Bone Pain From Topamax (Page 2)

attention patients taking TOPAMAX Is anyone out there having SEVERE BONE PAIN THROUGH-OUT THEIR LEGS AND OR CHEST?...that is ignored by doctors; who insist is is NOT is side effect from this drug? I AM NOT CRAZY, BUT VERY FRUSTRATED. I am been on TOPAMAX for migraine prevention (low dose of 25 MG) for two years. I started getting bi-lateral leg pain which I was able to tolerate. this was not muscle pain; rather DEEP BONE PAIN IN THE FRONT FROM TOP TO BOTTOM. TWO WEEKS AGO; MY NEUROLOGIST INCREASED DOSE TO 50MG. 'OMG'..MY BONE PAIN IS NOW EFFECTING MY LIFE AND KEEPING ME UP ALL NIGHT. I HAVE TAKEN NARCOTIC PAIN MEDS WITH NO RELIEF. I ENDED UP IN THE 'ER' WITH CHEST PAIN LASTING TWO DAYS. THEY TOLD ME IT WAS BONE PAIN AND NOT HEART RELATED. My doctor ordered blood work to check for other causes of my leg pain; however I suspect it will come back as normal. I am writing this a t 2am; for I can not sleep with this pain. Please share your feedback. Thanks.

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I AM EXPERIENCING HORRIBLE NIGHT PAIN WHICH KEEPSM MWE AWAKE ALL NIGHT. I GET NO HELP FRON THE MEDICAL ESTABLISHMENT. THEY DON'T SEEM TO CARE. I AM AT MY WITS END. I SUFFER DURING THE DAY AS WELL.

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I agree with ALL these statements. I can barely walk for the last few months, after being on Topamax for several years for Migraines. I have been weaning off, at 25 mg., for several months, and now in such PAIN, it has completely stopped my life. I can't even use stairs anymore, or stand up for long. And No doctors here seem to have enough knowledge to understand or help. My question is, does this EVER go away? I've been going through this for about 3 months, of not being able to walk, will this deep bone pain ever go away?

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Re: Carol (# 13)

Carol, I am on topamax and every since I have such bad sharp fire like excruciating pains started in my back color bone, then went to middle of chest then to outer shoulder , then to shoulder socket, then front of chest, then the pain was so bad I went to a doctor which did not help. Then it went yo my tar, and now up my neck, I pray it don't ho to my head with the bad 3 to 4 day migraines. It has not yet thank God! This pain will take your breath away. If I even move, chew gum, cough, or breath!!! It is only getting worse by the day. I have to get off the topamax 25 mg. I can't take these kind of seizure meds. I have bipolar, not seizures, but they help some a lot. And I loved I lost weight, but I can't breath!!It says right on the side effects from krogers that they can hurt your bones. Don't wait if they do, go straight to doctor. It's unbearable!! I don't wish it on anyone.

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Re: Linda (# 23)
Yes, the way you describe your shoulder and chest pain sounds just like the pain that I have at times. I am trying again to decrease my Topomax dose, but I also get three-day migraines. I'm not sure how much the Topomax helps with the migraines, but I agree that these bone pains can't be good.

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Yes this did the same thing to me, (the topamax). You r not imagining this!!! I can not take any of these because of the pain of bones and else where. The higher dose only made it worse. My doctor understood and took me right off them when I went back. I was taking 25 and 150 mg of differant ones.to me it's not worth all the side effects.

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I have bone pain in my ribs and below my ribs. Pain in my left side below my heart. Chest pain. Heart pain and chest pain. Dizzyness. Lightheadedness. Terrible drug. Worked for about three months then caused nystagmus. Eyes moving right to left. That was why I was taking them anyway!!! For vestibular migraines.

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2017 started on topiramate(Topamax) 50mg dosage for me in arms n front of legs. disappointing, really helps headaches but im not sure in can handle the swap 1 pain for another???

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Re: Sarah (# 1)

I have been taking 50 to 100 mg of Topamax for stress daily. My right shoulder and forearm ache constantly and it seems to be bone pain. The pain wakes me up at night. Im reducing my Topamax.

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I have now weaned myself off Topamax completely. I still take a beta blocker as a migraine preventative. The bone pains I had previously in my chest and legs are now completely gone. I still get migraines but not significantly worse than when I was on Topamax.

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Re: Usernameisthisbecauseeverythingelseistaken (# 11)

I am having the same exact issue. I am on Topamax for the second time and this time around the arm pain is horrible. The migraines are easier to deal with (and I never thought I would say that).

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Re: Sarah (# 1)

Sarah when I was started on topamax years ago by a neurologist for migraines after just a few days I started getting severe one pain in both knees. I reported this to the Dr and was told this was not a side effect, he then increased my dosage for migraines...I got a different Dr but got the same response from every Dr, I stopped taking it in my own, a couple of weeks ago I ran out of all of my other medications for migraines and had to take my topamax as a last resort, I can now barely move, I cannot lift my arms and every other joint in my body is in excruciating pain but mostly my shoulders are basically locked I cannot lift them. This all happened after I started taking topamax again. And I have found studies that say bone and joint pain and such is a severe side effect of topamax ??

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I took it for three days. I had the worse Charlie horses, that would wake me, and hurt the next day. It was freaky, I’ve heard of cramps in the calves of your legs.....but the front is horrible. I will never take it again. My doctors actually put it as an allergy in my records.

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