Prolia Side Effects (Page 84) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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LDazzle, are you still out there? I am a 60 year old woman with Hasimoto's Tyroidosis and also diagnosed with osteopenia/osteoporosis and have taken one Prolia injection 7 months ago. I would like to hear how you are doing. I am physically extemely active, fit, and also taking calcium and vitamin D3, and magnesium. I plan to read "Your Bones" and "The Myth of Osteoporosis" ASAP.

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Anonymous, finally able to write you with what may prove to be good news on the matter at hand.
It would seem that even though I consume a rather large amount of water daily my PCP has suggested that my electrolytes are diminished, adding that I should replace an amount of my water intake with Pedialite, a Gatorade, or like substance. I was advised to then give it a couple of days and if these symptoms continue to report to his office post haste. I'll update as necessary with either a pro or con regarding this remedy. May God bless all of you and thank you for this forum. ...~Benny

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I see a chiropractor 6 times a month. I am on a product called Osteo B Plus which includes 1000 mgs of calcium, also taking D (4,000 IU's) and walking 30 to 45 minutes daily. He now wants me to walk twice a day. Just diagnosed. We'll see what happens.

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Good word Anonymous...
After being told by both Amgen and my Oncologist that the periods of confusion, severe migraines and lightheadedness I've suffered weren't caused by the Prolia, after pointing out precisely the page, paragraph and line stating clearly that these side effects indeed require immediate notification of the Dr's, I finally have verification and validation. I am one who some people believe go overboard on my water consumption, however, I enjoy water more than any other beverage and I daily consume three 64oz bottles of twice filtered Brita water. My PCP suggested last Thursday evening (7/24/14) that I replace one of those bottles throughout the day with a beverage high in electrolytes such as Pedialite, Gatorade's "G3 Recover", or similar equivalent. For the sake of finances we went with the powder form of the Gatorade and I have seen a most certain improvement over the last few days. Not a complete halt to these side effects at all but definite improvement. The confused periods are decreased significantly as are the severe headaches which encompass the entirety of the frontal quadrant of my head, spanning from just above the eyes to just in front of my ears and in a nearly straight line across the top of the skull. The lightheadedness has subsided accordingly as well but again, this isn't a complete remedy as I continue to have, though fewer, multiple periods daily when it all comes roaring back seemingly with a vengeance of sorts. Kudos to my PCP for the consideration and thought put in to at least give me as much relief as I've had from these debilitating side effects and in turn my hopes are, of course, that others may benefit from my experience. Perhaps given more time these horrid issues will pass completely but for now I'm grateful for the partial relief I've gotten. I'll continue to update as change necessitates, hopefully soon. Meanwhile, thank you Anonymous and all who may be following this particular issue, may my writing be of assistance to others and may God bless and in His mercy heal us all. Respectfully submitted, ...~Benny

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Hi all, thanks to everyone who have shared their experiences and comments. I've found them really useful, particularly as I was nearly swayed by my endocrinologist to start using prolia. I was diagnosed with severe osteoporosis two years ago and recent scans show more deterioration. I also had a bone marker test (wasn't informed of its existence two years ago), and it too, showed a higher rate of leaching from my bones. But what to do? Following my early diagnosis, started taking calcium and vit d. This was a tough decision to make being a vegan. Neither of these seem to have had a positive impact on my bones. Has anyone found that bone deterioration has been halted or slowed down through diet, exercise or alternative remedies? Strontium isn't an option for me as blood clots is one of the possible side effects of that drug. Cheers. P.

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Hey Anonymous, about a week has passed since the introduction of more electrolytes to my system. It has had a positive effect in battling the periods of confusion and subsequent migraines but thus far there hasn't been a complete reprieve from them entirely. They continue to be somewhat more than bothersome yet it wasn't until today that I've awaken in the midst of the confused state and actually had questions regarding my whereabouts. This was short lived but frightening none the less... I've added higher amounts of potassium and magnesium to my diet in hopes of fully counteracting these formidable side effects however that hasn't has enough time to be recognizable as any benefit. Again, I sincerely hope you are well and I'll be in from time to time with updates be they positive or otherwise.
Respectfully submitted,
...~Benny

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The discussion between yourself and Kathleen has me somewhat concerned. Am I to understand that with my bone density at 27% and informed by my surgeon that it has the consistency of "moist drywall", that Prolia may, instead of building new bone mass, as I was led to believe, only serves to retain the old bone in order to appear to have greater density? If in fact this is the case, I'm in serious trouble. I was placed under the impression that it assisted in the production of new bone growth, so much so they've told me it would "out pace" the degeneration at the root of my rapid and fast paced decline. Can someone enlighten me as to whether or not I have understood this correctly?
With much appreciative gratitude,
...~Benny

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Hi Tina
That is awful, I've had my 3rd last month & must say I feel wonderful, after my 2nd had serious reactions etc, but managed to get prepared correctly for 3rd, increased calcium etc, diet etc etc, I feel fantastic just tired but not really putting too much into that as life is quite hectic for me right now! I do hope u will b ok, I've chronic osteoporosis, iv started to walk a little too, which I could not manage before! Reggie x

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algaecal may be a good resource. Granted, they are promoting their own products but that does not mean the information they produce on osteoclasts and osteoblasts can not be verified. This info could provide a good starting point from which to dig deeper into the efficacy of this product.

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Dear All: Please do not start on Prolia, Foxamal or any other of the osteoporosis meds. For the past years I have gone through many of the expected side effects, but today I had to visit the OralMaxilloFacial Surgeon as a sore in my mouth has developed into a necrotic spot. Today I had been officially diagnosed with ONJ, Osteo Necrosis of the Jaw which is drug-induced. This is a horrible drug. Several months ago, I had intense jaw pain and now this. For those of you new to this site, I have been sharing many of my side effects. Before you decide to start on this medicine, please read all of the contributions in this chat room.

Good luck!
Lalatessy

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I would research it and then research it some more. I had my first injection on 6/19/2013. 9 days later had to go to hospital. Severe pain in my ribs. hard time breathing. I suffer from insomnia, severe pain in legs and back, no appetite. i am 5'7 and weighed 135. I lost down to 113, which is very bad for someone my height. So research this drug before making your decision.

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I've had 3 shots next one in jan few side effects 2nd injection but all managed feel best I've felt for years, 47 years suffered last 7 but this d best .. On new tablet for last month & doing great, hope this helps.. Xxx

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I got my first injection. No side effects so far.

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I am not a health professional by any means, but I would advise you not to take this drug. Have you read all the prior postings? Enough to scare you. I used to take Actonal and then switched to Fosamax. Neither one helped my osteoporosis. I was referred to a specialist since my osteoporosis had gotten worse and he recommended I start on Prolia. I asked my GP about it and he said NOT to take this drug. Not enough is known about it. It's still relatively new. I felt much better after speaking with him about it. Reading these postings is enough to scare me to death to try it. Too many possible side effects. Do the research. The doctor who wanted me to start on Prolia handed me a brochure and said "don't read about the possible side effects". So, of course, that's what I read. I'm not taking this drug ever.

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I too had bad side effect from 1st injection, don't do it! But if you have not already
tried the Forteo Injections then I do recommend them. It is 2-year program, that
you do at home yourself every day. Boosted my Bone Density back into normal range with no side effects. Make sure also you are using an MD who is familiar and experienced with Osteoporosis. I found Rheumatologist who was only one that had some experience. Even after the Forteo tho' when Prolia came out he and recommended it. Just was not for me. Please make sure you report any bad side effects from any medications!

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So very sorry for your father !!! I am just now feeling somewhat better from my last injection its been 12 months . I also got flu like symptoms and have been on oxyagen since . Six more months and it will be out of my system and cannot wait .

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I took my first shot in September and no side effects (thank goodness).

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Yes, please report this to FDA!

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I am very lucky to have been approved for this shot by my medical, the only side effect I would say is it does lower the immune system and it takes considerably longer to heal cuts. I currently cannot get it because of a deep cut in my shin that is refusing to heal. But, knowing that, I have had no side effects and my pain is considerably less. Being off for 2 months past my shots due date, I am suffering in pain and daily chores are pretty hard. I suffer from Osteogenesis Imperfecta, I am a type I. My son has been on bisphosphonates since he was 9 starting in a trial study, he has this also, and he has had no side effects from that either. Maybe people might be sensitive to the drug. But, as for me, I am thankful I have it,

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I know in my case I have only one functioning kidney and this was only drug approved for kidney disease . Anyone else that has taken this shot and suffering have kidney disease ?

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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