Prolia & Hair Loss (Page 15) (Top voted first)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Yes, my hair really fell out after my second shot and I felt terrible all the time and my legs really hurt, especially when lying down!
My dr. said , when I asked about side effects, "not much of anything." Realy!!! I quit and feel back to 100%. All I take now is Vitamin D and B12. I should take calcium but cannot tolerate it if I want to be out of the bathroom. Also research everything now - but don't trust what the drug companies put out. Kaye

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I have started experiencing tooth and jaw pain. The pain will start on one side of my face and move to the other side. I can't tell if the pain is coming from my teeth or my jaw, it appears to be both. The pain is intense. My face rash has returned, on my cheeks and around my eyes. The bumps are pink and painful. The bumps usually last a day or two. I drink lots of water when the bumps appear so that they will go away quickly.

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You bet, it's 8 moths since my last (& I do mean last) inn. & it's starting to come back very slowly.

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Please see a dermatologist and see my prior post, research telogen effluvium. There's no research that shows prolia causes hair loss. The hair loss stops once this is addressed. It's a physiological bodily response the body has in response to stressors and the more we stress about hair falling out the worse it gets. It stops falling out and the hair grows back, I promise! Please email me {edited for privacy} I will talk more in depth about my experience with this.

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Yes, my hair came back in, but in the meantime be very careful washing your hair now and don't tug on the roots when you wash. I also washed only twice a week gently until it came back in. I have not taken another injection but have stayed on the Vit D and Calcium regularly.Good luck!

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Anne, I initially had had hair loss, but it stopped and was not due to the drug. I have a couple questions regarding the diagnosis of your osteoporosis, if you don't mind, which can account and help understand the hair loss. Did you suffer a fracture that disrupted your life? What was happening in your life about three months prior to the actual shot that you got? Was there some emotional/physical stress or trauma? These are important things that interact with what your experiencing and are unrelated to to prolia.

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Has anyone colored their hair with permanent color while using Prolia? 4 months into my 3rd injection with hair loss. Need color!! Worst drug ever!!

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Did your hair come back after stopping the Prolia?

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SDMOM~Prolia is chemo. It's just in a lesser amount than it's twin. Does your hair grow back like it did with chemo? Not that I have noticed. I've had both and Prolia has been the most devastating of all chemo drugs when it comes to hair. I know of nothing at all that stops it and I have inspected the fallen out hair and it is good hair with the follicle attached. One good thing we can do when we dare to wash it is to rub the scalp well with apple cider vinegar and also use it as a final rinse mixed in a pan of warm water. I promise you won't smell like vinegar. It's not listed as a side effect but it seems as if we all have it. Be well~Pood

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Dawn~Our MDs know very little about Prolia and a lot less about how to get rid of it's huge list of unwanted side effects. They get their info from Amgen, the manufacturer. Most are pretty useless. If we could find Immunologists there could be some help for us but they seem to be as scarce as hen's teeth. Be well~Pood

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Barbara~from when to when did your hair start coming back in? How long have you been off of Prolia? You seem to be the only shining light here. Pood

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Mine is the same story. Won't ever take another Prolia injection. I too, have bald spots. Devastating!!

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Dawn~you may want to add apple cider vinegar in that mix to massage in the scalp and also a little in a pan of warm water when you do the final rinse of your hair after shampooing. I promise you will not smell like vinegar. A lot depends on the water you have and if you have very soft water, you don't need the apple cider rinse but if you have hard water then you do as it completely cleans the soap scum and everything else out of your hair that comes from hard water. It's a very old home remedy that works well. Prolia is chemo, it just has less of the active ingredient in it than it's twin, Xgeva does which is a total 100% chemo drug. You went thru chemo once and lost it all and now you are going through it again but to a lesser extent. Amgen, the manufacturer, has never admitted to this side effect but there sure are a lot of us with it. After mine is dry, I put on about 4 handfuls of mousse to make it look thicker to help with the appearance. Also, have your hair dresser be careful in cutting the hair. We need sufficient to comb over the spots. Another thing I noticed which is totally unreal -- apparently my 'mind' forgot where it is supposed to be growing the hair and I had a huge patch under my forearm. I will ask a friend for hypnosis after the Holidays to get it back on track and growing on the head where it belongs. When do the side effects end? We don't know. Some of us are still struggling after two years of one little injection. You may want to read other posts I've made on 'carbon' and half lives. It will explain a lot of your problems. I think they are on Prolia Side Effects thread. Be well~Pood

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I have been on Prolia for 3 years, so I've had 6 inj's. over the 6years (1 every 6 months) I was on Fossamax before that for about 1year. My hair started getting very thin about 3 years ago and it is v bad now. Nearly bald on top. I also take Eltrixin for an under active thyroid. And I take Rosuvastatin for high high cholesterol. My consultant is taking me off Prolia for a break of 2years. I wonder will my hair grow back now or is it gone for ever. I didn't connect the hair loss and d Prolia when I last visited my consultant so I didn't ask him about d hair loss & he didn't mention it either.

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It is odd that you mention stress fractures on your feet. Just 4 weeks ago an x-ray showed that I had a fracture on my foot. Tomorrow I go for an MRI of same to ensure there is nothing else going on since it is not getting any better. I had one inj. of prolia & am still in pain. So far as the hair loss - it started 1 month into the shot & has not let up as yet & that was 16 months ago. Prolia is an evil drug & I regret the day I allowed my doc to give it to me. Of course they are not well versed on prolia! I wish he had to take it prior to giving it to innocent patients, then he would see what we go through. A piece of advice here: Save your hair in a baggie & take to your doc on each & every visit. I now have a gallon bag full since prolia reared it's ugly head. So far as your hair growing back, I think we can dream on....

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I have noticed more than normal hair loss since my second shot. Not listed in side effects but I wasn't losing this much hair when washing or normal styling as I am now!

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yes, I feel my hair is thinning especially in the top back
Leonie

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I have been wondering about my hair loss. Thought it might be another new med I was put on. Now, I find BOTH of these drugs cause hair loss. My scalp itches like crazy and I feel so tired all the time. I've only had one injection--NEVER AGAIN. But, what do you take for bone loss now? I've been on all the old ones.

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This is my third year to be on Prolia and side effects are worse. Hair is still thinning, back still occasionally hurts, itching is worse, GI problems are worse and venous insufficiency/varicose veins are worse. Do not want to take the next dose. I wish they could come up with something better without side effects.

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I have lost 1/2 of my hair and am still losing clumps every time I wash my hair. The texture has become dry and coarse. My hairdresser has corroborated this. I am due for my 2nd injection in 2 weeks and I am most likely going to decline.

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