Prolia Side Effects (Page 67) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Susanna (# 2824)

I wonder if the FDA has to disclose the statistics on how many people report the multiple side side effects for the drug?

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Re: Sedona (# 9)

How long after the prolia was out of your system until the side effects stopped? I'm going through this now. Was given shot 2/6/19. I won't ever take another Prolia shot.

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Re: Elle (# 2836)

It takes about 6 months to clear the system, but the side effects can last longer.

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Re: Sal (# 2837)

I can’t agree more. It’s been over 2 years since my last injection and I’m still dealing with some side effects. I’m beginning to accept that they will never go away. I am also thinking that we all could be prone to something in our body that after taking prolia, flairs up and is very difficult to treat. This certainly hasn’t been suggested by any medical person to me, just my own observations. I was prone, as a young child to skin rashes. As I grew older, not so much and certainly NEVER to the extent did I ever have sores etc in my mouth like I do now! Or muscle and joint pain or loss of teeth! This drug has cost me time and also money on dental care, physio, and various other treatments.

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Re: auntylin (# 8)

I had posted many times about all the problems that I had with the Prolia shots. I stopped them on my own because of the aches and pains in my bones and the daily hair loss that still continues one year after stopping shots. My new doctor now wants me to do a reclass insertion which is done in the hospital and not a shot. There has been no improvement in my bone scans at all, better or worse since I started with Prolia.

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Re: Sal (# 2840)

Thanks Sal. As far as muscle and joint pain, mine is now manageable. My mouth....a different story. The closest comparison would be thinning of the skin. In my case, the roof of my mouth. Eating a crisp cookie, a piece of toast is very uncomfortable. Also the taste buds are very irritated with a lot of different foods. Yoghurt, milk, ice cream are the most soothing. The oral specialist I see in Toronto has tried innumerable things but so far no real relief. The closest is daily alpha lipoid acid which I take 3 months on, a month off. When I stopped the end of May my mouth got worse so now that I’m back on....we’ll see! Maybe it was just a fluke? Certainly sorry to hear all your own problems. I’ll check out the bone site.

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Re: Judy (# 2841)

I am so sorry for your troubles and I wish I had a magic wand. One of my many pain syndromes is Burning Mouth Syndrome, so I have empathy. Ice cream is my best friend, but it is bad for my weight, so I eat chocolate covered frozen bananas.

Good health to you.

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Re: Sal (# 2840)

I also just went through hell when my doctor prescribed thyroid meds for me and I was border line need. I had a really bad reaction and stopped that also. I have all disfigured fingers now and growths on most of them. I refuse to do this reclase inversion that a new doctor is telling me I need. I also took fosamack for 2 years before the pain in my joints had the doctor stop the medicine.

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Re: Karen Wadman (# 2847)

The side effects are the same as the ones we already know. The fact that this is given by IV means it goes directly into the system, and lasts for 12 months is even more worrisome than Prolia.

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Re: Sal (# 2846)

Thanks for the info and this confirms my decision to avoid all.

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Re: Dawn (# 2849)

I wish you the best of health.

BTW. I forgot to mention another gentle exercise for Osteoporosis, I just started it.
Miranda Esmonde White if you are in the U.S. she is on PBS frequently, but if t
you are Canadian, lucky you because that is where she is based. Anyway, her basic level program has a gentle workout for Osteo.

Keep posting

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Re: Lynne (# 7)

5 months ago I received first injection. 2 wks later my colon “locked down”. Severe constipation. Nothing found via scopes that would cause it. Not resolving!

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I had a rash that has reappeared twice. The rash lasted for two months! Then Tymlos was prescribed and I had an awful intense rash required an ER visit for IV steroids on top of the prednisone. I’m not going to do anything besides vitamin D and calcium plus walking!

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Re: Jude (# 2853)

If it was two weeks after the Prolia and there was nothing else new in your system, it seems logical that the Prolia is the cause. However, logic does not seem to be prevalent with the doctors who blindly deny a Prolia connection to the side effects. Hope you can find a long term solution to your problem.. it is hard to deal with..

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Re: Karen Wadman (# 2860)

You are so right. I just came back from my respirologist and was advise my asthma which has been stable for 10 years until my one and only Prolia injection on Mar 7/19 now is very serious. They called it epithelial asthma. I now have to have more tests and a more potent inhaler. I cannot use it as now going into my 5th month post injection and still having adverse effects. The respirologist dies not want me to start anything new as not sure how I will react. I can’t find a lawyer yet as I have been told I am not disabled enough. They only want those big cases in Toronto, Ontario Canada but I can tell you I will not stop until I make this public. It has ruined my normal living for the last 6 months and it was not a walk in the park with Fosamax. I have a medical background and just wait and see where I go with this.

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Re: Dawn (# 2861)

I hope you keep on keeping on... it is really hard to generate any kind of action unless multiple people have horribly debilitating problems...ruining one life just does not seem to be enough to cause concern.

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Re: Lizzie (# 2863)

It may be possible in Canada, I wish you success. Here in the U.S. it is virtually impossible. A class-action suit against the maker of Fosamax was thrown out at the Supreme Court level; see my post about Europe not approving Evenity because it is dangerous, meanwhile our FDA approved the drug last year. Buyer Beware!

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Re: Linda (# 2865)

You are quite right to question. The reason is lengthy. In the U.S. healthcare is on the capitalist model, so there is quite a lot of money to be made, mostly to the pharmaceutical companies. In addition, physicians continue to believe the drug companies and disbelief of patient complaints of side effects (because they are downplayed by the companies). There are more natural methods of improving bone health such as diet and exercise. Check out Save our Bones and Better Bones Blog. Good health to you!

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Re: Sal (# 2868)

I ride my bike every night for 45 minutes around the neighborhood. I do my own housework, shopping and cooking. I feel like since the Prolia shots that I received over a year ago, my bones are aching more and I have a hard time on my bike if it is at all windy. The growths on ends of my fingers are very painful and ugly. I also have a large lump on my forearm. I am going to look into having them removed as they bother me. Two doctors have seen them and did not enter any opinion other than to have the Reclass regime which I refused!

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Re: Lynne (# 3)

I have had two injections and will not have a third. Nausea, vertigo, headache after the second shot is still with me going on two months after the infusion. This drug has destroyed my quality of life. Worse medical decision I ever made.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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