Prolia & Hair Loss (Page 9) (Top voted first)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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I had my first (& last) shot of Prolia in February 2017. I had terrible bone & joint pain for about 3 weeks, could not sleep well. A month ago I started itching terribly behind my knees & on my back, & my skin had bumps. I noticed a thin spot at my hairline about the same time; my hair started falling out this month & this week I see a lot of breakage. I also see it can cause cataracts & high cholesterol, both of which I already have. NOWHERE does Amgen mention hair loss. It is also really expensive; what a shock to receive a bill for my pricey co-pay when all I was told was that my insurance company had been contacted & approved it. I am not continuing with this medication.

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Had first shot in November 2016 and I had nausea and was extremely exhausted for about 4 weeks. Around January I started notiving losing more hair than usual. My husband and friends noticed. I was feeling depressed my hair was a ugly mess. I did some reading started using Nixon and my hair is starting to grow in some. I called my doctor to cancel my next appt. For Prolia shot. I explained my reasons and they didn't seem interested since I didn't want the shot. Really !! Its all about the money I guess. I did say I was going to try Boniva again and they more or less said PCP can handle that. Wow made me feel just wonderful after the ordeal taking this drug.

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Had first Prolia shot 5 weeks ago & I am also shedding like dog, having horrible hot flashes, blurred vision and mussel aching! I'm 70 and felt really good before Prolia!! I will NOT be getting another one!! Bad drug that should be taken off the market!! Maybe for someone who sits home happily doing nothing could stand it but NOT ME!!

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I have been having pain and a crunching sound on the left side of my face for quite a while. The pain has been getting worse. I thought it was TMJ, but now I wonder if this all has to do with Prolia? I don't think I am going to continue on. I just had my latest injection in June. I think that was my last.

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What may work to help our hair from Prolia is to take Saw Palmetto, B vitamins and also A. Was looking around the net about it and found that formula. Not much to lose and everything to gain so I'm going to give it a good try. Be well~Pood

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One lady said she would rather have the hair loss than fractures. I think there are enough possible side effects that I can't justify taking it. Both my MD and my Dentist said they felt the possible side effects were preferrable to the bone issues. I have always listened to my doctors, but this is the exception. I'm going rogue and praying my hair will recover, but 2 years later it has not. Sounds vain, but it was long and has always been the asset people complimented me on.

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Hair loss has been a nightmare. Every day I see more and more hair loss. I dread having to wash my hair because the floor of the shower is covered. I want to stop Prolia.

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Yes I am daily. My hair is coming out by the handfuls. Much upset and not sure what to do. Andrea

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Actually it is saw palmetto for women, complex of B vitamins and vitamin A. Took me a very long time of searching the net to find the exact combination we need. It will stop the hair loss and with the vitamins added in it will stimulate new growth and that is why the vitamins were added into the mix. I'm getting into mine as soon as my surgery is over on Tuesday. It obviously cannot work while on Prolia but when off of it our hair should return to better than normal. I'm tired of shedding worse than a dog. Somehow I wonder if Prolia really has more of it's twin, exgiva, in it. The twin is for chemo. Another lie by Amgen??? Pood

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Been on Peoria for six months. Had my first shot now due for second. Cancelled my second appt. Due to hair loss and itching. After reading these reports from others and finding out it is a drug used in chemo. Really makes me angry. Dr told me he could give me thr injection but when I got my first shot,I had to go to the infusion dept to receive the injection. Which is where you go for chemo. I had bad feelings before I started should have went with my instincts.

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Gosh Linda and Shirley...an infusion center? I really did not know it was related to a chemo drug. I think there should be a legal suit and I certainly will join that. I did also have skin itching, but it was not severe, and until now I did not even think about it as a side effect of Prolia. I would like to hope at least we don't get cancer since it's partially chemo related...

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I also think we should be able to sue the doctors involved who started this to make a buck. Two years later and no improvement showing on the back scan.

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Don't know how long it stays in your body, but I was supposed to get a 2nd shot on 7/24/17. My body still itches and I'm losing hair. I take it is a money maker and doctors don't care.

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Yes u are right, I had my 3rd shot and I will not the 4rd due in October my hair started falling and I told my doctor she said no .well no more for me .

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My hair is shedding. Wasn't before this shot. In the shower clumps coming out. Why haven't they listed that side effect. I am a wreck with all the bad things happening. If you want to know how long each side effect will call Amgen they will you and aprx time of each one.

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Wow can't believe how many women are having the same issues I went through.

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Both Xgeva & Prolia are a medication called Denosumab. Xgeva is used to treat cancer, which is why people refer to it as a "cancer drug". It's appropriate to connect Denosumab in some sense to cancer, as it is a cancer-treating drug. Prolia is a lesser dosage, that's all. Unfortunately, many of us who have received Prolia injections to treat bone loss are experiencing hair loss as well as other symptoms, but the hair loss has not been listed as a side effect by the manufacturer. Yet. People should be aware that this is a drug used to treat cancer & has the side effects related to them; just be aware that what is meant is it's a cancer-treating drug.

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Amgen will tell you that in 6 months you are free of Prolia. That is what all their literature states and that is the reason for an injection every 6 months. Just because Prolia is gone, does not in the least mean that side effects are gone as Prolia can and often causes major damage to the human body. Prolia does NOT treat cancer. It's twin, Xgeva does. Prolia has much, much, much less of the active ingredient in it. We know it is made from ovaries of Chinese hamsters. Amgen also states the half life of Prolia is 16 days so do the math. I dislike my comments being misconstrued. The only legal action in the USA against Amgen for Prolia is the broken femur. I seriously doubt any of you know what chemo is truly like. I do! Been there and done that. I am only here to help people thru Prolia since I am a survivor. Pood

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Poodle - Here area some links for you to find the information I mentioned in my last post:

Dosage: you answered part of your question in your response, when you said it comes in a 60 mg syringe. The 60 mg (milligrams) is the dosage amount. The dosage amounts for both Prolia & Xgeva can be found here:

Source - prolia (denosumab)

Information on Denosumab, which is the medication in BOTH Prolia (60mg) & Xgeva (120mg) & its uses, including treating cancer, can be found here on Wikipedia:

Source - wiki/Denosumab

The Denosumab is what defines the medication, not any additional elements such as saline. Our blood has a normal saline value; that information can be found on Wikipedia as well with a search. Saline solutions are often used in medications to prevent complications in treatment as well as re-hydration.

From the Denosumab page in Wikipedia you can click on the highlighted word monoclonal antibody to find information on the production of antibodies from mouse spleen cells—no mention of ovaries, but perhaps that can be found in another source I haven't yet found—& its use in treating osteoporosis AND cancer.

I am not comparing apples to oranges, I am comparing apples to apples. Prolia & Xgeva are EXACTLY the same compound (its formula can be found on the Denosumab Wikipedia page; one formula, two medications).

I don't know why you are fixed on arguing with me or trying to prove me wrong. It seems very personal. As I said in my last post, I am not attacking you; however, I have a graduate degree in Biology with a background in Biochemistry & am an educator as well. When I see information that is incorrect, my inclination is to offer corrected information. It is not to put anyone down, it is simply to offer corrected or perhaps additional information to consider. You may see it as attacking you, it isn't. We all can make choices: to not accept it, debate it, ask questions.

You & I don't need to continue on in this personal debate. It's about sharing information. And I am not the enemy.

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I am experiencing hair loss. Have bald spots. 60 days after my shot. Not a listed side effect. Did find out that they are using prolia for chemotherapy for breast cancer patients. Our hair loss has been studied and confirmed.

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