Prolia Side Effects (Page 144) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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EllenI (# 2330) --

That could well be a nerve in your back that is causing those problems. I would suggest a Rheumatologist and a full work up. Prolia causes so many different problems on different people. Some of us get the same things while another may get something totally new. It is true that Prolia is the Devil's drug. Years later you will recover a lot from this drug but so far I don't know of any total and complete remissions from it, i.e., I still have the hair and nails issue. If you are in the USA, a letter to your Senator would help get the Federal drug people looking at it in a less favorable light. They have more power than we, the consumers, do. Be well~

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Re: Maritere (# 2337)

Thanks for letting me know there are other Canadians suffering from this horrendous drug. I now have an added problem to add to my list. I tripped last night, fell and broke 2 bones in my wrist. Now I'm not necessarily blaming it on Prolia but I do find it interesting that after being off Prolia for almost 2 years my latest blood work still shows a higher that average WBC. I know that Prolia compromises your immune system so, I ask myself, is this rise due to Prolia or some other reason for which I have no explanation! Of course the break was due to the fall, not the WBC but I'm still dealing with bouts of mouth sores and muscle pain. Now with this fracture I'm afraid the orthopedist is going to blame my lack of bone therapy and I refuse to take anything else that stays in my body long term. My calcium count is good as is my vitamin d count. Maybe it's back to Actonel....I'm in a real quandary. My GP was trying to have me maintain my bones with exercise and diet. Any suggestions out there?

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I have hypothyroidism and dialysis 3 times a week. My specialist wants me to prescribe prolia for Osteoporosis. what are the consequences.

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Re: Judy (# 2344)

How about Yoga for Osteo ? Check out Dr. Loren Fishman in NYC. He has a book and videos of Yoga positions ( of course once you are healed ). My go to exercise is TTAPP. There are also the dietary approach, i.e. an alkaline diet that won't leave minerals out of the bones. On line there are such sites as Save Our Bones and the Better Bones Blog.

Be well.

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Re: Poodle (# 2342)

Every post I see re opposition to Prolia appears to be from patients in the USA and Canada. Is there anyone in Australia who posts here with similar problems, other than me that is?

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Re: Giralda (# 2345)

How can your Dr. even mention this very dangerous monoclonal antibody drug to someone who has two serious conditions! Prolia plays with your immune system affecting almost—if not everything—in your body. The paradox is that even your bones suffer horrible consequences: necrosis of the jaw and spontaneous fractures (of the femur and spine) are not uncommon.... Please use weight training and a healthy diet with lots of organic dark green leafy veggies and forget this poison. I wish I could post «before» and «after» pictures of myself for you to judge. On March 30... a year and two days ago I made the biggest mistake of my life by trusting my GP who must have had strong reasons to insist so much that i get this injection.....,Take care if yourself! All the best

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Re: Giralda (# 2345)

Please let me add my voice to those who advise against this drug. See Save Our Bones for diet and exercise advice.

I can't imagine taking this toxic drug with the conditions you already have.

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Re: Annie (# 2354)

Thank you Annie for sharing your experience. It’s too late for me as I did receive a shot in March of 2017 and although it was my only one, i’ve had many of the symptoms described in this meds chat: Disabling autoimmune rheumo-dermatological responses, severe hyperthyroidism, severe weight loss, the loss of a healthy tooth, hair loss, severe and debilitating migratory joint pain, and lately a horrible Graves’ ophtalmopathy that totally deformed the expression of my eyes and my whole face. My 2018 Easter weekend was spoiled by a new one: A locked jaw with excruciating pain. All the best to you Annie. I'll pray that you get well soon...

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Judy (# 2345) --

Hi Judy, I had increased my bone density just by doing weights and eating a very healthy diet, such as a lot of organic, dark-green, leafy vegetables. Hope you are recovering fast and well from that hand fracture! Take lots of care!

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Judy (# 2345) --Usually a higher WBC indicates an infection, bone marrow problem or a DRUG. Can Prolia still be affecting your immune system? You should be out of that specific problem by now. It does get into the worst of our DNA that we knew nothing about until Prolia causes it to pop out of hiding. Your blood should really be back to normal by now. I would ask my Dr. to do a little more checking around unless this has been an 'always' with Prolia for you. So very sorry about your wrist. You will be fine and dandy in 6 weeks and maybe a little PT if it gets stiff, depending on where the breaks are. Wrists are one of our most likely bones to go bad with any osteoporosis but it does not necessarily mean that you have to take medication for it. There are some very good alternative suggestions for you. I believe they have some validity. We know that Prolia is not the answer and neither are the bis's so why not try something natural for a change? It will hurt you much less than the Prolia did. Will it work? Give it a chance. Heal well and quickly~Pood

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Hoe much water do you have to drink with prolia injection. And where can I find it.

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Re: Judy (# 2357)

I have had three fractures since I took one injection. My dr.'s also said no one else had a problem. I am 76 yrs old and never had a fracture before. Can't get anyone to help me.

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Re: JenjiOz (# 2360)

Thank you so much Jenny. I'm in a quandary about stopping the stuff as I'm just about due for another one. It's the aching jaw and thigh bones that cause the most distress. I know the GPs will just say 'do you want a hip fracture' I'm 79 and I can do without all this pain at night time. I've always been active with a big garden and so forth until we moved into this retirement apartment in June last year. We have a physio onsite so I'll get an appt to see him next week and see how we go with that.

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Re: JenjiOz (# 2360)
At least with Actonel there is a large sum for class action lawsuits. I don't know if it is world wide or only in the USA. When my Dr. wanted me to take it, I mentioned the class action suits against it and he just said that drug companies get sued all the time. Well, only if they do HARM. I told him I did not want to be one of them and that ended the discussion. I have had nothing broken or any other bone problems after stopping the Prolia except for the fracture IT caused in my spine. When I have surgeries for new joints. my surgeons are not complaining about the state of my bones. Something must be working! Pood

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Re: Poodle (# 2358)

Poodle, re my WBC. Because it had been on the high level my Dr has, in the last months done 2 more tests. It has now come down and is near normal, thank God. As to my bone density, it is not good but not considered "at risk". My GP is very hesitant to have me take any meds due to my reaction to Prolia as well as other drugs( not for my bones) . She is having me eat a high calcium diet as well as exercise. Of course now, because of the wrist fracture she may think differently.
I see the ortho Dr tomorrow and am anticipating some flack...maybe not! The Dr that put the cast on did say that I was lucky ,at my age, that it wasn't my hip. It was also a clean break that didn't need to be pulled back in place.
We women are such Guinea pigs when it come to drugs, hormone therapy, bone meds, calcium supplements. I'm trying to advocate for my own health and it's difficult because you read and hear such conflicting info!
Thanks for your concern and feedback.

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Re: JenjiOz (# 2360)

Hi again. I actually do know 2 people here in Oz with problems but who have not connected their issues with Prolia. One who is 77 has necrosis in the jaw and says her jaw has been eaten away but never dreamed that it could be an adverse effect of something that was supposed to help her bones. It's a worry.

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Re: Judy (# 2367)

Try a pamidronate infusion it has helped me as I have Osteoporosis in my spine with 5 fractured vertebrae ( my gp misdiagnosed me with a pulled muscle!) this has taken me out of a wheelchair and walking again, just had very mild side effects after the infusion for a couple of days, i have been onthis for just over a year now and have had 4 infusions.

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Re: Hazlat (# 2371)

This is a bis, exactly the same thing as Reclast and Boniva. There is a large class action suit of $63 mil for broken femurs with it and also has the same effect on the jaw bone that Prolia has. I tried the Reclast. I was delirious for over 2-3 months and not well for the entire year. Then, after the bone scan, it did zero. I can only hope and pray that you have better luck with it. Be well~

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Re: Poodle (# 2372)

I was at the hospital today for a follow-up with my wrist and to get a new cast...purple! As I suspected I was visited by someone from the osteoporosis clinic re bones, meds etc. Once I told her what I had been through with prolia and what I am doing now[ diet & excercise] she made a very hasty retreat and wished me well.
Unfortunately I'll have to wait for the exercise part besides wiggling my fingers every hour! That's on top of the last year dealing with a very painful rotator cuff tear and biting with no front tooth thanks to an infection in my mouth due to prolia.

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Re: JenjiOz (# 2370)

You just told my story. I always swore I would never take any of these meds.
When I was first diagnosed with Osteo.
I refused meds. It was when I had vertebral fractures that I got scared. No Dowager's Hump for me ! That left me vulnerable. Now I am resolute, no meds for me.

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