Prolia Side Effects (Page 107) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Do you know where that class action lawsuit is located or do you have a link ?
I am just so sorry to hear about your father. So unnecessary , they treat these people like guinea pigs. To many people having problems.

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Here are some links Pood.. I'm not sure what to do, I really don't want to take any of these drugs. I notice one article says that calcitonin salmon is safe for people with blood clots. The rheumy showed me a more recent page at the FDA website that CS is not recommended at all anymore, but as usual due to the terrible search and organization of their site I'm unable to find that one now. ugh. I just don't know what to do, it seems none of my docs will rx this for me anyway. I have something else going on with vit D, pth and calcium obviously so I can't take anything now. I guess at some point I may go to the specialist the rheumy referred me to. I still have to call him and see what he thinks of my second high urine calcium levels. He said we would talk after that but like many doctors I have not heard another word from him. lol. The higher risk of cancer seemed to be for basal cell skin cancer not for nasal cancer.

fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm388641.htm

fda.gov/Safety/MedWatch/SafetyInformation/ucm190771.htm

reuters.com/article/us-fda-calcitonin-idUSBRE92418H20130305

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Maybe I answered thus once but hypercalcemia can scramble the brain. After stopping Prolia I have been diagnosed with hypercalcemia. Instead of checking thyroid for tumors they want me to take a other AmGen special, Reclast because they say it prevents cancer. Just had ultrasound on kidneys, awaiting results. I think hypercalcemia may be another side effect. I never had problems pre Prolia.

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My brain is scrambled for sure with everything going on with me.

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I know pood- I'm not defending prolia for sure. I still don't feel safe taking ANY of these drugs. My trust has been totally eroded from everything that has happened to me and what I'm living with daily. It's is a living hell. I feel awful for her. I would want to murder anyone who did that to me. I pretty much feel that way already. lol. Hugs

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Diana~Hypercalcemia is definitely from Prolia and as we all know, just stopping the drug does not remove all of it's side effects in the body. Tell your stupid MD to think about carbon and carbon dating and then he may get a clue about what Prolia is still doing to your body. Prolia is biologic so it grew on this Earth so it has half lives. Period. The end. These guys did study science, didn't they or is that something they get to skip in medical school. Angrily and stupidity of our MD's ~Pood

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Skittie~the pharmacy here keeps it in stock so I'm not the only one taking it. Basal cell is basically nothing. That's why the instructions say to have the nose checked once a year. Big deal. They don't like it because nobody is making big bucks on it. And, they have NEVER been sued like Merck has or like we want for Prolia. Even Prolia causes basal cell carcinoma but not in the nose. It does need to be looked at and stopped which is a pretty small procedure. I don't know why they have their heads stuck in the sand. Get well - Hugs~Pood

For everyone's edification - Reclast did 0 for my bones in one full year. You have to go to the hospital to have it put in and it takes a good couple of hours or so of your time. You need it pre-approved before insurance will pay for it.

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What? I have had 2 basal cell miles grow and be removed since I had my Prolia shot!!!!!

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YUP Jan~that's from our 'nasty' friend called Prolia. If one looks deep enough into the side effects of Prolia it is there. The first person that had it, paid no attention to it so it did manage to get inside to a very nasty place to have cancer. Not a whole lot they can do about that one but as far as I know she is still alive and kicking. It may be on this thread but far, far in the back pages. Pood

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Interesting one can get cancer from Prolia.....makes sense, many side effects are exactly what they say the med will cure. PS Poodle, I am willing to get in on class action suit. I'm looking for copy if blood tests with claim level pre Prolia. In 2014 it was happily normal.

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I thought u couldn't sue drug cos

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I found a different one (class action) that looks promising and they have already sued on Effexor, Vioxx, Bextra, Viagra, Raptiva, Paxil, Oxycontin, and many others. Someone here will have to take the work on it over for me as I'm having total knee replacement sometime in July-first part of August. Calling today!!!!! The names I did not recognize are psychiatric meds. "Companies that manufacture pharmaceutical drugs have an obligation to provide products that are safe and reliable. Any marketing and advertising that is done for such products needs to be honest and should provide an adequate assessment of the product. Any side effects must be disclosed to consumers so that they can make responsible, appropriate decisions."
Also includes you or your loved ones. The most they can say is 'no' and I'll keep looking. Prolia ads on TV are far from anything about the truth of Prolia -- just Blyth saying: 2 shots a year saves our bones and the FDA is busy keeping up with their problems. Where is the truth in that advertising????? Is there anyone else here that is used to talking to attorneys? They are only human being like we are that studied Law at the university. Courts are NOT about justice, they are based on LAWS. There's also one right here in town but I think he would not want to go national. He's also getting a little old I guess I would say and very grumpy I hear but he sure loves MONEY! @ C. Louise -- how would your family know. The names are not published. Response please from all~Pood

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Called and left a message to call me back. Said there is a large number of us so you all better get in line if they take this. I'm asking for much longer than a week to get the message to everyone in the back pages. How many do you think we have at present?

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I'm not sure at all how these suits work but was in a group of home owners that sued a home builder about 15 years ago. It was a lot of work, we hired an attorney and provided much information and $$$. I get that there is no fee here. I can't imagine suing alone and feel a legal case is best because the end result is to spare others the damaging effects of Prolia. I would certainly be a part of this action when it happens. I just don't believe I would make the best point person. I can help out, however...

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I'm under the understanding you can't sue the drug co u hv to sue the dr???i certainly hv enough bills that they should pay for issues I didn't hv before prolia. I called fda and Amgen and no one seems to care.

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@Sher~drug companies get sued all the time. Merck has a $1 billion fund just to pay out for the law suits it loses. One, individually, would have a difficult time suing a large corporation because attorneys are expensive. Lawyers are busy over the Takata air bag issues, talcum powder women use that can cause a possible cancer, machinery that does not work correctly, lithium batteries. They have lots and lots of things they are suing corporations on and Amgen is only a corporation that makes bad drugs. Prolia has killed between 4-5,000 people. That alone is reason to sue them let alone they never told the FDA the truth in the beginning. We were nothing but guinea pigs in their failed experiment and apparently they know it's not overly wonderful too and that's why they are working on another one as was in the links posted.

Diana~ if this one comes thru -- you are hereby notified as to be the person in charge. We need a good month in time so everyone here has a chance to join if they want to. If yours comes thru, we will follow you. My week did not give people in the back pages time to come forward. I will join simply because it gave me an auto-immune disease that is supposedly in remission. I have the medical proof on that. That alone shows it screws up our immune systems as does the Sjorgrens or however that word is spelled -- Prolia gone wild…the lady with the bone lump grown in her eye socket that they cannot help. We have others with rotted jaws, etc., etc., etc.

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Anne: I am sorry for your pain and suffering. Glad you spoke with Amgen and reported to FDA. Keep reporting. The FDA online report didn't have enough room for all my information. I send a hard copy of my letters to FDA and mailed them. First letter was nine pages, second updated letter was11 pages. My letters followed the format of the FDA online report. In about three weeks you get a form letter stating they received your report. Keep encouraging others to report to FDA and call Amgen. Wishing you all the best.

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Anne~I called the FDA and spoke with them personally. I was told: "if we get more reports like yours, we will take it off the market". I have no idea what my magic words were to get that response. Just keep updating them with EVERY NEW side effect because you know it's not YOU, it's the miserable Prolia. There is another place on the net where people can write in about Prolia. They feel alone and like it's just them so I have invited all of them here so they will find out they are not the only one with severe and nasty Prolia problems. They will find a whole forum full of us. Now, finally, a year and about 4 months from the first and only inj., my back is getting some better. I complained to my Dr. about the hair loss and she just commented - we all lose more hair as we age. I should have taken and shown her what came out of my hair when I wash it. That's far from normal hair thinning. There are some people that have signed on with lawyers and settlements but it seems as if it is for an individual attorney, not a legal case so I think that means they are a no go. I got a comment back that they didn't find anyone that would want my case. That's weird because my own attorney can do that for me. I just know what the bills are and the split is because I have used him before. I won but he got the lion's share of the money. Other than the 60-40 split, i got charged for every phone conversation, piece of paper, stamp, etc. The only thing I was not charged for was his time in Court as that is where the split came in. Anyone in the US can sue anyone except for governments and one needs permission from the governmental entity to be allowed to sue them. It comes from old English law where one is not allowed to sue the King so in the US we based our laws on England's so we need permission to sue at city, state or Federal levels. Does that help clarify the issue? It's not going to help much to sue the Dr. as they all have malpractice insurance so we would only be going against insurance companies, not the MD's themselves. Amgen is simply a corporation and as such it can be sued for multi millions or billions of dollars. Now, if a corporation has LLC, after it's name, that means you can only sue the assets that are held in the LLC, which is usually only $10 or so and they get to escape. Amgen is not a LLC corporation. Do you all understand better now?

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Sorry you are still having problems I am counting Dow to November when my 6 months is up with this evil drug but it looks like it may not be over then omg I hope so. So tired an my balance is off I feel swollen all over.

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Poodle,

To whom did you speak with at the FDA & what phone # did you use?! I too would like to speak with this person on side effects of that wonderful prolia. The phone # I use to speak with a pharmacist is 800-772-6436 - hit 1 & then 6 to get there. The first time I called in Sept. 2015, the woman listened to what I had to say & then wanted to read me all about their studies & how great they were. I of course told her I wasn't interested as I already had the results in my aching body. I could care less what their trials showed. You can go to 'Ask a patient' & find the FDA Adverse events summary for prolia. It gives you the top 20 adverse effects & at the TOP of the list are the # of deaths caused by prolia (4,667). Doesn't Amgen have any conscious at all! I highly doubt it!!!!! Thanks for your feedback.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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