Prolia & Hair Loss (Page 9)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Marilyn (# 307)

I had 2 injections...the last in March 2015. My hair still has not recovered. I had really long hair, and now it's medium length due to loss and breakage. I'm depressed, because my hair has akways gotten compliments. My jaw is bad now...TMJ and my immune system is poor. I would say it's all age related (age 70) but I really think Prolia is a big part of all this. I would never recommend this drug.

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Re: Marilyn (# 307)

After just one injection I lost all my hair and had terrible side effects some of which are still with me after 15 months, however my hair has grown back, so those that do lose their hair have some consolation that if you stop Prolia then your hair will return. Despite several letters to Amgen they continually deny it saying that the only person during the trials that lost their hair was having a placebo. Clearly they do not have access or can be bothered to read this website. There are many side effects, far too many for this drug to have been approved so easily. Hopefully people can be warned by us that this is not a drug that helps, but instead causes terrible damage to your body, and worse than that the mental distress that comes with all these side effects.

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Re: Marilyn (# 307)

I too was having hair loss after one injection of Prolia. Plus I was losing strength and weight. I opted to not take it anymore and do s more healthy approach to fighting bone loss.

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Re: Charlene Guidry (# 304)

I have had three Prolia injections, the first in June of 2017, so I have been on it for about fourteen months. Over the past few weeks, I have noticed that I have increasing amounts of hair falling out, and in the past year I have experienced fatigue, which I had written off to age.I have also had joint pain in my knee since the beginning of the year. An x-ray showed the knee to be in good condition, but the pain does not respond to treatment. It was the hair loss that compelled me to search online, and I am totally shocked to learn that Prolia is denosumab which is a chemotherapy administered to cancer patients. This is totally shocking to me, and as a breast cancer survivor who experienced hair loss, I am depressed to be experiencing that again. Between the two specialists I consulted before starting treatment with Prolia and all of the materials I reviewed, both online and those given to me at their offices, there was not a word about Prolia being a chemo drug. Also, it is not mentioned in the television ad for Amgen. My last bone density done in May showed an increase in the hip bone, but I had experienced a significant loss in the spine in the last year in spite of being on the drug. Between the knee pain and the fatigue, I haven't been exercising as much. I am thinking I would be better off dropping the Prolia and engaging in a focused exercise program instead.

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Sad lady (# 306) --

Agree! If I had found this site prior to taking the shot, I would not have taken it. My doctor told me none of his patients experienced any side effects from Prolia. When I reported my side effects to him, he said it was not the Prolia. (I guess firm denial is one way to be able to say that none of your patients experience side effects). This website address should be posted in every doctor's office.

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Re: Lizzie (# 303)

My bone scan after one disastrous shot of Prolia showed a very slight improvement, however I wonder whether it was worth it because of the terrible side effects I suffered. I lost all my hair, but it has regrown and is now quite thick and has a curl which I never had before. The vertigo has now gone but the UTI‘s and also the restless leg syndrome are still persisting after 12 months. People should be warned about these side effects especially the hair so it is important that all bodies involved in monitoring drugs should be notified including your doctor, specialist consultant and Amgen. If only I had found this site before the shot?

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Re: Poodle (# 12)

Yes I have been experiencing hair loss since Prolia. Doctors and pharmaceuticals don't inform us about that.

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Re: Catalina (# 283)

I was going to get a bone scan before deciding to take the next Prolia shot. (I have only had one). However, regardless of the results (good or bad) I am not going to get the next shot. I have had the hair loss, raging mouth infections, and bone pain. I have been fighting the hair loss with my dermatologist and have slowed it up a little, but still lots gone and hair is way thin. Mouth infections recur. Bone pain comes and goes.. especially in my back (had no back pain prior to the shot). After reading the posts here, I know I have been blessed that none of my side effects have been debilitating... but I am not going to push my luck by taking another shot. This site is a place where honest feedback occurs re: Prolia and helps decision making. I am grateful for everyone's participation.

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Re: LB (# 293)

I am haveing major problems with my teeth.i now am losing 3 in front one broke off,losing all the bone in my mouth jaw bone,the dentist is taking out 3 and putting in bridge,at 2,400$. I think h company should have to pay.

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Lots of people lose their hair.i have.i am now going to lose 3 teeth in front I’ll need a new bridge 24000$ and my in’s is no good.keep watch on teeth

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Re: Anne (# 20)

What phone number do we call to report or complain to this company about the hair loss. Mine has been horrible as well. I had 3 shots. And I bet I have lost 6 inches of hair. I’m was not told about this. I would not of taken it!!!!!

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Re: Bubbles (# 298)

Great news Bubbles! I know you have had a truly miserable time so it is wonderful that you are regaining yourself.

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Yes I did. I originally posted last year that my hair was falling out by handfuls and I was losing weight without trying. I refused another shot.
Well then good news is my hair is now growing back and my weight is back to normal and I feel strong again. Very impressed to me as I ride horses!

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I had it and stop taking it ,good luck I really mean it.

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Re: Sad lady (# 295)

Statistics are so squirrely. One percent of how many? One percent of which population. "Researchers" can skew things any way they want. I think a lot more than one percent of those on this who respond to this site report having hair loss plus physically debilitating side effects...

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Re: Lizzie (# 290)

Amgen have so much money they can pay lawyers to drag any case brought against them. I have written several letters to the U.K. division and the replies are always deny, deny, deny and use the 'we were approved' message. The Consultant dermatologist i saw for my total hair loss informed me that 1% was the known amount of people who had hair loss. Considering there are probably millions of people having this drug throughout the world (my daughter saw huge billboard adverts for the drug in Hong Kong) there has to be thousands and thousands of people who are suffering, not just the hair loss but all the devastating side effects that have ruined so many lives. My life and body fell apart about 7 days after the first shot of Prolia and now 11 months later I am still badly affected, but my hair is growing back very slowly and hopefully in a few months I can ditch the wigs I had to buy. If only doctors and consultants recorded the problems and stopped recommending the drug maybe something would be done.

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Re: Karen (# 289)

I have only received 2 Prolia shots. I had hair loss, jaw problems, oral surgeries, pain in back, arms, legs, migraines, I have had all my teeth removed, also a second surgery (been going through that over a year now). My doctor was the one that decided to stop the Prolia as it was doing too much to my body. My red blood count is too high, my white blood count is way too high. I don't know when Prolia will ever get out of my system. I am in severe pain a lot. Very few days that I am not. They need to take it off the market. It's not good. I have been sick ever since I took the first shot. My gums will not heal, I have had cataract surgery in January and I am still fighting inflammation in my right eye. Nothing will heal. I feel bad for everyone else
with problems too. If I had to do it over again I would have refused the shot. If I would have known about this forum beforehand and heard about everyone else's hardships and health problems just from taking the Prolia shot, I'd take citracal. Eating well is the best way to do it and getting exercise keep your muscles working. Don't let them get weak. I would like to get an attorney and file a legal suit against the company making Prolia. It's all about the money. It does not matter what it does to us... for those that it has helped which I am sure has been very few people. I am only 57 years old. This started 12 years ago with numerous fractures and I am sure there are more things going on with my body, but I am not putting myself through any more tests. Good luck and God bless to everyone!

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Re: LB (# 291)

I am glad this shot may have helped some,but what about the ones it has half killed like me.i will never be the person I was.the doctor told me it I took another Prolia Shot it would kille me.i still suffer because of this Prolia Shot.But you know what,I don’t think one thing will be done about it,because people don’t Care enough

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Re: Julie (# 277)

I’m with you ladies some one needs to stop and consider what this has done to people Me I am now facing implants. My jaw bones have deteriorated so bad there is not enough to wear a plate so my Dentist has told me it is just a matter of time.my teeth stay infected,I take way to many antibiotics.i wish some one would take this mess to court and they had to pay for implants,wigs,Meds.

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Just about every one who took Prolia Shot has had the same problem.i have had to resurrect to looking at wigs.

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