Long Term Side Effects Of Harvoni (Page 4)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

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I think I finished the Harvoni 2 years ago. I came down with a terrible illness called: gastroparesis. Which means that my stomach always hurts/ I am always nauseous all the time and have no energy.. My food digestion should not be much under 100. When tested and my doc said 70% at the rate I was digesting my food didn't sound so bad to and my DOC said to me, no 70% after 4 hours is terrible. The big ? is: does Harvoni have anything to do with this. Btw, this is a permanent condition. There is no cure or real treatment. Is anone experiencing bad stomach problems after Harvoni?

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I have stomach problems too. I took epclusa, it has the same medicine as harvoni plus another one.

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I am. having terrible things Happen to my body 2 years post Harvoni. I think we may need to talk to someone about a mass lawsit. If the Harvoni caused this I might have just let it be and let whatever time I had left be better time. Now I have all this other stuff to deal with

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How can we find out if all these different symptoms can be tracked to Harvoni? The medical people won't help, Gilead won't help, but it might be very appealing to an attorney for a legal case. And hell yeah, we'd welcome some money. Maybe it could take me to a place where I could get the most possible help from the different doctors/specialists - maybe no one in Arkansas, where I live now.

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For anyone and everyone who is on/or done with Harvoni, there is a number just for us. It is called "Support Path", staffed only by nurses who have some knowledge we don't. Anyway, I think a lot of phone calls would be really looked into by Gilead. Here is Support Path's number: 1-855-769-7284. They are required to notify Gilead. They can't know if we don't tell them. And if you know how to start a new discussion, would you post this info just to start. I would do it myself but I don't know.

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Thank you for the detailed information. I appreciate it. My daughter is a Nutritionist, I will go over your regimen with her.

It is outrageous that WE HAVE to go outside the medical community for help. Even when we find information the medical community still goes back to the "the only side effects are"... apparently the medical community memorized a speech to give us all. So sad too bad.

He had little quality of life before, a little is better than non at all.

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I am with you! The doctors lied. I guess it's cheaper to go on the treatment that it would be to treat the patient for the disease. (that made sense in my head...)

I have even sent the doctor's the Harvoni website info, this site, the site that had the legal suit to release the side effects.

This is very wrong. Especially NOW with all the TV commercials lying, skipping down the beach, after Harvoni life is grand (per the commercial) well, life SUCKS due to harvoni!!!

Unless your at a stage that is life threatening, ask if it is worth it from what you're seeing on this site!

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I absolutely agree. I sent Gilead an email and told them they ruined my life! Got no response at all. I didn't really expect to.

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I hate to tell you this, but you asked so... no, I am not better, I am worse. Still don't know if it has anything to do with the Harvoni, Maye just bad luck, but I remember not feeling anywhere this bad before the treatment. But I do want to be fair and tell you all that my grandson (grown but mentally ill) disappeared almost 4 years ago. Between his going missing and being so sick myself, I am lost.

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Audrey, you're not alone. Hundreds and hundreds are sick from Harvoni.

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I will call Gilead Support Path. I called them three months after Harvoni and they instructed me to tell my gastroenterologist and so I did and he told me to take vitamins and a year after that he told me to find a doctor who could help me with my pain and fatigue. He was very sweet. I never called Gilead again, not realizing I should. I then found a wonderful doctor who acknowledged my pain and fatigue and diagnosed fibromyalgia and CFS and greatly helped me win SSI benefits, which I desperately needed because I remained unable to work. My lawyer and SS judge can also be credited. I wonder if Harvoni reactivated a virus or viruses in us, hence all of our symptoms. Some here have posted they now have gastroparesis and I've read that can be caused by a virus. It's all very curious and I would like to be part of a study and experimental treatments to try to get us better.

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I had my treatment summer 2016. Since then I have experience changes in my life, anxiety, depression, nervousness, very forgetful and my eyes. I never talked to my doctor because I thought it was my personal life situation that make me that way or age that cause my eye to change quickly. Sometime keep telling me that I am change too quickly. Where do I start to get help? I am so scared now.

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Nasy: Remain calm. Find a good physician. Perhaps at osteopath. Write down all of your symptoms so that you don't forget to tell your doctor everything.

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My advice to everybody: doesn't matter how good your doctor is, always double check medications prescribed by your doctor. All medications have side effects, and it's very important to know what damage they can do to your health. Unfortunately, many doctors do not check the side effects of drugs, they just do not pay attention to it. Do this for yourself! Another very important point - if you take any medications and the doctor prescribes new drugs, always check them for interaction because not all drugs interact with each other. Also, immediately pay attention to your immune system as it is very weakened and then struggles badly with different infections for the worse. Ask your doctor what evaluations are needed to know what condition your immune system is in. With my respect.

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Those people don't give a crap! Called them every week. And those so called nurses, all they ever told me was, well it's not suppose to do that? No kidding!

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I am with u on all of your stuff and health issues! I glad that someone found a caring doc! They r very hard to come bye! I have all the same stuff wrong with my i only took 57 days worth because i did this bye myself! I went from a 100,000. Dollar job to not being able to do a dam thing! Now i am displaced and i just live it to god! I really don't know what else to do other than take pain meds ! My life has changed! Medical marijuana is legal in the state that i was in and it help! Every one of us are different! I am hpc free even after 6 months! So i hope that this post helps someone! May God bless us all ! James

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Thanks for sharing i am so tired of posting with no help. May the big pharmacy company get bad karma! The rich gets richer! At no cost! Thanks

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eligable for Harvoni.I two was on Harvoni after a year of interfuron and 11 months of interfuron with ribovirin. I was never ask if I had previously had hep B which I did. (Apparently people who have have hep B are not cantidates for Havoni. . Know however I suffer sever anxiety, I cry in my sleep. Last month I found out that I am in stage 3 heart failure, I'm having severe shoulder pain. Six months after Harvoni I Chad my first heart attack. My arteries where not the problem. That was my first cardiac episode, however now 18 months later I have been told I am in stage 3 heart failure. How could this happen so fast? I think was was better off with the Hep c. Have now appointment with two heart surgeons to see if there is hope.

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I lost my job too, was unable to do it anymore. Epclusa messed up my mind.

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So you know, Gialda Sciences stocks DID and HAS taken a big plunge... I doubt it helps, and I am sure they will recover. MY husband, doubtful.

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