Help Others In Getting Their Pain Medications Go To Care2petitionsite And Sign Demand That Chronic Suffers Get Medication Now (Page 10) (Top voted first)

Updated

Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petition to get action and be a part in changing the DEA'a plan that is surely not working. Give us back our lives, Let the junkies overdose is they so choose to. Go to "Care2petitionsite" now sign the petition on "demand that chronic pain sufferers get their medication now, by valerie. I thank you for your support. Feel free to share it because the more signatures that we get the sooner we can make this a reality.

248 Replies (13 Pages)

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92

Re: Charlene (# 91) Expand Referenced Message

I’m so sorry you are having difficulties getting off that medicine. It took me a while to get off the oxy’s or MS Contin. I did reduced mine very slowly until I only take a muscle relaxer.

Have you tried reducing the amount slowly? I would even ask the doctor if there is something else you can take. But if you are in pain when you stop, what will you do then? Stopping may not be a option but reducing may help as long as you are still getting relief. Don’t let pressure from anyone dictate what helps your pain. I am speaking about pain that takes over the simplest of things like just getting up off the couch or doing simple chores. Anyway, good luck with whatever you choose to do. It’s your life. You are the best judge of your pain.

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93

I am almost 86 years old and someone (everyone) informed me around October or November that my Vicodin brand isn't available any longer. At first, they made me hunt for them for about 3 months then each pharmacy I went to would tell me they couldn’t get it. This from my Rite aid that I had been a customer for many many years! My doctor had no problems with me, I was still on the same dosage that I started on about two and a half years before. I always had a legitimate script from my doctor that they were refusing! I was on 2 pills 4 times a day and they stopped me cold, I had been taken off of the generic long ago because of allergic reactions. My Dr gave me a month's supply of these but just looking at them I was reluctant to take them, so I decided to try to get off them completely. I didn’t even tell my doctor. I didn’t really know how to taper off without going into withdrawal, but did the best I could. I tried at first to go too fast and kept getting pretty sick. I went through hell it took about 3 months I think, but I didn’t keep track. I kept getting sick and didn’t stop until I succeeded. I have been off all opioids since about 1/28th and I am now in the worse pain of my life! I have Fibromyalgia, hashimoto’s thyroiditis, osteoarthritis, bursitis, tendinitis, and many other painful diseases! I have been trying CBD but it hasn’t started helping too much yet. I never want to be a slave to pharmaceuticals again. I am on Oxygen for COPD also and because of a fall down 4 or 5 stairs, Bumping on my right hip on every stair, I now have my right leg 1 1/4” shorter than my left, which makes it very painful to try to walk. I have to have my walker, but to go upstairs, I have to hold the banister with my left hand and my cane with my right hand. If I ever dropped my cane, I wouldn’t be able to get downstairs!

My life is terrible, I don‘t have anyone in my everyday life! I really need something more for my pain, but natural! I want to get LDN but my Dr won’t help me with that because he doesn’t know enough, even though I brought him info about a year ago so he could research it! Even though I’m eligible, he doesn’t believe in medical marijuana, which he knows I wouldn’t smoke because of my chronic lung disease. He says His hospital doesn’t allow it?? Any ideas about natural remedies for me anyone? See the difference with us Chronic pain sufferers and the Drug Addicts is when we get off the opioids, we are in worse pain than when we started, but if they go in for recovery, they come out pretty brand new. They may still have cravings, I don’t know, but I know I don’t!

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94

Re: Tara (# 9) Expand Referenced Message

So many addicted kids and I’m talking under 30 who are just kids to me are becoming addicts. My nephew started by having wisdom teeth pulled and got 3 refills of Vicodin at age 19. Another I know was on anti depressants started at 15 but they made her worse she then went to drugs. They both passed away within 3 years. NEVER EVER would I call these kids a junkie. The broken system who doesn’t give a rats a** about them is a huge problem. Stop blaming the addicts! We all experimented in one way or another in our youth. Some if not most kids do it a few times then get stuck in that bubble they cannot get out of! They truly want help except they are frowned upon as you say “ let the junkies overdose.” So ignorant! This upsets me to the max because your uneducated about this problem. I am a grandmother and so my experimenting in the 70’s was very different from today. I also take pain meds for a terrible diagnosis and just fought again with my primary for half the amount per month. What these doctors are afraid of is malpractice. Money. Most doctors won’t give you anything then the special pain doctors treat you as if they own you. Awful and I understand everyone here! We are all or most adults some seniors! You’d think by then you wouldn’t have a problem! Chronic pain is what we have and they don’t! Doctors do not understand pain just a bad name for themselves. Anyway sorry to get off topic and I see I have a message from my doctor I guarantee she cuts it down and for what. They have our definitive diagnosis yet still we have to fight. Now I need the rant to tell you my nephew was never in trouble, an A student. Very sad for us he was a handsome nerd. Please never say that again I cry each time it is said. I pray you all find peace and just live your lives like we all want to without any stress from these doctors for CS.

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95

Re: Charlene (# 91) Expand Referenced Message

I don’t know why everyone is talking about addiction on this blog. This blog is for chronic pain. We go to the doctors on a regular basis. My pain Dr also had a psychologist in his office & I took a class for about a year. It was about how you manage your pain & how medication should be used. The one thing he said is that we go through cycles where the pain would flare up then may go down. The important thing he said was chasing the pain will lead into taking more in the long run. Rather than taking the meds 3 or 4 times a day so you keep your pain relief at the same level. By not taking them until your in a lot of pain, you will need to take more than you would have if you had taken them every 3, 4 or 6 hours as directed. The whole basis of treating chronic pain is to be at the same level at all times. Sure, you may have worse days but for the majority of the time, it keeps you medicated throughout the day. Years ago, oral meds were not helping me. So my doctor & neurologist felt it was better to have a pain pump implanted where the medicine gets delivered on a constant basis. I go back every 1 1/2 to 2 months where they digitally monitors the pump. If I still find myself in more pain, he can adjusted the amount that gets delivered or may consider changing what meds are put in. He then gives me a printout of what he gives me & the amount that goes through the tube. My pump is implanted at my lower left abdomen with a line the runs up to the T10 in my spine. He also gives me Soma for the bad days. You may want to ask about that. Medtronic is the company that makes the pump. Ever since, I no longer worry about if I took my meds or possibly taking too much. The pump would need to be replaced every 7 years so there is no possibility of breaking down. Also, pills effects the liver where the pump doesn’t. I will get breakthrough pain & thats when I would take the Soma.

Just wanted to give you another option. No one in the pharmacy or anyone will look at you like an addict. (Which is ridiculous anyway). Only you knows what you are feeling. I hope this helps you. If you have any questions, please do not hesitate to ask. Good luck!

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96

Re: Mare (# 95) Expand Referenced Message

Why not mention me? There is talk about addiction because someone on here brought up “ let the junkies overdose.” And I don’t like what she said. For me that is someone saying this who is young and probably is addicted themselves. Not all in here are older people who actually have chronic pain. Address when needed don’t pretend it’s not me. Pay attention to the boards and you will see the reasons why.

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99

Re: Bella (# 96) Expand Referenced Message

Bella, I don't think I said anything about the bad statement made on " let the junkies overdose "...I'm just trying to clear this statement up. I would think anyone reading the ( conversation starter ) of this group chat. What appears to me is seems nobody likes that statement either..it bad. No one asked to end up being a junkie, or overdosed. Maybe WE all should continue on to keep fighting for what we want and stop using hurtful words

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100

Re: Bella (# 96) Expand Referenced Message

It was said for everyone that goes on this blog who has had issues with there pain meds. No one is excluded. Sorry if you thought I excluded you. It was not intended that way. I only wish the best for everyone.

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104

Re: Bella (# 102) Expand Referenced Message

Just to be clear I didn’t start it either. I went back to the very first post & the only mention of it were Posts #9, 14, 67 & 78. As a matter of fact, I never said a bad thing except to Post 78 to EMPTYBOTTLEADDOCTION who thinks we all are squandering around looking for meds. This now ends. I didn’t say & neither did you.

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105

Re: Jh (# 103) Expand Referenced Message

Jh, if you really want to help... please read what I posted and join our group. It is number 82 on here and to long for me to repost it. Some people say they want to help, to 'do this & that' but that's all I see them doing, is talking. Please do not think I am talking about you now as I am not. The, Don't Punish Pain Rally group is all about helping & fighting this battle to win. Read what I posted & see for yourself. This goes for everyone that is wanting to help, win the battle. Take care ~

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106

Where do I sign? I pray someone that has the power to help us will notice soon and seriously take a stand for us!!
Thanks for the info... where is the petition?

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107

Re: Mare (# 101) Expand Referenced Message

Look at the conversation starter by Valerie who said LET THE JUNKIES OVERDOSE take it up with her.

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108

Valerie, can you tell me how to sign up.
Im not good on these phones. I can type a message, make phone calls. I think i need a book on smart phones for dummies. actually my grandson helped me set up my phone. Its pretty bad when your 6 year old grandson sets up your phone. I know im old school but im learning.
Ty, jh

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111

Right now I have such a horrible migraine that I could die! I woke up at 3am with it. Trying to make do with the Tylenol 3 I have from my PCP for chronic acute pain. The migraines are just one that it is supposed to help with. NOT! I WANT MY LORCET BACK! I hope FL or the federal government getsvthe law up to vote in allow us to get our prescription drugs from Canada and online... if I can get my old script back, will be great! And even Ay on 325 m per pill, I feel I am going to die of ACETAMINOPHEN POISONING! THIS IS RIDICULOUS... WHY DO I HAVE TO GO TO PAIN MANAGEMENT? I go to my primary-care once monthly and have to UA everytime to just get my Tylenol 3 and Diazapam. Ridiculous! Have lost to under 95 LBS consistently from about 105 since they took me off my god medication. They fudge my weight record and add a few LBS more than what I actually weigh... I have to take care of my 86 yr ol Mom... how can I do it the way I am with the pain!!!! I can't stand this BS!!! I NEVER ABUSED MY MEDS... HAD PERCS FOR BREAKTHROUGH, Like with MIGRAINES... NO MORE. I AM GOING TO SCREAM!!! CAN'T ANYONE HELP. IT'S BEEN OVER A YESR SINCE I HAD ANY GOOD MEDS AND ABOUT AT THE END OF MY ROPE RIGHT NOW... It's just the migraine right now, can usually handle it better, but ALWAYS in pain after PCP care cold turkeied me off my opiate and Soma all at one time. It"s been HELL!!!

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115

Went site, 3 petitions are closed!??? For pain & chronic pain related!??

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116

Re: Lynn (# 115) Expand Referenced Message

Yes, this thread is old, tho we keep posting to it, those petitions no longer exist...

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119

Re: Dystonia patient (# 118) Expand Referenced Message

Pray you do not become locked up yourself! These people need help where there is no help for them! Shame on you.

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121

Re: Mare (# 114) Expand Referenced Message

I hear you! I agree with u!!

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125

I had been on Lortab 10-500 for rheumatoid arthritis since 1997 then they went to Norco 10-325 I am going to be 62 yrs old this yr I had my only child @ age34 We had to go to counseling when she got interested in bad stuff @ preteen age The counselor told me then I needed to quit taking opiates they were not for long term use they give more pain and more problems but i didn't listen so now I have had 2more major surgery since then last My doctor couldn't no longer give me Norco sent me to pain management I was humiliated by that doctor he said i could do everything he wanted me to but he wouldn't prescribe me any opiates he wanted to exray my whole body out shots where i hurt I have been stuck proved enough in my life I walked out stopped opiates they do give more now than ever because the opiates are no good i guess i was lucky because since 1997 till 2018 I was onnorco10-325 4 times a day but thankfully I guess I didn't get addicted because i wasn't sick just didn't feel good for a while but they do give you more pain than getting rid of it I am a grandma with a lot of problems but without opiates I feel better they give you more pain

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134

Re: Old grandma that knows (# 125) Expand Referenced Message

Thank you... we are on the same parallel.... only thing I never had any children. Took Lorcet 10/750 from '97 to 2008, when FL started cracking down on pill clinics down So FL. Then, finally got onto SSI and Medicaid in 2011, and no more Lorcet for me in finding a new Dr.. Put on joke Norco, and took away my Sona I had taken 1, each night for over 20 years. That was the pharmacy, not the Dr. They are still manufactured and sold... pharmacies trying to get rid of them because they are an older, less expensive prescription. My insurance wouldn't cover, but was price never over $30 for 30#. Different prices, different pharmacies. My PPO told me she would give me back my Lorcet (new formula) if I gave up Soma, I agreed, she reneged and told me I could not have the Lorcet. Now guess I am lucky to have Tylenol 3.... NOT! Trying to get my State MML...

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135

Re: Bella (# 133) Expand Referenced Message

What drugs did your nephew die of when he got them on the street?

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