Muscle Pain From Warfarin? (Page 3) (Top voted first)

Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

REPLY

REPORT

I HAVE NO NERVE TO READ ALL THE ANSWERS SO ILL TELL U MY STORY. I HAVE BEEN TAKING SINTROM,NOT SMALL DOSES FOR ARHYTHMIA,BUT AT LEAST A PILL A DAY,SINCE MAY 1998 AND I HAVE NO SUCH SIDE EFFECT FROM IT. BUT I DID HAVE MUSCLE PAINS AND IT WAS PROBABLY CAUSED FRO A STATIN,10 MG,THAT I HAVE BEEN TAKING FOR A LONG TIME TOO. NOW I HAVE NO MORE MUSCLE PAINS. I SUGGEST U IGNORE THEM AND IF U TAKE PAIN KILLERS TAKE AS LITTLE AS POSSIBLE COS ULL RUIN YR STOMACK. AND,INSTEAD OF CONCENTRATING ON THIS POSSIBLE SIDE EFFECT OF YR BLOOD THINNER,U SHOULD LOOK CAREFULLY AT YR DOSES AND YR INR. WHICH MEANS LOOK AT WHAT U EAT,WHERE THE VITAMIN K THAT SINTROM KILLS IS,IN THE GREENS. I DONT SUGGEST U STOP EATING GREENS COS THEY ARE PRECIOUS FOR THEIR CHLOROPHILE AND VITAMIN B9,FOLIC ACID. INSTEAD,TRY TO FOLLOW YR INRs AND YR DIET,SO THAT U CAN FIND A SHEME OF HOW MUCH OF GREENS NEEDS HOW MUCH MORE OF SINTROM. FOR ME ITS AROUND A FOURTH OF A TABLET MORE ON THE DAYS I EAT A BIG GREEN SALAD. AND TAKE SINTROM IN THE EVENINGS COS U MEASURE YR INR IN THE MORNINGS,WHICH IS THE MID TIME OF 24 HOURS. AND,ONE MORE SERIOUS ISSUE. VITAMIN K THAT YR SINTROM KILLS IS NOT ONLY MAKING YR BLOOD THICKER BUT ITS NEEDED IN YR BONE FORMATION. SO U CAN EXPECT SOME OSTEOPOROSIS AFTER SOME TIME OF TAKING SINTROM. THEREFORE KEEP YR SINTROM INTAKE IE YR INR AS LOW AS POSSIBLE. DENPENDS ON WHY U TAKE IT. BUT NOT LOWER THAN 2. I SUGGEST U BUY A MEASURER OF INR,COAGU CHECK,A GERMAN APARATUS. IT COSTS ABOUT 800 EURO AND EACH MEASURING PAPER IS ANOTHER 5 OR SO EUROS. BUT ULL BE FREE FROM LABORATORIES. U CAN HAVE IT WHENEVER U GO ON A TRIP AND MEASURE YR INR JUST LIKE THE DIABETICS DO,ONLY THEIR APARATUS IS DOUBLE SMALLER THAN OURS AND CHEAPER,IF NOT EVEN GIVEN FOR FREE. EVEN IF U ARE POOR BUY IT. ULL BUY YR FREEDOM. AND THEN LEARN AS MUCH AS U CAN ON THE INTERNET ON WHAT FOODS HAVE VITAMIN K IN THEM,FOODS WITH MORE THAN OTHERS IN QUANTITY,AND THEN DONT AVOID THEM,BUT BE AWARE OF WHAT U HAVE EATEN IN THE GIVEN DAY AND THEN IN THE EVENING TAKE AN EXTRA 1/4 OF A SINTROM TABLET WHEN U HAVE EATEN MUCH GREENS. FINALLY ILL TELL U THAT KALE HAS THE MOST VITAMIN K OF ALL PLANTS. MUCH MORE. SO MAYBE DONT EAT THIS,OR IF U EAT A LOT ON A GIVEN DAY,TAKE 1/2 MORE SINTROM THAN IS YR DOSE FOR THAT DAY.AFTER KALE ALL GREENS ARE FULL OF VITAMIN K,SPINACH PARSLEY BROCOL LETTUCE ETC. AND AGAIN FINALLY,CONSIDER FINDING OUT ON THE INTERNET OR OTHEWISE,I HAVE FAILED SOFAR,WHETHER VITAMIN K2,WHICH IS EVEN BETTER FOR THE BONES THAN K1,IS KILLED BY SINTROM OR NOT. I MEAN IF WE CAN TAKE K2 AS SUPPLEMENT FOR BONES WITHOUT RUINING THE EFFECT OF SINTROM ON BLOOD THINNING THAT WE WANT. AND IF U FIND IT PLEASE LET ME KNOW ON MY EMAIL:

xxxxx@xxx {edited for privacy}

LONG LIVE SINTROM USERS!!!

KISSES XXX

REPLY

Was this helpful? 4

I am now on Amiodarone 200 mg and Bisiphorol 2.5 after my cardio version did not work and went to the ER with heart beat 270 beats...also taking 4mg of Warfarin since June 13....So fed up with side effects....does anyone useVitamin therapy...as various sites Vit E. Garlic. GINGER and cod liver oil does anyone have any advice on how to manage Artial Fibralation with out warfarn....anyone have any thing to do to get off Warfarin

REPLY

Was this helpful? 0

Artial Fibralation is NOT managed with Warfarin, Warfarin just stops the blood platelets from forming a blood clot, As the Artial Fibralation continues

My latest news is after six weeks clear of Warfarin I am now almost pain free more of a severe ache, but it obviously takes its time depending on how poisoned you have been I think.

It is hard to define pain, but week by week taking warfarin my muscle pain got worse, to the point my back muscles were like a raw steak stretched to it limit, after two weeks off, it was just like a raw steak, then just like a severe bruise, now it is just a severe ache that is relieved by heat.

I am hoping it eventually goes completely

The only problem is I am now at risk of a blood clot and stroke

Jim

REPLY

Was this helpful? 0

You don't have to be at risk. Drink homemade ginger tea, takes Systemic or Proteolytic enzymes, fish oil, etc. Plenty of natural ways to help keep the blood moving. As you said, the warfarin does nothing really, except destroy the body and keep platelets from clotting which is very dangerous. Also, drink loads of water, dehydration alone can cause blood clots AND keep moving.

REPLY

Was this helpful? 0

Well first night, never had a headache like it wanted to throw up, thought I was gonna die, day one amazing difference all pains almost gone, only in toes if I bent them right over. Day two wow what a difference could breath again, didn't even have a pain killer at all, went out all day walking, and went to a gig at night. Got my zest for life back it was like having a new body. Day 3, had a bit of a headache last night, and today my hip on the other side aches like hell so had one pain killer, feel a bit tired, but probably cos of the excitement etc. All in all breathing is back to normal and only pain is in hip, hoping it goes soon. Other side effect is no RLS at all, did not have a good nights sleep waking up etc, bun no RLS at all. Also changed diet, and on a diet. Eating fish, cinnamon, nuts, prunes and all that and steering clear of the greens.

REPLY

Was this helpful? 0

10 days after seeing my doctor and telling him I was going to stop taking Warfarin he rang back and said I could have rivaroxaban. So I agreed to give my wife some peace of mind (she kept jabbing me to see if I was still alive. So been taking that for 10 days now. Side effects of rivaroxaban, well first week felt ill now and again that was it. All my pain has now gone, feel amazing, decided to finish decorating house after 4 years half finished. Running round like 18 year old. Breathing normal, mind also a lot clearer. Don't know if its the rivaroxaban or the stress of it all but get a bit teary at times, nothing like the crippling joint pain I had on warfarin. So see how it goes from here, so far so good.

REPLY

Was this helpful? 0

IMPORTANT "ALWAYS CONSULT A DOCTOR" and do not self medicate

See my posts 21 and 25
Well I have progressed, my pain is now just a severe ache and only in my left sciatic nerve
The consultant agreed with me to stop the Warfarin, I discussed that I would now NOT be prevented from blood clotting, He advised me that I would be OK without it but to take 75mg of ASPRIN DAILY
I had gone from a normal person to a total cripple in six months, I am slowly returning back to normal
What an experience

REPLY

Was this helpful? 0

GOD has nothing to do with it. I've been on it for 8 months and I feel the same way.

REPLY

Was this helpful? 0

I've been on Coumadin (Warfarin) for 23 years. I am 39. My legs have hurt every single night for 23 years straight. I recently started taking Tramadol at a low dosage every day. It has changed my life, although I realize that I am now medically dependent on Tramadol. The leg pain is gone though.

REPLY

Was this helpful? 0

Been on warfarin four months now.I have lower back pain like I have never had before.Told pc about it he said it wasn't from the warfarin.Don't Belive him.I cannot even walk around the block without lower back pain.I'm on six mg of warfarin a day.Going to talk to my doctor again to see if I can get off this stuff and see if my back improves.

REPLY

Was this helpful? 0

I've been on Warfin for over 15 years and just started having severe pain in my right upper thigh. It hurts to the point of waking me and or stop peeping me from getting sleep. This is the same leg that was used for placement of 3 stents, after my open heart surgery and aortic valve replacement. My INR IS ALWAYS BOUNCING FROM 1.5 to 4. I'm told its from green leafy vegetables which I hardly ever eat. The pain I'm thinking is deep vein thrombosis , but I've yet to see my Cardiologist yet. I have seizures when they thick in my blood with Heprin or Lovinox so I tend not to go in as they always want to thicken me up. No one in the medical field has ever believed me , although I have seized evert time followed with severe depression.

REPLY

Was this helpful? 0

i can help you with stabilizing your inr. i know how to do it. first of all you have to buy your own COAGU CHECK aparatus,from roche germany. find it on google,order it,pay it and have it. then learn to measure your inr youself. not difficult at all. aparatus i have cost me around 800 euro,and for measuring little films,i dont know how else to call them,every farmacy have them. they cost about 4 euros each. not expensive. then you are your own master re your inr. after that you can eat what you want. and measure your inr once in a forthnight. in the meanwhile,have in mind that on whatever day you ate more green stuff,find on google lists of content of vitamin k in foods,on such a day you should take one fourth of a sintrom tablet more than on days when you did not eat much of such foods that are full of vitamin k. as general rule,green leafy vegetables like lettuce and spinach parsley etc have much vitamin k in them. it is not a good idea that you stop eating these foods cos they contain folic acid that is nesessary for health. and omega 3. the one fourth of sintrom tabblet more on days you ate more green foods,and less on days you did not eat much of these foods,is my rule. for me it works. but you will say,who will decide how much sintrom daily i will have to take after having measured my inr. you will decide it. ill tell you how i do it. lets say my todays measurement of inr was 2,75. its a good finding. then ill decide to take three thirds or one whole tablet every day. we dont all react to the same dose equally. so in the beginning you will have to measure your inr more often so as to see how you react at one tablet or at three thirds. but you will have only you,only one patient to follow,while your doctor has many. one more thing. it makes sense to take sintrom in the evenings,cos in a public laboratory or you doctor they measure it in the morning lets say at nine o clock. so,nine in the evening is half time,12 hours in between. my thinking is such.and my hematologists says so too. and also,you will know by nine o clock in the evening what you ate that day,and will take sintom dose accordingly. a good start is a presumption that you need a whole tablet of sintrom on daily basis,when you ate some green stuff but not much. if you ate much you may need one whole and a fourth of the tablet and on days when you did not eat greens at all,you need less,like three thirds. this way i saved my health and nerves. i buy every year in august one whole box of measuring films. they are 24 in the packet which is enough for approximately one year,for measurments once in two weeks. so i by my own mistake three weeks ago ruined two little films,i was nervous and did not draw enough blood. so i decided ill take longer before i remeasure,cos i have no money to waste and i want my meauring films to last mi till next end august when ill buy a new packet. so i let it be without measuring my inr for more than a month. and i found today my inr as 2,1. not bad,after a month. in the meanwhile i was deciding how much sintrom to take according to what i ate each day. not so hard as it sounds. and also,when my inr is high,then my gums bleed a little. it shows when i brush my teeth,a little pink. and also,there would be a little bruise somewhere on my body. this is a sign for me that i have to lower my sintrom dose. this is it. in the beginning it is hard cos you dont know yet how much sintrom you need with normal diet. presume it is one tablet. start from that. and measure it more often,until you learn your bodys reaction to one tablet of sintrom. here is my email address in case you want to ask me something. {edited for privacy}.
good luck,
viki

REPLY

Was this helpful? 0

Taking warfarin for month now. INR still not stable. Having extreme pain in neck and shoulder. Has anyone taking this drug experienced severe neck pain and also coughing?

REPLY

Was this helpful? 0

Was only on warfarin approx 3-4 weeks. INR always was 4.plus. Got sicker day by day. Was hospitalized due to EXTREME fatigueness, shortness of breath, severe pain in neck shoulders and headache severe coughing. Was initially diagnosed as pneumonia but later treated for CHF. Also had UTI while in hospital. Something as a male i have nevet had. After about a week or so off warfarin almost feeling like my old self. Now the doctor wants to treat my AF with Xalrelto. I am afraid of that stuff too. How does one know the blood thickness or thinness without no monitoring. Has anyone experience taking Xalrelto?

REPLY

Was this helpful? 0

Been on it for 130 days now, no side effects that I can tell. It's a designer drug, warfarin does not thin your blood anyway, it stops it clotting. Xarelto or whatever the other names for it is, does it in a different way, wiki it for info. And no blood work! that is worth it in itself.

REPLY

Was this helpful? 0

Fluroquinolones and many other drugs are delivery methods for putting more fluoride in our bodies. Fluoride is an utter poison. Get off it when you can.

REPLY

Was this helpful? 0

Hello everybody im sonny. I am 22years old. And i have a story as well very similar.. i had a PE 3months ago:( i got missed diagnosed for months. id go to the hospital put an ekg on me and take a regular xray.. and say i was just having anxiety nd give me ativan. I went 4 5 times and got missed diagnosed. I would tell my fionceii i feel something there i feel it but hospitals werent helping me they would never imagine someone my age having PE. My heart rate started raising to 183bpm started coughing up blood so i went back to the hospital. Finally some different doc said lets do a ct scan, the scan came back positive my oxygen would drop to 70s i thought it was the end:( i am the first in my family to have a clot PE. I was in the hospital for 10days. Thank God the clot in my left lung dissolved. . That feeling of lacking air is no joke at all. it is a very bad bad way to die. Its been 3months i am on warfarin bt the doctors never found out why i got the clot.. they have no clue... mentally this affected me:( im young and i jst had my first babby and sometimes i think im not gna be able to see her grow be there for her. Shes 5months old. Im depressed.. it is not easy wat i am going thru it isnt.. i have a pain in my neck in the front left side and some chest pain wen i walk its weird... if anybody out there that has had a similar problem like me with this stupid clots. I am soooo sorry wat ur going thru its mentally fustrating and physically too.. If anybody got some advice or sumthng to say feel free..

REPLY

Was this helpful? 0

This is SONNY..i just commented but put the wrong email..if anyone has any advice comment me on here plz...

{edited for privacy}

REPLY

Was this helpful? 0

Thank you caroleeg for your adcice i apreciate it so mch.. i went to a blood specialist and he drew alot of blood to see if its a genetic thing that caused me to get a chronic pulmonary embolism. I was in hospital during this time i was getting tested for about 7days. They released me followed up next day with hematologists got bad news he said i had a clotting disorder that my PROTEIN S, was extremely beyond low he said i am at very high risk of clotting i am currently on warfarrin but he wants to switch me to xeralto. This is too much for me my family thinks im faking my sickness they think its nt a big deal theyre not supportive at all.. my fioncei is there for me but im always sick always its stressfull just had a bby 6months old. I cant work cant provide i feel helpless. And then knowing a clot can kill me or its gng to eventually i dont thinkso.. i had chronic pulmonary embolism i was gonna die clot was big in my lung of how many times i got mis diagnosed i couldnt breath my heart rate would go up 220.. i can deal with this im 22yrs old i cant live like ths:(.. i am thinking suicide planing it. Im sorry to everyone out there if u are gng thru a situation like me its hard really hard i wish you all the best. Cuz ths is too hard to live with:(

REPLY

Was this helpful? 0

Don't do it, you'll be ok

REPLY

Was this helpful? 0

I have been on gabapentin for a about 4 months. Just in the past 4 weeks I have noticed horrible muscle pain in both leg...

7 REPLIES

I am taking this medicine for almost 4 years. It's been over a year with the pain. Every time I get a Pedicure it is...

1 REPLY

can I take ibupain and robaxin together for pain ## Hello, Stella! How are you? I didn't find any problems or intera...

1 REPLY

I understand that it is alright to take Tylenol when on Warfarin which I am doing but for awhile taking Tylenol did actu...

2 REPLIES

I was started on Warfarin in May 2016. Dx: Pericarditis w Afib. Mid July 2016, I had a ruptured foot tendon accompanied ...

2 REPLIES

I have a lot of different illness and pain, I used to take tylonol ibuprofin etc, but started taking warfarin 5mg to thi...

5 REPLIES

I have been on this medicaion now for a month and have increasing aount of pain all ver my body and sleep disturbance wh...

8 REPLIES

I've been experiencing muscle pain while taking Atorvastatin / Lisinopril, and have to take Co-Codamol just to be ab...

5 REPLIES

2 months ago I tripped in the louse - fell - slammed both upper arms onto floor hard! Very sore for a week or so. a mont...

5 REPLIES

Does anyone taking synthroid know anything about muscle pains. i have been on synthroid for 30 years and recently i am e...

4 REPLIES