Petition - Stop The Dea From Interfering With Chronic Pain Patients.

I had signed an old petition "Stop the DEA from interfering with chronic pain patients and their medical professionals." and wanted to see if you could help by adding your name. Our goal was to reach 100 signatures and we need more support. * Update * this petition has been closed. Thanks!

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REPORT

Thanks for showing your support! The DEA interfering with a doctor's practice has been a long drawn out issue for quite some time. I don't know if there's an end in sight to this upheaval, but in this day and age it seems we all have to learn how to manage our problems differently (through other means) or continue down the path of helplessness reaching out for a doctor's hand that's not there, because its being cuffed by the DEA.

Petitions can be a great start to expressing the need for change. And while there is some doubt about how effective they really are when it comes to getting any recognition from the government or politicians, one thing it does add is a mindset of courage from those who want to stand up for their rights and it's that feeling of "I've had enough of this fermenting chaos!" that gets people up and fighting for a good cause. I wish everyone lots of success in carrying out whatever words or actions are on your heart to do. May you all get the opportunity to experience a pain free evening tonight!

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A lot of drs tell their patients it is the DEA when in reality it is the drs choice.

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You have a good point BL. It really does boil down to the doctor's decision (and their perceived degree of risk taking on behalf of the DEA's presence). I wouldn't doubt that they may be feeling just as insecure as their patients in some aspects relating to this, but clearly there are doctors out there who continue to prescribe whatever they please, within their own moral boundaries. It could just be a matter of them having to justify the reasoning behind prescribing certain meds in certain quantities in the event that they're being questioned by a higher authority like the DEA - something many doctor's apparently don't want to put up with, and as a result won't bother to take any risks at all. This is just my perspective anyway...

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I’m a resident of NJ, who use to travel to Phila. Pa. For treatment of my intractable pain. I spent over 15 yrs being treated by my only treating dr of intractable pain.After being a functioning adult I’m now bed bound depressed & now only being able to look back to yrs of functioning.I no longer have desire to continue to live in this unlivable life because of Drs fear is stronger than desperate patients who no longer can stay in this state of non functioning & experiacing only severe unending pain that all dr refuse to believe the word pain or the life ending condition that results!!!

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The DEA is certainly scrutinizing Pain Management doctors and the types, quantities and frequency of the Opiate based medications they are prescribing, however it IS STILL the doctor's call. There are NO restrictions currently placed on this, except those that have always been in place. And because a small percentage of pain management doctors were negligent in their practices, leading to deaths from Opiate overdoses and arrested and prosecuted, especially in Florida, where I'm from, doctors are so afraid some of their patients may abuse and possibly overdose and die, that they choose to not prescribe any narcotics. Patients who suffer from legitimate moderate to severe pain are paying the price for this. There will always be people that abuse drugs, whether they obtain them legally or illegally. Doctors should treat each patient based on their individual needs and history and stop assuming that everyone they prescribe Opiods to are going to abuse them. If there is no history of abuse, then don't convict me of something I'm not guilty of ! Don't assume I'm going to abuse the medication, especially if I have a history that proves I don't

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Re: Jeffrey (# 5)

Thank you Jeffery couldn’t have said it better myself my friend who stays in pain got his meds cut more than half Bcas supposingly thr DEA was on her butt she has a patient OD but didn’t die so she was cutting everyone so bcas one persons choice everyone suffers

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Re: Jeffrey (# 5)

I agree 100% and pain management doctors wont give someone in severe pain hardly anything. They make it, it is out there and we should not have to suffer because others are abusing it. I have to take a U/A that shows everything, and no abuse from me, or most of the others, people just don't care about what they are doing to our lives!!!

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I am looking for sites on the above petitions? This applies to me also as I have no Doctor to write a script.

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Re: Jeffrey (# 5)

That could be fixed with a pain pump implanted. Then the DEA or any other company from accusing the dr or the patient. Then they can go back on the streets & stop the real abusers & leave us alone!

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Re: Grangerl (# 8)

"Petition calls for FDA to remove ultra-high-dosage opioids from market":
cnn.com/2017/08/31/health/high-dose-opioids-fda-petition/index.html

"CDC: Withdraw Guidelines for Prescribing Opioids for Chronic Pain":
petitions.moveon.org/sign/cdc-withdraw-guideline

Hope that helps get you started.

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Re: Grangerl (# 8)

This one looks interesting...

"The scope of the HCP abuse problem is described, along with a discussion of public concerns and comments addressed in the Drug Enforcement Administration’s (DEA) Final Rule designating HCPs Schedule II controlled substances..."

Source: "Rescheduling Hydrocodone Combination Products: Addressing the Abuse of America’s Favorite Opioid". Asam.org. Web. April 10th, 2015.

And another...

When the DEA Administrator has determined that a drug or other substance should be controlled, decontrolled, or
rescheduled, a proposal to take action is published in the Federal Register.

dea.gov/pr/multimedia-library/publications/drug_of_abuse.pdf

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This evil organization is corrupt and bloated full of hypocrisy. They need to be stopped. They have become so bloated they are rearing their ugly head around to turn on us in an effort to try and remain relevant.

Get rid of the DEA.

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Re: Kelly (# 12)

I heard on my local radio station this morning, San Francisco 107.7 f.m.,

"The Dea recently found that marijuana is one of the leading causes of opiate addiction."

Please, let's raise some hell!

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Re: Jeffrey (# 5)

It sounds like your Dr may be afraid of being shut down. That comes from the pressure the DEA is putting on the Drs. According to my Dr, the DEA can raid their office & go through everyone’s files & the Drs. perscription pads. The DEA has no right to do anything like that. They can’t even control the illegal drugs that are out there.

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This petition has ended. Is there another petition for the same cause or is this the end?

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Obummer was useless, lets hope Trump can get it done. He's got a LOT of swamp to drain though.

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I would like to see and sign a petition against the DEA!! They have no right under our constitution to stand between us and our doctor. That goes against everything America stands for. But they are doing it anyway because no one is opposing them from doing so. It can be done, and I see talk about banning together so come on. We need 100,000 signatures to get President Trumps attention. It not going to happen with 14 blogs. If we don't stand together the DEA is going to have it there way with a smile. Last year people gathered 150,000 signatures stopping the ban of Kratom in 10 days!!

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Re: Alan (# 17)

I agree that petitions are a good way to gain attention and create a paper trail that lends legitimacy. Successful petitions need to be presented to media sources. Candidates running for office need to get a copy also. Voter's are very important! It's unfortunate that Obamacare ever passed. This gave the government too much power to control our medical care. Thankfully those in power don't hold a majority in Congress presently. Somehow younger people, even some elders don't understand that socialized medical coverage doesn't equal medical care. Universal medical coverage only covers what the government agencies, the power people who believe they're superior allow. Medicaid for all but the wealthiest and most powerful in the World. "Pain Warriors" is a film that tells the truth about what is happening to us. You can Google the title to see a blip and learn more. I sure hope this is shared. We need advocates.

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Re: Laura (# 15)

Google, petitions for chronic pain support or similar. I signed and shared two today. One appeared on the page for the film Pain Warriors. Sharing information about the movie will also be helpful. We need to let our elected and appointed officials know that election time is coming up in the US and there are millions of voters with chronic pain.

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Re: David (# 3)

Can anybody recommend a Dr. Virginia West VA or northern Virginia any where Please I am desperate to find a doctor.

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Thanks for your efforts! Did it help out at all or make any difference? I also am trying to educate the public at large, as well as the medical professional communities.

I have been a chronic pain patient since a motorcycle accident almost took my life at age 19. It changed the road that I would travel down for the rest of my entire life because I became a chronic pain patient with injuries that sadly are permanent and there is “No treatments” or “No getting better” for me. There’s only managing the conditions available to me.. it has been 31 years since that fateful day happened and fortunately I haven’t experienced that many difficulties or issues yet obtaining my prescriptions from my long-standing physicians that are familiar with my very long and intensive medical history and the myriad of different individual conditions that I now suffer from however; I have encountered numerous physicians that are completely biased against me after their very first initial contact with me (prior to actually taking their time too actually sit down and really read my entire medical history) before they will treat me appropriately.

I have found this particular issue to be apparent mostly in emergency room settings. There have been times; let’s say when I’ve been out of town on vacation (or attending a funeral or a wedding or a birth/ an event in a different state on the other side of the country). Regardless of the reason why I am not in my normal home environment and in my local medical community where I am treated with dignity integrity and respect when unfortunately for me I’ll have an unexpected flareup which requires intravenous medication treatment and I have had to visit a hospital or an urgent care type of medical practices that have been openly rude, completely biased and basically just telling me to my face that I am just exhibiting what they believe is ”Drug Seeking behavior” just because they will ask me “what medications have you taken previously that both work effectively and help you?” All because I answer their question honestly; until they sit down and look at my files; which to me personally is extremely upsetting prior to giving me first the right medication and secondly in the dosages that I need (because I have been a chronic pain patient for 31 years I have an extremely high tolerance to narcotic medications and it takes sometimes 2 to 3 times what a non-tolerate person would take).

When anyone arrives at any emergency room in a different area or state from which you live in and when the doctor comes in and examines you asks you the pertinent questions as to what’s wrong/ what has caused this issue and what do you normally do to cure or abate said issue and when you tell them a specific drug like Dilaudid or morphine (whatever the actual drug name here is completely irrelevant) they immediately classify you / believe that you are just a “drug seeker” and it is immensely disrespectful and highly upsetting to me.. when someone has to go in somewhere for “immediate emergency medical treatment” they are already experiencing extreme symptoms which were extreme enough to feel need for immediate medical intervention and attention and to be put into a category such as drug seeking person it’s highly upsetting (to me anyways) I can’t speak for everyone but I can assume there are thousands of legitimate people out there just like me and I know that they have encountered medical professionals also of the absolute worst kind!

The doctors that take care for me on a daily basis have done their personal research regarding my very complex medical history and they know the “Cocktail of different medications and therapies” that work best for me and treat me with dignity kindness and respect. In my opinion the entire medical establishment as a whole has become extremely jaded with preconceived notion‘s about people who suffer from Cronic irreversible pain issues which require a myriad of different types of pain medications both narcotic and non-narcotic until probably maybe beginning around 10/ 15 years ago; because of the influx of people who began taking narcotic pain medications just to get euphoric feelings instead of experiencing actual real pain.

I having debilitating real /true chronic pain issues stemming from that motorcycle accident when I was 19 years old that interferes with normal basic every day life issues.. it was difficult for me to cook dinner or to have enough strength to do laundry or clean the litter box whatever… but over time I found a combination of medications (both narcotic and non-narcotic as well as cannabis and other natural/ holistic remedies) and my physical therapists developed individualized exercises to keep my mobility at its best that I do every single day and most of the time that works pretty well for me so I’m one of the fortunate ones; however I have noticed that the majority of these young new pharmacists and physicians that think they know more than I do about my individual multiple conditions as well as what strength of any particular drug or medication it takes to control my pain just because they went to medical school 15 years after my injury… it’s very annoying and upsetting.. I happen-to be an intelligent well educated woman myself and I dislike intently being spoken “down too” by doctors that are younger than me and do not know what my personal journey has been; even though I bring my briefcase that accompanies me to any medical appointment I attend that has 30 years worth of very specific paperwork describing every single surgery, every single treatment and every medication that I have ever been prescribed they have done to me. Every single surgery/ every treatment including both invasive and noninvasive treatment as they became available over the years through research.

I eagerly participated in numerous drug trials over the last 30 years (blind and open) and every new treatment that was discovered throughout the years through research and what not. Somethings helped take the edge off like when they cauterized nerves in my lower back near my spinal cord to kill the pain signals going up to my brain through my spinal cord, that helped a little bit but nothing has been able too do more than take a minor dent out of the pain levels that I feel on a daily basis. Unfortunately for however long I will live down here on planet earth there will never be a day that I do not feel immense physical pain no matter how many schedule 2 narcotics I am prescribed.. True pain patients do not get euphoric from their medications. I have found that the most that any medicine will do is just take the edge off of the pain enough to make it bearable.. that’s it/ that’s all it does for me. Personally I do not like taking schedule 2 narcotics because they get me to “loopy” if you will. It’s hard to cook dinner when you might be heavily sedated and could possibly burn down the house if you know what I mean.

But my doctors have come up with a regimen now where my pain is controlled enough to allow me to function & as a wife; as a mom and as a daughter to aging parents and being able to drive and not worry about getting arrested for driving under the influence and my quality of life most days is about between 70 to 80% good but I have my bad days as well; when I cannot get up for a week because of a flareup and my laundry gets backed up and the garbage doesn’t get taken out the house because I just can’t do it myself sometimes and it’s hard on those days. I would give just about anything if they could come up with a cure and I never had to take a pill again in my life! Please keep me updated if there’s anything new that you can think of that we can do to change the establishment regarding this topic please as I am all for it! I look forward to hearing from you in the future! From one chronic pain patient to another signing off.

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I need my medication to walk without pain! I take mine as prescribed. I am 66 yrs. old, not a dope head! I am sorry some people choose to abuse their medicine but for those of us who don’t, interfering with our doctors and our treatment is wrong.

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I was going to sign whatever your petition but apparently it’s already over… I am a chronic pain patient and I have also run in to multiple doctors that are discriminating against people like me and you!!

Fortunately I have a very good chronic pain medical group then I am a patient of that doesn’t just write a script for fentanyl or Dilaudid: It has a multi faceted approach which includes not only physical therapy and medications it also includes a psychologist/psychiatrist whom understand how chronic pain affects our overall lives, our moods, our depression, and the limitations regarding what we can and can not do because of our bodies… They make an individual customized program that works for each patient what works best for them. They even have “family sessions” and “Group therapy sessions“ for our immediate friends and families too understand completely what’s happening within our bodies.

And although they are not the person that’s living in daily debilitating chronic pain they learn how too live with and deal with their beloved ones chronic pain issues which affects them as well.. I pray to God that people/ the public at large AND medical doctors in every field of specialties stop discriminating against the population of people that do not abuse our pain medications. As a matter of fact research has proven that true Chronic pain patients do not get high or abuse their medications because 90% of the time (personally speaking) my medication never completely takes my pain away 100%. All that it does is take the edge off of it just enough so I can function throughout each day; taking care of my tasks and chores and what not. It’s an absolute nightmare Every single day that I/We go through.

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Re: BL (# 2)

This is true, The CDC is not pressuring your Dr. to cut you off or wean you to an amout lower that the recommendations. This is the problem. It is the squeak in the cog and needs to be addressed. My Dr is doing this to me trying to blame the CDC and His hands are tied. I am calling his bluff. He lied to me and caused me harm. I will let you know what the outcome is. I am fighting this all the way. I am done playing games and suffering to placate the EGO of some Dr. Time is up LETS DO THIS PEOLPE!

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While I am most grateful for this venue allowing my input on said topic, I have reached the point where I am ready for some real results. I have a degenerative condition and I really need that life sustaining pharmacology that kept me going for 20 years.

The system is broken and I am tired of fiddle farting around, and I am sick of the regulatory ignorance!

How can I get the meds that allow me to participate as a functional member of society? Is that "American Dream" thing still valid today? You know, the part about going to work, getting a paycheck, paying taxes, raising the family! When a bureaucracy pulls the plug on your civil rights, what the hell are we to do??

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How can I help/sign up? Thanks

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Re: Mare (# 9)

This is how regular people end up in the streets. Most people do take more than prescribed. Though some never admit it. This is excalty how it starts prescribed or not your still a user just like I . Relax are your panties in a bunch.

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Re: David (# 1)

The DEA is becoming evermore desperate to justify their existence and big budget allocations. Restricting Tramadol is truly ridiculous, it's not a "recreational" drug at all. It's one of the few drugs that is genuinely effective for certain types of chronic pain, but does not lead to heroin addiction.

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Good Day To My Brothers and Sisters!
For those of you who are currently members of AARP, or are thinking about joining, I urge you to send an inquiry in their direction regarding the war on pharmacology. Given their grandiose oratory, rhetoric and hype to prospective members, perhaps they could put in a good word for us, the refugees stemming from the war of pharmacology!!

Who is familiar with he ACLU? In theory, they stand for the oppressed, the overlooked, the forgotten and neglected. I've sent in three separation inquires. They have a standard canned response, quite reminiscent of the response you'd get from any other bureaucracy.
If I may digress into a bit of sarcasm, you can find out more about the AARP, and the ACLU If you grab a dictionary and look up the term "hypocrisy."

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