2016 Cdc Guidelines For Prescribing Opioids For Chronic Pain (Page 7)
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Hey all fellow patients out there, did you know the CDC has published a list of their proposed 2016 guidelines for doctors who prescribe opioids for chronic pain? That includes oxycodone, lortab, percocet, hydrocodone, opana, suboxone, morphine, and any other drug that has an opiate ingredient in it that so many of us count on to lead normal lives! This affects all of us and the comment period ends on January 13 2016! That's about a week from now! You know the doctors are going to have to follow whatever federal rules pass so if you are worried that you might not get the care you need please go to the gov web site for the office of the Federal Register and submit your comments to them before it's too late! "The Centers for Disease Control and Prevention (CDC) in the Department of Health and Human Services (HHS) announces the opening of a docket to obtain public comment on the draft CDC Guideline for Prescribing Opioids for Chronic Pain (Guideline). The Guideline provides recommendations regarding initiation or continuation of opioids for chronic pain; opioid selection, dosage, duration, follow-up, and discontinuation; and assessment of risk and addressing harms of opioid use. The Guideline is intended to be used by primary care providers (e.g., family physicians or internists) who are treating patients with chronic pain (i.e., pain lasting longer than 3 months or past the time of normal tissue healing) in outpatient settings." https://federalregister.gov/a/2015-31375 Editor's note: Please note that the above statement "You know the doctors are going to have to follow whatever federal rules pass" is technically correct but may be misleading in this case because the CDC draft says that it is "not a federal regulation" and that "adherence to the Guideline will be voluntary." Editor's note # 2: The title for this discussion thread has been updated to reflect the topic most effectively.

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68

P450 I had a horrible epidural abcess 27 years ago after a back surgery. It was made even worse by the doctor having me on IV steroids for 10 days making the infection a super bug that took 96 days on IV antibiotics (timentin and claforan) to kill it and even now there's subcutaneous pockets of this infection sitting dormant waiting for oxygen to breathe new life into it.
This infection scarred the dural sac from L4 to S1, the nerve sheaths are pitted and scarred from L4 to S1 and I have a scar pocket the size of two softballs from L4 to S1. I have a multi-lead rechargeable spinal cord stimulator, but I also take well over double the guidelines that the CDC is recommending in oxycodone. My pain management doctor said that he had no intention of lowering my dosages of ER/IR oxycodone and could easily justify it. Granted my condition and it's severity are extremely rare, but it sounds as though you have a severe rare pain condition also.
I don't understand why a legitimate board certified pain management doctor wouldn't treat your pain at the level of medications required to provide a level so you could at least tolerate the pain?
For every good pain management doctor there's 6-7 bad ones and this is right out of my doctors mouth!
It sounds more like you're getting the not so good ones that more than likely have been over prescribing and now their scared.
It makes me sad to read people's tells of suffering when help is available, but once again Odumbo's socialized approach to one size fits all is going to kill alot of people and he could care less.
All of us are an exceptable loss for the failed war on drugs. Everything Odumbo has touched has been an epic failure, but you known he's patting himself on the back again and saying look all the good I've done once again! He actually believes he's the best president of all time, but anyone with an ounce of intelligence knows he's the worst ever!
Who in their right mind would play doctor and have innocent suffering people suffer because of drug abusers? One word, Odumbo!

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67

Fellow sufferers,

I need your prayers now for the true healer that is GOD.

He allowed me to live almost 20 years in intractable pain and identified to physicians who are gifted the P450 DNA that allowed them to treat my pain in 2012 to stabilize.

He allowed me to fight the Attorney General in the state where my WC injury occurred and I WON hands down for ultimately Judicial Law should protect the innocent.

For a year I lived on substandard amount of medication put aside as told by my famous doctor. WC broke us apart and now with 4 days of long acting left I in Texas he in California I have redone my genetic testing, filled out my paperwork and asked the one person for WC who has handled thousands of cases over the years to 'get real and help me get me back to Dr. T before it is too late no one but him could stabilize me' and am willing to go to DIRT CHEAP liquid Methadone for my DNA does not metabolize opioid pills properly they jet out of my body in 10 minutes including long acting.

I have done my best for we are human. The errors made by government must change for ADDICTS who abuse our opioids for pain are addicts they increase the heroin business for to me heroin would not work; Duragesic is 100 x stronger and my brain knows the difference between Duragesic and liquid Oxy solution; I have more then enough of the latter if my brain would accept it as replacement.

It took a genius physician and researcher to see my rare disorders and now that I am Central Pain and my brain is damaged from intractable pain my life will exist if it gets me out to the west coast pronto with pain forevermore. Opioids do not get me high, or kill those like me; they make the pain more tolerable.

I ask for prayers for God will listen to strong voices. My voice is now faint, weak, indiscernible for the PAIN is screaming, howling and demanding I die with dignity not cruelty and take my own life.

Today I ask for your strength, hope, and your prayers. Send them to Dr. T. so he makes this happen.

Thanks...

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66

P450, the vast majority of Medicaid Providers won't do the paper work that it requires to support an appeal.

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65

To All,

Do not be mistaken many physicians suffer intractable pain, as do many professional nurses. However, the physicians have one another to bounce around to. There are several who post on this forum who have stated one doc writes them this drug another
writes him that drug.

For you as a patient that is called doctor shopping; however, they suffer but cover themselves in other ways.

The Hippocratic oath is 'do no harm' and when I die in a few days there will be harm, finality, and for the 10,000 plus IP patients in suicidal pain I referred, handled, and loved since my injury may God bless each one of you...Remember until this political crisis ends stay with whoever is writing for you; they will see what to do and their conscience will dictate their pen when they write your triplicate.

I have now won in Court three times on current issue; no medical care for a year left to rot and die, because my famous had me put aside I lived another year but it was a bad year the entire time in suffering am now bedbound. Now they are going to send me to him and he never got rid of me but they involved both sides separating us. Only he could take someone as bad as me and write for me.

The key now is Duragesic at very high levels since I am an ultra rapid metabolizer has kept me walking and due to what the insurer did I have demanded to be put in a hospital out there if I can make the trip I am almost out of medication and won't make it if they do not move fast so I can go from Duragesic to liquid Methadone the most DIRT CHEAP long acting known to man. In that way no one can control the cost I paid almost $2,000 for 10 patches and yes I am on a 100% medical award for life!

I hope to be here but chances are within this period I will end my life with dignity and self respect not going cold off the level of patch for me which is too low but kept me alive and would knock normals out that is it for me.

Hold tight those of you who have a PM keep your mouth shut and let these doctors come to God. Obama will pass like a fart in the night but America will persist what has happened to us is due to his little dictatorship. He needs two kidney stones pushed into each ureter and then to be told we can give you an aspirin...That is the truth.

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64

Spyz,

You are sounding like the CDC. Those with real intractable pain require relief with opioids. Marijuana does not kill intractable pain also can increase paranoid, and anxiety. It is a JOKE.

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63

To All,

I just gave the CDC my comment. This is it below...

I am a professional nurse who was injured on duty in 1998 I have progressed to Central Pain Syndrome.

First, the overdoses being charted are DUE in WHOLE to those illegally abusing prescribed medications.

Second, true pain patients become opioid tolerant which a trained physician (even a GP) knows, and can adjust safely without negative outcomes. Attempting to dictate a morphine equivalent level is KILLING your legitimate pain patients.

Third, I will likely die in 4 days due to your CDC recommendations. I was injured at work and again have seen the top specialist in America after my PM of 10 years died. I am a P450 ultra rapid opioid metabolizer and labs show this. These CDC recommendations are causing such fear in physicians that those like me who are well deserving of medications are being dumped, discarded like used toilet paper. This is an injustice.

Recommendations should be felony incarceration for anyone abusing prescription medication on the street that is where your overdoses are coming from. One disorder of 50 I have RSD is researched at 88 x worse than end stage cancer.

I can only thank you for killing me and making addicts get compensation for breaking the law. The government has no business telling physicians how to prescribe unless they too are criminals.

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62

I am so sorry for what you are going through--have you considered Cannabis for the PTSD, seizures, pain and other symptoms?

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61

Cynthia,

Medicaid is different in every state. Here is the issue. Years ago when I did my 10,000 suicide pain level patients Ohio changed formulary. First they cut out Duragesic for Medicaid patients, then Oxycontin.

On Medicaid in every state there are exceptions. If so then people on that drug must arrange a new drug or ask their physician to file for the exception and while waiting go on something else, not just die.

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60

To All,

Most know my story I am an ultra rapid opioid metabolizer and there is a lab test done to support this. I have been with the now most famous pain specialist in California.

In 4 days I will die. Even tapered down to 300 mg morphine equivalent which kept me housebound I am now bedbound. I won in Court against the WC people who were attempting to reduce costs and I require brand Duragesic for long acting have multiple allergies and pills do not work for this DNA we metabolize them before they get to the gut. Liquid Oxy solution 500 mg/5 ml is my short acting.

I won in Court and they chased my famous physician away. Now within days of having nothing I must commit suicide and die with dignity or hope that my famous physician takes me back. Due to cost of Duragesic I have asked to be hospitalized if he gets me in time and put from Duragesic to Methadone which a homeless person could afford.

This is for GP's not specialists. This is all due to the current leadership in Washington and I advise you if you have a PM stay with them; do not change and ride this storm.

Scientific evidence shows that opioids are the safest and best way to handle intractable pain.

God bless

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59

Ty Mark. If only the drs could rethink what there prescribing. Ty for your comment.

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58

Jenny, State Medicaid Programs each have their own list of restriction and limitations in addition to the laws and guidelines. Most, if not all, Medicaid Programs are many more restrictions and limitations than any other insurance, government or private. The proposed CDC Guidelines have nothing to do with how each State Medicaid Program governs their health care.

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57

medicaide in past 6 months has killed 4 of my nieghbors been on same med. 25yrs or more then just cut off.Was not overdose it was inhumane pain could not live with anymore

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56

Jaxx you need to be careful of your NSAID use. There's a mountain of studies which show how long term use of NSAIDs can cause heart attack, stroke and gastrointestinal problems like ulcers. Over 16,500 people die in America from bleeding ulcers caused by NSAID usage and another 100,000+ are hospitalized. These are some of the reasons doctors stopped long term NSAID usage in the past, but because of these new guidelines with opiates they appear to be looking the other way on these NSAID studies. Nothing surprises me anymore on what the government will pull next on the innocent. After all suffering human beings mean less than drug abusers now...

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55

I agree. I had back surgery almost six yrs ago! That failed, they call it failed back surgery syndrome. And I got scar tissue on the nerve on my spine. And my pcp don't want to prescribe percocet that has helped before as long as take as needed!. So bcz of ppl abusing it, is ppl who have the chronic pain 24/7 have to take nsaids. Really they have put me on every nsaid around an a muscle relaxer methocarbamol aka roboxin. I feel very little relief. So now I have to suffer an have a hard time gettn up in the morning. Now my routine has changed to it takes about 4 hrs for me to get out the door with getting ready. I have to take long hot showers. I sit with a hot pk on my back every morning while drinking my coffee. Life now has been miserable since this surgery. Honestly plenty of drs said I would need the surgery by the time I turn 35. Now 41yrs old an I'm out of work, I'm very very depressed, and I always had a very clean house that now I'm so overwhelmed and anxiety is up because I have a hard time moving around. Takes hrs to do my things I did before. No dr seems to want to help. They automatically think we're all addicts because these narcotic medication are all that helps the pain. Ok so I understand they don't want ppl to get immuned. Either way your immuned because we need it. Believe me I don't want to take anything if not needed. I never took tylenol unless I couldn't handle the pain. But really the ones who want to stop prescribing these obviously have not had any type of chronic pain to know what it's like to live with. Anyway what I'm getting at is. There got to be other ways they can prescribe it and monitor the people on it. Or the ones who make it can't they come out with the same medicine but do something with the opiate part of it so that ppl won't get addicted to it.? With everything they can do today with technology there has to be a way where it can help the exact same but not have the addiction part to why it's doing that. And drs are the ones who prescribed these pills to begin with an knowing with the schooling they learned to be a dr knew and know the affects it has on ppl. Must remember some ppl didn't think they would be addicted because it was given by the drs. Anyway. I hope they can do something where the ones like us who have the chronic pain can get something other than nsaids which to me is like eating a tic tac. It does nothing to help the pain subside. And I feel like oh yeah they cared before to do the surgery to get there money. Then when we're like this everyday and I feel like I get treated very wrong. It's not right. And it's not fair to the ppl who really need it and the ones who been taking it and have no problems with it. I need it to help the pain and so I can get things done in my home. No one should have to suffer with chronic pain bcz of this. And I had lower lumbar surgery and 6 screws and 4 rods. Every day I regret having the surgery done. Thinking if I didn't would the pain be more intense then what I'm feeling now or would I be able to bare it. If I knew then what I know now that I have to be like this everyday, would not have had this surgery done. I also have other things going on with pain too. But this is the main one that I need medicine to help it.

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54

There is a link right above your post with the guidelines. Look for the post by Roy, click on the link

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53

FDA is not DEA.

Obama is behind 99% of what pain patients are suffering I suggest anyone here with a pain doctor stay with them and hold out as best you can until this situation eases up.

As a professional I know that opioids are the BEST and least adverse for intractable pain and the government has no business telling physicians how to do their job. End of that.

Your 99% of OD's are non prescribed drug abusers. Keep your medication locked and accountable and stay tight through this joke. FDA has no DEA rights and the DEA will not tell a physician how much but how to LEGALLY prescribe if they lack documentation and follow through.

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52

Qualified pain clinics are not even prescribing more than 120mg in Tennessee is the patient is thrown on medicaid due to income.

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51

Oh wow. They are wanting to kill people off real fast. =/

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50

I agree with you Jenny I have gave up on my last Floricet w CODINE my crummy private insurance One Who Helped Craft OBAMA CARE UNITED HEALTHCARE THEY HAVE THERE OWN PHARMACY SO now they will not fill my Last Pain Script I got let go by my DR 9-8-15 I still think we are being discriminated against WHY DO WE GET SQUEEZED AND NO ONE CARES AT THE LEAST. I GUESS IF YOU ARE NOT WEALTHY ENOUGH WHERE YOU GET EVERYTHING YOU WANT WE ARE NO ONE. THIS COUNTRY GIVES US BUT OUR VOTE AND IM SORRY TO SAY OUR OFFICIALS QUIT CARING ABOUT CHRONIC PAIN PATIENTS I KNOW THE POLITICIANS ALL LIE BUT LETS ALL ASK ABOUT OUR MEDICINES WE NEED FOR A LIFE WORTH LIVING THAT IS A RIGHT I THINK ASK ABOUT MEDICAL MARIJUANA. THE FIORICET THAT THE GREAT FOLKS AT UNITED HEALTHCARE THAT MY INSURANCE WITH THEM WILL NOT PAY THE REP TRIED TO TALK ME INTO A SMALLER AMOUNT OF MEDICATION I SAID NO THEN I WAS TOLD I CAN BUY IT FOR $3,357.82. It's ALL ABOUT THE MONEY and why would a drug that comes from a flower COST SO MUCH? All the $$ and the BUY IT NOW PRICE I LIKE EBAY BUT THIS DOES NOT MAKE SENSE.

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49

To All,

This is for GP and internists. Did anyone look at this? It is not for qualified pain specialists.

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