Levothyroxine Numb Hands, Dizzy, Itching, Stomach Issues (Page 4) (Top voted first)

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I had a total throdectomy 2 years ago due to thyroid cancer. I have been on 150 - 200mg Levothyroxine daily. Side effects are - now and again my heart will beat once really hard, when i wake up my hands feel numb and fingers tingle, get dizzy/drunk feelings, dry itchy skin, dry sore eyes, stomach pains and constipation. Sometimes i feel like i am turning into a hypercondreact. Does anyone else feel like this? I am due another blood test next month.

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59

I've taken levoxyl or synthroid to balance out my temperamental hypothyroidism. I'm at 138mcg currently. My weight, dosage, intrusive, damaging symptoms ... are always an issue for me. My doc doesn't seem too concerned! However I fell different about gaining 15lbs in a week , then just 10lbs more several day's later, my face washing off, seriously raw areas that get larger and never heals. Almost looks like I'd taken a sander to it. It's making me crazier, especially as a someone suffering from body dystopia, a recovering anorexic/bulimic . The balding, peeling weak skin and nails & so much more aren't okay by any means. The side effects are endless. Leaving me unsure of what med is causing the issue . .. or if I'm hypochondriac. Please if there's anything else to combat hypothyroidism let me know? As well as a legit list of all side effects, as well as med combos that you can't mix with levoxyl & synthroid, please?

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60

Hi yes I have muscle an hip pain really bad an joint pain in my shoulder . but I suffered a stroke a 1 1/2 yr ago an not sure if its from that or this levothyroxin 50 mg I've been on since march . an answers I also just ran out of this med what will happen ?????

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61

Jason I know what you're going thru. Had T.C. and removed 14 years ago and over time my Levo went to 250mcg. I was always tired when under that. I didn't realize it was causing chest pain, panic/anxiety, trouble sleeping, night sweats, irritability, dry eyes, dry skin, etc. I just kept it to myself thinking it was in my head. Then I went to the E.R. with chest pain and a VERY elevated blood pressure. I was admitted and kept 2 days at which time a cardiologist came in and said my Levo was WAY TOO HIGH! He immediately dropped it to 200mcg. When I was released I found a Endocrinologist who was amazed I was still here! Too much can damage your organs and cause heart attacks! I was lucky! So he is weaning me down to 125mcg over 3 months. I noticed my moods are better but the first week I drop the dosage it's hell! Can't sleep no matter what is prescribed, mood swings are back, tired, brain fuzz, and hungry all the time! By the time things settle down it's time to drop it again! So Jason if you are having a problem or doubts get to an ENDOCRINOLOGIST! My Gen. Prac. did a great job but they can't be in complete knowledge of the thyroid and that little bugger controls a lot of things in the body! Best wishes from one who's been there! :)

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62

Hi I have been on levo for a couple months and I have recently been having pain in hip I thought it was just related to all the other leg knee and foot and ankle pain that I have anyways but normally my hip doesn't hurt so now I'm wondering. And also recently my hands have begun to tingle and feel cold and my feet 2. so I decided tonight to look up the tingling hands to see if that was a side effect and come to find out I'm not the only one experiencing this. I wonder if I should talk to my doctor about maybe lowering my dose? Thanks

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64

Sounds like you are being over medicated. I started on 150mcg, which, like you was too much - I had all of your symptoms. We then dropped to 125mcg which was too little, I was very sleepy. We went to 137 mcg, again too much and we finally settled on 130mcg which was perfect. That is called a binary search. I suggest you ask your doctor to try that. Don't stay hyper for very long, it's not good for your heart. You might want to try 137 next, then assess how you feel. It is a big nuisance for your doc, but once you have it right you will not be pestering him/her much more.

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65

I am absolutely horrified by the level of medical mismanagement that I read on this site over and over. These poor patients with very serious medical conditions are left hanging out to dry to fend for themselves. It happened to me but I am educated to PhD level so I was able to do my own research and had the confidence to walk out on MDs who were incompetent. I am now in a position to self regulate and I am fine. However, to begin with I was completely new to this field but as chance would have it I first had a superb GP and we hacked our way through things until I was fit and healthy. He retired, but I had enough knowledge to carry me through the next two incompetent MDs - and I am still fit in spite of their efforts. Good luck to all on this site, I cry inside for you.

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66

150 - 200 mcg is a colossal dose! You have probably become hyperthyridic (i.e. over active "thyroid" condition). Try dropping back to 150 mcg and see if you can get rid of the palpitations, that is the most dangerous condition. Actually 150mcg is still pretty high, but not knowing your weight I shouldn't guess at a solution.

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70

Oh strangely enough , tickly cough gone and tight throat !!!

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72

Dry eyes is a side effect of hypothyroidism. Dry everything really.

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73

Re: Bev (# 9) Expand Referenced Message

This sounds like your level is too high, I had this problem before my total thyroidectomy . I was hyperthyroid and had dry eyes and eye pain constantly .

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74

Re: Crystal (# 2) Expand Referenced Message

“All your other side effects are normal?” Seriously.

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75

Thank god I'm not the only one. I've had the same op, plus ro, iodine. I've been on levothyroxine 8 months and my body has aged like 100 years, thought I had MS. I was on 150mcg, then 125, now 150. I had a headache all day today and an aching throat, sore joints, hip ache, focus issues, no spark, and sleep a lot. No end to this s***?!

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54

I had a total thyroid removal in Sept of 2013. I too was on 125 then 100 then I went to a different Dr. and he put me on a compounded med 5 mcg of Liothyronine along with 88 mcg of Levothyroxine. I feel great. Some side effects like tingling fingers on both hands, but my energy levels are over the top.. I still have a hard time loosing weight though.. If that is the worst then I am going to take that as a possitive, remembering how I felt before they removed my thyroid I feel pretty close to normal now.. Maybe ask your dr. to try a compound of (Active T-3) with your Levothyroxine..

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3

My husband has the same symptoms as you describe. they began within hours of starting the drug. Hope all is well with you now - but how did it resolve for you? We'd love to hear your reply asap - we are supposed to leave for our 20th anniversary trip in a few days and he can't go feeling as bad as he does.

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20

I just started taking Levothyroxine about a month ago, When i first started taking it I couldn't concentrate on anything, I called my Doc and she told me to cut it in half and try that.. I felt better but now im starting to feel really jittery. I have had a headache for the last week and when its time for bed im soo tired I would think the second my head hit the pillow I would pass out but right when I start to fall asleep I shoot out of bed and my left hand is numb and my heart is trying to beat out of my chest. while having trouble breathing im only 24 and sooo tired of this!

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