Long Term Side Effects Of Harvoni (Page 12) (Top voted first)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

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Re: Audrey (# 188)

You’re right. I’m looking into it now. Thanks for good advice.

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Sorry, think I didn't understand y'all's conversation.

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I’ve been so devoted to maintaining my health but the past week has been so painful that I’m not able to stick to my healing routine. I wonder if I’m slowly dying. I keep imagining that I will reach a healthy existence, but on days like these, I get a little discouraged.

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Re: Elizabeth (# 195)

I know how you feel along with many others. After three years, I feel like Harvoni has poisoned my body and it is slowly killing me.

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Re: Audrey (# 186)

I now consider all Drs quacks. I was stage 3 pre-Harvoni. Now I'm stage 4 after POST Harvoni. I've been referred to KU transplant center with a MELD (model of end time liver disease). He prescribed Lactulose to have 2-3 bowel movements a day. DOESN'T WORK. My digestive system sucks. I've taken better care of myself since '01 when I was diagnosed than ever. We all have been duped. I would suggest a NUTRI-BULLET for BM's. I do about 2-3 cups of water and the same with blueberries, spinach and kale. Play with it to get a malt like consistency. It helped with BM's and any GREEN veggies help with clearing toxins from our livers. I feel for ya cuz we're not the only ones whove been lab rats for big pharma. Drs won't tell ya the truth cuz they're all in bed with big PHARMA. And I agree with you, we are expendable, Harvoni's killing us. God bless ya.

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I am right there with all the symptoms. I have found that organic flax seed oil taken 1-2 tablespoons a day is helping my gut and bowel movements better than anything. It has to be bought refrigerated and kept cold. I order from Vitacost and they ship it with a cold pack. It is working wonders on my gut issues. I still have no appetite and I have lost 45 pounds in the 2 years since treatment. Severe depression, fatigue, lower back pain so bad I am getting a steroid injection in my spine, they help enough that the pain meds actually take the edge off now. I feel like i am slowly dying a long slow miserable death and I am only 63 soon to have a BD and feel like i am in my 80's.

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Everyone who has the harvoni side effects of all right on track you're not going crazy I have identical symptoms the pharmaceutical company is not taking responsibility my doctor is not listening they want to say it's something else when it's not it's exactly side effects from the harvoni

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Are there any class action lawsuits against Harvoni for long term side effects? I have almost died and they had to take 10 feet of my small intestine. They had previously taken a quarter of my colon. All this post Harvoni. 22 staples in my stomach and because I was once on Suboxone, I cant get pain meds. Harvoni and Suboxone, pure poison.

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I use to have tons of energy and it is gone, gone, gone. Yeah, I have a pretty good day a couple of times a week, but that is too few. I do feel like the Harvoni is killing me slowly, but maybe not because my severe stomach problems 2 weeks ago came on with no warning. So two operations removing parts of my colon and now my small intestine. I am just waiting for it to happen again and upbeat it doesn't and he and to be positive, but it is hard because I am in pain. The silicone is awful too. The last two years have been help between those two big pharma medicine. I have never been in so much pain in my life as I was 2weeks ago and I think I am going to get a lawyer. I was kept in the Dr for over 4 hours after doctor saw me, but didn't examine me at all and nothing happened. I have a photo of my blood and urine sitting in my room for over 4 hours after the ambulance dropped me off. I have also found out my sub doctor talked about my addiction problems to the doctors who saw me and now I can't get 3 days of pain meds because my sub Dr is furious I weaned myself off suboxone. I just want my old me back with all her energy and happiness. I pray the long term effects subside one day.

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I use to have tons of energy and it is gone, gone, gone. Yeah, I have a pretty good day a couple of times a week, but that is too few. I do feel like the Harvoni is killing me slowly, but maybe not because my severe stomach problems 2 weeks ago came on with no warning. So two operations removing parts of my colon and now my small intestine. I am just waiting for it to happen again and I hope it doesn't and I try to be positive, but it is hard because I am in pain. The suboxone is awful too. The last two years have been hell between those two big pharma medicines. I have never been in so much pain in my life as I was 2weeks ago and I think I am going to get a lawyer. I was kept in the DR for over 4 hours after doctor saw me, but didn't examine me at all and nothing happened. I have a photo of my blood and urine sitting in my room for over 4 hours after the ambulance dropped me off. I have also found out my sub doctor talked about my addiction problems to the doctors who saw me and now I can't get 3 days of pain meds because my sub Dr is furious I weaned myself off suboxone. I just want my old me back with all her energy and happiness. I pray the long term effects subside one day.

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Re: Edid (# 203)

My stomach is bothering me quite a bit too. Painful where I think I might now have an ulcer or gastritis. Bloating etc. Fed up with living in fear of dying an early death from all of this crap.

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Re: Enoughalready (# 204)

Yes, that is how mine started. They found a bleeding ulcer a year ago along with this big polyp in colon. I felt terrible yesterday. That terrible pain that ended in surgery came on so suddenly it was weird and so scary. I hope it never happens again and I hope you never get it. It was like having a baby, but there were no breaks at all in the pain. I could barely walk. I just wonder how many pieces of my intestines have been put back together. I wasn't even believed that I was in severe pain until the CT scan 5 hours later. I remember grabbing my nice surgeon and begging him for something to put me out. I don't think i let go of him until the anesthesiologist arrived. It is too bad he is on vacation because his dad is mean and the son is so nice. Yes, my stomach has been burning for almost 2 years. They were inj. Pepcid into my stomach in the hospital. Maybe you should get some. Also, maybe you should get a colonoscopy and upper endoscopy to make sure you have no polyps. A CT scan also, but you would have to find a gastroenterologist who knows how bad Harvoni is. Good luck with that as that is their bread and butter now. I really hope you are okay. I have to show move this month too! lol. I sold my house and rented in this horrible complex. I didn't know. I never really unpacked Thank God. I do thank God that I am alive. I am surprised really because they did nothing but tell me to be quiet in the ER for 5 hours. My health history has no record of me going to hospitals and urgent cares looking for opiates. They just wanted to believe I only wanted drugs. I would have left, but I couldn't physically and I knew they were going to end up doing surgery. I threw up a few times and the nurses just threw a towel at me! lol. I got most in the bag. It was awful until I got the CT scan. Omg, we need a class action against Gilead. I am surprised there isn't one yet. Of course, my colorectal surgeon won't be reporting anything about the Harvoni. I hope you feel okay today. I hope we all start feeling better.

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blondie (# 207) --

What does the doctor say about your enzymes elevated at this point in treatment? I hate to be the bearer of bad news but if you fell like crap on Harvoni, it doesn't go away afterwards! I am 3 1/2 years post treatment and I am a mess still. Pain is my companion and I feel like I am surviving not living anymore.

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Re: Cieira (# 207)

Thank you Cieira. I feel awful and I have to move before the end of the month. Everything has gone wrong since I took that poison and I was in the hospital for A week and I am still in pain and absolutely no relief from my doctors. I hope that nobody else has had their bowels removed after taking this stuff. It is not so much the pain that bothers me as my depression over how I am being treated. I can't believe there isn't a class action yet. I did contact the lawyers below today. Maybe some day we will get some justice. I pray for all of us.

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Re: Edie (# 216)

The weird thing is the email I sent that attorney is not in my sent folder, I may have to call them to make sure they got it? It is high time someone listen to us and our issues after harvoni! Now I wonder if any of our letters are being seen at all? Are they just going into a junk mail box? I even added the high alert and signed if read to the email? Or am I imagining things and it wasn't sent via my email but via their system? BRAIN FOG I can't remember, maybe I will let this brain fog have myself send another letter to that attorney group.

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Re: Audrey (# 29)

Yes I believe it from Harvoni as I have been diagnosed with gastrophoresis and have lost a lot of weight, malnourished and also have diabetes. I felt much better before Harvoni. I want to find a class action lawsuit to join as I would have not taken the treatment with this side effect.

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Re: Cieira (# 217)


Do you mind sharing the attorney link you mentioned? I believe all of us should get on board with a class action lawsuit. Honestly, they didn’t tell us how dangerous and detrimental this drug is for the body.

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Re: Dan (# 219)

Just go to the fleming-law site. You can do a live chat or write a letter. I did both. An attorney will be calling me on Monday, along with many other people I know in agony since treatment. Good luck. Maybe Gilead will own up to the deaths, side effects, and harm done post treatment....praying. We all need to write and call this company. The more people they hear from the better.

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Re: Enoughalready (# 212)

I guess nothing to worry about. Elevated does not mean high. I'm miserable at any level. I'm bound to try and stay positive that things have got to get better after I'm done . I guess I just have to wait and see . 18 pills to go. I still do not consider this a gift by any means. Thanks for the interest.

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Re: Dan (# 218)

dan, I have tried posting their website twice, I am wondering if it is not being accepted to post this information
See if you can find Flemming Law Firm in Texas?

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