Prolia Issues And Side Effects (Page 2)

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc.

I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned!

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Oh my goodness DJ I suffered only 2 nights with shortness of breath and heart flutters. Never thought about it being prolia. Thanks for posting

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I just had my first injection March 1st. Just this last week I have experienced the worst constipation I've ever had! It just dawned on me today to google constipation + side effect + Prolia, UGH!!!! What I wanted to address is your perception of how it works as opposed to what I was told. My Doctors told me it worked by extracting the calcium in our blood and depositing it in our bones and that is why Prolia depletes our calcium count. I was told to take 1200 mg of calcium daily and because I'm a 15 year post gastric bypass patient I'm taking a bariatric calcium supplement. BUT, what have you done about the constipation? I've add psyllium to my diet and that hasn't helped. What about a stool softener? Thanks!

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Definitely. It was especially bad when my Calcium was low.

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It this drug makes "old bones become denser," that's a good thing, isn't it?

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Regarding constipation, it is a problem for me, and was even worse when I was on mega doses of Calcium for Prolia induced Hypocalcemia. I switched to Calcium Phosphate, and find it not as constipating. In addition, I use Acacia Gum from HEATHER's TUMMY Fibers. Also, I take Sea Buckthorn oil supplements.

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Suzi~Prolia makes bones denser is true but it is not new bone. It's old bad bone that it is manufacturing in the body and the second you fall, the breaks will be as bad or worse than with NO Prolia at all. Prolia is not the answer to osteoporosis. There are older medications that have basically zero side effects that work very well. Even Amgen knows Prolia is not what it was supposed to be and is busy cooking up a replacement for it. I hope this answers your question. Be well~Pood

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I have posted about this before, but I am experiencing memory impairment. Right now, it is especially acute.
This drug makes me feel like my body is being crushed;. I guess my brain is too. Although I will not take
another dose, I am stuck with this for some time. Now it is resistance, Yoga for Osteoporosis, other exercise, and an alkaline diet.

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Yes, a few days after getting my prolia shot I developed insomnia, vertigo, and confusion. I was extremely fatigued, and almost lost my job due to poor memory. I could think of no reason for these problems .Then a friend, who knew that I was being treated for osteoporosis, suggested it might be prolia! It's been 2 months since my shot. My insomnia seems to be getting less severe, and my concentration is returning. No more prolia for me. I would rather have a broken hip than a crazy mind

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I have had high Calcium blood report lately after having 2 shots of Prolia

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Yes- my hair loss is ridiculous- I need a wig to hide my male pattern baldness. I look more like my dad now... and I am his daughter!

My constipation is followed by days of loose stool- bloating - gas- and then randomly repeat that cycle.

Brain fog is so frustrating- I also have insomnia and everything noted here triggers my anxiety---

Also weakened muscles which include large muscles, small muscles, weak eyes- weak bladder muscle- I am 18 months post prolia shot-

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I wanted to respond to your comment about how Prolia works. My physician, who was also my oncologist and familiar with Prolia as a drug given to bone cancer patients, explained that it actually works by extracting the calcium out of our blood and depositing it back into our bones to counteract the bone loss created by osteoporosis. This process is why those on Prolia need to supplement our diet with extra calcium. I take 1000mg of bariatric calcium a day. Having said this, I will not take a second inj. due to the side effects. While they were milder than most I've read about, I have experienced constipation which is compounded by the calcium supplements, mild depression, thinning hair, and I also believe a "foggier" mind.

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I hadn't attributed the Prolia to my sudden loss of hair. This really explains a lot. So many side effects. As I stated in another post, overall I've guess I've been fortunate to have "mild" side effects but I think I will try another form of treatment, probably holistic.

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Also, regarding calcium -- you need to take 600mg three times a day and preferably with an acidic stomach like with orange juice, limeade or lemonade. The acidity breaks down the calcium quickly and that is what we want. Do not exceed that amount or you can go into hypocalcemia which means too much calcium so we need a good balance here. Prolia LOVES calcium and if it cannot get what it wants thru diet and supplements, then it attacks muscles to try to find more and more and more. It's a vicious circle. Pood

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great decision Sal! I follow antiinflammatory diet and yoga as often as I can.

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Thank you Poodle,

This explains why I can just barely keep my calcium levels in the normal range.

Very much appreciate the info.

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Jan~did your Dr. ever test your immunoglobulins? It is reading to me like you may have a slight case of Celiac Disease. Prolia is a disaster because it brings out things in us that we never knew we had. It's a special blood test that goes to a totally different type of lab than ordinary blood tests. My iGA was 64 which is a HORRID number so my Dr. started working with an immunologist to get me back to 'normal' again. This is one test everyone on Prolia should have in my opinion. It's much better to be safe than sorry. Pood

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Just saw my Endocrinologist, who ordered Prolia. He is supportive of discontinuing it. The good news is that my markers indicating bone loss are low; a very good thing.

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It has been 6 mos. and 2 weeks since my last shot of Prolia. I did NOT take the dose due this month. I am STILL experiencing muscle weakness and spasms, including the muscles of my face and head. I am miserable ! It has been my mission to spread the word about the negative effects of this drug.

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I'm 80, active, working, etc. and just told I have Osteoporosis. Just recovered from surgery for Ovarian Cancer and finally feel really good again. Dr. wants me to take Prolia and I;m terrified of the side affects. I've had TMJ and dental problems for years and am very concerned, but also worried about not taking something if it can really help bone density. I'm wondering if anyone had improvement in their density in say a year or two?

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Re: Gracie (# 39)

In my experience, I had recovered from major surgery, was finally enjoying life, when I took Prolia. A big mistake !
It took everything out of me. It has been baby steps recovering from it. The pain, weakness, fatigue, itching, brain fog, and I could go on.
Instead, I have explored alternative options such as : anti inflammatory diet, supplements , resistance exercises, yoga, especially Yoga poses for Osteo.

I have not fully recovered, and may never.
Never will I take Prolia, or any other drug

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