Long Term Side Effects Of Harvoni (Page 13)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

REPLY

REPORT

Re: Blondie (# 240)

Good luck. We are all in the same boat. My nervous system is just as bad as it was when I took it. Not to mention the burning all through my insides. I finished Jan. 2017. Lost everything because of this medication!

REPLY

Was this helpful? 0

Re: Cieira (# 239)

Well the lawyers just told me they wouldn't help epclusa patients, only harvoni. How stupid can people be. The same medicine is in both of those poisons! I'm beginning to think all these rooms are set up by the drug companies to monitor the damage their poison does to people. Now you can throw me out of the room. And as for your remark Jack. Have a nice recovery. I'm still just like I was January 2016. I don't think that's called recovery! You have a nice life yourself!

REPLY

Was this helpful? 1

Re: Rian (# 142)

Hey, I just caught your post about Harvoni and depression. I am post trmnt since July 15. I have suffered severe depression and it really didn't dawn on me from what. I cried every time I turned around. I really don't feel like I have a lot of post side effects but prob a few are hanging on. This depression is horrible. My PA has finally got me on Wellbutrin with Prozac and I'm not nearly as weepy as before. I do have a Hx of depression but nothing this bad. I'm blaming Harvoni! I wish I had known the side effects of and post of this drug!!! All they wanna hit on is h/a, nausea, and sm little uncomfortable symptoms. These little things turn into BIG deals when a person goes through these body changes! Thank you for the light on this depression. I at least know now where the worst came from. I wish you well.

REPLY

Was this helpful? 0

The law firm I contacted won’t be representing me based on a positive for Sjogren’s Syndrome (despite my doctor stating in my medical records that one point above the normal range is not a positive result) and a high viral load of the Epstein Barr Virus (isn’t it highly possible that Harvoni reactivated the virus, as it is known to reactivate another virus, Hepatitis B). The symptoms I’m having now started when I was taking Harvoni and it is not clear to me or my doctor’s what is causing these symptoms and so I have been given the diagnosis of Fibromyalgia, osteoarthritis and CFS.

REPLY

Was this helpful? 0

Me too. And I am over 3 years post Harvoni. My stomach is trashed, my memory is also not what it was. I also was on the old peg/riba and I too got so sick they took me off. I had pain in places where I didn't know you could have pain. I feel worse now than when I just had hep C. I did clear the virus (after 26 weeks) but it seems there is quite a cost.

REPLY

Was this helpful? 0

Re: Lorie (# 232)

Me too. Post Harvoni I have had nothing but stomach trouble. It has taken so much out of my life. If anone starts a class action suit, please let me know. I am IN.

REPLY

Was this helpful? 0

Re: Audrey (# 245)

Yep I am over three years post and nothing is the same anymore. Bad stomach daily, pain beyond pain..... Fleming Law is taking Harvoni cases.

REPLY

Was this helpful? 0

Enoughalready (# 246) --

same here. pain beyond pain and stomach issues, skin cancer

REPLY

Was this helpful? 0

Hi I had a brother die of cancer of the liver after he took Harvoni. They did not tell him cancer was a risk. Also he was told he had up to 6 months to live. He died 12 days after he was informed of the cancer. I have not been able to get anyone to help me with why they have him the medicine knowing he already had liver problems and people were dying from taking the medicine. He said he would of never took it had he know it had a risk of causing cancer. I really think my brother was used as a gineau pig. I fell like the doctors should of known that he had days left to live. I feel like my brother and family should something for the loss of his life. He would of lived longer if he did not take that medicine. I just wanted to share this with you so you know your not the only one who had awful results from taking Harvoni.

REPLY

Was this helpful? 0

I read your post and as I was reading it, I thought it was a prior post of mine! I went threw everything you have gone threw and more now! Looks like we were on the treatment at the same time! I thought I was losing my mind! People have also died, ended up in mental hospitals, ect! My long term effects are neuropathy in both feet, vision loss, severe nerve pain in my thigh, migraines, insomnia, and much more! I surely hope you are better! I would never had gone on this had I known! If you ever want to reach out you are not alone! {edited for privacy}

REPLY

Was this helpful? 1

Re: zina (# 17)

Thanks a Gazillion Stars Zina I will look into all of what you suggested! With Gratitude Thankful for your input! 8-D

REPLY

Was this helpful? 1

I'm in Australia ,I finished Epclusa treatment same as Harvoni 2yrs ago ,I feel as if IV been thrown in too hard basket , absolutely no support ,since doing treatment I have deteriated in many ways my life is now not worth living I felt better when I had hcv ,now I have no energy breathing issues COPD nerve damage nausea numb feet sores infections ,to name a few things,if had my way would not touch there super meds ,it's just all about $$$ Gilliard don't care not help ,i know of 6 people who have died since starting there wonder DAAs miracle crap.

REPLY

Was this helpful? 1

You're not alone. I finished 8 week treatment, Harvoni, early 2019. I have constant ringing in my ears, headaches and vertigo, balance issues. I can no longer exercise,walk long distances, etc. Taking care of myself, daily tasks are difficult. I can't get any answers from anyone in the medical field. Very frustrating and scary.

REPLY

Was this helpful? 1

I'm 68 yr old finished epclusa about 3 yrs ago ,IV had nothing but problems since finishing treatment epclusa harvoni very similar ,numb feet toes are a mess swollen stomach many infections every week something new now asthma breathing problems which could be heart related ,no support my 30 yr old dr has no idea about it ,wish never touched it hep C drs are liars.

REPLY

Was this helpful? 1

I finished treatment in April. I am having a difficult time. A lot of the same symptoms as others but I get so angry at nothing. I cannot control it until it’s to late. It’s just not who I am. My wife is at her wits end.

REPLY

Was this helpful? 1

Sorry to hear about your experience,I'm going through same hear in Australia swollen numb feet nausea breathing problems heart issues swollen stomach ,I feel I was better pre treatment with epclusa( similar Harvoni) nil support ,drs know very little about DAAs,seems new problem every week,all the liver so called experts can do is blame it on how you enjoyed your life.wish never touched it.take care.

REPLY

Was this helpful? 1

Re: Kathy (# 250)

Thanks Kathy please take care, you are not alone.

REPLY

Was this helpful? 1

Re: Skpp930 (# 242)

I agree with everything you said ,it's so frustrating I try to explain to my dr about what I'm going through ,but all he says is "IV read there's no serious side effects with treatment ,all the experts like Gilliard pharm say it's a wonderful cure,so he doesn't really believe what IV told him, omg ,wish I'd never touched it I felt ok pre treatment.what part of the world are you from??

REPLY

Was this helpful? 1

Hello i took harvoni in early 2015 and over the years I've noticed my muscles seem like they are diminishing despite my constant workout sessions and also my hair is falling out like crazy! I have half of the hair that I used to have. I just turned 40 years old in January something's wrong I know it has to be that I've I didn't even have any liver damage from the hepatitis c I took care of myself all the years that I knew that I had it I drank green smoothies I ate a vegetarian diet I exercise and I wish to God that I never would have took harvoni

REPLY

Was this helpful? 0

I took harvoni in 2019. I had hep c for 33 years. After the Harvoni I thought I had a little more energy....but about 9 months later i was dragging around just to do the basics. This just got worse and worse. Every time i looked up post harvoni messages they were testimonials of how great everyone felt. I knew that was big pharma. But it wasn't until I stumbled onto this site that I got the truth. I feel TERRIBLE! I live on sweets and coffee just to have enough energy to clean my room!

I'm just constantly exhausted. I wear a back brace just to stand up straight. My joints hurt....which they never did before...i developed trigger finger in several of my fingers that is not going away. I got a large bone sticking out of my heel that has something to do with my heel. Worst of all my memory went out the door. I cant remember at night if i took my morning meds. I can hardly remember what day it is. I misplace things 3 minutes after i use them. I truly thought it was hepatic encephalopathy...

But I'm suppose to be cured of hep c right? I cant spell or do math anymore...and whatever is going on its getting worse. I've been making preparations for possibly being so weak and exhausted in the future that i'm not getting put of bed...i bought wigs and had my make up tattooed on. To top this all off ... I have had bipolar for 40 years. As soon as any medical doctor sees that than instantly all my problems are mental and not physical. I know the difference between mental depression and physical weak.. exhausted.. confusion!

I'm at home constantly ....trips to the market have to be planned ahead. If i didn't ask God to help me with every little thing id most likely die under a bridge.

REPLY

Was this helpful? 1

What are the long term effects of the brain and mood changes in people taking 30mg of oxycodone for years? Do they act w...

6 REPLIES

My wife has been using Nexito Plus for the past 4 years. She is doing good, but she feels sleepy in the morning time and...

3 REPLIES

my boyfriends complaining after taking large dosages prescribed by doctors for sleep that he feels loss of sight, blurre...

3 REPLIES

My doctor just prescribed me Tramadol for a chronic back pain issue. If I take this med every night, will there be any l...

2 REPLIES

I have been taking clopidogrel 75mg + atorvastatin 10mg + metoprolol 10mg + telmisartan 40mg for the past 3 years since ...

1 REPLY

I am 41 yrs male.For the past one month occasionally one or two of my fingers move sideways without my control and then ...

1 REPLY

My father has been prescribed ecosprin 75 along with Dytor plus 10mg, prolomat XL and cardace 2.5 by a cardiologist. He ...

1 REPLY

I was just prescribed this medication by my doctor, because of irregular periods. For the past 2 years I have had my per...

1 REPLY

side effects of long term use of paracetamol ## I have elergy since 8 Years. First Sneezing start after that,Water comes...

1 REPLY

For the last 2 1/2 years, I've been receiving venofer infusions (series of 10 every other day) approximately every 3...

31 REPLIES