Prolia Side Effects (Page 68) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Kathy (# 2872)

You are not alone, all of us on this site regret our decision to take this drug, so don’t beat yourself up. Unfortunately it takes time for Prolia to clear the body. Wishing you good health.

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I found a few products that are turning around the side effects from Prolia in my mouth. I can let you know what they are, if you are interested. However, the feeling like I am walking on a cruise ship persists along with feeling like a wind going through me. My mouth cannot completely grow back the second layer of skin it needs, I think because I can't get Prolia all the way out of me. It has somehow changed my body chemistry. Amgen is lying to people saying it eventually leaves the body. Even doing saunas and taking really good supplements for over a year now, I am making only minor progress since I took myself off Prolia after my fourth shot. I got so bad that in June I thought I would die from how horrible my mouth felt. Now at least(thanks to two products I am taking) I am feeling better in my mouth. But these products are not cheap, and it's unfair that I may have to use them indefinitely just so that my mouth does not feel horrible every minute of the day. Are there any scientists out there who can tell me if body chemistry can be "changed back" to normal from this hideous drug? Truly, I feel like Prolia changed my body chemistry, and yet I can find nowhere on the internet anything that describes my specific symptoms or anything about body chemistry related to Prolia.

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Re: Andrea (# 2874)

I was very interested to hear you were having problems with your mouth. I, too, after 3 injections have terrible mouth problems. I have been off prolia for 3 years now and am still seeing an oral specialist( at great cost, I may add) . So far there has been nothing that really helps. I am in Canada so whatever you are using may not be available here. I would be very interested in what has helped you. I see the oral specialist again mid- September and I could mention to her what has helped you. I still have one prescription given to me which I haven’t tried yet. I’m having a few intestinal problems so am hesitant to try it until things settle down.

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Re: Andrea (# 2877)

The drug , I am told take about 8 mos. to clear the body. Most of the side effects take longer and I think that is an individual thing. Since the drug affected my Thyroid it was a matter of managing that. After 2years I went Gluten free, and that was the answer. Perhaps that will help you . However the side effects like joint damage to my wrists, fingers, ankles and toes is permanent. I have been told that it is “ Just Osteoarthritis “.
I don’t doubt that I had Osteoarthritis, but to go from no symptoms to severe pain and enlarged, disfigured joints in less than a year . It seems to me that a Prolia exacerbated that process. As far as a lawsuit, that depends on where you live. Here in the U.S. that probably never happen. There was recently a class action suit against the Fosamax
That went all the way to the Supreme Court where it was dismissed in favor of the manufacturer. Just like in the Opiod epidemic, Dr.’s seem to believe the drug companies over their patients. I have noticed in the Prolia ads that they do list more side effects, but still people are swayed and scared , like I allowed myself to be, into taking this. All we can do is spread the word and educate others.

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Prolia is poison, it can be deadly. It has been a nightmare for me and I wish I had never taken the first shot, not trusted my doctor and done research for every having this poison injected into my body. The FDA does not care, as long as money is involved. As I said, A DEADLY POISON DRUG!!!

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Re: Gloria (# 2879)

I now have a new problem starting up. I have been having a problem with my hair falling out for the past 4 years after my first Prolia shot. A doctor told me it was just old age. Now I am having a problem with psoriasis on the scalp, on the back of my head. It is making me crazy. What next?

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Re: Gloria (# 2879)

Well said, Gloria! I blame myself for falling for it, not researching and finding a site like this or Save our Bones, and I am a nurse! I allowed myself to be frightened into believing I needed this poisonous drug. Now I encourage thorough research before accepting the standard line.
it. There are a few instances when Prolia or any of these drugs are indicated, but it is a short list, such a people with a bone cancer that is a metastasis, on long term steroids, heavy intake of alcohol and that is it. The issue is most physicians prescribe it based on bone density alone WRONG, there are other tests to measure bone loss. Most of us do not need these bone loss drugs.

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Re: Sal (# 2878)

There are very strange effects people are getting which are not going away unless people find something miraculous to help themselves. I know of a woman in Spain (my student's mother-in-law) who gets mouth sores from it four years later (always they are on her outer lip) and a small tear keeps coming from her left eye. Everyone is very different. I am seeing improvement using ASEA to rejenerate cells of my body. I'm trying to be patient waiting for the "cruise ship feeling of walking" to go away and the movement always going on internally. That one seems to be the strongest. It was my final effect that came to me after my fourth and final injection. If I can get rid of THAT one, I can finally say I have been cured. (taking Coseva spray , which gets toxins from the body) Between ASEA and COSEVA, these are the only two things I have found this year to help me. I was getting worse instead of better after being off Prolia a year. How do side effects get worse with time instead of better?? That makes no sense! Amgen is the devil! I am glad you found help for yourself. Let's hope more and more people can come here with "cures" for those suffering from weird side effects.

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Re: Sal (# 2878)

by the way Sal, look into ASEA for your joints. I can't believe the miraculous thing that happened to me when I started taking it!! over the past six weeks I have gradually been able to stop wearing a mouth guard and I can feel regrowth of skin on the inside of my mouth. I had been gradually losing all my inside mouth skin until I found ASEA. Now I am just praying for it to get the rest of Prolia out of me. I feel like I am halfway there!! (just google ASEA. People are recovering from all kinds of problems they could find no relief from. It's also good for bones and joints)

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Re: CLV (# 2886)

The side effects were life altering, and also a potentially life threatening hypocalcemia, which by the way three physicians blew off as Fibromyalgia. I went back to where I used to live to see a physician there, he saved my life.

No more Prolia or any other Osteoporosis drug. I am on a crusade to educate women about these drugs and about Osteoporosis so they won’t be frightened into it like I was.

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Re: Sal (# 2887)

I salute you as I am in the same quest. I had such a severe reaction from this drug that I am now struggling with the after effects. My normal co trilled asthma has turned into epithelial asthma and I have test to define if I have drug induced lupus with pulmonary hypertension. It has been hell and this is after one injection. This month on the 7th will be 6 months. I have now been told by doctors that it may take 1-2 years for the effects to subside or maybe never.

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Re: Dawn (# 2888)

I am so sorry that you are going through this.
As if I wasn’t foolish enough to take this, I went and took a second shot??. I allowed myself to be frightened into it even though intellectually I knew better. Anyway, that is about how long it took me to recover from my side effects, except for the joint damage, that is forever. I tell anyone who will listen about not just Prolia, but all of these Osteo drugs.

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Re: Sal (# 2889)

The saga continues. I had some kind of an allergic reaction last Monday. My eyes swelled way up and I looked like I lost a fight. I stopped the only thing that I had changed in the past month, my vitamin D. I had been told to double up on that when I refused the Reclass injections. The next day after putting prescription drops in my eyes I was covered with hives and my eyes swelled up again. I have been taking over the counter Benadryl and I am still trying to clear up my scalp. I don't know what will happen next. I see my Doctor on Wed and I am sure she will just say I am old! Any one reading this should know it has been over a year since I stopped the Prolia. First bad reaction to stopping was a terrible cough for 3 months.

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Karen Wadman (# 2890) --

It never ends for us, does it. I am so sorry. You are probably right, your Dr. probably won’t listen. I do believe that Prolia affects our immune systems.

Please keep posting.

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Re: Sal (# 2891)

The storm is supposed to hit here in FL on Wed. and I have the Doctors appt. on that day. I will get back to all with her response which will be nothing much once again. Medicare doctors do not want to do anything for the money that they pay the doctor and that I also pay the doctor with co-pays. It will cost over $200.00 to this doctor and she will walk in and roll her eyes at everything that I tell her. I am going because the emergency doctor that I saw with that bad reaction was one of those not quite a doctor yet and she just had me continue using the drops that my husband uses that I had used in that emergency! I wonder how Canada manages with their health care? We are not doing well here in the U.S. at all. Medicare patients are frowned on because the doctor wants more money for that 5 minute visit!

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Re: Karen Wadman (# 2895)

Our Healthcare system is better even with its challenges. Tell you 5 min doctor that you have a chat line with many people affected by this drug. You can use my history if you want. Good luck during the storm.

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Re: Sal (# 2893)

I will keep you appraised. Please stay in the chat group.

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Re: Hedy (# 2901)

Sounds like we had the same Gyn! My was very testy when I told her of my reaction.
I will say something, though. My worst side effects were in my mouth. About 15 years prior I had shingles in my mouth on one side. I honestly think that this could have been what caused this reaction years later with prolia. Maybe doctors should ask their patients before giving prolia , to ask if they’ve had shingles.....maybe even chicken pox for that matter! I’m not a doctor nor have I ever been in the medical profession, I just wonder?

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Re: Judy (# 2903)

That is a very interesting thought, Judy.
It's yes for both from me.

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Re: Hedy (# 2901)

My GYN was insulted when I refused a shot of Prolia. I am allergic to many things and I knew an injection of Prolia could play havoc with my body. I had no idea all the problems people on this list were having with Prolia.

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