Levothyroxine Is Satan (Page 2)

Updated

I don't feel so confused anymore. Now I know all of you are going through the same thing. My doctor put me on 50mcg of Levothyroxine about a month ago and I have gain 8 pounds! I get short-breathed and winded REALLY easily when working out. I used to go to the gym for 2 hours, now I can't make it longer than 30 minutes. I wake up ALL the time with tingly fingers because my hands have fallen asleep. I have headaches, I feel 100 times more lazy than before...and it's supposed to help your energy, not drain it. I e-mailed my doctor today, this is not making me happy. Not to mention I now have an acne type rash that burns like hell on my chin and I've always had clear skin. If this drug is supposed to make you feel better it sure as sh*t isn't working for me. I feel like a fat lazy a$$ with an itchhy burning rash on my face... stay away from this drug, that's my suggestion. :(

223 Replies (12 Pages)

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21

I've been on Levothyroxine about two years. I actually ended up in the ER with a severe Hashimoto's attack. So the doc put me on this. We tried Armor at first, and it worked wonders on me, but then they reformulated and it made me very sick. So I got the Levothyroxine. Seemed to be working okay for almost two years, but haven't been able to lose a pound on it. And then about two months ago, I started to get the severe leg and back cramping. And I mean SEVERE. Tried upping the dose, the cramps are not going away. The drug is literally crippling me. So, it looks like I might have to go off this, too. I know it's the drug because I had the cramping when they reformulated Armor. It has to be some filler they put in there. I'm also dizzy now alot, have had heart problems and brittle bones, which are all real side effects of Levothyroxine, and it even says it causes cramps. To me, these are not acceptable side effects. And nothing is worth not being able to walk. I'm not sure how I'm going to treat the Hashi's without the hormone, though, but I can't live with these side effects.

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22

I have been on 50mc of this medication for 8 months, I cannot describe how sick I am, you read on line about this thyroid problem and every site is selling something they swear will make you better, its all b.s. I have woke up for the last 3 days,crying...I am in such a haze/fog, I stumble because I am so weak, what does my worthless Dr. say, come back in...lets do another test, and be sure to pay as you leave. She is making money off of me and in 9 months I have not noticed one single bit of difference other than I feel WORSE. I have put on 15 lb.s too, which is making me have problems with my feet, I can't walk I hurt....Honestly if this does not get better I hope I die within a years time, I can't live like this.

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23

I have been on low dose of Levo for over 3 years. I have weaned myself off a few times because of severe knee pains and feeling bad in general. Dr. would scare me back on. I wish I had never started it. this time I quit and have been off for 2 months, feeling better but also improved my nutrition vis Jon Gabriele method. It is free. Also now taking an antioxidant. In a few more months I will attend a health fair to get blood work and get it sent to me. Seeing this made me more confident. His opinion on TSH levels was an eyeopener.
renegadehealth.com/blog/2011/02/18/how-to-do-thyroid-stimulation-exercises/

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24

I have found exactly the same problems with Levothyroxine. I decided not to take it and just to reduce my Cabimazole as I was overactive but am now underactive due to Cabimazole. However even tho I am underactive now and not taking any thyroxine I feel much better and my weight gain has remained stable.

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25

I am a 61 old year male, I started Levo in April on 50mcg. More or less straight away I came out in spots like mosquito bites on my forearm and the back of my neck where the hairs are. I stopped taking them and started again a month later on 25mcg and was OK.
I then upped the dose back to 50mcg (2x25) and I have been fine on them. I used to feel really tired almost as though someone had turned off a switch. My blood test is normal now. In the last week my doctor has put me on one 50mcg tablet and I don't think I am imagining it but I have started to feel a little tired again. I am going to cut the tablet in half tomorrow to see what happens.K

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26

OMG everything you just posted is how I feel. You should see my itchy as hell forehead. Now what are you going to do?

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27

The spots I had initially went after stopping the tablets and since restarting the lower dose they have not come back, even after doubling the dosage back to 50mcg. I do have little spots in the hair at the base of my scalp but I have dry skin anyway. When I read the side effects it does mention hair follicles and these are where the spots were. Anyway I play a lot of tennis and since starting the treatment I feel a whole lot less tired after playing. The other symptom I used to get was cold hands, this has gone too. I do wake now with numb hands but I am putting this down to the way I sleep and my age. I don't want to be a hypochondriac so I will wait and see how things go. I certainly don't miss the tiredness I had pre Levo.

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28

Was diagnosed with Hashimotos disease a year ago. Have been on 75 mcg Levo ever since. Am gaining 2-6 pounds a week even if I eat healthy. Am exhausted yet wake up on average 5 times per night. Shortness of breath prevent cardio exercise. My hands, wrists, hips, legs, ankles and feet hurt so bad I can't stand it! Even if I take my prescribed pain meds it doesn't touch the pain. I don't have any reflex in one leg when the dr checked but.... Life is to darned short to live it this way, something better has to be out there.

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29

Me again, I have now been on 50 mcg of Levo for just over 3 months, the tingling and numbness in my left hand predominately has now got worse and I have been diagnosed as having Carpel tunnel syndrome. I am due to have my next blood test in February 2012. I have read that CTS can be caused by hypothyroidism, why
I don't know. I still feel better with the treatment I am seeing an orthopaedic surgeon in a few weeks or months .

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30

Everything you just listed here is exactly what I was feeling. I told my NEW Dr. that if I have to feel this way or be this way the rest of my life, I hope I die. SERIOUSLY, I felt that bad, and could not function. 2 months ago my new Dr. Phillip Warner explained that L thyroxine being generic can put (in a round about way) crap in the med's...Synthroid is better, so far I am feeling a bit better.

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31

50??????????? i am on 2-135's a day>>>>>>> dang i thought it was psorriasis,,,,,,, now i know differenly,,,,,, and thought the other side effects were due to statin drugs but maybe not even thought maybe i had m.s. dang it might be the meds

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32

hi ive just read oyur message about feleing great and want to know what I can do> Ive been taking levothyroxine for about 9 months and gained so much weight! I think im less tired but still have massive low points wher I have no energy. Please tell me your secret

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33

I weaned myself off of Levo about 1.5 years ago even tho the local MD told me I might have heart attack or stroke. Went to Mayo Clinic and DR. there said not true. I had so many side effects and no weight loss with Levo. I feel better without it. I have improved my diet with more vegetables and fruits, too. (See Forks over Knives) documentary on Netflix I will go to a health fair and get blood tests eventually and read the tests myself.

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34

with all the different sx Ive been reading, some of you could have a underlying autoimmune problem.I have been on Levo 100mcg now for awhile,a lower dose previously and experienced the weight gain ,fatigue,weakness etc.after the increase dose I lost 50lbs! not as fatigued but still tired,but I also have depression anxiety,could be because of the other meds Im on.With all the different generics ,each "batch" there is a different absorbability rate also..with hyper..you can have the heart palpitations,sob wt loss heat intolerance muscle weakness.with hypo the weight gain muscle pain and weakness fatigue depression puffy face dry skin and hair,hair loss,boy I had alot of that,brittle hair and nails cold intolerance.could be a fine line with the med you could be on too high a dose to get to hyper and too low dose for hypo.so complicated.see if you could have other medical reasons for other sx .I dont know not an expert but could be other stuff going on

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35

i am on twice that amount and yes have headaches, belching, insomnia and and and i try to tell dr but he says best there is i wonder

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36

I was diagnosed hypothyroid July 2011, Started Levothyroxine 50 mcg. I have now gained 35 lbs. in less than a year. I want to cry!!!!! I really think I would have been fine without the meds as I was only subclinical. TSH at 8.0 normal T3 & T4. I actually think it was caused from all the Prednisone the doctors had me on for allergies. I dont understand why I keep gaining weight?? I saw a new DR today. Hoping she fixes me.

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37

hi, I am on 75mcg of levo and I want to stop this meds after one yr
on it, my hair is coming out so bad and not slowing down...please help, can I stop cold turkey ? I feel great just scared hair won't stop coming out, I am 37..thanks so much

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38

I was recently diagnosed with a under active thyroid and was prescribed levothyroxine. I've been on-line reading the hair loss horror stories and I'm scared to death of all the side effects this drug has. Does this drug ALWAYS cause hair loss and weight gain? Are there any other thyroid medications with less side effects? Are there any natural ways that I can combat this disease WITHOUT prescription drugs. I feel like the side-effects are worse than the low thyroid function and I'm ready to just stop taking this crap. I need help!!! Thanks

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39

Hi Steph, I would to know more about you are using. I have been on this for 12 yrs, and have some of the same problems as the others.
thanks Joe

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40

After only a few days I've stopped taking the Levothyroxine! My forehead and the whole left side of my face is numb. My hands and feet are so cold I have to sleep (when I can) with gloves and socks on AND I have a rash covering my whole back. I called my GP and he is referring me to a Endocrinologist because I told him I refuse to take any thyroid medication that has all those side effects PLUS I don't want to lose my hair. I know that might sound vain, but the side effects are worst than feeling tired.

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