Prolia Side Effects (Page 140) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

I was concerned when I had my first injection the last of May of this year. I just had my second injection l0 days ago...so far I've had no side effects from either injection.

REPLY

Was this helpful? 0

The one thing that I noticed after 4 to 5 months after first shot was that my hair stopped falling out. Now I will have to worry about vertebrae fractures because I'm discontinuing this horrible drug, and going to try and do natural things to help my bones.
Barbara

REPLY

Was this helpful? 0

Re: Betsey B (# 2219)
You did not state the location previously on your clavicles. Could just have well been on top.
Pood

REPLY

Was this helpful? 0

Re: Barbara (# 2220)

I’m with you on the natural and herbal.. let me know what you get that works.. I have been taking high potency soft caciim, ultra bone up,D3 in mega doses. Hair loss is still frightening but not as severe. Epsom salt baths and coconut water. Rice water is a great hair strengthening rinse too . Simple to make .

REPLY

Was this helpful? 0

Re: Barbara (# 2220)

I too have gone natural. It is too soon to see results, but at least I feel better. My next blood work and and DEXA is due next month.

REPLY

Was this helpful? 0

Re: Sal (# 2216)

Thank you for acknowledging me and my posts... it is comforting to hears others are cycling... I say cycles to my different specialists and I often see an eyebrow raise or a corner of a lip curl up to a disbelieving smile.. it is so discouraging even though I know it to be my truth. The fact that we share our story and pain and journey through this is what keeps us going and keeps hope in our sights... my comment is often that cycling of symptoms is reassuring to me at this point as it means they are not permanent! Hugs and hope to everyone...

I would also like to suggest that we ignore anyone posting rudely on this forum. We all need support and virtual hugs... there is no energy for negativity... we know who is helpfik and who is not... helpful and hopeful is what this forum
Is about....
big hugs to all of us...

REPLY

Was this helpful? 0

Re: Judy (# 2229)

Regarding Restasis, that drug can lower the immune system. When I took it, I had a chronic oral thrush. In addition, I had severe headaches with stabbing pain in my eyes. Additionally, the new drug, Xxidra also caused me acute headaches and stabbing pain in my eyes, but not the oral thrush. Currently, I take autologous eye drops. My blood is drawn, spinner down to the serum, then the serum is added to Refresh eye drops. In addition to no side effects, a 3 month supply costs less than Restasis or Xiidra! In The U.S., our drug prices are insane. For Restasis, I paid $ 500.00 for 3 months, slightly less for Xiidra; autologous drops are $150.00!

Regarding your shoulder, my physiatrist, Dr. Loren Cushman has written books and I think is on YouTube demonstrating Yoga Poses for Rotator Cuff tear (he repaired his own that way); also yoga for Osteoporosis.

REPLY

Was this helpful? 0

Re: Judy (# 2229)

Thank you Judy. Being part of this group, experiencing similar symptoms and sharing our experiences has been extremely helpful. Living this hell in isolation would have been ten times worse. Hoping for a full and prompt recovery for you and all in this group, I wish you a very happy Holidays.

REPLY

Was this helpful? 0

Re: Sal (# 2228)

Thank you Sal for sharing about your special anti-inflammatory regime. I am going to follow your advice. Take care. Happy Holidays and hope 2018 brings us all HEALTH, the one thing we take for granted for too long sometimes... All the best to you.

REPLY

Was this helpful? 0

Re: Maritere (# 2227)

This is what I found.... it was first introduced in Europe. And there’s more. Lots more!

Centerforhealthjournalism.org/2015/03/21/prolia-another-wonder-drug-wasnt

REPLY

Was this helpful? 0

Re: Maritere (# 2231)

Thank you, Maritere for your kind messages.
I finally feel like I have reclaimed my life,
just in time for my 70th birthday !

I too, appreciate this message board. To be validated when no one else believed me, has been a lifeline.

REPLY

Was this helpful? 0

Re: Maritere (# 2227)

I would like to ask you if these monoclonal drugs ever leave your body. I asked Amgen and could not get a definitive answer. I thought you might know .
Thanks you. Barbara

REPLY

Was this helpful? 0

Re: Maritere (# 2227)

Maritere, it suddenly dawned on me after reading that you had experienced erythema nodes on your legs that I, too, was diagnosed quite a few years ago with erythema nodosum . I had very sore lumps all over my legs along with sore joints. The reason I'm telling you this is that at the time they said it is quite often the result of a reaction to a drug so it's seems more than a coincidence that you should develop this after taking Prolia. Just a thought but it sure debunks what your doctors told you.
Wishing you improved health and a happy holiday and hopefully 2018 will be a better year for you! J.

REPLY

Was this helpful? 0

Barbara (# 2221) --

I was given this drug in May 2016. I have had all kinds of problems. I now have a fracture of the sacrum. My family doctor said usually the only way to have this kind of fracture is in a car wreck or something of this nature. I am 76 years old and never had a broken bone before. It also is causing me problems with the ligaments in my hand and feet .

REPLY

Was this helpful? 0

I just got my 4th shot of Prolia. This time my blood pressure shot up. I had gone to my primary doctor the day after my Prolia shot for a routine appointment and my blood pressure was 172/80. I have always had good pressure. My chest feels a little tight and my heart is beating harder. I called my Rheumatologist and was told it could be a reaction. If it gets worse go to the ER. Give it a few days on monitoring. I am scared and nervous. I don't want to get worse or go to the ER. Christmas is a few days away. Of course I still have more things to do. Has anyone had this problem with Prolia and blood pressure rising?

REPLY

Was this helpful? 0

Does anyone know how long Prolia stays in the body?
Is there any kind of Doctor that can help get it out of your system? I appreciate any kind of information about this.

REPLY

Was this helpful? 0

Poodle (# 2219) --

I talked with a supervisor at the FDA and this gentlemen told me that we have to start letting our congressmen and women our concerns. He told me that they have a big pull in getting a drug off the market. SO please pass this on and flood our government with letters and phone calls.

REPLY

Was this helpful? 0

Betsey B (# 2234) --

This is an old article from California. It did, however, tell the truth. I read it a few years ago when it first came out. Now does Prolia leave the human body? Answer: Yes, one injection is gone in 6 months. There is only a tiny molecule of it in you that cannot harm you any more than an aspirin that you took 20 years ago. They are both carbon based. Then we come to the side effects of Prolia. That's a totally different subject. Just because the Prolia is gone does not in the least mean that the side effects are gone. Some last years beyond a single Prolia injection and we also know that Prolia can cause death too. When our immune system is semi-turned off as in our T-cells and T-cell helpers are not actively going thru our bodies hunting down and killing every virus, cancer or bad bacteria we have in us it leaves us up to a wide range of infections, cancers and death. With just only one injection, the immune system should be back in full force and effect within the 6 month period. However, it cannot repair damage that was done to us while it was not working well. I've been off of Prolia for several years now. My immune system is back to perfect. What about the damage it did to my teeth and hair follicles? My eye? My gut? The immune system cannot fix that which Prolia killed or damaged. Not only does Prolia eat up the gums. It starts on the roots of your teeth. Once the hair follicles on your hair are dead they are dead. It's too late for our immune systems to help us. The only help for those that are still suffering is to go to an Immunologist and get your immune system reset ASAP. You will still have a long road to hoe but the quicker we can get our immune system back to normal, the faster we get well and the less chance of bad side effects doing permanent damage to us. Immunologists are the key to getting us reset as quickly as possible. Now, if I can find one where I live, I'm sure you can too. Start checking and keep calling. You may also notice that the majority of the new medicines we have in our world are biologics and have the very same side effects that ours does. To me, that is not encouraging news at all. Before any Dr. recommends anything, check it out very well for yourself before you say yes. We cannot be vigilant enough. To that end, I want to wish all of you to have a very wonderful holiday season and start feeling better. We have a new year coming and you need to be healthy. We have endured more than we should have. Be well~Pood

REPLY

Was this helpful? 0

Re: Jeanne (# 2240)

Thank you for the information. I will do so. Unfortunately, one of mine is useless, and the other one is retiring. I will, however, being to petition others.

REPLY

Was this helpful? 0

Re: Poodle (# 2241)

Thank you for your information. Yesterday, I had this conversation with my Physiatrist, a Dr. who prescribes Yoga rather than drugs for Osteoporosis. He pretty much said the same thing, in fact, he feels Biophos. drugs are worse in that regard. However those huge Osteophyte s on my joints are never going to leave my body, as well as the other negative effects.

REPLY

Was this helpful? 0

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES