Prolia Side Effects (Page 57) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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My mother, who is 76-years-old, received the Prolia injection in mid-June, and less than a week later, suffered a stroke. She’s had extreme difficulty recovering her strength, even with physical and occupational therapies. She’s constantly fatigued, has so much weakness and pain that her quality of life has diminished significantly. Are there any options for help?

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Re: June (# 2167)

Faith you are never free of this drug as it is a monoclonal body which remains one cell thick forever. The symtoms are much reduced but i am still bother by things i was never allergic to before for me it is the itching and inflammation.

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Re: Elaine (# 2168)

Well said, Elaine. I fear I will never be free of the inflammation, especially in my joints.

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Re: Elaine (# 2168)

I feel the same Elaine. I will not take the third injection due in November since the hives I experienced this year on holiday in the sun. It has made my body far more sensitive and caused afib. I am so angry that the medical
Profession are using us as guinea pigs.

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Re: Sal (# 2166)

Absolutely will have it checked. No sign of that so far, but her potassium is high, sodium is very low.

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Re: cathylester24 (# 2171)

That could account for her weakness. Still, it is important to check the calcium. About 2 months after my shot, I developed Hypocalcemia and Hyperparathyroidism. I had to be persistent, as 3 doctors (including the one who prescribed Prolia, blew it off even though this is a known side effect). Even if all labs are normal, Prolia causes weakness.

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Thanks to all who posted their experience. I was told I needed to start injections even though I'm 51. Said it was necessary because osteoporosis is so advanced in me. I will research other options. You have saved me from making a bad decision. So sorry you had to go through such side effects.

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I just developed a lump on my clavicle. in addition to headaches, painful bones, fatigue, and extremely low blood pressure. This was after my first time shot of Prolia Aug 25th, 2017. This drug needs to be reevaluated it appears that there are to many risks that outweigh the benefits which I haven't experienced as of yet.

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Re: BetseyCA (# 2177)

Yes, Prolia has been known to deposit bone where it is not supposed to be. Thankfully, yours is not in your eye socket or your sinus area. Even Mayo is confused about what to do when it appears in the eye socket. Definitely BAD drug. Please report all side effects to Amgen or your governmental body. Be well~

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Prolia side effects I've experienced:

Groin pain; fractured L3; muscle, joint & back pain; sensitive gums; headaches; numb legs; a fractured hip; hair loss; pain in my feet.

I'm at a different Dr every week and my only new inj. was Prolia.

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Re: Kayleen (# 2186)

Wow
My question is what is the NEW treatment? It is what we all need instead of Prolia ... I am looking at increasing my HRT and continuing with exercise and calcium intake ... keep us updated...

My dental specialist suggested I not pull any teeth for implant as it spurs the Prolia jaw problem. He said wait to 5 years post Prolia to pull any tooth... very interesting all if this... what we all go through... so different and yet so the same!
Feel vetter, everyone
Jan

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Re: Poodle (# 2195)

Poodle, I can't agree more that all of us are Guinea pigs in a study. I also blame some of the doctors who prescribe this because these drug companies offer them very lucrative " incentives". When I spoke to Amgen about my ongoing side effects I was told that they'd never had any other complaints! This is in Canada and I know we have a reputation as being very polite but I certainly know that we also speak up when necessary!

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Re: Judy (# 2201)

He worked with cancer patients in his residency who were treated with the denusaub (spelling) (same as Prolia but for cancer) They had gum and tooth issues . When teeth were pulled, the difficulty in healing caused them narcrosis of the jaw bone. My body is slow to heal since my Prolia shot. He said to wait the maximum if possible... he is the first doctor and/or dentist who fully believes in the multitude of side effects from the Prolia that effect us all -differently... I have had bleeding gums, mouth sores and loose teeth. I had not had this prior to Prolia. Also two posts loosened and fell out which made the implant discussion happen. One implant surgeon said wait for 2 years, another said not necessary to wait any time at all, What is Prolia....? It all depends on the doctors experience i think...

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Re: Jan (# 2209)

Thank you Jan! The hug was heartwarming...back at you girl! You are so right about the “cycles”. They tend to follow a pattern, none of which I found in any brochure about possible side effects. I’m happy that you feel better. I’m hopeful I’ll get there too. It’s just a lousy way for the medical industry to make a buck. They apparently forgot about the medical code of ethics.

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Betsey B (# 2212) --

Also Jan

Cycles! That is the way my side effects appear. Also, they appear in a particular order. Right now, I don't know if I am actually over this, or just between cycles. It has béen 11 months since my last shot. No provider has believed me about this. No, I take that back, my new pain management Dr. believes me about the whole thing. He has in fact, observed that he is seeing patients who have pain syndromes become extremely exacerbated on Prolia.

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Betsey B (# 2209) --

I also hate to tell you that Amgen is doing a 10 year study of Prolia and somehow I believe we are the guinea pigs in it. That should answer your questions as to why Amgen and the FDA really are not paying much attention at the moment. The most we can do is to keep calling and keep pressure on them with every single little or huge side effect we get. I read it some time back in the NY Times. Be well~

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Betsey B (# 2209) --

Thanks. I needed that info. I was supposed to have inj. this week but am leery. I already have migraines and enough back/joint pain. The list of side effects were plain and clear. I will not be getting the shot EVERY six months! Thank you so much.

My first bone density test was 3.50 but my Orthopaedic Dr. said nothing. Now, my family Dr. ordered one and it's 4.75. How bad is that? What is the very worst number? I'm so confused after the Orthopaedic Dr. not advising me three years ago!

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Re: Poodle (# 2213)

Dear Poodle, My orthopedic surgeon has told me that in order to remove the bone lump from my clavicle it would require invasive surgery. Also the location of the bone it takes an orthopedic surgeon and a cardiovascular surgeon to perform this type of surgery . So when you say that “it will cause discomfort and no problem to get it removed “ I don’t know what your medical background or for that matter pedigree is, you do not know what you are talking about. Put a muzzle on your mouth unless you know the facts!

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Re: Poodle (# 2221)

as a medical professional you do at times say things that are not true or medically sound.

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Re: Poodle (# 2221)

Nor did I need to! Put a collar and a leash on your yourself.. oh btw the clavicle is the collar bone!.. this is a forum.. people tell about their experience with interaction with drug etc.. not diagnoses..

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