Stopping Levothyroxine (Page 3)

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I have been taking Levothyroxine .88mg for the past two years. I just left town on a three week vacation and realized I left this prescription at home. Should I be concerned?

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41

hey everyone me again still not takign thyroid meds feeling way better stil gaining weight however no more depression , no side effects as of yet changed diet to include all the active ingriendients needed to function there is alt you need to do , its not easy but my dosage was 250 mcg daily pretty high and i have had no side effects if anything feel more betterbeen what now 5 weeks should of seen or felt something \as i said no more depresion weight gain try cutting our carbs and sugers could be wheat intolerence autoimmune cause of weight gain and hard weight loss im not giving up so fast wakimi sea vegtible coconut oil and selenium i also bout thryro supplements at health food store keeping the body in some kind of function gonna quit those too see if lose weight since im not experiencing any side effects but weight gain pills could be keeping me hypo and thyroid since i still have my thryoid aint gonna give up without a fight, also try vegtibles raw foods cinninmin all kinds of things you can do to help your body heal remember the thyroid effects everything you need to figure out th damge and go heal it good luck everyone keep you posted middle of march suppse to get blood work

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42

I was diagnosed with over active thyroid in sept of 2013. After 2 unsuccessful attempts at drug therapy (due to having allergic reactions) I had iodine radiation twice. I have now been on 100mcg of levothyroxine for about 6 months, I have gained over 25lbs and continue to gain. Also my migraines have gotten worse & was wondering if it could be from the drug. I still am tired all the time & don't know if I should stop taking it to see if it helps with the headaches or wait and talk with my neurologist in April before I do anything.

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43

I have been on levothyroxine for about a year. 3 months prior I was diagnosed with depression/anxiety & began taking pristiq. I felt immediately better with the pristiq. When I got on the Levo I did not feel better & have thought it's caused some fatigue & weight gain. I also questioned the diagnosis because I appeared more hyperactive thyroid weight wise. I've gained about 5lbs which isn't so bad except I feel low energy & am not working out which I have enjoyed my whole life. I stopped taking the Levo to see if I'd feel better a week ago. Now I have a bad headache. And so I googled Levo withdrawal & now see that even if my dr put me on it prematurely or it was wrong diagnosis that stopping the meds suddendly can cause hypothyroidism! So I'm going to start back with the pills in the am & confess to my dr what I have done. Hopefully no permenant damage. Next time I'll speak to dr first.

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44

I have been on 25mcg of levothyroxine for about a year. I've never had a weight problem. Since on this medication I've put on 10 lbs and cannot take them off. Im just as tired as I was before. The dr. says my numbers are fine and won't change the dose. I'm thinking of just stopping the levothyroxine and seeing what happens. Anyone else have this experience.

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45

I've been on levothyroxine since July 2014. My levels were never horrible, just slightly low. I started off on 25mcg, then bumped to 50mcg after a few of my levels were still borderline. Now my levels are fine and my doctor wants me to stop the medicine. I thought the medicine was why my levels were fine. I don't get it. I'm still losing hair, exhausted, etc. Plus I have bipolar, anxiety issues, depression all the time. I had those for years before thyroid issues though, not sure if related. But still anytime I say I am so tired all my doctors chalk it up to having 3 young children. I'm 29, I shouldn't feel this awful! Thinking of just stopping my levothyroxine since I'm almost out anyway. Day 2 without it I've been fine, no worse than usual. Before levothyroxine I lost 20lbs and since getting on it I've gained it all back. Going to get back to eating healthy and exercising regularly, nothing made me feel better than that.

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46

Mamabear are you menopausing.....your symptoms sound like you are. I've been on Levothyroxine for 22 years and been going from 150 to 137 back and forth, because of my labs results, my thyroid is high or low at times. I wanted to find out, if I stop taking the meds, how would I feel. I felt cold... sad... confused... tired.... SO, THAT was not good for me or my body.. I had to go back on the meds. I feel pretty good now. That, means; I can not stop taking the magic pill....no matter if I am up and down. GB

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47

I have a question about the dose of Levothyroxin 50mcg I was prescribed in December 2014. I did not realize I had low thyroid and felt no different after taking the medication prescribed so I stopped it. Soon after I stopped taking it I began having issues with a very sensitive stomach and diahhrea nearly every day. Could this be a side effect of stopping the medication abruptly or should I see a physician for the problems I have been having for 2 weeks?

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48

Just some very good info/reference for you people out there. The ashcenter is an incredible website and Dr Richard N. Ash (Alternative Internist) is even more so. He and his clinic are located in NY at: The Ash Center for Comprehensive Medicine 800 5th Avenue. He has an fantastic 2-hr radio show on Sundays. The link is on his website.

Another Informative person is Romy Nelson. She also has some very helpful podcasts out there. She has hypothyroid and I recall her saying her mess were never right until she was put on Nature-Throid. I found that your doctor can order this through emersonecologics for you. S/he only needs to have an account there as well. Its an online site for vitamins, supplements and many other items. Emersonecologics and ashcenter are the ONLY two places I purchase my supplements from. Good luck to you all and be well.

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49

I have been on 10mg Levothyroxine for over 10 years and my Doctor told me I would have to remain on it for the rest of my life. We moved to Spain a few years ago and have recently managed to get on the medical system here....on my first check up with the Spanish Doctor, he tells me to stop taking the Levothyroxine and get blood work done in September (4 months away) to evaluate my levels! I stopped 2 weeks ago and am now suffering fluid retention...my ankles have swollen to twice their size and today I experienced my hands swelling following a walk. I'm really worried! Should I ignore the Doctor and start taking them again?.....I had no problems whilst on the medication and my Doctor in the UK was happy with my levels.....I would welcome any advice.

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50

Sheila, stay away from Kale and Broccoli. They inhibit thyroid function. I am currently taking Levothyroxine. I've been on it a little over 2 months. I have an appointment with the doctor next week. As far as I can tell the only thing the medicine is doing for me is helping with the dry skin and giving me a little more energy. I want to come off the medicine and give a healthy lifestyle a chance, but the possible effects of not taking the medicine scare me.

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51

Please I need help my mom's Dr. Stop her levoth ur oxide because she needed to get some certain of test it's been 2 months already n she's really sick what's the worse that could happen to her could someone help me.

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52

Well.......that was a waste of time! Never mind.........feeling the same. Will just get on with it myself then!

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53

Hi everyone well I got my family doc to switch me from levothyroxine to a natural desiccated called at our about two months ago, got my labs back today my tsh levels are 12.2 , that's extremely high I do believe. I had the doctor take me off levothyroxine because of the side affects. I also was diagnosed with hoshimoto, anyone have experience with armour.? And what can I do for my tsh level I'm so tired and weak

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54

Has anyone changed from taking levothyroxin from morning to night

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55

Yes, I have I started taking it any night before bed about 3 months ago I haven't noticed any difference.

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56

Synthroid is covered (for me where I live) under a discount card and can be used instead of your insurance. It might be helpful to check it out to help lower your cost.

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57

You should never stop a long term medication. I'm a nurse, and your thyroid runs your hormones. It can make your hair fall out if not on the medication. I've been taking it for 10 years. I will never stop without my Dr.s ok.

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58

I had been on levothyroxine for around 8 months and and pursued a new better job opportunity. I ran out of the pills as one coverage ended and new coverage started 90 days after. I have been currently off the pills for around 5 days and have a planned physical in 2 months (first available appt).

I really have no choice to wait for doctor appt for further health updates. I have made some major health changes since last appt (eating more thyroid superfoods and balanced eating and exercise)

What permanent damage could be done for being off it. Any chance of successfully of not needing it with healthier thyroid proactive foods?

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59

Hello all, I've had my thyroid since I was17 I'm 52 now, 8 years ago my meds had to keep going up my body not absorbing properly I was told, I ended up on 400 mcg I actually felt fine on that dose but I felt it may not be helping my panic attacks and anxiety I had prior to upping the dose that high, so I stop my synthroid 3 months ago and now I've noticed tingling at the bottom of my feet I also feel like somebody just hit me in the stomach and I get this really bad feeling in my stomach, so I'm wondering if anyone else has been on that high of a dose and if so what kind of effects it had on them? I was also suffering from I BS chronic.

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60

well all in all i started natural desicated thyroid and all is much better lost the weight and changed mmy eating it turns out its my thyroid i have auto immune thyroid is stable that drug levrothroxine and syntroid suck and are the cause of my past problems

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