Prolia Side Effects (Page 151) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

Re: Linda (# 2608)

I understand, my Dr. is also an Endo. There are legitimate cases for prescribing it, and it shouldn't be prescribed by just any Dr. in just any specialty. Of course, even on legitimate cases, the risk of side effects is high .

REPLY

Was this helpful? 0

Re: Linda (# 2608)

Find out for yourself. Go on line. Type in. PROLIA. See what it says

REPLY

Was this helpful? 1

Re: Norma (# 2612)

I gained 18 lbs. I think be cause my entire body seemed to be inflamed;
also due to the pain, swelling and especially the weakness, I could hardly exercise.

REPLY

Was this helpful? 0

Re: Marginot (# 2620)

I too had a tooth abscess and infection which eventually led to losing a front tooth. I have now undergone a bone graft and am waiting for it to "take" before I have an implant. All of my side effects happened after the second and mainly after the third injection. I still suffer from mouth sores which make eating painful. It's a terrible drug which I wish I had been more informed before I took it. Fear does terrible things when your doctor insists that this drug is the only one that will help you!

REPLY

Was this helpful? 0

Re: Andrea (# 2624)

They always say that, yet here we all are. Even if they haven't heard a particular complaint, they shouldn't be so dismissive. Doctors are too willing to believe what the drug reps (read salespeople) tell them; look how many doctors believed the drug companies about the new opiates not being addictive. The takeaway is become an informed patient and don't be afraid to disagree.

As for your symptoms, I wish I could offer you more guidance. Do you have a dental school near you? Sometimes we get better answers in an academic setting. Wish I could wave a magic wand and make it go away.

REPLY

Was this helpful? 0

Lizzie (# 2625) --

This is all sounding too familiar. It has been 2 years since I've been off Prolia and am still experiencing mouth sores and sensitivity to any food that is even remotely seasoned with spices( even salt to some degree). I've tried many over the counter products to no avail. I'd be interested to find out from you and others if you have had any success in helping this problem. I was also told it was a herpes problem. I had only experienced a few previous cold sores in my nose! Obviously even stopping Prolia has not stopped this problem .

REPLY

Was this helpful? 0

Lizzie (# 2629) --

Lizzie, how long were you on it? Also I am curious how long Diana was on it. For her to still have side effects two years after going off is just crazy. I feel for you women. Glad that yours is not so bad any more! I am feeling hopeful for my future. Now I want to know: Is estrogen blocker eventually gonna do something to me???

REPLY

Was this helpful? 0

Re: Marginot (# 2620)

So sorry for you and the others here talking about this.

REPLY

Was this helpful? 0

Re: Lynne (# 3)

Get off as quick as you can. This is a dangerous drug. Do your research on Prolia.

REPLY

Was this helpful? 0

Judy (# 2638) --

There is such a thing as Glossodynia, otherwise known as burning mouth disease. There are steps you can take to manage it, but too many to mention here. You can find it in " Google University" as it is a bona fide medical condition.

REPLY

Was this helpful? 0

Re: Judy (# 2627)

Lizzie replied to you about using acyclovir.Keep in mind the dose she was given would be the original dose of 200mg 3X /day. This dose can be maxed to 800mg5X/day which is what I take for Ramsay Hunt syndrome (chicken pox virus reactivation)for 5 days.You will have to find a willing dentist or doctor to prescribe this which won't be easy.
James

REPLY

Was this helpful? 0

Marginot (# 2640) --

And in answer to Lizzie, I was given an anti-viral which caused nausea so I had to stop. The specialist I saw also suggested it could be a herpes virus. Up until Prolia I had only experienced one cold sore. I will check out the info on dry mouth. At the moment I am using Mi Paste in tooth trays every night to help with my dry mouth. Unfortunately it's not helping my mouth sensitivity. Of course I'm still having to wear a flipper until I get my implant which probably won't be for at least another 6 months. A long process as I had a bone graft in February which also has to heal and "take"!

REPLY

Was this helpful? 0

Re: Poodle (# 2653)

Hi Poodle. Yes I have had tests and I have a Mild Peripheral Neuropathy of axonal type. However none of these symptoms were present until I started Xarelto. I need to b on thinners because I have Protein C Deficiency and have suffered 2 bouts of leg thrombosis in the last 4 years....maybe longer. If I was starting over with my aging body I would note down every single ache, pains, injection and prescriptions After several years my Consultant Physician agreed to change it to Eliquis which has made no difference at all and has given me a sore throat since April this year which is not long after I started Eliquis. The side effects list this as a possibility. My GP Rx an antibiotic way back in May and suggested I gargle every 2 hours...I still have the sore throat. I am prone to bad side effects with most drugs. I can't take Lyrica and I'm having trouble with Micardis which was prescribed for my erratic BP. I am also on Isoptin 240 for BP.. Your input is very helpful and I like to read what you comment to others. Thank you

REPLY

Was this helpful? 0

Re: Jennifer (# 2657)

It's great that you are now out of the osteoporosis zone, and you are very fortunate that your treating specialist is not inflicting more Prolia on you. Prolia really is effective against osteoporosis, but frequently at a huge cost to general health. The skin-related effects you describe are virtually identical to mine. The most overwhelming, although not necessarily the most serious, effects I experienced were massive lethargy together with a range of skin disorders.

Three months after my first injection I had terrible hives which eventually came to resemble capillaritis. I had incredible itching, bruising, facial swelling, purple splotches on my face (probably tiny bruises from friction from my pillow). My limbs blossomed with red pinprick spots which morphed into red, then brown, blotches. I scratched in my sleep till my ankles bled. I used too much cortisone lotion, causing thinned skin and bleeding to my face and upper chest. My scalp was covered in itchy bumps and clumps of hair fell out. A couple of new moles. So many sleepless nights, not enough antihistamines to have any impact. Ridiculously high immunoglobulin readings.

A year after my second (and last) injection nearly all of these have subsided or disappeared entirely. I have occasional itching around my armpits (which are now hairless!) but my skin looks and feels fairly normal these days. This time last year my skin looked hideous and felt worse.

If you delve into this site you will find many similar accounts. Many detailed and much more serious issues but the skin problems are a constant theme.

REPLY

Was this helpful? 0

sal (# 2665)

Unlikely to be a coincidence or "environmental factors", those convenient explanations offered for weird phenomena experienced concurrently with, or soon after, Prolia.

REPLY

Was this helpful? 0

Re: Gloria (# 2672)

I agree ! Unfortunately it is next to impossible to fight " The Big Boys " I.e.Big Pharma ! All we can do is what we are already doing : educate people

REPLY

Was this helpful? 0

Re: sal (# 2673)

Unfortunately we don’t have the resources to educate people like big pharma has! First and foremost giving prolia for osteopenia or to patients who have had success with other meds doesn’t seem to stop Drs from prescribing it.

REPLY

Was this helpful? 0

Re: Judy (# 2676)

I wish I had known about this site before I let myself be talked into taking Prolia. On the other hand, I was so frightened (I had vertebral fractures) I might have taken it anyway!

REPLY

Was this helpful? 0

Lizzie (# 2677) --

I certainly did, and my skin too.
It has resolved, though. My last shot was over a year ago.

REPLY

Was this helpful? 0

Re: Lizzie (# 2678)

I had so many skin issues of different kinds! Terrible itching on my scalp was part of it all. There were crusty lumps and smaller bumps, along with generalised hair loss, and a clump of hair missing from the worst bumpy area. I had a crawly sensation on my face, in my nose and ears, and particularly severe around my forehead, eyelids and brow bone.
There was hardly a part of my body that wasn't itchy at some stage, and disfigured by red marks of various kinds.
What got me through was Novasone lotion, but I used it for too long and got secondary side-effects - e.g. thin skin where I had used it most. I still get small echoes of these rashes etc when I eat certain foods that I never used to be allergic to pre-Prolia. At least now I rarely lose a night's sleep due to itching and I can get by without such expensive anti-itching creams and ointments most of the time. It has taken a year since my last injection to recover this far.
I think we all experience effects which are subtly different but with so much commonality.
I really hope this settles down for you quickly!

REPLY

Was this helpful? 0

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES