Prolia & Hair Loss (Page 11) (Top voted first)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Sad lady (# 216)


My sister went into the hospital and had Prolia put into her intravenously every 6 months. She has been diagnosed with lung cancer in the past year but is now in remission. She blames the Prolia. I think she may be right.

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Re: Sad lady (# 216)

Hello. Thanks for your info about Prolia. I know how you feel as I am also depressed mostly by the traumatic damage done to my hair by this horrible inj... I have seen a Dermatologist for a second opinion and was referred to a specialist for my hair loss.

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I have experienced body hair loss as well as the hair on my head. Otherwise I have been lucky because I haven’t had any other symptoms.

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I was on Fosamax for over 10 years (before anyone knew any better). Once I stopped taking the Fosamax, I did nothing for about 10 more years (was told the drug "half-life" would stay with me for a long, long time). I developed a terrible cough, and after over 5 years of trying to figure out the cough, had an endoscopy and discovered that my esophagus was terribly scarred. Asked if I had heart burn, and I denied that I did, other than very occasional. As it turned out, I had gastric esophageal reflux disease (GERD) and I am borderline Barrett's Esophagus, all thanks to the Fosamax. Now, the Drs. are really concerned about my Osteoporosis so I finally started getting the Prolia injections. I've had two. My hairdresser and I are both convinced that I am balding, and I have always had a full head of hair! On top of that, I was exercising regularly at the Y and immediately after the first Prolia injection I developed a very strange pain in my right buttock. There was actually a mass that could be palpated. Went to Physical Therapy for 6 weeks, and it eventually tamed down. Now, after the 2nd injection of Prolia, it feels like it is coming back. Finally, I have developed very itchy skin and patches of what seems like eczema on my arms. Because I use the hot tub regularly, my dermatologist tells me it is related to that - but now I am not so sure. Balding, muscular/hip pain, itchy skin and depression -- and the only new item added to my medical routine has been PROLIA!! I think I will risk fracture for the remaining years of my life. I am 70 years old and up until last summer when I started Prolia I was very active! I am now a couch potato.

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Re: Sad lady (# 216)

It has been over a year since my one and only injection. My hair started coming out like crazy. When I was scheduled for my 2nd injection- I made my appointment to tell my doctor--NO MORE! They didn't seem to like my refusal but-you know?--my health-my hair. I was told to come back in the FALL of 2018 . There is supposed to be a new drug out by then to help with bone loss. I'm 80 years old and very careful , take calcium citrate and good vitamins. I hate to tell everyone that my hair has not regrown. I really don't believe that it will.

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Re: Rosebud (# 239)

It's only one molecule of Prolia that stays in our bodies and it is unable to harm us any more than an aspirin we had 30 years ago. Prolia has a half life of 16 days. In 16 days 1/2 of the Prolia is gone from your body so that by the time we reach six months, there is only that one molecule left. That does not mean in the least that the side effects of Prolia leave with the drug. They can and sometimes do last for years on end. My hair is horrid and I loved the description one lady wrote about her nails being like onion peals. It takes the worst of our DNA and uses it against us. When we have to have cataract surgery, thyroid surgery, jaw problems and teeth replaced, that does not fall within the 6 months that the drug is active in the human body. It is a long haul to get the body back to pre-Prolia. How long? I'm not really sure and as humans we are all different. Some people have zero problems with this drug while it creates havoc for a lot of us. One thing I believe our medical community needs to clearly understand is that Prolia is to be used only when ALL OTHER drugs have FAILED. Drs. are now using it first. It would seem that Amgen has done a wonderful job of advertising. You will get much better each and every month, little by little. That I can promise but I don't know where the real end is. I believe I am close but not there yet. I lost 68 pounds in 3 months with only one injection and that was just the beginning. Be well~

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Re: Karen (# 243)

Like you I was recommended to continue with Prolia despite them seeing how ill I was and the loss of all of my hair and other bad side effects. They suggested that it was not due to Prolia but other reasons. How ridiculous to even suggest it when it is obvious what caused all this misery. I felt like my life as I knew it was finished, and the pain and misery continues eight months after the one and only shot.

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Re: Karen (# 243)

I read that 3 years was the usual timeframe...so 6 shots. I took 2 and stopped. My last shot was March 2015. My hair still doesn't grow much...I colir it and I can go two full month easily without the roots needing treatment. My immube system is horrible. U got that bad flu twice this season. I had the flu shot. I know they saud the shot was not effective this year, but I still feel Prolia has left my immune system weakened. This is horrible. I will not take any other drugs for osteoporosis...they have all been bad

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Anna (# 232) --

I'm 70 also, and after 2 Prolia injections, I decided to risk broken bones rather than take anything for Osreoporosis. I had lovely hair, and after all the breakage and hair loss, it still barely grows. I had 2 Prolia shots...the last was March, 2015. Three years later, my hair is still hardly growing, my immune system is weak, my jaw cracks all the time, and I think it was responsible for my hearing loss...though of course I cannot prove any of this. Very sad situation.

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Re: sad lady (# 244)

You will get better in time. Only one injection of Prolia is out of the human body by the 6th month. Just because Prolia is gone, does not mean in the least that side effects of this poison are gone with the drug. They can and do last a long time and some are permanent as in death. I sincerely hope you have documented your experience with Amgen and the governing body of your country that controls medications. In the US it's the FDA. They have a toll free number if you look for it. Also, Senators have more influence over the FDA than we, the people, so you may want to tell your story to yours if you have any. Be well~

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Julie (# 219) --

Would be interested to know what the specialist said. I too am also totally upset about the rapid hair loss that is occurring. My scalp also itches and tingles which adds to my misery because I can't scratch it or more hair will come out.

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Yes. I had one shot six months ago. My hair is falling out like crazy. The strands have the roof attached. I am extremely distressed

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Yes. One shot six months ago and my hair is falling out in handfuls I won’t take anymore or I will be bald.

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I had my first shot of prolia in February. My hair started fallin out almost immediately. My doctor refuses to acknowledge it as a side effect, but it's the only thing in my life that changed. I'm reporting it to the FDA and recommend everyone who has had a similar experience do it too. For years after the chemo drug taxol came out, women who reported the loss of their nails were ridiculed, not it's listed as a major side effect. More studies need to be made. In the meantime, I'm hoping the hair loss isn't permanent; I would never have taken the drug if I knew I'd go bald (fyi - I have been bald due to chemo, but my hair grew back from that, this is any body's guess).

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Re: Lizzie (# 260)

It’s not listed anywhere. That’s why we are all commenting.

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Re: Sad lady (# 262)

I didn't lose all my hair, but it broke off and just quit growing. After 3 years it still is growing at a snail's pace. I had hair about 2 inches above my waist and now it is just above my bra strap in back at the longest point. I would just cut it short and let it grow out, but I'm 70 and it will take forever...like 10 years to grow back to the former length...and I might be dead by then. I want my hair long, so I'm suffering through with it like it is. I use a hot hairbrush to smooth the short parts in with the longer part. It looks ok that way, but not like it should have been if I had not taken Prolia.

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Re: Bubbles (# 264)

Exactly and after I stopped the doctor said I was never , ever supposed to stop. WTH!

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Re: Sad lady (# 267)

Well, let's start at the beginning. Amgen sent mice into space to see what happened to mice in space with Prolia. What would this prove? - Don't have a clue. Secondly, tested on humans for 11 months. What the heck happens after 11 months? During the 11 month period they came up with lots and lots of bad side effects. Has Amgen added side effects since then? NO! All they do is deny, deny, deny. It is also supposed to be used ONLY when ALL OTHERS have FAILED. This fact does not seem to resonate well with our medical community because they reach for it first instead of last. Only class action suit as of now is the broken femur for absolutely no reason at all. And lastly, when one STOPS Prolia, you will have a break in one of your vertebra in your back. Facts straight from Amgen and yes I got it too. Hope this little missive answers your questions. Be well~

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Re: Sad lady (# 271)

I talked to my lawyer he said the gov was making it harder to file suit against a drug company.

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Re: Bubbles (# 253)

I went to see my dermatologist re: the hair loss. I am not yet coming out in clumps but am rapidly losing strands and have thinned out considerably. The dermatologist said there was a rash all over my scalp (probably why I have been ITCHING so badly). So we are treating the scalp problem..too soon to know if this will somehow halt or slow down the hair loss. In a way it makes sense. Prolia does cause rashes so maybe this scalp rash (infection?) is one of them and that is related to the hair loss. Just a theory (mine, not the doc's).... straws to grasp... I never had any kind of scalp problems before and this started two weeks after Prolia inj.

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