Multaq Anyone Else Take It (Page 30)
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Okay I will start off by saying this drug scares me because it has not been out for very long. I have Afrial Fib which is not behaving I can be 70 beats one min and regular and the next I will be at 190 and in atrial fib and flutter. this is my last chance at a med I have tried all the others I usually end up in the ER two or three times a week. I have had one ablation so far. If anyone else takes it please let me know what it is like. I am starting it on Tuesday.

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Yes Jeanne,I've been on Multaq for 14 months, it's not working at all anymore and I'm constantly anxious. In fact my hands shake, so I know I'm not at complete rest. I am in AF almost every day now. I have been on a waiting list for ablation for these past 14 months, am feeling so desperate that I'd like to ask American sufferers if they know the cost of ablation in the States, really do not want to keep waiting.

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I am taking magnesium oxide (from Walmart) and 2 separate pills of calcium citrate with vitamin D. The dose is 630mg and 500 IU per 2 caplets (Member's Mark brand from Sam's Club). I am not on any heart meds. Everything my doctor tried, made me sick. I take a lot of food supplements daily.

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Has anyone on this forum experienced bouts of anxiety while taking Multaq?

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I thought I was the only one to be frustrated with Multaq
I had a personal trainer, but I am unable to work out because of the governor the Multaq places on my heart. I am out of breath from walking up the steps at home. I went to an art exhibit and was sweating from the roots of my hair. Vanderbilt Hospital cariologists say that Afib is curable but I read and hear many different opinions...non of which are the same. Someone else had joined the conversation with Andy as a first name so I changed to coach to be less confussing for all readers

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HI I am on multaq and am in arythmia but with low heart beat of 70. Cleveland clinic recommended your drug for my afib. How has it worked for you?

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connie--do you take the magnesium with calcium? What compound do you use e.g. mag orotate or mag oxide? Are you also taking Multaq? Thanks for your post.

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I have been taking Multaq for about 2 weeks and my heart still goes out of rythm. I eat a hardy meal before I take the medication but within 30 minutes of taking 400mg my heart starts to flutter adn beat irregularly. I had an ablassion 2 years ago and it lasted 9 months. I am concerned that nothing will fix this issue

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Tutsi, my mini maze was done in Southern In. at one of their hospitals. I was 67 at the time. The procedure requires deflating one lung, temporarily, but didn't cause any problems. It did not last as long as an ablation, (which didn't work for me.) You might check with any university hospital in your state if you can't travel to Cleveland.

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Cleveland Clinic is one of the best hospital for heart info. You do not need a doctor's referral for an appointment. Medicare pays for your check up and any treatment or surgery. Worth checking into.

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I and others have tried this with success. I take 500mg of magnesium 2 to 3 times a day. It keeps my heart beating very normally. It relaxes your heart muscle and arteries and most people are deficient in this mineral.
My doctor wanted to put me on medication but I tried this first and it works great. Caffeine can also be a cause of palpations.

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My apologies to Andrew. The reply was meant for Ralph - he is the one who had the mini-maze.

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Hi Andrew, when did you have the mini-maze and if I may ask you where did you have it done?? I live in Ct and there are not too many places where they perform it. Yale-New Haven Hospital used to do it but no more.
And being an elderly woman I might not be a candidate for it anyhow - if you are healthy with no other health problems and younger, then anything is possible.
They say it is more invasive, however, it has a less of a chance of getting a stroke like with ablation even though the doctors give you blood thinners while they are ablating you. If you don't mind telling where you had it done I would really appreciate it. Thanks Tutsi

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Andrew, I am glad you are off Amiodarone. If you were on it any length of time I am sure your doctor will keep checking various enzymes for you. Amiodarone stays in your body for a long time as it is not secreted by kidneys or liver. I am just an elderly woman with an A-fib - have thought about ablation as well as "mini-maze" - but doctors who perform ablations say that mini-maze is not a long term solution-a-fib supposedly comes back in no time. But there is a gentleman named Ralph who had mini-maze and he did reply on 1-18-11. He knows the best how things are working with the A-fib.

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Just back from my cardiologist and I am off Multaq!! Based upon the liver toxicity forcing them to be removed, a serious issue! We are switching to a rate control strategy versus a rhythm control path, as it seems most rhythm control drugs suck, in both my cardiologist's and my own words. I'll post in a month to see how our rate control strategy is working out.

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I am exactly trying go do that, my Dr. dropped the amiod and started ms on Multaq, which us like amiod lite. I was without my CPAP machine for a couple of months, and drinking 7 cups of caffeine every day and couldnt stay in NSR with Multaq. Then it went back in. Then out again. Now I've been out since 12/24, but with no more caffeine and no more alcohol, I think it will convert back in on it's own. My Dr. scheduled me a cardioversion, but it went back in on it's own, so I cancelled the convert. I will give my current test of Multaq through March a shot, then, another suggested drug, I have to go into the hospital just to get started on, so why not convert then? I'm not a fan of ablation, don't think the technology is perfected yet.

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I had called Cleveland Clinic to talk with a doctor about A-fib via phone and they have that service, however, I found $500. or so to be a bit too high for me at this time.
Also I read some articles of the individuals who are taking Multaq and I am glad it's working for them.
There is a warning on internet by our federal health officials that Multaq "may" cause liver damage. it was written by Matthew Perrone/1/14/11 - worthwhile checking your liver enzymes!! You may Google it as: Matthew Perrone Multaq to get the article.

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I just called cleveland clinic inquiring about video/skipes appointment consultations. They do not have this feature with this type of technolgy available . we use this all the time in the telecomm industry with password and encrypted ip. does anyone know if any of the top ten hospitals provide this type of consultation?

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I have been on Multaq since the end of October. The few side effects I had at first went away and I can honestly say I have none now and feel really good. No, I don't like taking it, or any of the other meds I take either, but it has taken away my pounding heart palpatations and for that I am grateful. I am 67 years old, and fortunately and very thankfully, my insurance covers most of the cost. Thus far I am happy with Multaq. I just hope it continues to work and that a year or two down the road they don't find out it causes cancer or worse problems.

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Multaq sucks. It's too expensive and doesn't work. Your mileage may vary. I was taken off of amiodarone last summer. Why? My A-Fib episodes were being held at bay but I was tending towards hyperthyroidism. So the EP put me on Multaq. Now I have more frequent A-Fib episodes, of longer duration, new aches and pains in my joints and mild depression. And even when I'm in sinus rhythm, I can't exercise like I used to when I was on the amio. It's as if the Multaq keeps a lid on the heart rate. At this point my options appear to be Sotalol or something like it, or ablation. I believe Multaq is dangerous as well as ineffective.

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he converted me first. I have been taking this drug for about 7 weeks . Have gone into afib 2 times probably becasuse the first time a missed taking the pill once on two ocassions. I have found playing sports returns me to a slower heart beat about one hour after my activity
hopes this helps .ps cleveland clinic did not recommend an ablation .

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