Metronidazole Lasting Side Effects (Page 70)

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I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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1381

Re: Galina (# 1380) Expand Referenced Message

Well, here is the thing that perhaps we should all insist that they test for: calcium channel binding antibodies..... this test, which a neurologist decided to run, showed me positive for this. And if you look that up it talks about indicators for cancer of various kinds including small cell lung cancer..which I've not researcher further and don't know if there are any symptoms for it. As I think I reported - when I asked my oncologist (I have carcinoma in situ in my right breast) about the test, etc. she said she had never heard of it. So, I'm really curious now. She said she would call the neurologist and ask him about it and why he thought to run the test (other than the fact that the info on these antibodies show symptoms of ataxia and polyneuropathy, which I have).

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1382

Re: BAH (# 1381) Expand Referenced Message

BAH, it is very interesting that your neurologist ordered this test. My neurologist is so lazy, he did not order a single blood work, but he ordered a mri which came back normal. I also visited my regular doctor at that time and she ordered bunch of blood work but not the calcium channel antibody test. In September I switched to Naturopatic doctor which is better than other doctors I visited. He ordered some antibody tests check me for cancer of nervous system and it was negative. Thanks to God! I will see him for my follow up in April and ask him about a calcium channel antibody test. BAH, thanks for sharing this information with us! I hope that everything is going to be well with your health. Are you planning to start treatments soon? What your oncologist recommended?

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1383

Re: Galina (# 1382) Expand Referenced Message

Treatments? Not sure what that will be but more medicines to reduce the symptoms. Before doing that I'm going to do my homework. One med that I noticed being used(from my research on the condition) created the same kinds of symptoms as I currently have and added tingling sensations in the lips and fingers for the first hour after taking it. Unless I know that it will in fact do something positive I'm not planning to take any more "treatments". So, first he is doing more tests.. I'm to see and ENT but so far he hasn't sent the referral to them as far as I can tell. Feb 1st I am to have another test...EMG ... Nerve conduction test...

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1384

Re: BAH (# 1383) Expand Referenced Message

BAH, it is very wise of you to research every drug before taking! I am also not taking any pharmaceuticals and research every drug throughly. When I went to my neurologist for severe burning neuropathy, he prescribed my nortriptyline for a nerve pain. When I took it first day, I started feeling very dizzy and just not myself and I stopped immediately. When I mentioned these symptoms to the neurologist, he acted like it is not a big deal and said that I should continue taking it and even increase a dose. Soon after this doctor left working to the different location and I ended up with a new neurologist that is no better. BAH, the 2018 year was a big eye opener for me! I learned a lot about Big Pharma business and incompetent and ignorant doctors. I have a better doctor now but still I don’t trust any doctors like I did before and doing my own research. After taking metronidazole and becoming damaged, I refuse to rely on pharmaceuticals, especially antibiotics. BAH, you are very smart in doing a thorough research on any drug that you may potentially take. BAH, for how many days did you take metronidazole and Cipro? I know you said that you fully recovered from metronidazole but what symptoms do you have from Cipro? Thank you!!!

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1385

Re: Galina (# 1384) Expand Referenced Message

I took the full dose for the Metronidazole , which I think was about 2 weeks.. with the cipro I think it was about 10 pills. didn't kill the bacteria either!!!

I'm not at all sure that I totally recovered from the metronidazole, but I know that I felt like I had for a while. then this. I still don't know. I do know that it snowed here last night and this a.m. I moved a bit of snow on the deck...and then went to a birthday party for a friend who is 100 today....and I'm so exhausted it hurts to sit in my chair but I don't think I have the energy to climb the stairs to bed... guess I'd better.

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1386

Re: BAH (# 1385) Expand Referenced Message

Hello BAH, Wow, your friend turned 100 years old! It is awesome! I hope we all can make it to 100 healthy and well.

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1387

Re: BAH (# 1383) Expand Referenced Message

It's been awfully quiet here for about a month, did everyone get well and go dancing in the streets? I'm in the middle of a series of tests with the second neurologist although I don't expect much. Will update after the next appt. on about March 15th.

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1388

Re: BAH (# 1387) Expand Referenced Message

Hello BAH, I am not well enough to dance yet but I am slowly healing. My biggest problem is neuropathy in my feet and legs. As time goes by my feet are getting better but very very slowly. The pain and burning sensations in the calves are still there but the intensity is getting less and less. So I hope that time will heal me. BAH, how was your nerve conduction test go? I had one in summer after 4 months I took metronidazole and it was normal. So my neurologist said that I have a small fiber neuropathy and it should get better overtime. I am going to see her next months for my follow up and request to send me a copy of my health record to see what she wrote down. How is your health? Is your symptoms from metronidazole and Cipro getting better?

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1389

Re: BAH (# 1387) Expand Referenced Message

Lol... not "Dancing", just very, very ill. My current doctors have all privately expressed their dismay as to why I was given Flagyl when there was clear evidence not to do so. It most certainly exacerbated a pre-existing condition to the point of almost complete disability and severe discomforting pain. I went from being completely active with no symptoms to abrupt disability in less than 48 hours after being given this satanic antibiotic. What it was so bad it can be seen on MRI.

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1390

Re: Dennis (# 1389) Expand Referenced Message

Hello Dennis, I was so hoping that you are slowly getting better as time goes by and it is so sad that your symptoms are not improving. I am also have a lot of pain in my legs and feet but it is very slowly getting better. The progress is very very slow. My family lives overseas and they ask me often if I am getting any better and every time I tell them that they should not expect that my symptoms go away all of the sudden and I get healthy overnight. I told them that it is a long road and I don’t know what is going to happen over time, I can just hope for gradual improvement. Dennis, you said that your damage can be seen on an MRI. Did the doctors see the damage right after you took metronidazole/FLAGYL or many months after? I was just wondering if the damage in the brain heals overtime. I had an MRI of the brain 1 month after I took the medication and it did not show anything, but my neurological symptoms were getting worse overtime. Some symptoms went away and the new appeared over the several months after I finished the medication. Nobody could not explain why I was getting a new symptoms when I was no longer taking any medication. My neurologist blamed everything on some kind of mysterious virus which is ridiculous. Dennis, do you have any new symptoms appeared over the last several months or you have only the original symptoms while you were on FLAGYL? Sorry for asking you so many questions.

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1391

Re: Galina (# 1388) Expand Referenced Message

The EMG test basically showed that I have some nerve damage in my legs from a spinal injury at some point... something about L4 and L5. I've not seen the neurologist yet to discuss. That will happen on Mar 15th.. But I did have muscle spasms for about a week or more after the test!! especially concerning as they were in my neck area, which I've never had issues with before.

Had some tests done Feb 4th, ENT office, will see the ENG on Mar 5th to go supposedly do more tests and get results from this first batch... to what avail I know not. Then all this info is to be gone over on Mar 15th. When I go for the tests on Mar 5th I'll take the MRI on my brain that was done in March 2018...for whatever that is worth. My GP didn't seem to be at all concerned about anything on the test...so. meanwhile, back on the farm, I am having other issues.. osteoarthritis in knees and hips, etc.. one knee started acting up about Jan 15th and on the 20th I was climbing the stairs when the knee that was paining me gave a big ouch and I didn't lift the foot high enough, caught my toe on the top stair and since I was carrying stuff in both hands, fell forward on my "good" knee and then hit my head on the floor! Off to ER... fortunately no concussion and right knee just bruised. Had to set appt with ortho surgeon to get knee injected. Helped but got some CBD oil (without THC) and used it to reduce the pain greatly. Going to look at stem cell therapy on the knees once I get somewhere on this other issue.

So my symptoms are still balance and total exhaustion if I try to do anything that requires moving my body in space. I still can't walk more than about 100 ft without feeling like I'm going to faint and I huff and puff as if I'm not getting enough oxygen...but the tests show that my oxygen levels and heart rate are fine after walking around a bit in the doctors office.

I don't know if I told you all that the new neurologist told me that I should just slug on through the exhaustion and I'd get a second wind. Said I needed 1 hr of physical activity a day. So I set the timer on my phone and went about trying to get that much activity in a day, breaking it up into small segments. Next day I was totally exhausted and barely functional. Rested a day and tried again. My "activity" consisted of standing in the yard holding the garden hose and watering plants on a warm day in January. 48 min in the a.m., and then went to teach my watercolor painting class and came home and watered the plants in the back yard. worked out to be 77 min altogether over the day. Next day had the same reaction. Makes no sense to me.

So, I do what I can, when I can and believe that I'm destined to have at least another year of this before my nerves heal....or the rest of my life. Not sure which.

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1392

Hi Galina (# 1390) --

Hi Galina, I will answer your questions in upper case. See below.

Dennis, did the doctors see the damage right after you took metronidazole/FLAGYL or many months after? (THREE WEEKS AFTER)

I was just wondering if the damage in the brain heals overtime. (YES & NO... IF YOU HAD PREVIOUS BRAIN DAMAGE IT PERMANENTLY WORSENS IT. IF YOU HAD NO PREVIOUS DAMAGE, IT COULD HEAL, SOME LITERATURE CLAIMS IT CAN ALSO CAUSE BRAIN LESIONS AND ENCEPHALOPATHY TO DEVELOP EVEN WITH LOW OR SHORT TERM USE. SINCE FLAGYL EASILY CROSSES THE BLOOD/BRAIN BARRIER, IT CAN PHYSICALLY HARM BRAIN TISSUE IN SOME PEOPLE. IF IT DOES, IT COULD CAUSE PERMANENT BRAIN DAMAGE RESULTING IN SEVERE SYMPTOMS DEPENDING WHERE THE DAMAGE IN THE BRAIN HAPPENED.)

I had an MRI of the brain 1 month after I took the medication and it did not show anything, but my neurological symptoms were getting worse overtime. Some symptoms went away and the new appeared over the several months after I finished the medication. Nobody could not explain why I was getting a new symptoms when I was no longer taking any medication. My neurologist blamed everything on some kind of mysterious virus which is ridiculous. (AGREED, COMPLETE NONSENSE)

Dennis, do you have any new symptoms appeared over the last several months or you have only the original symptoms while you were on FLAGYL? (YES, MY SYMPTOMS STARTED ALMOST IMMEDIATELY AFTER BEGAN FLAGYL AND THEY HAVE CONTINUOUSLY EVOLVED AND CHANGE EVER SINCE. SOME DAYS I FEEL COMPLETELY UNDER ATTACK FROM WITHIN. THEY'RE NOW CLAIMING THE FLAGYL TRIGGERED A SEVERE AUTOIMMUNE DISORDER CALLED CNSV-SI or CENTRAL NERVOUS SYSTEM VASCULITIS with SYSTEMIC INVOLVEMENT. VERY RARE AND DISABLING. IT HAS A HIGH MORTALITY RATE) Sorry for asking you so many questions. (NO PROBLEM) : )

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1393

Dennis (# 1391) --

Hello Dennis, Thank you for your reply! During the course of my symptoms I was also very concerned whether I developed an autoimmune disorder triggered by metronidazole. I went to my doctor and she ordered several tests such as ESR, C- reactive protein, and ANA comprehensive tests. All of them came back negative and she said that I don’t have an autoimmune disorder. Thank to God! I also was thinking about Vasculitis disorder and even chicken pox since I have a lot of nerve pain and skin burning but at my clinic the new doctor refused to check me for the chicken pox. Dennis, did the doctors diagnosed you with Vasculitis by blood work or it happened by CT scan or MRI? Dennis, I am so sorry to hear that FLAGYL caused the onset of Vasculitis. This is the least you need in your life on top of dealing with FLAGYL damage. I hate so much this evil, life altering drug and hoping that one day it will be banned in The United States. I am going to see my neurologist next month and ask her if she may order some blood work to check do chicken pox but I don’t think she will. She is very cold and superficial women.

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1394

Re: Galina (# 1388) Expand Referenced Message

I don't know if my symptoms are from one or both of those meds or something else entirely and probably little chance of ever figuring it out I think. Just slugging through at the moment, waiting for another appt with neurologist...and if he comes up with nothing besides the calcium channel binding antibodies that I tested positive for then I don't know what my next step will be. I'm taking a recently retired nurse friend with me to the appointment.

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1395

Re: BAH (# 1394) Expand Referenced Message

Hello BAH, It is good that you are taking to your appt a friend who was a nurse. May be that will help you during your appt with the neurologist. BAH, I also had muscle twitching and pain for a couple of weeks after my EMG test. The test itself was so painful as well. I will never take it again. I will see my neurologist next month also for the follow up and ask her to order some blood work but I am not sure if she will order them. BAH, I think that your balance and exhaustion problems may be caused by Cipro. Betty who was posting here a few months ago also took Cipro after metronidazole and had the same problems with balance and exhaustion. She posted that her neurologist wanted her to exercise and push it through the fatigue but it did not help her at all. I think it just better for us to do the activities at our own pace without being pushed or rushed. I really hope that time will heal us!!!’ Hang in there!!!!

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1396

Re: Galina (# 1395) Expand Referenced Message

Hi Galina, It is very well documented that symptoms of Metronidazole toxicity include lightheadedness, fog brained, extreme balance disorder, ataxia, dizziness, ear pain, hearing loss, severe tinnitus, chronic migraine, vision loss or disruption, pressure behind eyes, intestinal pain, etc etc. The incidence of harm cannot be accurately tabulated because less than 2% of all adverse events are ever reported to the FDA. This antibiotic is extremely toxic to individuals with pre-existing conditions involving the CNS, especially the brain and spinal cord. However, the latest data from the manufacturer (Pfizer) indicates the drug can disrupt and attack the Vestibular Network which is often compounded by brain swelling (encephalopathy) and lesion formation. These conditions will produce the adverse medical events listed above. Sadly this damage can alter the inner ear and can be permanent. Google Veterinarian Metronidazole Toxicity. Watch the videos and read some of the pet owner testimonials. They walk and probably feel just like us, yet the doctors are all in denial when it happens. Some of those poor little guys never made it back either and their owners had to put them down.

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1397

Re: Galina (# 1395) Expand Referenced Message

Well, I'm eager to get this appt over with to see if we can advance any at all in finding a solution or if I simply have to figure out how to deal with it. And NO, that doesn't including going for counseling to help me cope...as my GP suggested. If coping means accepting that you are not going to get better that doesn't need a therapist. If coping means you just have to figure out how to get on with living however you can that doesn't need a therapist either. It needs some life planning which I can do on my own. OBTW, I am BAH. For some reason I signed on and this stupid thing asked me to sign up again.

Meanwhile I've got issues with my knees, osteoarthritis, osteoporosis so those are issues I have to deal with also.

Thanks for all the support.

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1398

Re: Dennis (# 1396) Expand Referenced Message

Hello Dennis, Yes, this drug is absolute poison!!! I also aware that veterinarians widely prescribe this drug to dogs and cats. I have a Border Collie/ Lab mix who is constantly sticking her nose into some bad stuff on a trail. Luckily, she hasn’t picked up anything bad that needs to be treated with antibiotics. I try to keep a close eye on her but she is a dog and dogs are so sneaky. I heard that metronidazole is given to dogs to treat Giardia and other bacterial infection so I will ensure that my dog will never ever be treated with this horrid drug. The sad part is that people are not warned about metronidazole toxicity. No single doctor warns about the side effects of this drug. They just quietly prescribe it and as a result we all happened to learn from the personal experience. From this point, I can only protect my family members and friends but there are many people out there who are unaware about the danger of this drug.

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1399

Re: BAH (# 1397) Expand Referenced Message

Hello BAH, I hope that your upcoming appt with a new neurologist will be helpful. Dennis just posted helpful information about metronidazole damage to the vestibular system. Vestibular system is in charge of the equilibrium and the normal body movement. It could be that the metronidazole or Cipro caused some damage to your vestibular system causing balance issues. Maybe you can talk to your new neurologist about the connection between these antibiotics and the damage to the vestibular system. Maybe he or she can order some additional testing to check your inner ear for any damage. BAH, I also have issues with the pain in my ankle joints that started 2 months after I took metronidazole. In the beginning, it was very bad but gradually it lessened except in my left ankle. I let it be and hopefully it improves overtime.

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1400

Re: Galina (# 1399) Expand Referenced Message

The ENT is supposed to be checking for that. So when I get the final tests done and get her input we'll know whether or not they think there is a problem in that area.

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