Prolia Side Effects (Page 12)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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221

When did the pain begin? Why did you have 3 shots?

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Please advise everyone you know who has osteoporosis to study and read accounts of those who have had the serious side effects of Prolia. My specialist did not check my record nor listen to me when I told him about Type II diabetes, tryroditis, thyroid surgery and suppressed immune system. His office and the hospital where I was given the injection said NO ONE ever had a reaction or symptoms such as mine.

I have debilitating bone and joint pain, pain in muscles, vertigo, nausea, itching all over my body and ache all over. I am weak.

I went to another doctor's office where I was told someone else had the same symptoms and it could take 6 months for this to subside. . I have to push through pain, vertigo, nausea,and exhaustion. The doctor prescribed a dose pack of prednisone to help with itching. So far, I have no relief.

The doctor's office told me to report the serious side effects of Prolia to the FDA. I did. I hope that anyone who reads this or has had this nightmare happen will let others and the FDA know about this drug. No one should have to suffer this much or this long.

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223

I had 3 Shots because the doc said the pain was not from prolix and if it was it will go away. Unfortunately it never did. Now i'm looking forward to the day when it will get better.

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224

this is my 3rd shot of prolia and this is the first time im having side effects,dizzyness,nausea,weak and just dont feel well,why did i not get this with the other 2 shots,

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225

Hi Daphne and Schatzie -
Thanks for the info -- I will use Strontium Citrate - 640 mg and be guided by your advice - take at bedtime - and take Calcium in the morning with yogurt etc.
I will ensure that my Family Doctor monitors this forum - how can we get the message about Prolia circulated? I guess everyone must do their part - and keep the Prolia persons in their prayers that the side effects will go away and they won't be left with permanent damage.

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226

The National Osteoporosis Foundation also has a blog that has lots of useful information and relevant discussions. Check it out.

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227

I am trying to get the word out to my physicians and dentist. I recently printed off information from the National Institute of Health and from the Prolia manufacturer and took them to my dentist and my family doctor (it was my rheumatologist who wanted me to have the injection). I highlighted the side effects and warnings for them. Neither of them had even heard of this drug. I told them about the number of postings on this site and the serious adverse effects reported and both of them seemed very interested. They also advised me not to take this drug under any circumstances. I also had another Vitamin D drawn. The Pharm-D tells me my levels should be between 60 and 90. My last level, 3 months ago, was 26. I have been taking 10,000 iu of Vitamin D3 with vitamins K1 and K2 each day for a few months now. I will let you know what my new level is and if this dose, as recommended by the Pharm D, is working adequately. My prayers for speedy relief continue for all of you who are suffering as a consequence of taking this drug.

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228

Please tell me how those who suffer from the effects of the Prolia shot are being helped by the medical profession. It has been two weeks since the Prolia shot, and I am having difficulty sleeping at night due to pain. It travels; however, I experience pain in lower back and rib cage all the time. My legs feel achy and week. The pain in my left arm and chest makes it hard to find a way to lay down and be able to take a deep breath. We all need to document. I am waiting for a class action law suit. Prolia is a dangerous, debilitating drug that should be taken off the market.

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229

Can you provide the link where I can find the info from the National Institute of Health - and the Prolia Manufacturer. I too will copy the info and share with my Doctor (who is in a clinic with about 7 other doctors who may be interested). Thanks

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230

Hi Sister: I had my appointment with the pain specialist and he said that the Prolia should be out of my system by now. I told him that it wasn't and I was still suffering from the side effects. He said there was nothing he could do for me . I wish we could all get together and start a class action suit. I was reading the side effects in their pamphet and they have pretty well covered their butts. Many of the side effects that we are having are listed in the pamphlet, don't know if we would have a case. Hope everyone feels better soon.

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231

I was diagnosed with osteoporosis 10 years ago when I was 50. For 5 years I took actonel and I now have a problem with a feeling of a lump in my throat when I am eating and feel as though the food is stuck there. I found out today that it is a common side effect of actonel. Then for 4 years I took strontium ranelate. My specialist (who was not the doctor who prescribed it) says that he doesn't like the drug. He says I have been putting heavy metal into my body and blames it for the bleeding disorder I was diagnosed with last year as well as the clot I had in my leg during sclerotherapy treatment (which he says could have killed me). Prolia was the next plan-until I read all the advice here. I have come to the conclusion that I would prefer to have a broken bone than take any more drugs and if I don't fall over maybe I won't get one. My next plan is diet and exercise. I go to Curves 3 times a week to build muscle. I had read that jumping helps and found a site called Oregon State University, Extension Family and Community Health, Physical Activity for Life. This site speaks about a Better Bones and Balance course which is largely based on jumping and is available in various parts of the USA. As I live in Australia I have asked an exercise physiologist to write a program for me. Although I have been told you shouldn't do full jumps if your T score is less than -2.5, I have been jumping for the last 10 years without any bad effects (my spine is -3.1).
I liked the posting by the lady who has resisted taking the drugs for 25 years and has never broken a bone. I have learnt a lot from this site.
I hope all those with such terrible side effects from the Prolia will soon start feeling better.

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232

If drug sale reps, lawyers, and doctors were forced to get the Prolia shot and suffer bone, joint, and muscle pain, nausea, vertigo, and itch all over for 6 months and longer, we would see the FDA take action. I seriously doubt that any drug rep, doctor, or lawyer would willingly take the shot without researching it and then would flat refuse to get it.

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233

Irene, the doctor's office and hospital both said that no one had ever had any side effects. I was also told that the side effects which are listed on the Prolia web site and by those who had the shot never happened. Yes, some lawyers need to get onto this and stop this. The FDA should stop it because of the serious side effects.

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234

I am one of many fortunate individuals that found this site before taking the recommended Prolia shot. I continue to read all of the side effects from all, and thank each of you for your postings. As I have mentioned before, You mentioned Curves. I also go and do so 5 times a week. I have added 1 lb wrist weights as well as ankle weights to help with the strength training. As time progresses, I will add the next weight level. You would be amazed at the workout I now get simply by adding this to my workout. Try it for building your muscle strength.

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235

Since I have said "no" to Prolia I have been reading "Your Bones" and doing other research. My question is I have found a Bone Basics product by AOR and it lists under Calcium (from Ossein Microcrystalline Hydroxyapatite Complex [MCHC] 1000 mg. My question is - is this Calcium Citrate ? I asked at the Health Food Store and they said it is better than Calcium Citrate. Anybody know about this ? It is described as being an extract from bovine bone from Australian pasture fed, free range lifestock not subjected to antibiotics or rBGH. The product seems to have a good mix of other minerals, and glucosamine HC1 etc. that would seem to promote good bone health....but I would like some guidance. Any advice would be appreciated. Thanx

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236

Let me check with my Pharmacist, and I will provide feedback.

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237

Had Prolia October 2011 have been in agony ever since.
Pain right throughout entire body, sores on scalp, gastro problems, racing heart and no sign of abating
there should be a worldwide class action re this. It has
wrecked my life. Was perfectly healthy till had fall
and broke sacrum then discovered had osteoporosis.
Would be better off just taking Calcium & Vit d. Have
had every blood test, brain scan, heart monitoring etc.
what does this drug leave us with????

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238

My mother is 84. Diabetes 60 yrs. 1kidney heart problems and frail. One month after they injected this 95 lb lady with prolia we are hospitalized with seizures and bladder infections. She was also on prednisone. Should never have been given this drug. Anyone out there experience seizures? I may start the lawsuit as I now have to have 24 hr care for mom. It has totally disabled her

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239

Hey Dee - I can't imagine all of the suffering from the Prolia side effects...my heart goes out to all - every time I read more comments I wonder how long it will take to get Prolia off of the market - permanently! Minnie and Alan - how sad your experiences are....wish I had the answer. And Dee - did you find any info ref that Calcium product from Austrailian livestock? I am a Canadian and local Pharmacy was no help to me. Thanx.

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240

Would you call the dizzy spells seizure like

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