Prolia Issues And Side Effects
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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc.

I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned!

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Re: Dawn (# 125)

My cousin developed ARDS several days after a Prolia treatment. It was not her first treatment of Prolia and I don’t know if she had any reactions previously. She was put on ECMO for a number of weeks but never recovered and passed away. The hospital said it could not be proven that Prolia was the cause but she was fine before the treatment.

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Prolia has literally killed me. After I went on prolia I got a benign brain tumor , a malignant brain tumor , neuroendcrine cancer.

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Re: David (# 3)

I have taken 2500 mg of Vit D along with 250 mg to 500 mg of Magnesium daily for years but it didn't work. Oh and calcium 1600 a day. Every bone med has messed me up and yet as I labor through PT for a fractured shoulder, elbow, and wrist...I give up. Going on Prolia again despite growing a bony tumor in my eye socket possibly from Prolia (2014) and a fractured spine (2013) after coming off of Boniva IV (3.5 years) I give up.

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Re: Kazz (# 124)

Well I have been 1 year post first and only injection.It has been horrific. To this day I still have side effects.Every week I get a reminder of this nasty drug. I had the worst allergic reaction within hours of the injection and it just kept coming. I know still have angioedema like signs and my asthma is not stable like it was. I the end it hit my lungs and bronchi..I have ended up with bronchiectasis which my new specialist is still trying to define. I have tried to set up legal action but according to legal counsel I am not sick enough. But I keep watching. I feel bad for anyone that thinks this medication is of any assistance, it isn’t just that some symptoms are not as strong for everyone but I can assure you all of us that have been exposed have some sort of symptoms.

Dawn

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Ive had 2 shots and wont have anymore. Have had lots of side effects. It does prevent bone turnover leaving your spine pack with old dead bone so it looks like bone density has improved but its an illusion . As soon as you stop you can have spontaneous fractures in your spine. This drug should be banned!...

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Re: Judy (# 1)

The difficulty is that it really does not do what they say and the adverse effects get more pronounced. Do your homework on this nasty medication and truly make sure you are ready to accept all it can do to you. There are no guarantees you will not end up in a wheelchair taking this poison. It is horrific. I now have right ventricular heart failure from pulmonary hypertension resulting from increased severity of my asthma directly linked to the Prolia injection and I only had one. All this along with 7 months of pure hell post injection. They can go to hell with their claims as it has not changed anything but made me sick when I was fine.

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Re: Judy (# 1)

That sad part about that Judy is that it really does not do what it is supposed to. You need to do some reading on Prolia to understand all the effects. There are individuals who did not have any reaction until many injections later and then had awful affects. It is not a miracle drug at all. Some have ended up in a wheelchair by using this poison. I don’t mean to be negative but everyone should really do their homework before using this drug. I wish I had.

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Re: Sodapop (# 52)

How are you now?

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I too had nasty side effects after my third injection that included horrible constipation, fatigue and high cholesterol. My doctor said those side effects were rare and I said no more

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Re: Judy (# 1)

Just to make sure that you understand that taking this drug will not prevent you from the wheelchair. There are many who are in one after taking the injection. Everyone is different of course but do your homework folks and when you decide to take this drug that you know what you are dealing with. I did mine too late but I can assure you I now know more than any physician dispensing this poison. So do not go blindly into this night.

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Re: David (# 3)

David, I am using lots of D. My level is very good. I am using all kinds of good food and supplements but the discomfort from Prolia is sometimes almost unbearable in the mouth some days. I did not even really need it. Come to find out, one of the doctors I saw mentioned to me: "Oh, you take Prolia? I have bone mass similar to yours and I had breast cancer too and I don't take Prolia" *(unusual for a doctor to say that to me, don't you think?)Then she turned around and said, "YOu must have hidden acid reflux" or GERD whatever it's called!! I don't even have osteoarthritis. Good grief.

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Re: Lizzie (# 116)

A good resource is the Better Bones Blog. Yesterday it reported on a study out of U of Washington listing the top 7 risk factors for Osteo related fractures.
A low bone density alone was not one of them. Also a European study indicated history of falls as an indicator, not simply a low bone density. Perhaps this information can help you evaluate your.
need. Be well.

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Have had the leg and foot cramps too.. not fun. I also will not be getting my next shot even though I have only had one shot. I am going to get a bone density about 3 weeks before it is due to see if there is a difference. I had just recently begun to have really debilitating pain in the lower back and hips which I have never had before. MY shot was 10 weeks ago.

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I had my third Prolia injection a week ago, having had no side effects after the first two injections. Despite reading so many negative posts, I continued because my bone density had improved significantly—resulting in a change in diagnosis from osteoporosis to osteopenia—and because I tolerated the previous two injections so well. I had intended to discontinue injections for a year to see what happens to my bone density.

For the past three days, I’ve been struggling with muscle pain/discomfort, bloating/stomach pain and diarrhea. Not sure this is related to the Prolia or my having just reduced my Plaquenil from 400 mg/day to 200 (for Lupus and Sjögren’s Syndrome). I’m assuming that because plaquenil must build up for months before its full benefits are felt, an immediate response to a reduction of same would be unlikely.

Has anyone else suffered negative side effects after having tolerated orokinfor a year?

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Poodle (# 113)

Hello Poodle. Thank you for going to all that trouble for me. The thing is, I really don't know what a hypnotherapist might be able to achieve for drug-related allergy problems. Just lack of knowledge, I suppose, but intuitively I don't see how they connect.
I àm in south-eastern Australia, with some capacity to travel. Where is the person that you know of? I am definitely constrained by financial issues, unfortunately. I would really want to do some research before putting my trust in a treatment, even a benign one, despite at present waiting impatiently for these wretched side effects to wear off.

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Re: JenjiOz (# 102)
I have located an excellent hypnotherapist for you in Australia. I checked his expertise well and he is willing to work with you to get rid of those strange and nasty allergies you have going on from Prolia. Now comes the question of how do I connect him to you and are you willing to travel in Australia to where he is? It should not take over two sessions according to my work and it's a common thing we do and generally quite easy. Let me know on how to go from here. Hugs~Pood

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Re: Poodle (# 110)

I'm hoping that the increased sensitivity will fade away over time. That is the optimistic view that I am trying to take. Some of the skin issues have definitely subsided. There is a family tendency towards eczema and asthma which I have pretty much avoided. I just had to look up the spelling of 'eczema'; that's how unconcerned with it I have been. I really want to believe that, post-Prolia, I will stop reacting allergically to anything and everything. I don't want to think that Actonel will perpetuate this. Its called denial.
But, of course, any information is really valuable and appreciated.
I was horrified by Daisy's account of bone deposits around her eye sockets and will definitely have my own strange changes and sensations in this area investigated. Fortunately, apart from the sunken areas at the inner corners of my eyes and the itching bones in the vicinity, I have not experienced anything as awful as she has. So please don't worry about me too much!
I think my concerns about all this weird stuff are lagging behind my physical state. It took months before I made the connection between my weird symptoms and Prolia - 9 whole months, most of them miserable. But the eye soçket thing, well that is a bit scary and I'll have it looked at for sure.

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Re: JenjiOz (# 101)
I left a message at one international forum asking if there are any like we are in Australia. I will let you know if and when I get an answer. Most are based in England and two of us in the US. Hopefully, someone will respond. I know there is a husband and wife team that go there to train people and they like to say 'we can cure that' and I, personally, do not believe one word of it because I have studied under them as well as many others so I know for sure who can and cannot. Be well~Pood

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Re: jenjioz (# 98)

It seems to take quite a lot of time for allergies caused by Prolia to go away. They can go away for 6-9 months and then pop right back up again. I have never had hay fever since I lived in Colombia where it was just so overwhelmed it stopped but now it's back too as of this year. Very curious. Maybe I need to go back and start all over again. I have never read of one like yours here on Medschat. You seem to have started something very different and I hope people pay attention to you because it could happen to them too. As I have always said, we are humans, not made from cookie cutters. Hopefully, it will lessen quickly in time. Have you contacted an Acupuncturist to see if that is something they can work on? I know in Clinical Hypnosis it is something we can change for sure. I know many people in your Country so will do a little looking at some of our postings to see exactly what their level of expertise is. Not all is lost yet. Be well~

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Re: Gracie (# 44)

There are other drugs and you need to try them to find out if they work for you. Merck has Actonel which is a pill that can be stopped at will and there is also Boniva which is a 6 month inj. of a bis and Reclast which is a yearly inj. and it's also a bis. There is also another that is akin to HRT if you have not had DVT's or PE's. It's name may be Evista. One nice thing about Merck is they have a huge settlement fund for class action suits. I just didn't want to be one of them when it was suggested by my Dr. For right now, those are our only other choices in the drug market. The one I really liked was removed a year or two ago so I'm on just calcium supplements. Hopefully, I can win this war myself. Be well~

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