Prolia & Hair Loss (Page 10)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Julie (# 279)

Is there any way we can get a count of the people on this site who have lost hair after taking Prolia? Some of us have reported individually to Amgen and our doctors, but numbers might speak with more volume. I would put the time in to count people if I knew how to wade through all of the messages and the different threads. Also I don't know if permission would have to be granted to count even if names were not used. What do you think???

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Re: Isabel (# 288)

I stopped the Prolia shots after I noticed the extreme hair loss and the floors looked like we had a dog. It was all my hair. I stopped on my own and read after that not to do that and that you must remain on it forever once started! NO WAY! The doctors like that money flow and I think it is criminal what has gone on with this drug. I have had a lot of problems with pain since I stopped. I continue to ride my bike every night because of my diabetes. I am 74 years old and to think that these shots may have caused health problems for me is maddening. Ladies, do not get this shot EVER!

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Re: Catalina (# 286)

My hair is also extremely thin. I am taking folic acid but I was told take months to work

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My hair is extremely thin. I take Folic Acid and I guess I have to give it time to work

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Re: Lizzie (# 282)

I know when I posted this message and till this day my hair (what is left) is very thin, no more fullness. Now I take vitamins and I feel much better. I just want ladies to know. I'm glad it works for some in this chat but not for many of us...

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Re: Gamp (# 284)

Have you tried CBD oil for your hair? You take it orally. I just started. Hope it works. I had a shot of Prolia and my hair was falling out. I’ll not take another one.

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No way Jose for me either. I truly believe it led to my hearing loss by weakening my immune system. I'm so mad I listened to my doctor on this. My hair has not returned to it's former glory and hardly grows. My last shot was March, 2015. I only had 2 injections of Prolia.

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Re: Lizzie (# 282)

I had 4 injection of Prolia and my hair started thinning and falling told my Dr and she said it wasn't true, 2 weeks later I got the bill from insurance and it said something about chemotherapy I was like what the heck is this about I told the Dr and she said yes is true it's use for certain cancer. I stopped having Prolia and I never been back to that Dr. Taking calcium and vitamin D alternative medicine. Sorry if anyone is taking it good for you pray it always work. No way Jose for me.

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This response is 4 years after the initial message, so I don't know if you were able to remedy the hair loss problem. I started losing hair 2 weeks after the injection. Taking advice from someone on this site, I went to my dermatologist who said I had an aggressive rash in my scalp. We treated it with a steroid gel applied twice per day. The rash is mostly gone and the hair loss has slowed, but there is a definite patch gone...I dont know if it will come back. Prolia does cause rashes so maybe that is the cause of the hair loss.

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Re: Poodle (# 16)

Sorry for all your troubles! I am having the same issues, received prolia in April and have been having issues ever since. Lost tons of hair which as you know is very upsetting. Have seen every specialist to figure out why and have become sick with trying to determine if hormonal or whatever. Also, have developed cysts which I didn’t have before. Horrible drug, trying to flush it out of my body with lots of water. Don’t think that will help. Never taking it EVER.

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Re: Julie (# 279)

I was informed by Amgen that during the trials of Prolia only people who were given the placebo lost their hair!!! And they actually want me to believe that. I am one of thousands of people affected by hair loss through Prolia and not a placebo. I am also still suffering from other debilitating side effects after nearly 10 months. What I found so distressing was that they were not even interested in finding out more details about my past medical history and how and why Prolia had such a dreadful effect. They just dismissed it as Prolia not being the cause. I try to warn as many people as possible so that they seriously consider whether it is worth all the misery and life changing effects it may have on their life.

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Re: Sad lady (# 267)

Sad lady, I agree with you that money talks, everywhere, all the time. Money buys justice, money covers every wrongdoing unfortunately. It is sooo sad that people are paying the price. We must fight to have AMGEN admit their wrongdoing and show us where HAIR LOSS is mentioned in the side effects.

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Re: Bubbles (# 257)

Stop Prolia now or you'll be bald like me. And who is paying for wigs???

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Re: Sad lady (# 271)

Yes I heard about a lawsuit called "class lawsuit" where many unsatisfied patients may come together and file a lawsuit. So let's do it. I'm devastated and furious for my hair loss.

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Re: Barbra (# 5)

Barbra. I advise you to stop Prolia injections immediately. I myself had no major symptoms but lost all my hair at once in a period of two weeks. That happened after my fourth injection. I had no hair loss after the first, second or third injection. It all happened at once. I AM COMPLETELY BALD. This is a TRUE comment and please let many others know about PROLIA. I also stop visits to my endocrinologist. By the way, Reclast year injection will affect your kidneys.

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Re: Yana (# 268)

You need to get into a Rheumatologist for Prednisone for those nasty rashes that it causes. Secondly, for the pain - a Rheumatologist can order pain meds and there are also specialty PAIN Doctors that Rx them. You should work with a Rheumatologist in concert with an Immunologist to get the most help possible. I've been down this road for many years and still have problems cropping up such as muscle spasms and my hair is falling out badly. Only a Dermatologist can tell you if your hair is capable of growing or not. In the back pages I posted supplements we can take to help the hair grow if one can tolerate them. I could not. Muscle pain is stopped with Magnesium and you have to be very careful with it or you will have diarrhea. This last bottle of 250mg I bought from Walmart seems to be okay. I do not color my hair now at all and wash it the least amount possible. I keep it short and use a lot of volumizing mousse on it with NO hot air hair dryer. Hope this helps you a little.e Be well~

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Re: Lizzie (# 273)

I don't think I had a rash on my scalp. I color my hair, so my scalp is always itchy in places, but I didn't notice more itching than usual....just thinning, breakage and a lot of hair coming out when I washed it. The damage seems to have slowed, but it still isn't growing as much as it used to...3 years after stopping Prolia.

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Re: Bubbles (# 253)

I went to see my dermatologist re: the hair loss. I am not yet coming out in clumps but am rapidly losing strands and have thinned out considerably. The dermatologist said there was a rash all over my scalp (probably why I have been ITCHING so badly). So we are treating the scalp problem..too soon to know if this will somehow halt or slow down the hair loss. In a way it makes sense. Prolia does cause rashes so maybe this scalp rash (infection?) is one of them and that is related to the hair loss. Just a theory (mine, not the doc's).... straws to grasp... I never had any kind of scalp problems before and this started two weeks after Prolia inj.

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Re: Sad lady (# 271)

I talked to my lawyer he said the gov was making it harder to file suit against a drug company.

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Re: Yana (# 268)

I stopped Prolia after the first injection as I had so many side effects and very bad ones. My consultant agreed that I should stop after he saw the damage it had caused, and he eventually believed me when I told him it was Prolia, and nothing else. Amgen will deny it as it means big dollars and profits and the damage it does to people’s lives seems not to matter. I just wish there was a court case against them that we could all join. It is the only way they will rewrite the side effects to include the many dreadful effects that are not listed.

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