, that's a fact. Good luck getting your pain under control and please think twice before repeating spurolous comments about the President, big pharma or anybody without absolute proof.

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Re: Mejane (# 433)

Very good point Mejane. If we would have started this earlier we could have nipped it at the bud....maybe.

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Re: Laurag (# 455)

THANK YOU FOR THIS!!!

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Re: Etech (# 450)

Soma was the best prescription medication I ever had for insomnia and muscle spasms. I was only prescribed 30#, 10 mm, at bedtime. The pharmacies are the culprits to n this particular prescription... it was not covered by my insurance, but even then, never cost more than $30 cash payment. It's a tried and true medication. Been around since at least the 1950's, starting it's life as a sleeping aid, then sometime in the 70's I believe, changed to a muscle relaxer. I used it for both to let me sleep at night, thru acute lifetime Naomi's and muscle spasms from Sciatica, both sides. Now there is a new, expensive form of this drug being prescribed, called Belsomra. My doctor won't prescribe it for me, yet my 86-yr old Mom's doctor prescribed it to her. Go figure...

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Re: Etech (# 452)

Its too late... They extended the date until last year 2018 and had their meetings... The results are already in on the FDA.gov site. All you did was waste people's time. Sorry

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Re: Vintage Lady (# 457)

Hi Vintage, I think Belsomra is used as a sleeping pill? Or at least prescribed for that. I'm out of bounds for that drug. If that's what helps, I hope he would get it and should. Agent Orange was some bad s***.

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Re: Vintage Lady (# 457)

Sorry Ms.Vintage. if I am wasting your time. It is was not my intention to. I do not want to waste anyone's time in here. I've tried to get on the Pain Train as where I belong too so to speak but seems like I'm getting shot down for it. I have to deal with that too with my own issues. So, if I've wasted your time or anyone else's for any matter, I'm sorry and will not make any more suggestions.or seek any matters to try to persuade politics to see it our way. It's a team sport as I see it and everyone should contribute. I was only trying to do my part.

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Re: Vintage Lady (# 457)

Belsomra is a sleep medication. Maybe it has off label usage as muscle relaxer. I tried it but after a few days I was feeling hungover all day so now I am not sleeping again. Good luck to you.

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Re: Vintage Lady (# 457)

Hi Vint, seems like the kind of drug I could use. When I got my first generic ambien they must have been watered down. I used to get the brand until I had to leave a good job I had with great hospitalization. I remember the first generics of the ambien and they were so weak that i couldn't believe I took one. Then Mom came to the rescue with the brand that she was getting at the time. talked her into giving me one. and ZZZZZ 'til the next day. Many people say it's all the same but many have spoke in here about them and I believe they are right. Might try to talk my doc into it. But you probably know how it goes when they are dead set on something.

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Not sure on where to start a probable not so new topic about DOES A LACK OF PHYSICAL PERFORMANCE OR DISABILITY CAUSE DEPRESSION FOR YOU.... so I'll settle here or ask the MEDCHAT folks to put it under the right topic category if worthy.

This is my story and I ask you to compare and share your story too if you feel somewhat the same.

When I was starting to get to the top of my profession, I seemed happy. I was making 3x more than I was with disability. But it got to the point where I could not even walk through the N.O. Convention Center with a small cell phone taking measurements. When I got to the CC door after walking a car parked mile, my back started to give out and it was either call 911 or find a place to lie down because I was going down. I chose to find a dark corridor and lie down. I recovered a little after the break enough to drive home and take Lortab and Soma and sleep it off. It was pretty obvious where I stood physically. At the time, my company was being bought and they were phasing out my position. I was offered another position in another dept. The job would have been a little more laborious but still a great position with the company. The catch was if it didn't work out, I would have lost tens of thousands in severance pay. So I took the severance and filed for disability.

Since I've been on disability along with other personal things, I think not working caused a major part of the anxiety and depression really started to hit hard for me, that is. My question is, has anyone been in a somewhat type of situation and mainly because of a lack of physical ability and probably caused mental problems with you? Sometimes the depression hits so hard that I don't even want to even fix a sandwich to eat and find it easier to eat a giant size of potato chips for supper. Do you find depression as debilitating as I do sometimes? Don't get me wrong because it is not this way all the time for me but I find myself sometimes in a real "slump." I know that I have to have a purpose to keep going and right now it's mostly taking care of my 94 year old Father. That too is not easy with my limitations. Could any of this sound familiar to you?

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