Accutane Long Term Side Effects (Page 49) (Top voted first)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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Jazzy. My son has also suffered the same as you. Hopefully it will subside. Unfortunately some people especially some ethnicities suffer worse than others.
As this is a vitamin A overdose how many watch wat you eat to reduce the vit A intake? And do you feel it makes a difference? As i try to reduce my sons vit A intake and have noticed hes not getting the head pains and some of the other effects he was suffering. I hope and pray he gets better as well as all those suffering from taking this money making Poision ! Vit A can stay in the body so please watch what you eat it really could make a difference. Bless you All !

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I just also want to say thanks to those who replied to my first message. It's good to know there is a little army fighting against tihs horrible drug. I just read the NCC article again for the 2nd time (found it orignally last Sept) and i've got that deep feeling again.. basically telling me how bad things are going to continue to get (could it get any worse?), my health will keep going down and notig can be done. The deep despair I feel....

As mitch said, some/a lot of accutane sufferes feel worse after certain foods. Anything hot/spicy I can't eat. I took this caynenne ticnture over 6 months and it made me feel extremely weak and could hardly move around or do anything. I was so bad that luckily i forgot to take it one day and noticed a slight improvement, and only then made the connection. I orginally thought cayenne pepper would boost my circulation, but made it worse!! I can only assume Accutane badly effected my nervous system, which im guessing hot/spicy foods act on. i have rosacea from accutane too and i think this is down to do with problems with the nervous system and the immune system (which i have a low white blood count). Also theres the olive oil connection from another forum where a lot of accutane suffers all found they had in common. before i found about this i noticed i felt very bad after taking olive oil for up to a week (i was fine with olive oil a few years after tane then it hit). Then theres high vitamin A foods which I beleive watermelon is, again feel bad after... side effects of these bad foods are feeling jittery, weak, eyes feel even worse, more dehydrated etc.But it's all these food connections which all Accutane sufferes have discovered by telling each other these specific food problems live the olive oil/vitamin a, other specific foods that CONFIRM Accutane is the problem, to any doubters out there who seemingly worship this poison.

I think garrot made a line saying "take accutane, play sport, eat ok and you'll be fine" this is a really dangeroud and stupid thing to say. How do you know that takes you up on that advice will be fine? Just based on your experience, when you are still taking the drug? Unfortunately it was people like you that I listened to before I took Accuane over these horror storeies, bbecause according to people like you, these horror stories were extremely rare, accutane can't be proven to of caused all your problems.. just blame everything on Accutane. I took the drug.. and before I know it, so quickly, so easily, my life is over before I have a chance to do anything about it. Over with. And i guess that's a bad part of the internet, listening to people who think they know what they are talking about and overshadowing the truths. Again can we also not have people wishing that the FDA don't ban this drug. It's like a stab in the back hearing this. . Instead of coming here just live your life to the full, you'll never begin to understand what so easily could of happened to you....

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Kim, Have to say, VERY Happy reading this that you will NOT take this Drug! I can only Hope others like you will do the research and look into this drug as you did. I wish my Son or I had looked FURTHER than we did. We TRUSTED the Dr., SHAME ON US!!!!!!!!! Today we live the Nightmare one MORE day~Wish You the BEST Kim :-)

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Update on this situatiuon has been a miscarriage at 20 weeks with the diagnosis of Triploidy having affected the fetus.

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Hi Nancy,
I as a mother can feel ur pain.
But trust me the bad days will vanish soon.
In my everyday prayers i shall pray for ur son to get healthy again.
once again thanx everyone for the suggetions.
U guys saved me from falling prey to this drug.
God bless everyone........

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thanks for getting back to me people,

yes i did stop taking the med. Clorvis was the brand i took. alot of my pains have gone away, so one can only hope that they dont get to many problems. ill keep updated.

thanks all.

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JUST YOU WAIT!...Personally..I am Over 20 years suffering...There is NOT Enough Ink in this Friggin Computer to Laundry List all the Health Problems I have experienced...and....am continuing to experience...I can ALSO..NOT Explain to YOU...JUST How irresponsible...and naive...it is of YOU...to pat someone on the back...and say Go Ahead...this stuff is GREAT!..BELIEVE YOU..ME...In YEars to Come..YOU Too....will Warn OThers of the HELL YOU are Experiencing......I Come from a Long Line of Extremely Bright...Honor Roll Smart Genius I.Q.,even... Superiorily HEalthy...Muscular..Superman Strong People...
When I took this S*** in a Bottle..I was 6 ft 1...200 lbs..of Raw Steel Able to Do Things MOST MEn would Only DREAM of doing...
Soon after taking the Crap...My Body began to almost Implode..Starting with Joint Pain..and Bone Spurs...even in My Spinal Column.....NExt came the Crohns Disease.....and Bleeding Ulcers...
Along with Ankle Joints that Virtually Roll out of Socket...at the mere hint of climbing stairs or stepping off a curb...My Rotator Cuffs are so full of Mice...(Look it up)...They Sound like a freakin lab experiment !...gone horribly wrong.....My Hips feel as though someone hit me with a sledgehammer..
On the past..ive had Such severe headaches..and eye pain..I had to undergo many scans to try to find the Brain Tumors and or Brain Bleed...that the initial doctors were SURE..had to be invoved.....(Upon My Arrival in the E.R.)...Whatever the HEll was happening in my head (Literally..not figuratively).....Did a number on my Awareness....Mood...And Intelligence Quotion....NOT To mention..I am increasingly SOOOO Friggen Much the Pocrastinator.....I Am NOW Realizing..I SHOULD Have Written this TOMORROW!...or maybe next year...as..NOTHING Actually Goddamn MAtters...
YEAH...that IS How I Feel...
After Nearly 20 plus YEars of a So called Living Nightmare...of Everything From Constant Anxiety...Bedsweats....to Bleeding Ulcers...and IF My Freakin Mind were HALF as Sharp as it USED to be..I would readily be able to come up with something that Starts with "Z"...JUST to Make my Point....strongly enough..that maybe..."ONE"...person...would look a lil closer.at this S*** IN A BOTTLE...before..they join the Walking Wounded...(or..in many cases...the sitting on their A***ES...nearly LAME(as in a Horse thats run its LAST freakin race)...Forever Growing LIST of The Damned!..
ANy questions?...
Im at (rocket) truck (1) Where the Lil Yellow Idiot runs...no parenthesis...
I Would LOVe to Talk to anyone Misinformed enough to take this POISON!...

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did you grow after you took accutane at 14?

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I took accutane and it destroyed me email me if you want to talk, i want to change things!

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did accutane stop your growth when you took it at 14 or did you grow more? thank you

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I Did not add the Fact...that My Spine Has shrank nearly 2 inches...in the last 20 years....I have had some minor accidents...Out of which My Ribs BReak Rather Easily....When They x ray My Spine.... They (doctors) (xray techs)...Generally figure they Have My Xrays confused with a MUCh older persons....xrays...The Last time, summer of 2011, When the Doctor came to tell me id broken some ribs....She First...Made mention of My Severely Shortened Spine.....She said.."Im sure the Problem is NOT from this fall...But have You had problems with Pain..or Pinched Nerves.."...Your Spine is Shortened...To the degree.I confused You xray...with someones Much older...
I Told her...Yes..I have many problems related to Back Pain...
She also menationed the Number of Spurs...visible on the Xray....
I went back to the E.R. 3 times..over the next 10 day period...Each time..the Doctor Involved...Mentioned That I had a Severely Shortened Spine...."Quite Unusual...for a Man of My YEars"...And..My Obvious Musculature...(I am In very good Shape...for Someone with a Bad Spine...Loosley Translated...I have ALWAYS been in Great Shape...due to working 12 hour days...and lifting heavy items..in my work...
Even though...the Back pain is excruciating..
So....It is NOT like my Spinal problems are congenital...inherited..or ANYTHING but...related to taking this S*** in a Bottle..Accutane...or Amnesteem..or whatever the pushers have Renamed this POISON!...
I am A walking disaster...Increasingly debilitated...
I Will NOT remain silent....as I read of Young People taking this POISON!...
PLEASE..Look at my other posts..and contact ME First!...
I will tell you the TRUTH!....
God Bless...

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Jake,

To answer your question.....did accutane stop your growth when you took it at 14 or did you grow more?

Speaking for my son that took Amnesteem when he was 14-15 years old.....No, he never grew since than and he is now 21 years old. Thankfully he reached puberty by the time he was 15 and was and still is 5ft 10 in. He has two brothers, one that looks like twins to him although they are 3 years apart. Ryan's younger brother had a growing spell then and is now 6ft 1 in at 18 years old. According to a scale Ryan had taken when he was 12 or so years old, he should of been 6 ft or better by the time he reached 18. I have heard of so many stories of bones fusing together and kids not growing after they have taken these drugs. I hope you are doing well.

Together we are strong,
Scott

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My son took accutane for 6 months until the muscle pain became so severe I insisted the doctor stop. After 9 doctors, he was finally diagnosed with Ankylosing Spondylitis - a severe condition as a result of taking accutane. If any of you have back or tail bone pain or it hurts when you sneeze and all your tissues and tendons and muscles ache, go see a Rheumatologist and tell him to check for Ankylosing Spondylitis. The hip joints start to fuse while in a flare and it will cripple you if you are not treated correctly. I also have found a law firm to possibly take his case because he also has inflammable bowel disease thanks to accutane also. Altho it was 8 yrs ago, we are connecting the dots to accutane sure thing and one rheumatologist confirmed our suspicions once we told him we thought it was accutane.

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I agree and resonate with your post here. However, I may have a different insight or two on the food connection to accutane. I had an awful reaction to accutane that threw me for a psychological loop- I became angry, paranoid of friends, and raging for the two weeks I was on it. In addition to IBS-C, gastroenterological issues, memory loss, insomnia, and eventually diagnosed with CFS, I mow have severe panic attacks over nothing. My nervous symptom is bonkers.

I've met with the inventor of accutane. Absolutely no help, but he pointed me to a doctor, who led to another doctor, and so on.... And now I meet weekly with a pain care doctor who has figured out I have reactive hypoglycemia / extreme adrenal insufficiency.

I'm on a new diet where I eat no sugar, no bread, no caffeine and juice vegetables. I eat protein with every meal. I dropped out of college for the next 6 months to "rest." I take a small amount of antidepressants to deal with the panic attacks. I sleep every night at 10pm and exercise five times a week. Also- I'm fasting from sex, don't drink alcohol, and don't even play video games or watch movies that stress me out to the least.

I'm committing 6 months to this lifestyle to see if my nervous system can heal itself again after taking accutane. It's imperative to find a solution to post-accutane suffering, and if this lifestyle change helps, I'll contonue to share this with others.

Tests to get to check for adrenal fatigue from accutane: fasting glucose tolerance test (5 hour) and coristol test (24 hour urine). If you want a full work up to see your vitamin levels and food intolerances (my vitamin A was through the roof after accutane!) you can do so through Genova Diagnostics lab. If you struggle with CFS, they even provide you with a Kreb's cycle to view your protein to ATP production.

If you'd like to keep up with me on my journey for a post-accutane solution, email me

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I had terrible stomach pain, IBS-C, and issues after taking accutane for only two weeks. I'm finding sustenance and help through vegetable juicing and never again eating processed or artificial foods. Organic produce is your friend. Try digestive enzymes and probiotics in addition to carrot juice made from a vegetable juicing machine (I now own the breville juice fountain elite, works great).

Oh, and buy a gallon water container and drink up. Really helps.

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I have experienced/been diagnosed by a pain care doctor with "extreme adrenal fatigue" which has led to reactive hypoglycemia and the myriad of symptoms with it. I'm like a different person, post accutane. The adrenal recovery process takes 6 months to 1 year of dedicated sleep, healthy dieting, no caffeine, no sex, no alcohol to fully recover.

This may be why many people like your daughter and myself may not experience healing unless taking a proactive approach to help the body recover. I did y lab work through Genova Diagnostics, but also took a 24 hr cortisol test, 5 hr fasting glucose tolerance test, and continue to meet with a pain care doctor weekly.

I'm progressing towards healing, but it's been a painful and confusing process. Please email me with any questions about my story or research process of understanding accutane's negative impact on nervous / endocrine system functionality.

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Joey,
You ay want to look at this diet. It did help my son out.
Its called the Candida diet wich basically gets rid of yeast infections in your body. My son took this with a probiotic named Three-Lac which can be found online. I now have his younger brother on it for chronic headaches.
Best Wishes,
Scott

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joey... you mention having carrot juice but this may not be a good idea for some as carrots are high in Vitamin A. I used to also give this to my son but he had a few bad times especially when he had eaten sweetcorn which is also a source of Vitamin A. Not so good when you do the research as to Accutane being a Vitamin A overdose or equivalent of. I would suggest things in moderation and really work out what makes you feel better and also the things that make you feel worse.
Healthy Eating is good and the way forward
God Bless to you all x

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THIS POISON KILLS AND DESTROYS YOUR HEALTHY BODY FROM THE INSIDE OUT....YES.....IT HELPS THE ACNE.....WHICH...IN MANY CASES IS FAIRLY BENIGN....COMPARED TO WHAT THE VICTIM IS LEFT WITH......20 YEARS LATER...I AM A TICKING TIME BOMB OF HEALTH PROBLEMS...ANY QUESTIONS

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Dennis,
I'm so sorry to hear that. I'm 33 years old now and I too took accutane at 15 years old. I have not been diagnosed with IBS; however, I suffer from stomach issues. I also have a bad back. It went out on me a 1 1/2 yr ago. I go to the chrioprator and live in constant discomfort:(

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