Multaq Anyone Else Take It (Page 29)
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Okay I will start off by saying this drug scares me because it has not been out for very long. I have Afrial Fib which is not behaving I can be 70 beats one min and regular and the next I will be at 190 and in atrial fib and flutter. this is my last chance at a med I have tried all the others I usually end up in the ER two or three times a week. I have had one ablation so far. If anyone else takes it please let me know what it is like. I am starting it on Tuesday.

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273

i have been taking multaq for 8 weeks. I have gone into afib and decided to take 500 mg of magnesium oxide . well I'm in normal sinus rythm since I started this . dosage . spoke to my doctors chief assistant and I detected they were upset. maybe because this decision effects doctors bottom line.I experience some flutter toward the end of the day so I'm thinging of taking 250 mg at around 6 pm .Have you tried this. ps most important when getting a blood test request the following an enzyme test for the multaq interaction with the liver and a magnesium test to insure proper levels of magnesium

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272

For tutsi< Thank you for your input. I have been on Multaq for 4 months. My side effects are tiredness and sometimes I feel sensations in my hands an feet, my a fib episodes are few and far between and bp is being managed. Wish I could come off this drug but my dr said I may not be able to tolerate other medication that is used to control afib. Have also had bouts of anxiety.
Not sure it is the Multaq or extra stress I am under at this time.

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271

Hi Jeanne,
I have been off Multaq since 12/28/10 and was on it only a week for the purpose of electrical cardio version which did not work. -
So, it's been now about a month I have been off of Multaq - the side effects are still with me, feet and ankles are swollen even though I am on 60mg of furosemide (lasix) systolic pressure is giving me trouble it shoots up just like that from the slightest movement, diastolic pressure seems to be OK most of the time - my B/P medicine was increased to 50 mg, losartan (cozaar) - my breathing is getting better and pulse is getting better also.
This drug collects in your liver and gets out of your system by "lifetimes" - can't understand it and can 't explain it to you. The first half lifetime takes about 19hrs to get out of ones system.
I was told that I am free of Multaq???!!!
Hope this answers your question.

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270

ty so much tutsi for the info all this is new to me and i just hope they can fix this i am on multaq and also on the blood thinner thing and i havent had any side effect from it and sure hope i don t but i will look it up under google and see what i can find out

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269

This is for Tutsi, what type of after effects are you having from taking Multaq?

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268

Hi CSmith
I had electrical cardio version about a month ago and it did not work after being on Multaq for one week - now I have after effects from that drug something awful.
I am not a doctor so I cannot tell exatly what ablation is although I know there are several types plus mini-maze.
Please go to google and type "the treatment of atrial fibrillation" then click - it's about the 5th item on the page click on that and it should read "University of Michigan Electrophysiology Service" - "dated July 2009" it is an excellent article and it will give you all the info that us laypeople understand and then you can bring the article to your doctor and ask how each different procedure works and which might be the one for you. Hope this is of help.

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267

Hi Coach,
You did nothing wrong in seeking a second opinion - any doctor or "ologist" who does not like it they do not deserve to be your doctor - get another one - call the state dept. to find out how good such and such a doctor is, if they have anything pending against them - say adios to this doc - it's your heart and you have the right and responsibility to get as many opinions on it as you like. I am one for 2nd, 3rd and maybe even 4th opinion - it's my A-fib - and as far as meds for me for now no antiarryhthmic drugs for me - like Multaq etc etc. Good luck to you - I kind of like teaching hospitals they have lots of cardiologists as well as interns and when all of those brains are put together they have bunch of opinions. Many people do not like teaching hospitals.

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266

yeah i am wanting to learn more on this affib thing it is scary sitution that is for sure i know the cardiology mentioned shocked the heart what ever that means dont even sound like something i want to know the multaq is working for me right now so i am hoping that it will continue to work all i can do is hope right now till they figure out something else

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265

So I thought I would get a second opinion on what could be done with my AFib condition. I went to my regular cardiologist and he got mad and said he would no longer be my doctor. He told my wife and I to go start at the beginning and flounder are trying to figure it out by yourself. I thought it was smart to get different approaches to medical treatment...did I miss something here?

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264

what is ablations if someone can tell me i have afibb with retrial flutter and they are saying it comes from sleep apnea i am not sure how true that is just got out of hospital with this problem

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263

Olen suomalainen ja asun Vantaalla. Nyt olen kayttanyt Multaq laaketta noin yhden viikon. Minulla haittavaikutukset ovat sangen vahaisia. Ehka pahin on matala leposyke, tallä hetkella se on 46. Aballaatiota ei minulle Suomessa tehda, koska olen 69 vuotias. Suomessa ei Aballaatioita tehdä yli 60-vuotiaille. Jos haluat, kirjoittelen lisaa kayttokokemuksista suomen kielella. Kaytan tekstissa a ja o, ei ö ja ä. Kuulen mielellani myos sinun kommentit.

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262

Thanks Ralph it does help. What I have been told by doctors is that those PVC's will eventually go away. Hope that is the case for you. I wish you lots of luck without the A-Fib.

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261

Tutsi, the mini maze was done in Evansville, IN Dr. Cefali, with the Heart Group. This was done in 2009. Also, those on Multaq, the Cleveland Clinic doctor that told us it didn't work also said it causes diarrhea. I don't have atrial fib any more, but still have pvc's. I have a healthy heart,, except for pvc's . If they start to weaken the heart I will probably need an ablation on the lower part of the heart...this doesn't come without risks. I am thankful that the atrial fib hasn't been a problem for over a year. I had it for 13 years. Everyone is different how their arrhythmia works. Hope this helps.

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260

I was sick sick sick on Multaq. Oh my goodness.... Went into my PMD and feeling so sick I couldn't even talk. Stomach pains, throwing up, jittery. Im on Tikosyn now, had one ablation, not sure if it worked. I am very symptomatic with AFib and will do ANYTHING to not be in AFib including another ablation or Maze procedure if neccesary.

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259

The cost of the surgery in Nashville is about $70K at Centenial or Vanderbilt hospital
I was on Multaq for 3 weeks and each time I took the medicine i went into Afib and became really anxious. I stopped taking it yesterday and I have had the best two days I have ever had in the last 4 weeks. I will see my cardiologist Wednesday and see what else I can do. I do not have insurance and $70 would be too expensive for my family at this time

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258

Dear Vaino, from a Finn to another Finn.
Kirjoitatko Suomesta vai USA;sta?? Quite interesting.
En luullut etta Suomessa olikaan Multaq--Multaq on tuon Amiodarone laakkeen serkku - mina kaytin Multaq 1 viikon ennen "cardio version" mutta se zapping ei onnisutnut. Mulla oli paljon sivuvaikutuksia Multaqista joten en ikana enaa sita laaketta nauttisi sen enempaa kun Amiodaronea. Jos Sinulla on flimmeri or A-fib ollut 3 vuotta - oletko koskaan aatellut sita leikkausta or ablation for it?? Forgive me that mina sinuttelen but olen kait ollut liian kauan tassa maassa. Good luck to you!!

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257

Olen 69 vuotias mies, pituuteni on 171 cm ja paino 83 kg. Minulla on ollut verenpainetauti useita vuosia, flimmeri on ollut 3 vuotta. Flimmeri on 7 kertaa käännett sinusrytmiin sähköiskulla. Lääkkeeni ovat: 1 x 37,5 mg Spiresis, 1 x 7,5 mg Emconcor, 1 x 10 mg Amlodipin. Olen käyttänyt 3 päivää 2 x 400 Multaq. Haittavaikutuksena olen havainnut väsymyksen, jalkojen väsymyksen ja ajoittaisen sykkeen laskun päivisin alueelle 43-45. Välillä leposyke pysyttelee alueella 52-54. Olen käynyt 2 x kävelylekillä ja 1 x kuntosalilla, Multaq aiheuttaa lievän väsymyksen toistaiseksi. Yöuneni on jonkin verran parantunut.

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256

I have been taking Multaq since last March. It has worked for me. I do sometimes get diarhrea but not enough to make me want to stop it. My EP also said (as was posted earlier) that the drug doesn't work for very many people. I started with V tach a year ago, and then the afib started a few months later after the death of my father. I am very concerned about the articles that say it can cause severe liver damage. I discussed it with my EP who said he thought it was OK so long as liver function was checked every 6 months. He is at the University of Colorado. But I'm going to discuss this with another EP in the near future. Does anyone have any thoughts about taking tylenol while on this drug? I know tylenol can also affect your liver.

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255

Ralph, thanks for the information. I have checked in my state and I believe there is only one more hospital left for me to check. You said the mini-maze was done at
"Southern In." was it at Southern Indiana?? or Southern Indiana hospital in Cleveland, Ohio?? How long has it been since you went thru with the mini-maze?? years or months?? Much appreciated.

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254

Thank you Suzanne for responding, I have been on Multaq for 4 months after being diagnosed with AF, I will say my episodes are few and far between, and when I do have an episode it doesn't last very long and I convert back within 2-3 hours after I begin an episode. I do have a lot of anxiety, but cardioligist tells me if I switch to another medicine I may not be able to tolerate any new med. Am also experiencing some high an low sugar readings, this was not a problem for me before Multaq. Primary care physician has me eating small meals every 2-3 hours. Even though experiencing some anxiety Multaq seem to be working for now. Good luck with ablation. Have not had this discussion with my cardiologist so I do not know the cost here in the States.

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