Xarelto Fluid Retention (Page 5)
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I had to take Xarelto due to two sinus venous thrombosis in my head. 8 weeks of heparin injections showed no side effects. But with the first day of taking Xarelto my body reacted by retaining water. Within the first three weeks I gained 24.46 lb hill exercising 5 times a week and eating as I always did. After retaining more and more water I stopped taking it after three months. I started with a weight of 120 lb at a height of 5''8 and now I weigh 157 lb. I have to ad that I started taking it in the middle of March and stopped taking it at the end of June. I was not able to loose any water/weight. I eat less than I always did before even while I exercise. All doctors couldn't find the one thing that changed through Xarelto. Has anybody ever experienced something like this while taking Xarelto??

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Sigh.....I agree. I guess doing everything we can including dieting helps us all rationalize that we are leaving no stone unturned. I can sense that we are all extremely healthy individuals who are highly disciplined and intuned with our bodies which is what makes our situation so difficult for us to deal with. Most average people would not be affected so greatly by our situation, they might not even Make the connection or just blame it on something else. We know better...

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Definitely agree there is something inside us xarelto messed up...i guess we are all hoping all our brainstorming on here will figure out what it is that our body needs to heal...i am sure someone out there that helped develop this drug knows what our problem is... Too bad the drug company won't even acknowledge it is a problem. The lemon water seems to work for me so far so I will stick with that until we find something else...

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@Tamara - Re 1-2 years... Oh, I hope not!!! I've got to fit into my Scuba suit by the end of summer!!! :-)

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I don't think dieting is the answer. In May of 2016, I started drinking lemon water, ate clean, used the sauna, never lost weight. Ramped up the lemon water during lemon season(we have a tree) still nothing. I think the weight we lose is fluid, which just fills up again because something isn't working properly. I'm presently trying Garcinia cambogia, and organic apple cider vinegar, but deep down, I feel that is not our problem. I notice people begin to finally get better after being off Xarelto for a long time(1 to 2 years?!) Something inside has to heal?...

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Thanks mtnspirit! Also just bought a hydro massage package 5/100.00 they are 15 min sessions & they are amazing. So many wonderful benefits. Thinking that might help w/the skin appearance. They aid in circulation & expelling toxins from body amongst other things. If you have access to them I highly recommend one.

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Good luck to supermommy43 and mtnspirit...I am down 2 more pounds since starting the lemon water all day and normal eating... That is about 7 lost since last week of January.... I know what you mean about the cellulite... Never had it either or stretch marks even after 2 kids.. Now both.... Thanks xarelto

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@SuperMommy - Eating so few calories may actually result in a weight gain... I'm having good results (started 3/1) so far: Start day with 1 lemon juiced and mixed with filtered water. 1 protein (1 HB egg or other lean protein) + 1 fruit (citrus, berries, apple, pear, low sugar fruits - not melons/pineapple). 2-3 hours later, enjoy a fruit snack, 2-3 hours later enjoy lunch 1 protein + 1 veg (unlimited lettuce, celery, stick to low carb veg, not potatoes or corn/carrots/peas), 2-3 hours later, 1 veg, 2-3 hours later 1 protein + 1 veg, 2-3 hours later 1 veg. It's more than you're eating now, but will fill you & keep the metabolism going through the day. I'm down 5 lbs since I started on 3/1 & not hungry. I enjoy black Earl Grey tea through the day. I'm hoping the weight loss will continue at a 5lb rate / week :-) I've got 40 lbs gained in the first 6 weeks of Xarelto use to lose.

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So I saw that this conversation started again. Since my last post I have been on a juice cleanse w/only 2 boiled eggs per day & lemon water. Still working out hard yada yada...this weight loss is SLOW & requires extreme methods. Weight watchers did nothing for me even after a month w/no cheating. Something else I've been doing which is showing the slightest difference in my skin appearance is I've been rubbing my skin in the shower really vigorously with exfoliating gloves until it's red to try to stimulate my lymphatic system. The appearance of cellulite has been the worst for me to come to grips with b/c I've never had to deal w/that in my whole life.

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That is interesting about the fibroids... Lo loestrin can cause dvt also just looked it up on Rx list... I know I got mine .. Left leg groin to knee... Because of my back surgery.. But if you didn't have any surgery or pregnancy that can cause blood clots I would be looking at the lo loestrin as your culprit. And people wonder why I hate to take medicine... Lol

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It's interesting that we all gained on average 25lbs of fluid. My stomach still looks like i'm 7mo's pregnant. Uncomfortable. My calves and breasts feel heavy as well. I had a dvt in my left leg from groin down to calf. Was on xarelto almost 6mo's. I remember my gyno telling me I had fibroids a couple of years ago. She put me on Lo Loestrin and said eventually they'd go away on their own as I got older (less hormones). I've since read it's widely known that fibroids can lead to DVT's???

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I didn't take anything like that because I knew it would make me more susceptible to a bleeding incident and I still got the fluid weight... It might make the fluid retained greater but not sure

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Hi. I remember someone saying in the blog don't take fish oil pills or vitamin E while on xarelto. I took it the whole time I was on it. I wonder if that made a difference?

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Don't go off it without talking to your doctor and finding some sort of alternative to treat the condition you are talking it for.... I was lucky and only had to take it for 6 months for a blood clot but I gained about 27 pounds of fluid in my abdomen, hips and thighs.

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I have been on Xarelto now for a little over a month. I fell a lot of pressure on my stomach and my stomach is very hard to the touch. Do you recommend that I stop taking these pills?

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It is working for me for sure... I have lost six pounds since I started it and it seems to keep going... Glad I might have hit on something helpful.

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Tndrhrt57 I think your totally on to something w/the lemon water!! For the last 7 days or since u posted that I've been drinking the juice of one whole lemon in a large glass of water every day on an empty stomach 2hrs b4 a meal & I have noticed the slightest change in my skin's elasticity as well as my calf size. My hunter rain boots used to be loose before xarelto, then I couldn't even get them on now they fit again! They are still very snug but at least they fit again! I am going to continue this ritual every day & check back w/everyone in 3 weeks. I urge everyone to do the same & let's check back in 3 weeks! GLTA!!

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Hi everybody. I remember someone posting that xarelto is very protein binding, and lowers your thrombocyte levels. A couple things could be at play: We could have leaky capillaries. Humans require a certain level of protein for effective water balance.Someone with a protein deficiency may find it harder to get the water from the tissue spaces back into the capillaries. The enlarged abdomens of the malnourished are mainly caused by lack of protein. When inflamation is present,histamine is released. Histamine causes gaps between the cells of the capillary walls to widen, making them more leaky. Some remedies I've read include: Coumarin rich foods(especially parsley and celery) Coumarin helps macrophages break up proteins which have leaked into the tissue space. Also: Raise legs several times a day to improve circulation,support stockings, Foods high in antioxidants-strawberries,green tea, brusel sprouts, beans,onions apples, citrus, Also quercetin, rutin, to help repair capillaries. 100%cocoa, (has 2x's as wine, and 3x's as green tea of antioxidants. Vitamin B, Turmeric and Magnesium. I also take Green Vibrance daily. A diuretic could actually make our problem worse I've read.

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Caveman... I was thinking about that also... However as far as blood type I believe I am A+...I know my cholesterol is slightly elevated but nothing of the charts... I was a former smoker; quit for my surgery and was using nicotine patches during part of my xarelto treatment...I was thinking also about drug interactions. It is a puzzle for sure. The only thing I have done that has helped any so far is drinking water with 2 slices if lemon as my preferred beverage of the day. I know as upset as we all are about this we won't rest until we find an answer.

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I am in for any legal action as well - this is a dangerous drug and people should be made aware of these potential side effects. Question - is there anything common between those of us that have been impacted? Say for example our blood type?
I am O negative - anyone else with the same? (just searching for an answer)

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Now we know the reason the doctors don't seem to care...

fiercepharma.com/pharma/j-j-s-xarelto-abbvie-s-humira-shelled-out-most-doc-payments-last-year

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