Prolia Side Effects (Page 102) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Everyone~Contacted an atty for a class action suit. I need to know how many want to join before I actually talk to them in person. Please indicate below with just a 'yes' if you want to join. This is not for me. I don't have the damages. This is for those of you that are in a bad way due to this poison. If we can get enough people to make it worth his while, he will take it. Pood

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Thank you for this info. No, none of these tests were done to my knowledge. Was looking at a photo of myself of 2 years ago. Have aged 10.

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Hi Poodle,
I certainly do. I looked on the internet to see if any cases were going on about Prolia but I didn't see any. I know it gave me cancer plus trouble with my eyes.

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Feel like I have the flu . I hope this gets better. Now that I read this blog I am worried. I did study Prolia before I took it and I started to back out sever times before I took it, but went ahead with it. I assumed I had to have it . But they gave me my details and results after, My shot while I was waiting. It all said osteopenia with only one area in join by right hip for Osteoporsis. It said at extreme risk for fracture. So it had me scared not to do it. If these symptoms do not go away soon it's going to take time left from me and I am not happy. I was healthy and felt well tell this injection and it's got me down.

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Judy. This is sad to hear. As you can read in my previous posts my dad started feeling bad within a couple of days of the shot. Couldn't walk, started stumbling, fell, ended up in the hospital and they tried to tell me he had "what was going around" , "the flu". I pulled the hospital bed sheet back and uncovered his hand which was starting to swell. Ended up to be a nasty cellulitis and the pain was about more than I could handle seeing him in. That was just the start of his downfall. Please share all side effects with us here. And please know that you are in our thoughts and prayers. I can't wait for the day this drug is taken off the market so it won't ruin anyone else.

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Judy~this reads as if you really have osteopenia as only one place shows otherwise. Did you use any of the previous bone building meds on the market like Reclast, Boniva, or the pills? Prolia is supposed to be the LAST DITCH EFFORT to save our bones when everything else has failed. It seems from your post you just got Prolia and that's it??? Prolia only works if one takes it for 10 years with no holidays. So, it seems to me you are going thru He double toothpicks for zero reason. If this is the case, you and your Dr. need to have a chat and you, my new friend, have to learn to stick up for yourself with the God Almighty stupid Doctors we have now. We are going back to them complaining. They, of course, don't want to believe it's Prolia but just print out a list of the side effects from Amgen's website. You have to find Prolia in all the meds they make and click on it and it will then give you the known side effects. This piece of paper you shove under your Dr's nose with what you have underlined in it. First off, Prolia deletes a lot of our immune system so that's the reason for all the infections and while it's deleting it goes into our immunoglobulins of which we have 5 and makes a total mess of our bodies. Those are like the building blocks for our immune system. When the immune system is tampered with by Prolia all kinds of nasty things happen to us. I'm so very sorry you went against your better judgment and had the injection. Now is the time to demand help from whomever gave you the injection or maybe you will have to go to specialists to help get your body straightened out a little. Depending on what you have, many people use Pred to get rid of a lot of the problems, especially the skin problems. If you have the acute insomnia, you will need to get in with a Psychiatrist as they are the only ones that can write Rx's for what you need to sleep well. I was in the care of a GP, Cardiologist, Psychiatrist and Rheumatologist. It does end but it steals time from your life and life is such a precious commodity. Also, any and all bone built up during the current 6 months will immediately reverse itself. Be well~Pood

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Rosie~we have one that wants to join the class action lawsuit against Prolia. Anyone else interested here? They are not as picky as some others that require ONJ and broken femur. They sue huge corporations over everything and they win. Sher just said she wished but I don't see her name here. I have to call them back with a head count. It's not gonna cost you a cent. If we lose, we lose but with our evidence there is no way we can lose!! Do you want them to go against Amgen for you?? Even if you don't get a cent, would you just like to see Amgen in Court with all their dam side effects???? What's the matter with you people? C. Louise, it also includes those that lost family to Prolia. Do you want in???

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Hi Pood, can you find the link/post I posted on the number of prolia deaths reported since the drug came out? I remember it was a graph and I thought it was on the fda website but I can't find it there now. That site is so confusing. I posted it here but I don't seem to have emailed it to myself.

I saw my doc, all tests were normal except some low blood counts. He said calcitonin is no longer recommended by the fda and showed me an article on that. I didn't copy the url but it said benefits weren't enough for the risks which was increased cancer risk. I just wonder if anyone is still using it? He isn't going to treat me I don't now I think due to me not wanting to take the other meds and referred me to an endo who specializes in osteoporosis. It is still not clear what is going on with my pth issues so I can't take forteo. Athough he now thinks it's ok because my pth level came down, however I don't because calcium went higher and the apps I use said it is probably not from low vitamin D. He said my risk is 7% for hip fracture etc. I'm going to ask my endo to do some more testing that this doc agreed: prolactin and cortisol. Who knows if he will do it though. I want to find out if I have a pt tumor before deciding anything. But it looks like my choices are very limited now if calcitonin is really no longer prescribed.

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Poodle! I wish I could talk to you. I've been told to not even mention Prolia by a member of my family. Not a good situation. I don't dare share those reasons on here at this point.

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I would consider joining a lawsuit against Amgen for all the pain & suffering I have been through this last 8 months, 1 week, & 2 days. The only thing that has eased up a bit is hair loss & swollen ankles & feet, but not all of the way yet. If there is a yet! The horrible pains & skin conditions are still going strong. Wonder what happened to the 6 months deal...............

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Sher~why don't you join the one I just got. I'm going to have to answer their phone calls very soon. So far, I have two whole people on this Forum. I apparently lied to them and told them we have a Forum full of ladies damaged by Prolia. Do you want to join a class action suit? You mentioned it and I found a great pair of attorneys that will take us.

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Skitty~I 'think' it may have been an arthritis something or other that you just happened to stumble on and there was the GOLD. Be well~Pood

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Poodle, Does the lawyer accept victim from Canada?

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I will join the lawsuit, you may contact me. Thanks, Judy

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Not sure what you mean Pood? An arthritis something or other??? Do you know which post number I posted that info and the link on? I can't find that here and I believe I have read through all the posts from page one but it seems to be missing, very odd. thanks- hope you're doing ok.

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C. Louise~how would they know if you didn't tell them? It's not like it's published in the paper or on the net.

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Skitty~go to your post number 1137. That is where you write it to 'healing tree'.
Be well~Pood

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Thanks pood I found the post will repost later. It was at askapatient. I'm not feeling well and I'm on my phone so I will do it later. My doctor told me over 3% risk you should medicate wtf? LOL I agree I don't think my risk is that great right now because he told me right now or you were still very young but later it is going to be a problem then he said you to my aversion to medications he's referring me to someone else and he doesn't know what's up do about the hyperparathyroid situation he felt since my PGH one down it is OK now. But people who have this condition told me my calcium is fluctuating too much and that is a sign of hyperparathyroidism which could be involved in the osteoporosis. Will post more on this later for anyone else who has the situation going on sale. By the way I think you were doing a great job I am glad there was somebody here who cares enough to spend time informing people – Thank you so much.

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Yeah... 7% doesn't seem like much huh? I have to read the statistics. He told me if it is above 3% you need to medicate??? lol.. something doesn't seem right. I need to medicate with these deathly drugs? Anyway, he told me calcitonin is no more, I wonder if this is really true? He isn't going to treat me so I have to find someone else and hope my endo does the other evaluations I need done to figure out if there is another cause for me. I have no faith anymore. But thank you so much to you Pood and to all of you for sharing your stories. I don't think I would have taken prolia but reading what you wrote confirmed my fears. He said now I am very young relatively so it's not a problem but later it will be- he said forteo wears off when you stop I think but I pointed out they all do except for biophosphinates. And what you get is old bone with new bone piles on top apparently.

He referred me to an endo who specializes in Osteoporosis. If I go, it's a hike, lets see what she says. I have to do another urine calcium because one was high and to me at least it isn't clear what is going on with my pth. I stopped vitamin D and calcium due to all of this- prolia causes elevations in pth levels and calcium issues that was one of the warnings added on. He said he has patients on it who are ok, I said great for them but if you have the deathly side effects it is a living hell if you survive it at all. He said when other drugs come out, I said I'm going ot wait for something safe, the side effects will be just as bad. I told him about prolia having 4,500 deaths reported since it was on the market with death being the highest adverse event reported. It's crazy.

By the way I found my post.. I can't find my email with the number but it was a different one than the one you mentioned. It as at: PROLIA Top Adverse Events & Effects based on FDA MedWatch Reports

I can't find this info at the FDA website but it must be there somewhere. I will email them and ask where the death toll is posted at their website in adverse events. I think there was a different graph at ask a patient than the ones visible now too.

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If people come here and read what others are going through they won't take it at all.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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