Prolia Side Effects (Page 66) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I did not have immediate side effects from my first shot either, I however, 6 months later have the singles, which is a side effect of Prolia. After that I endured 6 more shots, and was never told the horrible side effects of the drug, denosumab, which is an antibody that they are now treating CANCER patients with. I trusted my doctor and did not research Prolia until I started hurting all over, joints, muscles, horrible side effects. I tell everyone to beware, it is a form of Chemo and was a horrible drug for me. Horrible, not sure I will ever be the same. I hope this helps you and others>

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Re: Gloria (# 2788)

OMG, you had seven shots. I am so sorry, Gloria. It is a hideous thing. I keep putting something off but soon, I am going to write a long letter to the oncologist who gave me this thing just to prevent bone loss in me and I did not even have bad bone loss to begin with. The doctors need to know what they are doing to us. They are acting like ostriches with heads in the sand. I was afraid to go back to my doctor knowing he would try to put me on something else that would probably give me side effects too. I pray we can all eventually get prolia out of our bodies.

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Re: Andrea (# 2789)

I hate to say it, Andrea, but it’s all about being “in” with big pharma. I know for a fact that the doctor who prescribed it for me certainly was. She told me that she dealt with them regularly and told me that my reactions had nothing to do with the drug. I am now seeing an oral specialist re my mouth problems who is also treating other patients who reacted to prolia. Finally I’m having some relief with a treatment of Alpha Lipoic Acid(600ml) by Sundown Naturals. It’s taken 3 months but seems to be working! Not perfect but improved!

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Re: Andrea (# 2789)

I did go back to my endocrinologist and she acted as if it was my fault because I did not ask her more questions and I am a nurse. I had one injection and have been suffering ever since. I live in Canada and am going to see a lawyer and anyone else who will listen to how awful this medication is.

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Re: Maritere (# 2795)

Here, here! Let’s unite as Canadians and somehow spread the word. I tried to contact a journalist who does investigative work on health issues. Never heard back. Now I’m counting on my granddaughter who’s studying journalism at university! Somehow our voices have to be heard!

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Re: Debbie (# 2777)

I was investigated thoroughly for Lupus. I had all the signs and symptoms at the time, including the typical "butterfly rash" on my face. My endocrinologist, who prescribed Prolia for me, clearly saw Lupus as a possibility, although he did not tell me what the tests were for.
My ANA test was negative, although I now know that it is not a definitive test for Lupus. There is a transient, often drug-induced, variety of Lupus. I suspect that this is what I had.

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Re: Maritere (# 2795)

Everyone ,,check out the Save Our Bones website. This week is all about Big Pharma
and what they do to promote their drugs. In addition it indicated the cost of these drugs.

While these shenanigans are again acceptable in the US, you lucky ladies in Canada May have a chance at a suit.

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Re: Andrea (# 2789)

I was diagnosed with osteoporosis @ 30. l am now 58 & was told to take all these different drugs at 30 but refused, they have tried Prolia injections a few years ago but I refused. I did give in one year when I was in my 40s & took one of their drugs for 1 year but can't remember right now which drug it was, it was taken on a monthly basis for a week or two......anyway they tell me my spine is that of a 70yr old so l don't really know what is in store but it's certainly a worry

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Re: Dawn (# 2801)

I am so sorry that you are going through so much. Hang in there, it gets better, but it takes time. It took me me 2 years post Prolia to feel better.

I advise everyone to review the Save Our Bones website. It certainly empowered me, plus provided women with useful information to strengthen my bones without Big Pharma.

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Re: Dawn (# 2807)

My email is {edited for privacy}. I live in Thornhill.

Editor's note: Apologies, but we do not allow private contact details to appear in our discussions. If two users wish to get in touch with each other, we must receive a request from each person via our contact page with permission to disclose their email address to the other individual.

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Re: Susanna (# 2811)

I reported my complaint to the FDA last year and to the drug company too. Don’t think it did a bit of good but if enough do it may help.

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Re: Susanna (# 2811)

I have had the same experience in Canada but do have doctor’s who have agreed with me on the fact that Prolia has caused my issues. I am going to see a respirologist next month due to my asthma worsening for no good reason. I have had it for 14 years and since my one and only injection have had 2 asthmatic attacks. I have also contacted a group of nurses called Legal Connect to see if they can provide any direction. I will let you know.

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Re: Linda (# 2812)

Ditto Linda, I, too, contacted the company twice and also Canada health. Nothing except platitudes. Actually the company told me they had never had any complaints!! I also contacted the media hoping they might do an investigative report on those who had had reactions to prolia. No response! Certainly, I have seen similar articles about other drugs. My granddaughter is studying broadcast journalism so she may be my answer. She graduates next year! At the moment I just continue to spread the word to anyone I speak to.

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Re: Judy (# 2814)
When your granddaughter graduates, maybe she can make Prolia her first investigative report, if things are resolved by then?

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Re: Linda (# 2812)

I have also reported to Amgen in Australia and to the TGA, our equivalent to the FDA. My GP obtained an 'adverse events' report form from the Amgen sales rep! I submitted a lengthy and detailed account of my many side-effects, to what effect I don't know. The weight of evidence is mounting up, and I hope all of us can contribute to the process.

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Dawn, hi, the proof is always in the pudding. They can say whatever they want. But, will they repeat what they said to you when push comes to shove?

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Re: Susanna (# 2820)

It is in my chart at Urgent Care and emergency as I have had many visits with severe adverse events and I have copies of my clinical notes, test results etc. I am not sure that they would go on their own but if there is merit for any litigation on my issue they will have no choice. I am not concerned about that as much as do I have enough to take action. Will know soon.

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Re: JenjiOz (# 2818)

I am certainly willing to and will see if I can do a report to Amgen also.

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I reported to the FDA last week. I also sent Amgen a not so nice email. No threats, no profanity. Just exactly what I think they've done and what I think of them.

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Re: JenjiOz (# 2818)

I contacted Amgen Aust about a year ago to report my symptoms and the person to whom I spoke agreed that these could be side effects but that they are very rare, meaning that I shouldn't be attributing them to Prolia. Really?

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