Xarelto With Back, Joint And Muscle Pain (Page 2) (Top voted first)

If anyone else experienced these symptoms, how long after being off the xarelto did symptoms go away?

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Does anyone who is on Xarelto suffer bad headaches and dizziness? I was really well before these clots apart from the dry cough. Some say it doesn’t cause a cough but I read more about it it does cause a cough. But the headaches and dizziness are getting more troublesome I don’t feel safe to drive any more. Should I cancel my dental appointment on Monday for a filling, but if they find it too big a hole they might have to take it out,and the bleeding worries me.

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I developed muscle pain in my legs after taking Xarelto. Has anyone ever just stopped taking this med? I think I won’t take it tonight. I called my cardiologist to report my symptoms. Maybe Coumadin has less severe side effects... Anyone know?

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Re: Gina (# 16)

Yes I've tried xarelto, twice, both times experiencing muscle/nerve pain. The Drs say it is just a trial process, so I've trialed all the anticoagulants. For me they seem to be fine for a while and then the pain begins. As I have posted before, I believe there is an allergic component for me. As I have experienced clots three times in the last decade, Drs keep me in fear mode when not on meds, but the meds make me hurt bad enough, its just not worth it. Trying to get testing for med allergies at this time.

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Hi. I’m back and I’m experiencing more side effects of Xarelto. The headaches & dizziness have gone away for now!! But my knees are still hurting especially when I try to get up. The latest I’m experiencing is stomach problems. Makes me terribly depressed. I have burping, bloated stomach and I feel fat, the weight I have put on is unbelieavable. I climbed my first steps this week and I was worried i would not be able to breath like I did the first time I had the clots in my lungs. I could breathe but had a tight feeling in my chest. I’m tearful, depressed and have feelings of despair. My family tries to keep me positive, but I’m not hopeful of it getting better soon. I’m going to see my GP after the new year. I hope I will not break out in tears which is often these days. There must be another way to deal with these clots... What about coated aspirin?

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Re: Anne (# 3)

You know what I think is a riot? None of these doctors can tell you much about Xarelto yet all of them CAN tell you NOT to get off it! They are wing nuts! I have heard of people just hopping off it. The man around the corner? He takes a Xarelto every other day.

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Re: Annette (# 25)

Taking xarelto every other day is an interesting concept. I had wondered if I was just getting too much in my system, but there is no testing and they look at you as crazy for even worrying about it.

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HAVE YOUR DOCTOR REDUCE YOUR XARELTO TO 10MG A DAY IF DOPPLER SHOWS NO MORE DVT OR PE; NEW FDA STUDY SHOWS 10MG ONCE A DAY IS SUFFICIENT FOR CONTROL AFTER SIX MONTHS AT 20MG-----MOST SIDE EFFECTS (BLOODY NOSE, BACKACHE, ETC) SHOULD SUBSIDE OR BE LESS SEVERE. DON'T QUIT XARELTO ENTIRELY AS YOU WILL PUT TOURSELF AT RISK FOR RELAPSE.......

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And? How long were you on it to begin with? 6 mos?

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Did you get off the Xarelto? Curious...

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My experience is that there was significant improvement in 2-3 days after going off the Eliquis and switching to 5 mg. of Coumadin. In two weeks I was a new person, able to go on treadmill for one hour at 4 MPH. Could have gone much longer. When I was on the Eliquis for 6 months, I could barely climb on my treadmill. Also had fogginess. Coumadin is not perfect, but for me, it has been a Godsend.

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Re: Linda (# 12)

I had an Ablation procedure done in April 2017 for A-Fib, and the Dr put me on Xarelto. I have had extreme pain in my left ankle & could hardly walk for the last yr. Kept me up most of the night with the pain. Long story short, I ran out of Xarelto a month ago & called my heart Dr to see if he'd change my prescription to something else, but he wasn't in. Got 2 wks worth of pills till they could talk to Dr about it. They didn't get back with me & on the 4th week my pain disappeared!! That's been the last 5 days pain free!! I've spent thousands of $$ on a custom made brace, MRI's, XRays, therapy, you name it & since I ran out of Xarelto, I'm absolutely pain free!!

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Re: Annette (# 30)

Hi, yes I’m still here. I asked the Doctor the other day if he thinks the clots have gone? He said they give it 6 months to disappear. I told him I was feeling anxious and no doubt I was very worried about them. My side effects differ every day Annette, I’m 78 going on 79 this year. Sore knees are still there, dizziness accompanied by tinnitus & tightness in my chest. My main worry is this anxiety. The Dr has asked me to take an anti-anxiety pill. Because those who have had a stroke are always suffering anxiety after one. (I haven’t had a stroke) but I think he thinks those with PE would feel anxiety too. Up to date the back of my throat is red and my throat clearing is not coming from my chest he said. I’m on Amoxicillin for a few days and it has improved (laryngitis). I still say feeling anxiety is to do with taking Xarelto. But I feel coping with Xarelto is far better than feeling anxious. I will come back after I get my result after 6 months are up in April. My back is ok now. {edited for privacy}. Yesterday was a good day, but today was so so.

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Re: Annette (# 28)

It will be 6 months this coming April, seeing the hematologist on the 3rd and a CT scan too. I looked up what Serena Williams the tennis player was given for her PE after having the baby, when she couldn’t get her breath she knew what it was since having clots before and demanded a CT scan. She had a Caesarean and she was coughing, they found a pool of blood in her stomach; an inj. was given to her. I never had one in the hospital. My Dr was surprised they didn’t give me one. I’d still like to know what she is taking now if she is prone to clots. Anyone else know? Because I certainly would have what she is taking.

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Well am off Xarelto after six month on them, I had a clear CTS and have been put on 100mg of cartia aspirin. The same week that I came off Xarelto and onto Cartia I experienced breathlessness, so I made an appointment with my GP today. He said the clots has gone and the clotting fig was negative too. .03 if it was .05 I would be still on Xarelto. This week off Xarelto my knee is hurting (knee replacement knee) it never did before Xarelto. My back too is hurting I can't put my weight on my knees. My GP said to me he wanted me off Xarelto now because the risk of me falling and I could bleed, at 77 it is highly possible I'm at risk to do that. I'm suffering from anxiety too because I'm scared stiff of developing another clot. Talking to my GP today has put my mind at ease. I will find after a couple of weeks my second blood clotting test will be still low and I'm hoping these aches and pains will go. Yes there are bad side effects but I didn't experience some of the sufferings many have in this forum.
I read yesterday that it takes a year or two to recover from a blood clot, a PE and others. Not what the Doctors tells you,
It's very well to send you home with blood thinners and say that you are ok. You are not, side effects are the problem.
I wish everyone here still on Xarelto to Keep with it until you find your clots have gone, then decide what you want. It's better to be safe than sorry.

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Re: Annette (# 30)

Yes I have about two weeks now, I have more pain now in my knees and hip area than when I was on them. I feel every day is different, good one day not so good another. The clots had all gone, I did ask the dr the other day should I go back on Xarelto, he said not because if I fell I could get a bleed on my brain. Otherwise I have to stay on Cartia Aspirin. I also read that it takes up to two years before recovering from a PE. Every day I wish i was back to normal. Who knows every day brings it closer to feeling well again. Thanks Annette for asking about how I feel.

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Re: SPARKY (# 27)

Sparky, thank you for your suggestion. I had an aneurysm in my shoulder which threw clots into both of my arteries in my right arm. Almost lost the arm. Took a 71/2 hour surgery removal of muscle in neck, and two ribs to fix. I am sooooo afraid of going off this med, but I also have cerebellum brain damage and fall, alot. I am also scared of the bleed factor on this med. I was considering asking to stop the med, after one year and issues resolved, but maybe I will take your suggestion and ask for a reduction instead. My circulation in right arm is very poor due to damage done by the clots. It was a very painful condition I would hate to revisit. I think reducing mgs may be the ticket. May reduce the bleed threat and ensure I don't developed another clot. That would be win, win. Yep. Gonna see vascular surgeon about that. Thanks Sparky. JMJ

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Re: JMJ (# 37)

Google new fda rulings on xarelto maintenance dosages on the internet. Xarelto isn't perfect, but it is the best drug in its class......Talk to your doctor and find out if 10mg a day works for you......Best of luck.

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Re: Hefina (# 36)

Hi, I was on Xarelto for 4 months due to DVT in right leg. The back pain (which is listed as a side effect in the information leaflet in the box) started within a month. I have been off Xarelto for a month now but no change in back pain. Anti inflammatory meds have no effect. Hot and cold treatment is temporary. I wonder how long does the pain continue?

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I was on xarelto for 1 month and stopped due to intense pain in the groin area. The dr doesn’t believe xarelto is the cause and asked me to go back on it and see after one week how I’m doing. The groin pain is slowly returning along with lightning pain in my right calf while sleeping at night.

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Re: Nigel (# 39)

Hi Nigel, I didn’t have a back pain from Xarelto, it’s now I’m having problems since being on Aspirin. Muscle problems, my main problem now is feeling light headed, I’m on 100mg cartia Aspirin, and BP medication.
I have been off Xarelto about 8months now, I do have osteoathritis that is present now, I saw my Haematologist today, and she wants me to stay on Aspirin, but if any more clots in my lungs I will have to go back on Xarelto, She said to take panadol, that is only pain killers I can take because of aspirin. Everyone is different, give your back time, see a physio, they would be your best bet, Every day is different, some days it’s hard to get up from a sitting position, once I’m on my feet I’m ok, I won’t be seeing the Haematologist again just my GP. She also said the de diner is not used anymore for checking the clots mine last time taken was .5 down from 5.3, it should be under 5.

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