Prolia & Hair Loss (Page 18) (Top voted first)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Very interesting thought. The first step would be?

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I will buy Saw Palmetto and the vitamins, and I will post the information in a month, and see if this lady's information works. All I can say is as long as I don't brake another bone I will be very happy!

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Jwia~please stop misinforming people. Prolia does not treat cancer in any way, shape or form. It is for bone density - causing old bone to grow on old bone, thusly, giving the body zero new bone. It is true that Prolia has a twin called Xgiva. The second is for chemo. It has zero to do with bone formation. Prolia has so tiny little much of the active ingredient in it it's impossible to call it a chemo drug. I seriously doubt you know what chemo is like. It's not shedding. It all falls out - head, eyebrows, eyelashes and every hair on the human body. One also lies in bed for days on end after a chemo treatment being so sick that even water is intolerable. If you want to help people thru Prolia, please tell them the truth. Do you really believe the FDA would approve Prolia if it were for chemo? Pood

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Gamp~the effect on our immune system with Prolia has zero to do with chemo. it decreases it a little so that certain infections can happen. By the 6th month the immune system is back to normal again. I know of no one that has got cancer from being on Prolia. Look at all the new biologics. They affect the immune system. Do you want to say that Humera is chemo too although it is used for Chrons Disease and dermatological problems. Please do not misinform people. They have enough to deal with without adding in false claims. Thanking you in advance, Pood

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Prolia has 60 mg, Xgeva 120 mg. I wouldn't call that "much, much, much less" a dosage, although since Xgeva is usually given every 4 weeks rather than twice a year, a patient does receive more of the medication over time, so it would then be a much higher overall dosage. Xgeva is used to treat giant cell tumor of the bone & bone metastasis, which is when cancer cells spread to other tissues, in this case, to bone. My understanding of chemotherapy is that chemo involves any chemical that treats cancer, so I would say Xgeva is chemo. Prolia is exactly the same chemical compound, just half the dosage.At any rate, Denosumab has a lot of side effects that come along with it, many can be pretty nasty, & we as patients need to be aware of them. My doctor didn't go through them with me, I just got the info sheet & was told to read it. We all really need to research these new drugs before taking them. My purpose wasn't to attack the information you put out here, Poodle, but to clarify, as far as my understanding. I could be wrong. I appreciate what you have shared to help us all, as well as what others are sharing as well. I am sorry you have had to experience cancer, & am glad you have survived. I know it's a tough battle.

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Did I ever say anything different about how Prolia is taken? I know exactly how Prolia is given. I am getting very tired of all the misinformation on this site about Prolia. It has more than sufficient problems that one does not have to make up false stories about it. I found how to make our hair grow again and be healthy but you want me to tell you every little step. That is impossible as it would be advertising. I told you what to buy and read the directions on the bottles of how to take all three items. This is not brain science ladies. Buy and read and take as instructed on the bottles of the supplements you bought. Just make sure the saw palmetto is for women, not men. We do not have prostrate problems.

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Combination is one bottle of ALL of the B vitamins. One bottle of Vitamin A. One bottle of saw palmetto for women. Take as directed on your bottles. Mine say the B's and A are to be taken with a meal. I bought two of each to make sure I have sufficient on hand to stop hair loss and regrow my hair. Maybe we will need three. I do not know but I know the formula works and has proven results. What do you have to lose? Pood

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Jwla~I searched every site about Prolia and how much of the active ingredient is in Prolia. Nothing says how much. It just says it comes in a 60mg syringe. We know a lot of what is in that syringe is saline. We don't know how much of the 'Chinese hamsters ovaries' is in it. This leads to a conclusion that none of us really knows. I am even wondering if Amgen will tell us as it may be a trade secret. Have you ever thought of that when you were comparing apples to oranges?? Pood

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Poodle, I wasn't the one who said Prolia has a chemo component to it...I saw it elsewhere in this thread...but you're right, I shouldn't say that without firsthand knowledge. I hope you will also call out the others who mentioned it here...thanks. All I know for sure is that my hair is still falling out and is not growing like it used to. I was mainly curious if others had that side effect, and it appears they do, so I'm done with this.

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For everyone's edification: Xgeva is NOT chemo. It is used to rebuild bone mass that has been deteriorated from the cancer which generally started in the breast. It rebuilds bone for a spinal collapse, hip and wrist. However, I did find a published paper written by three MD's regarding a male that used Prolia. His genetics showed it was impossible for him to have A. Alopecia in his lifetime. However, after Prolia he developed it and it closed the hair follicles on his head tight shut so that no new hair growth could ever start. With this new information, I believe we all need to get into our Dermatologists as soon as possible to make sure ours are not closed shut. If they are, we are beyond help and if not, then we can proceed with the remedy I suggested. The paper did not state how many Prolia shots he had. Sorry for having to tell the real truth about Prolia. Be well~

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I saw the Dermatologist the other day. They found no evidence that Prolia was the problem for my hair loss. Let me know if you find someone to represent you. I had no hair loss till I went on Prolia. Unfortunately no studies have been done to prove our theory.

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I will they are reviewing my case now. Hopefully they will take it.

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Gamp~Unfortunately, I, myself, have written that Prolia is chemo which is very untrue. I am sorry for writing that and I was 100% wrong. The Xgeva makes bone strong in people who have cancer that has spread to the blood or the bones. Undergoing chemo and radiation, bones need to be made stronger, thus the reason for Xgeva for people whose cancer has spread beyond the beginning which is generally in the breast and yes, men get breast cancer too. It has zero to do with chemotherapy and everything about building up bone mass which unfortunately is old bone being built on top of old bone. Perhaps victims of that vicious disease care less about how it works, just that it does work so they do not have spinal collapse and other very large bone problems. One syringe of Prolia is 1.7mL and in it there are 60mg of denosumab. The l.7mL =1,700mg of which one can subtract the 60mg of Prolia and we know what is in it...basically salt water. Do we have this explained well now? It does not treat the cancer. It makes bones stronger for those that are receiving chemotherapy and radiation therapy to kill the cancer cells in their blood or bones. Thanks all. Pood

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I had my first injection and I have noticed hair loss also .My legs have really been hurting and I never had problems with my legs until now .

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Re: Hurting (# 172)

I have posted before on all of the problems I have had with this shot. I also was on Fosamax and discontinued use because of terrible leg pain. Hair loss has now improved and I did not get my last shot and I will not get another. The hair loss tool too long to slow down after discontinued use. There wasn't one change in all three of my bone scans over the past 11 years. Do what you need to do ladies.

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I've just had my second Prolia shot and my hair is falling out by the handful, also what's left is limp and lifeless. I hadn't thought of it being the cause until a few days ago. Now have to wait over 5 months for it to leave my system. I'm depressed over it. It'll be a long few months waiting for it to leave my system. For sure won't go for another injection. Please everyone take with caution if it's recommended that you take it. It's not listed as one of the side affects.

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Yes, many of us...most of us report hair loss and breakage. I had really nice long hair and now it is thin and barely starting to grow again. I had my last Prolia shot in March 2015 so this problem does not stop as soon as you quit the medication. I guess the hair loss is because it is partly a chemo drug Xgeva...which I did not know until it was too late. I had more colds and flu while taking that drug as it weakens your immune system. I told my doctor I just could not continue taking it and would risk bone fractures. Good luck to you.

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Re: Karen (# 166)

My Doctor still believes my hair loss to be 'old age' even tho I had not lost any prior to Prolia. They just don't want to face the facts and until all of us report this issue to the FDA or whatever governing body of your particular country, Prolia will continue its toll on our hair. I can make mine look very nice with a good four handfuls of mousse to make each strand about 20 times larger and then put on an other product on top of that. It's barely enough to satisfy my 'vain self' as Diana O. wrote. I know I am guilty of not reporting mine to the FDA and I promise I will do so. Hugs~

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Been on Prolia for 3 years, still slowly losing hair. My doctor says it's not the Prolia. I really question that.

Also, I have not made any real improvement in my bones, but they aren't getting worse. Anyone else like this?

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Yes i just bought my first wig. 2nd injection due in November and i don't no what to do.

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