Xarelto Fluid Retention (Page 4)
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I had to take Xarelto due to two sinus venous thrombosis in my head. 8 weeks of heparin injections showed no side effects. But with the first day of taking Xarelto my body reacted by retaining water. Within the first three weeks I gained 24.46 lb hill exercising 5 times a week and eating as I always did. After retaining more and more water I stopped taking it after three months. I started with a weight of 120 lb at a height of 5''8 and now I weigh 157 lb. I have to ad that I started taking it in the middle of March and stopped taking it at the end of June. I was not able to loose any water/weight. I eat less than I always did before even while I exercise. All doctors couldn't find the one thing that changed through Xarelto. Has anybody ever experienced something like this while taking Xarelto??

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How much lemon is everyone putting in their water, and how many glasses a day is everyone drinking? Also, I noticed on Post 70 Lou said his blood tests showed he was low on iron, and lost 15lbs after adding it?? I might add a daily iron pill?

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Good luck... I hope you find the right combination for you... Lemon water and I'm down 17 lbs since January... At least now I don't feel like an overinflated water balloon.

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Hi. Just checking i n. It's been a year since I've stopped taking Xarelto. Was on it almost 6 mo's. Like Supermommy, I'm beginning have more energy, however no weight loss yet. I've gone through a large Bragg apple cider bottle, bromalain and turmeric, celery, parsley, and lemon water. I just did a 14 day Renew cleanse. I'm working out 1 1/2 hrs(spinning, weight lifting, and eliptical. No high impact.) Also napping sometimes. I'm going to try the celery first thing in the morning, and up my lemon water intake and wait...

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Thank you both! I am down 7 lbs since starting lemon water... I've got a LOT more to go, but it's something. All the best to you!

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I'm just happy we finally hit in something that helps... With the lemon water I am down at least 15 pounds...I have had to ease up on it a little now the hot weather is upon us... But I do feel so much better having got rid of some of it... My blood pressure doesn't seem to fluctuate as much either... Sincerely hope others are having as much success.

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Just checking on everyone's progress. It will be a year in August that I've been off Xarelto & im JUST starting to see results! The 3 things that I have been doing/taking religiously are lemon juice in water, balance of nature brand supplements & biking. I feel my energy level rising & im actually starting to feel comfortable in clothes that I couldn't even fit into 6 mo ago. I'm sending positive thoughts to everyone hopefully you all will begin to see results soon too. It's been & still will be a long journey but I'm glad we're here to go through it together.

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Hey @Stef! I was on Coumadin 6 years ago for 6 mo & I did get abdominal bloating...but it never affected my muscular definition anywhere else or gave me this gross orange peel cellulite skin I'm still dealing with. The water weight was isolated to my abdomen only. Also once I stopped the drug it took about 6-8 mo & I was back to normal again. It will be a year in August that I stopped Xarelto & I was only on it for 3 mo!! What happened to us?...I hope we will find out soon.

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@Stef, Regarding the frequent blood work with Warfarin - if you can find an anti-coagulation clinic, they make life soooo much easier. Once you're stable on Warfarin, there are at home tests to enable you to self test & send your results to your doctor. I'm not sure of the costs or what is covered by insurance, but it is worth looking into.

@Tndrhrt - I'm right there with you... my drs think it's nothing, but obviously Xarelto screws up my ecosystem & the effects seem to be lasting. I'm hoping that with the warm weather & moving more outside will help ease the side effects that haven't gone away.

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Hi everyone, just wanted to chime in and add my evidence! I am 21 and got a DVT in my right leg (groin to calf) while in Italy in January. I was put on a new drug called edoxaban, but was switched to xarelto in mid February since edoxaban is not commonly used here. So far I've gained 15 pounds since being on this medication and I've been exercising extra and eating as I always have (healthy). As everyone else I am worried about the potential permanent effects and am wondering if the same side effects occur with similar drugs like eliquis? I gained weight while on edoxaban as well so is it likely that all the Xa inhibitors have this strange water retention effect? I'm considering switching my medication but don't want to deal with the frequent blood work while on Coumadin. Thanks for everyone's input!

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You are right about that... I have expressed my concerns to my vascular specialist that prescribed it as well as my PCP and even my pain management doctor all have acted like I was nuts. We have got to find someone to take us seriously as having this much extra fluid is hard on the pulmonary system and the cardiovascular system. Not to mention the wear and tear on our muscles and joints from the extra weight. And yes I am glad to be alive but I am also very worried about what else this is doing to our system.

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I'm afraid that unless someone dies from the water retention/weight gain, we won't have much of a case... :-/
Obesity does raise risk of getting a clot - so even though Xarelto may help, we may suffer ill health from the side effects, we should be thankful, as we're still alive to complain/suffer. Lawyers love debating perspective. I'm hoping the lemon water/celery increase will help with the side effects still experiencing after stopping the meds 6 months ago.

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Caveman I also take 2 tablespoons of braggs apple cider vin in 8 oz of water an hour b4 bed & sub lunch most days with a Kachava shake which is packed with healthy energy boosting superfoods. I have also contacted 4 different lawyers who although sympathize with my complaints & believe them, they are swamped with deaths & seriously dangerous side effects. Our problems with fat/water retention seem trivial even though they are serious to all of us. The problem is we need to show proof from s medical test to bring something forward. Has anyone reached out to a hematologist? Or endocrinologist? Expressing our concerns & requesting tests from specialists might be our only hope in finding a cure. If we can figure out what this drug did to us then we can figure out how to fix it which is what I really believe we all want.

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Supermommy43 I noticed that too... Even If I am away from home and don't drink as much lemon water as usual I feel it... Also for some reason eating pork is now a no no for me... Weird...Now that they have finally acknowledged our symptom, which probably isn't as rare as they think it is, maybe they will work on a fix for it. Meanwhile at least the lemon water keeps me comfortable.

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Caveman, I think it's the lemon water that's having the greatest effect b/c it is a natural diuretic & I was starting to see a difference in my skin's texture & abdominal bloating. The only problem is that when you don't take it for a few days in a row your symptoms return. I missed it for 4 days & saw a difference....which leads me to believe that our bodies are still holding water b/c of something that was affected by Xarelto. Also If you look at the new updated symptoms it does in fact include water retention! Doesn't say anything about permanent water retention which we are all dealing with, but at least now they are acknowledging it as a "rare" symptom.

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There are 3 things that I have been doing over the past 4 weeks that have made a significant difference in my weight and abdominal bloating. The only thing I don’t know is which one has the greatest impact. A couple of things tndrhrt57 had posted caused me to do some more research and I found this article: “The Super Food That Can Heal & Repair Your Gut”, elissagoodman.com. Could Ammonia Permeability due to low HCL be our problem? My Program - eat celery on empty stomach first thing in the morning, lemon water during the day, and limit Total Carbs to 20g/day (Total not NET Carbs). Calories are not limited - eat until satisfied.

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Hey y'all check out Ashley Black & fascia blaster. Her story is inspiring & her explanation on the cause & cure of cellulite is enlightening! I'm gonna order her product! Watch her video! There might be hope for us all!!

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I will definitely check that out... Have you made any progress yet?

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Hi. I came across a good website to check out: Water-retention.net. She is an expert in water retention; wrote THE WATERFALL diet. There's a lot on the website to look at. Also, she recommends seeing/finding a Naturopathic doctor. She said they train in these areas.

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You guys make me feel like I'm not alone. You're messages are very insightful! Thank you fellow problem solvers!!

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I know I have done many hours of research myself trying to figure this out... I was a paramedic for 30 years and before I got injured was studying to be an RN... So with all that medical education and I am still baffled as to what it has done to us... Not to mention still frustrated as hell... I have never had a problem this difficult to figure out... But I don't think any of us are ready to give up and accept this.

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