Prolia Side Effects (Page 105) (Top voted first)
UpdatedI would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.
Skitty I totally believe you are right. I'm 71 15 Months past shot date - post PRolla and am informed I now have hypercalcemmIa and may need parathyroid surgery. And still having muscle weakness.
Skitty I totally believe you are right. I'm 71 15 Months past shot date - post PRolla and am informed I now have hypercalcemmIa and may need parathyroid surgery. And still having muscle weakness. The ringing in ears is less intense at month 15 for me
I'm sorry you're going through this Diana. I'm glad it is getting better. Don't have any surgery until you see if it will resolve when prolix wears off hopefully. Try the Norman parathyroid center for advice. I'm gong through all of this and never took prolia. My life is a living hell with 4 diseases including osteoporosis now. I'm dizzy all the the time. Don't feel well. Losing weight Etc. prolia would've killed me for sure. Ugh.
That is my theory and the new black box warning or one of them is about hypercalcimia. Yet people's doctors deny its caused by prolia.
It is true. I worked in a pharmacy for 24 years. Doctors would call and get information about the drug from the pharmacist. Many times the pharmacist would call a doctor's office because they were prescribing a drug that was equivalent another the patient is already on, or one that would interfere with another. Yet, doctors also belittle and treat pharmacists like they are beneath them. I'e seen it happen too many times. And pharmacists just take it.
I can tell you that I took 3 Prolia injections. I believe it caused me to be in more pain than I was with my bones and joints.
Then in April 2014 I should have been getting my next injection but my jawbone crushed around my implant. Then infection set in. I went to see my GYN to get my injection and exam. When he asked me had I been having any new problems, I told him nothing that woud be in his field, but I believed my jawbone may have broken. He immediately became alarmed and said we had to stop the Prolia, I couldn't have my treatmemt that day! He wanted me to see an oral surgeon right away. So I did. Following the xrays with the technician, the surgeon walks in, looks at my file, and says to the 2 assistants, "Prolia. She's been taking Prolia. Well, bottom line, my jawbone crushed, gotten badly infected, have to have surgery in his office. He had to remove my implant, clean up in my jaw to get the infection and crushed fragments removed as best as he could. I was in sooo much pain! The infection made it difficult for the anesthesia to work. It was a horrifying experience. Next time my GYN's office called about me taking my next Prolia shot, I refused it. Not had one since. I can't afford to get my partials replaced now, which aren't working well now that I lost my implant through all of that. I have no doubt Prolia caused it.
I am so very sorry that this happened to you. I'm so glad you didn't get another shot of Prolia. Is there a dental specialist that deals with Prolia scenarios, since this is now a noted side effect of the drug?
After discussion with my Orthopedic and Prime Doctors, I began takin Prolia shots in 2011 with no side effects occuring. However, after shot three week ago, I have been having a great deal of pain in left shin. This pain is very debilitating and continous. Fortunately, I had the good sense to contact my prime doctor. I have had outpatient ultra sound tests and x-rays to check for blood clots - none; and both pain medication and prednisone. My left shin still hurts and is weak. The doctor who administered the shot was absolutely no help when I called the day after the shot with pain. He seemed little concerned, suggested tylenol (ha); " maybe you have a blood clot ...I don't know.." At no time did he suggest that I contact ER or Prime Doctor! This episode may not be over, either. IT HAS BEEN PAINFUL AND EXPENSIVE. What about MY pain & suffering?
Hi Vonnie~first thing you do is get some real pain management meds, not over the counter junk. Secondly, make sure you are taking magnesium 500mg every night when you go to bed and also take extra calcium after meals or drinking some milk since you are not hungry. I'm sure you have Ensure and Boost down under and you could have one or some of one of those to get some nutrition in you. I don't know what will help with the confusion. That's a new one for me. Your weather should be changing for the cooler soon as we are in spring going into summer so you are in fall going into winter. That may help some too. I don't know to what government body you report about bad side effects from medications but I'm sure you can find out easily and report them. There used to be a phone number for every country to call Amgen, the manufacturer, and tell them your problems. Make sure you have them all written down so you don't miss anything and if something new happens, call again.
Be well~Pood
I have had UTI, body muscle pain and weakness which has included my bladder- I have to wear poise pads regularly now... I have a lovely rash and pain and burning with urination. I'm so ready to be done with Prolia side effects...
Prolia isn't an infusion, I believe that may be another drug. Prolia is an injection give every 6 months. good luck I hope you have no side effect.
I think you just said it all, and very accurately at that... It is so great to know that one is not alone. Such a big sense of relief is felt knowing someone else understands and has similar side effects- again that your are not alone...it's so comforting to know that it is not you, that all your side effects are not "in your head", but real... It's validating and calming to know we can reach out to each other and know we are not Alone.
Pam is so correct. Pharmacists know drugs. That is their job and their only job and that's why they know them so very, very well. If I have a question, I often ask my pharmacist, not my Dr. as it has to do with drugs. Pood
Jan, have you seen those ads on TV for a tampon type device that goes in and stops the bladder from leaking? Could be a good option until the Prolia wears off. May be something you want to discuss with an urologist. Be well~Pood
Pood, how did you get salmon calcitonin? The doc I saw said its not RX anymore- it has been advised against by the fda maybe due to cancer issues.
I thought your doc said she wouldn't RX it either and or that it didn't exist anymore?
Are you using the nasal spray or injections?
Skitty~I asked another doctor. He read all about it and said it's fine and wrote me out a script for a year. I would guess the person that got cancer from it misused it. Probably used it in the same nostril every day instead of changing every day and it sure does exist because I have it. I am VERY CONFIDENT that it is perfectly fine for all of us.
Proliaperil~blood clots don't hurt. That's why they are so dangerous. This guy sounds like a real loser. Glad for you that there were no clots but it is strange that the shin is hurting as usually Prolia attacks the thigh bone and fractures it. We have one right here from Canada. I would not trust an X-ray. I would demand at the least a CT scan although a MRI is preferable but costs more. They can see more than an X-ray and can tell if it is going to fracture or if there are any problems with ligaments, tendons, etc. Be well~Pood
Proliaperil! My dad had the exact same pain (one of his issues). Pain in his shin, calf, etc. Mom took him to his primary care doctor which was the one who prescribed Prolia to my dad. Doctor said he could feel a blood clot in dad's leg and sent him to the hospital. They did x-rays, couldn't see a blood clot but the doctor who saw him felt a need to send dad by ambulance to a hospital an hour away and have an IVC (Vena Cava filter) put in just in case there was a clot and they didn't want it to move to dad's lung. So dad got double whammied between Prolia and the many side effects and Prolia causing the pain and doctors putting in a vena cava filter which now have a Class Action Suit for patients who had them!!!! Original reason that dad's Primary doctor prescribed Prolia was because he said dad had osteoporosis but he's also the doctor who left my dad on Predinisone for 5-10 years so you can figure out what was REALLY wrong with dad's bones! Dad continued to be on Prednisone until his dying day! Anyway, no doctor could ever see a blood clot in dad's leg. They couldn't figure out what happened to it. A bunch of nonsense! There is no way his doctor could say 100% sure that dad had a blood clot simply by "feeling" it in his leg. so disgusting. That's part of what Prolia does. Makes peoples bones hurt. Dad's doctor didn't have dad on calcium or Vitamin D. Grrrr!You can read my previous posts starting October 2014 if you wish to see all the problems dad had. I sure wish you the best of luck and that you start to feel better. Thank you for posting on here so we all know and I hope you report through Medwatch on the FDA website.
Pops blood clots do hurt! I had severe pain with my dvt and pain with the other clots. They is one of the symptoms. Not everyone has Odin but most do.
Thanks Pood, I will try to find another doctor who will let me try it. My hematologist said calcitonin and forteo are ok for me but I'm not sure if he will RX for me. The other doc said forteo is ok depending on what is going on with my pth. He said no one RX calcitonin anymore. I would rather inject it though.
Poor.
I've had several blood in the past and they do make your leg or arm hurt. If the clot is not deep, one can feel the bump.
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