Prolia Side Effects (Page 33) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I'm just waiting for the 1st class action law suit to start.
After 3 shot i'm in if it takes place.
Life has been horrible for me na dall Amgen did was sent me a letter showing the possible site effect.
I think they could have done better after spending over $1200 on the 3 shots. (It's not covered in Ontario, Canada by insurance).

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I too had my injection on your date and due for another on the 13th of August....needless to say not having another one!!!!!! please think twice before you have this lethal stuff...i can hardly walk now...it has cost me my mobility big time.....Longlegs

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I was given the Prolia injection in June 2011. Within one week I started to suffer from quite intense bone pain in my upper thigh as well as severe cramps in my hands and fingers. I don't believe my physician quite believed me, but the pain persisted for one year and kept me awake night after night. The pain in my thigh is finally gone, but my fingers still cramp up and the ligaments in my palm are swollen and painful. This has been going on now for over a year.

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Thanks Daphne - I downloaded Lara Pizzarno's book "Your Bones" onto my Kindle...and have only read part of it so far...I already learned that I should have been taking Calcium Citrate - not Calcium Carbonate...due to acid reflux and the meds taken to help reduce stomach acids....so I guess the Calcium has not been absorbed..'cause it was the wrong type! And I am considering Strontium Citrate -- but what about side effects ?? I am taking Vitamin D - also since low in Vit B12 - I take it as well. Gee I am glad I found this forum. My heart goes out to all of you who have taken Prolia... I have alerted my Family Doctor about the side effects of Prolia and my reasons for refusing to take it. At my age any suggestions are appreciated....I have made my own Weight Belt - and I have been wearing it to get more weight onto my hips -- and so far no low back pain - so it must be helping somehow. Thanks a bunch!

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Please tell me how those who suffer from the effects of the Prolia shot are being helped by the medical profession. It has been two weeks since the Prolia shot, and I am having difficulty sleeping at night due to pain. It travels; however, I experience pain in lower back and rib cage all the time. My legs feel achy and week. The pain in my left arm and chest makes it hard to find a way to lay down and be able to take a deep breath. We all need to document. I am waiting for a class action law suit. Prolia is a dangerous, debilitating drug that should be taken off the market.

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Hi Sister: I had my appointment with the pain specialist and he said that the Prolia should be out of my system by now. I told him that it wasn't and I was still suffering from the side effects. He said there was nothing he could do for me . I wish we could all get together and start a class action suit. I was reading the side effects in their pamphet and they have pretty well covered their butts. Many of the side effects that we are having are listed in the pamphlet, don't know if we would have a case. Hope everyone feels better soon.

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Irene, the doctor's office and hospital both said that no one had ever had any side effects. I was also told that the side effects which are listed on the Prolia web site and by those who had the shot never happened. Yes, some lawyers need to get onto this and stop this. The FDA should stop it because of the serious side effects.

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Hi , I received my first injection of Prolia jan. 2012. No noticeable side effects. I received my second injection in Aug. 2012. Immediately had flu like symptoms. Have had trouble sleeping. Am now experiencing back pain that travels to my neck. My neck aches all the time. I cannot turn my head head without pain. My doctor assured me no side effects. He gave me my first injection for free. Most likely a sample from the drug company. My daily rant has been I can't wait for 6 months to be up. Now after reading all your comments Sounds like a much longer wait. I will report my symptoms to the FDA. I want to finish by saying I am 62 years old and before Prolia was in excellent health. I am a runner, cyclist and weight lifter. I am used to working through pain. This pain is different . It is not exercise induced or from an injury.

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Dear Mary, I feel for you. Know exactly what you are saying, I too was in fair health until this injection was given to me, have so much pain in my back, jaw, headaches, cold hands, sweats - the list goes on. Yet the doc tells me its nothing to do with Prolia. But this is offered to Bone Cancer and Prostrate Cancer patients, why is it given to people who don't even have osteoporosis. Big trials and big Pharma reward the docs. Its been 18 months now and how do you get this poison out of you, when its injected, even Prolia doesn't know the outcome.

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I had my 3rd Prolia Injection 8 days ago on the 3rd day I awoke with unexplained severe bilataral lower back pain
I had a urinalysis normal, my Kidney function lab normal
then I remembered I had Prolia and looked it up OMG. Now what Rheumatologist, Endocrinologist, Internal Medicine Dr has no clue. How long does it last?

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Hi
I will take a lot longer that 6 months to get this poison at of your body. I'm already waiting 14 months and still not any better. I feel sorry for you that they talked you into this Prolia.
I did not know any better since I was one of the first ones to get it after approval.

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Hi My doctor wants me to start denosumab because my Dexia "T" scores says osterporosis. Doctors scare patients by saying if you do not use the drug you will fracture your hip etc and you end up taking a prescription without full knowledge. Can you let me know what are the side effects you experienced

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Research Monkey.
What a load of misinformation, much be supplied by Amgen.
I have had 3 injections and my life has been and still is ruined. Never had any symptoms before the shots it's now 14 months since the last shot and I now finally have the occasional day that start to feel normal again.
Both my specialists agree that it's still from PROLIA and they new me before I had the shots.
Good luck to all the sufferers.

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This forum is awesome. I was diagnosed with osteoporosis 12 years ago. I'm also hpothyrioidism, hachimoto . I'm on .125 mg of synchronic. I took calcitonin for 2 yrs. and fosomax for 71/2 yrs. 2 yrs and 2 injections of reclast. I was diagnosed with severe osteoporosis in my hips, told it could lead to fracture. Told to begin prolia in Dec. I'm 62 yrs old,and I have been told I look 50ish. I skied, and played tennis and stopped 10 yrs ago, because of back issues not related to osteoporosis. I work out 7 days, high impact Zumba 4 days, and put 1005 00 miles biking since may., 3 days of hi intensity weight lifting. I've had 2 arthroscopies on rt knee and one on left . The last one last yr. not related to osteoporosis, but to tennis (10 yrs ago) and recent to an accident in boot camp class. I asked my endrocronologist for a one yr. " holiday" from reclast. This year I lost 15% in my hips.i was told to begin prolia. I expressed my concerns about a drug only 2/1/2 yrs on market, and his reply " you don 't want to fracture your hips. " I have been researching the side effects and monitoring this forum, and decided not to take any more drugs. After taking 2 injections of reclast, I noticed a lump on my spine, which after seeing 3 docs, concurred it was a lipoma, fatty tissue. But this happened after my 2nd injection, plus I'm experiencing a lot of knots in my calves thighs and even back area, which I never had before. And I did all this exercise before reclast. The docs said this was not listed as a side effect , but I insisted this was "my" side effects. I've spoken with the other ladies in my classes, and none have these " knots" . And none have taken any drugs for osteoporosis. I've read " the myth of osteoporosis " and found it very helpful and encouraging. My husband concurs with my decision. I take vit D 50,000 units once amonth, citrical 600 with D too. I eat bok choy, broccoli and etc. great healthy diet. I' m 5'4 and weigh 122. I take yoga and Pilates. Which helps balance. I thank everyone in this forum , for helping me with my decision. I send all those ladies healthy and healing energy and pray you get relief from your symptoms. It took me weeks of reading, and research, and the nerve to participate in this forum. I will continue to read and participate.

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I got my second prolia shot in Sept., 5 days later my GI system went haywire. Lots of gas and more frequent bowel movement, some normal some like butterscotch pudding.Can't sleep and sweat all night when covered up and cold when not. I've been sick at my stomach but have some medicine that is now allowing me to eat again. If it is the polia will it work out of my system after a certain amount of time? It worries me. I really did not want to take it in the first place but my bones density is -2.5 and my Doctor wanted me to try it. I'm not made at my Doctor as she is trying to help me but I've never had my intestine acting like this before.

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Three months ago I had a Prolia injection. Twenty four hours later bone and muscle pain set in. I experienced nausea and dizziness. My body began itching all over after two days. My immune system failed and Epstein Barr Virus set in. The exhaustion that came with the shot was amplified and my heart began racing and I became even weaker. When the BPM went to 240, I saw a cardiologist and since have had a heart procedure and a monitor inserted to record what is happening. I am told the shot will eventually wear off. Is there hope? Yes, the severe bone and muscle pain tapered and is about gone after 3 months. I hope someday to recover, that is if nothing else goes wrong. Is it worth the risk? Are the horrific side effects predictable? No. We need to explore natural ways to strengthen bones.

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I recently posted a comment about the prolia and after reading some of the other side effects listed below on other post I'm convinced it is the prolia. I went to my pc doctor because of the itching and red spots creaping up all over my arms and legs and was also experiencing uti symptoms. He checked for that and saw blood in the urine but no bacteria. The next morning I was going to the bathroom and it was solid blood and clots!. Lower back pain and foot pain started and I was back to the orthopaedic office because I thought my feet were starting to fracture again.I still had not heard from the Dr. that gave me the injection, 4 calls to the office and am very frustrated. I did call and cancel my appt. for the next shot and then finally a msg from the Dr. but will have to wait till Monday to talk to him. I will definetly post the comments he made about the shot and maybe it will shed some light on this drug. Do I want to have more fractures? NO definetly not but I also do not want to spend the rest of my life feeling like I do now.. My blood work came back ok except for the blood calcium (one symptom is low calcium levels) mine is high and always has been because of my sarcordosis so at least that is one thing that has stayed normal, (at least in my case). good luck to all and I hope you all find solutions to your health. Pam

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It has been four months. My life changed after the Prolia shot. I experienced severe pain in muscles and bones. I break out in sweat and feel achy and weak. I have had a relapse of Epstein Barr Virus. My heart began racing out of control. My body itched all over. I experienced digestive problems. The symptoms have been debilitating....I went from fairly healthy to almost bedridden for the last four months. All of a sudden I am very allergic to Zantac which I could take before the shot. I realize some may not experience side effects; however, Prolia is worse than poison to others. Keep contacting the FDA. This drug has too many serious side effects. PLEASE, if you are considering this shot, read the real research, not that which the Prolia drug manufacturers conducted. Read about what is happening to those of us who are having reactions. After four months, I experience less bone pain and digestive problems, but I still have an immune system that is greatly compromised, sweats, and a very poor quality of life. I cannot believe this is on the market. Keep up the efforts to keep the FDA informed.

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I just got off of the phone with a rep of the FDA about the Prolia shot and its side effects that we are all experiencing. Not very impressed with her lack of interest. very generic response about deciding whether the benefits outway the risks of any meds we are considering. offered a form to report the side effects to the FDA and let me know that they are all read and evaluated by a panel. I told her about this website and how many there are out there effected by this drug with many many of the SAME side effects and with that there DOES need to be a PANEL looking at this DRUG to see if THEY think the benefits out way the risks. We all need to hop on the bandwagon and let them know about all of our medical issues so that they may indeed do that. Good luck everyone and feel better. I'm in my 3rd month with the same side effects and see no light at the end of the tunnel for relief......:( Pam

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Just read on for all the bad side effects..There are MANY!...I have a Question of all of you: Does anyone knwo about any bone marrow problems with Prolia.?.My wife, after 10 months of hell wit her Prolia shot has now been diagnosed with MDS, a severe blood disorder which used to be called pre-leukemia..some say it's cancerous..I
It is a disease where the bone marrow is defective and can't produce enough blood cells anymore...Often fatal and is progressive..She was fine until two weeks after she had her Prolia shot.Coincidence??..I don't think so...!

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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