Prolia Side Effects (Page 152) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Lizzie (# 2678)

Yes, and my scalp started breaking out with rashes, really bad, and now my hair is thinning really badly. As I have stated many times on these forums, Prolia has been a nightmare for me and I wish I had never taken it without being told of all the horrible side effects of the drug! Prolia has been and still is a horrible drug for me. As for my scalp, I am now using Head and Shoulders shampoo and have to put anti-itch creams on my scalp sometimes. Hope this helps.

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Re: Gloria (# 2683)

I have just started breaking out with little hives again ! It took a year after my last shot for this to resolve, and now 8 months later it has returned !

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Re: Lizzie (# 2686)

Novasone lotion (mometasone furoate 1mg/g) works really well on the scalp. It is runny, not a cream, so hair looks OK. Very effective for short-term use (up to a month if used regularly). Prescription needed in Australia and probably elsewhere.

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Re: Bob (# 2690)

Hi Bob. It's a dreadful drug and the only response I get from my medicos is that all drugs have side effects. really? I contacted Amgen Australia and their response was , 'well yes Prolia can cause those particular side effects but cases are very rare which I felt was an insinuation that my problems couldn't possibly be side effects from Prolia. My main problems are aching left side jaw and thigh bones plus other stuff which all started over 3 years ago. I have not had an infusion for almost a year but nothing has improved.

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Re: Gloria (# 2696)

My sentiments exactly. It disgusts me that they are allowed to jeopardize the lives of so many people.

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Has anyone experienced less side effects as time went on despite continuing promos shots. Last shot I experienced much less side effects.
I finally found a Dr. that agrees that what I had experienced before were side effects of promos. My previous Dr. Would never admit that they were from propos . I had so many tests that were unnecessary.

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Re: Lois (# 2700)

My last shot was Jan '17. I still experience side effects, especially related to Thyroid.

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Re: JP (# 2706)


Bravo!!!

Although I should have known better, I took Prolia, and have regretted it ever since that day 2 years ago.

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Re: Shirley (# 2712)

Hi, Prolia can be very bad for your teeth, I was informed of this by my dentist. Also, there are a number of post on these sites of people actually loosing their teeth and severe gums problems. As for me personally, the drug has been a nightmare. I tell everyone, it should be named Prolia poison, I suffered most of the horrible side effects, and was not told of them before taking the drug. As I said, it is a horrible drug and the FDA needs to take it off the market. I hope this helps you and others, hopefully not to suffer as I have from the injections of Prolia. I will never take it again.

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Re: Lizzie (# 2722)

This is similar to the Opiod epidemic, Dr.s are blindly accepting what Big Pharma tells them. Just like with opioids, there doesn’t seem to be prescribing criteria, or limiting prescribing to certain specialities. But how to accomplish that ??

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Re: Judy (# 2726)

I hope you enjoy every hour of your vacation.

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Re: Mometter (# 4)

I have had four injections. Last one a year ago. I never went back for the fifth. After injection two I started feeling a weird thing in my mouth. After injection 3, it was getting bad. After injection four, sores appeared on my tongue and no doctor would tell me what I had or how to cure it. I finally figured it out for myself. It had to be the prolia because after injection 4, a strange swirling sensation also appeared inside my body. It's been with me ever since. I am half a year off Prolia but I have no lining on my lips (my mouth feels like a sponge) and I always have a horrible sensation on my lips and in my entire mouth now. It gets really bad the second half of the day. So I wear a mouth guard at my house. Keeping my lips separated helps me not to "feel" it. I researched and there is no condition online that fits the description but I managed to find a website that discussed how those on chemo can lose the lining of their lips. I have lost the lining of my lips. I used to bite my lips but now there is no skin there to bite. I am wondering how long this can go on. They say Prolia is not chemo, but in my opinion it is as STRONG as a chemo drug. Otherwise, how do I have this strange condition? There is no explanation. I got many blood tests and nobody can offer me any explanations. Meanwhile, I feel like something is swirling inside my body. I can live with that, but I do not like it! I feel sometimes like I am walking on a cruise ship! And it's not a balance issue. I have good balance and do not have the symptoms i have read about associated with vertigo. Read what everyone is saying here. Everyone is different. I have only found one person who had my reaction to Prolia. Others are having other horrible reactions! Too bad they don't do statistics on all of us and find out our different ailments.

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Judy (# 2741) --

Have you tried Xylimelts ?

They have been a lifesaver for me.

They are tablets that stick on the gums.
I also use a night guard, and it does not interfere with them.

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sal (# 2742) --

Yes, I have! Every night. I also was using something I got from the oral specialist called mi paste. Unfortunately it’s not available in the stores here( Canada) and I pay $20 a tube! I think it’s available online. I liked it as I find that the flavour I get is not mint which tends to sting my mouth.

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Re: Dawn (# 2737)

So sorry for all that happened to you.. I wish I knew what we could all do about this. We deserve something for what we are enduring!!

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Duckbill (# 2744) --

OMG, I am so sorry. I had four of those injections so I guess this means I am fated to endure my problems until my death. What horror they have put on us.

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Re: Sal (# 2731)

That is how they got Prolia approved also. Through something called creeping. They are only concerned about how much money they will make.

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Dawn (# 2747) --

Yet they deny it, and have convinced the doctors

This is like the opioid epidemic where
doctors bought the line that the drugs were safe.

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sal (# 2749) --

Sal, after all these years on this chat site and spreading the word to friends, etc, something has to help others considering prolia. I have a friend who’s been on it for years with no ill effects. Maybe we all get a spiel from our doctors that it’s safe and is the only answer for our fragile bones. Mind you, it was a gynaecologist who prescribed it to me! By the way, so far, my bones at almost 78 years, are doing very well. I eat a high calcium diet, vitamin D and exercise.

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Re: Andrea (# 2741)

Thank you so much for mentioning the "cruise ship" feeling. I also often feel "off" when walking, but it is not vertigo. I could never describe it and it happened after the Prolia shot. I never connected the two.

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