Harvoni Withdrawal Symptoms (Page 2)
(Newest replies first)

Updated

anyone having problems after stopping harvoni?

52 Replies (3 Pages)

Page:First Page2Last Page
Earliest Newest Votes
32

Stopped the 12 wk course in April, this year and still feeling mind fogged and didn't even realize that was on of the many side effects of this supposedly miraculous drug. Weight gain off the charts even though I exercise and eat salads like a rabbit. No energy, can't sleep, still blurting things out thoughtlessly, did you know about that side effect?

Was this helpful? 0
31

for me Harvoni was NOT a good choice, b4 harvoni I felt great, Now I feel like I have no life at all but physical pain.
I would rather have Hep C back, if I had it to do over I would have never taken harvoni, now I fear the rest of my life will be nothing but pain and suffering and unable to work

Was this helpful? 1
30

Hi it's definitely worth taking Harvoni. I finished my 12-week therapy on +June 9, 2017; took labs at 4 weeks and again at 12 weeks and no virus is detected. I didn't feel bad during treatment but during the last 3 weeks I started feeling like I do now..exhausted, depressed, sickish feeling in my stomach kind of like I've been on an amusement park ride or hangover, headachy, just want to lay around in my bed (I can't because I'm caring for my 96 year old Dad.), sore throat, I'm glad I'm reading this forum because it helps me to know I'm not alone. I was diagnosed in 2012, took Interferon injections, Ribavirin and Incivek...I was so, so sick. This feeling kind of mimics the way I felt 4 years ago, but on a much, much lower scale. I remind myself that Harvoni is a Very powerful drug and pray that these withdrawal symptoms pass soon. I'm going to continue my aerobics classes 3x per week and daily walking to keep my diabetes and high blood pressure in check. All the best to everyone!

Was this helpful? 2
29

I m 66 an ex speeder got it in the 70s I am diabetic and I have asthma,low thyroid,a clipped anurism in my brain agoraphobia, panic attacks paranoia etc I take synthroid janumet, blood pressure meds an cholesterol meds clonazepan mirtazepine and Zoloft and I quit speed ,,30, years ago and I am still paying for it too us all may God have mercy on us as we have paid the price. Please reply to this

Was this helpful? 0
28

SAME HERE I AM ABOUT 1\4 THE STRENGHT I HAD VERY FATIGUE HAVE NO PEP AT ALL IF SO IT DOESN'T LAST MORE THAN A COUPLE OF MINUTES , VERY WORRIED I RUINED MY HEALTH I WAS ABLE TO DO SO MUCH MORE WHEN I HAD HEPC THAN I DO NOW HOPE IN TIME IT GETS BETTER I HAVE MUCH TO DO PHYSICALLY I'VE BEEN OFF SINCE 2-2-2017 WAS MY LAST PILL

Was this helpful? 0
27

I was on harvoni for 8 weeks and since I stopped taking it I've been having constipation and frequent bouts of hiccups and heartburn none of which I had before or during the harvoni. Are these side effects from the harvoni and how do I make them stop? Also no matter how I make the hiccups stop I can't make myself burp. Please help it's driving me nuts! For the past 2 weeks I've been off the harvoni I've been having the hiccups 6-8 times a day! No matter what I eat! Is this normal? And if it is how long does it last?

Was this helpful? 0
26

Finished treatment 10 weeks ago. i went through everything muscle, shoulder, body pain, muscles spasms, headaches depression, panic attacks, frustration, Some days are good feel wonderful energy, then crash later not even stand or walk.
Its body's healing from the ravages of hep C virus. It takes time to recover and rebuild. After 10 wonderful days, again i am feeling sick body pain flu like symptoms. But i know there are improvements after each week.

My advice:
1. Drink lots of water at regular intervals.
2. Eat before you feel hungry.
3. Do some moderate exercise on good days.
4.Get rid of stinking thinking.

Wishing you a full and glorious recovery

Was this helpful? 3
25

I felt sick and pain in shoulders for the first 2 wks. of dosing now I am done with 12wk with good news but after 2 days i felt just like an opiate withdrawal right now I feel awful any one have pointers for me?

Was this helpful? 1
24

Hi. I've been on hemodialysis for 14yrs. I just finished a 90 day course of Harvoni 6 days ago. Had lots of side effects including headaches, insomnia, fatigue, sweats, chills, pains all over, nausea, runny nose, pain in my hands & arms, muscle cramping. Lost 6kgs in weight. The insomnia and sick feeling is terrible. Like I have lots of energy but especially after hemodialysis treatment I feel like my body is tired but my mind is going. When do these side effects go away? If anyone has any questions feel free ask. Thank you and I pray to the Lord that Harvoni works for all of us. God bless us all.

Was this helpful? 2
23

I was on Harvoni for 8 weeks (Oct. to Decrmber, 2016). During treatment I experienced euphoria, clumsiness and joint aches. A few days after my last tablet I experienced withdrawal symptoms big time: nausea, sweating, fatigue, weakness. Psychologically I felt different for a while as well.

In time, I believe these symptoms will be incorporated into the manufacturer's reported side effects. Still a new drug so the community boards of consistent side effects are where I am drawing support.

It's now three months post treatment for me and I've been declared cured.

I am very pleased.

I do not recommend Harvoni for patients who care for small children due to the clumsiness and euphoric side effects (during my treatment, I dropped and broke dishes and dropped a carton of milk as though it were funny and could care less. That is not my normal attitude). So I fear that patients on Harvoni could accidentally drop babies/children which I find frightening.

Was this helpful? 0
22

When took Harvoni, I had diaharria, nausea ,anxeity, depression, headache,blurred vision

Was this helpful? 1
21

oh its worth it. Just persevere. Im sure you've been through worse than this.

Was this helpful? 0
20

I've been on Harvoni for 30 days. They said very little side effects. My ass. Mental and physical. Not much for headache but nausea, sweats and chills, irregular bowel movements, muscle cramps, anxiety, depression , and rage. Not sure if this is worth it.

Was this helpful? 5
19

I did 12 weeks of harvoni. I didn't seem to notice any side effects at all while on the medicine. But when I stopped I definitely felt withdrawal symptoms. Took about 2 days to start and it was scary. All the sudden out of no where I felt like I was gonna pass out and just had this wave of like panic come over me. Felt down right terrible, shaky, scary, and bad emotional and psychological symptoms. But luckily it did not last long. In about 3ish days I felt pretty much back to normal. So have hope, those painful few bad days are nothing when you consider what the long term effects the disease will have on your body.

Was this helpful? 4
18

Yes...... it was nightmare at time... best I can tell. I stayed confused and mind fogged! Couldn't remember what I ate that day or even in fact if I did eat.

Was this helpful? 4
17

Hi I'm on day 54 now..symptoms are getting better gradually,God slowly though.
here's what works for me...keeping my meals at the same time every day. don't even let hunger set in or my headaches really start cranking. Mentally I have to force myself to start moving my body my mental health is improving greatly and I can see the finish line..
Now I clearly see why they don't test your blood until three months after.. because I still feel like I am glowing radioactive and that medicine is still in my system big time I can feel it ..
My side effects have been horrible I was completely blindsided By this medication..
OK here's the good part RELIEF is coming..I don't feel better by the day make-believe weeks are one day treat myself very well.i keep the stress level down.shut the phone off ect,I've started exercising pushing through the body pain and making sure I put good food in myself and lots of water still.. The side effects were crippling to me...I hope this helps someone else not lose their mind..
One or two posts from other people gave me the strength to keep fighting...
you will feel better soon.The worst is behind us

Was this helpful? 4
16

blindsided,

I am in the same boat as you are. I am almost to my 24 wk post tx lab. Headaches have changed from a daily afternoon thing into the night migraines, leg cramps are getting worse, mood swings, brain fog, hands cramping up, nausea, very little feeling in my feet. One night I think I had a mild stroke, bp was 169/113/103, my heart still feels like it is fluttering half the time, an mri is being scheduled for a brain scan but so far since I had no paralysis from what felt like a stroke i am not getting checked for that. Is anyone else still suffering?

Was this helpful? 5
15

i finished my 12 week course 3 months ago a headache or two first week and tiredness for a week or two after taking tablet but then i was fine and now im fine

Was this helpful? 7
14

I'm a 45 year old male. All my life average to above average build/health. I quit cigarettes 10 months ago. I exercise regularly for years and have been drug-free & medication free for 9 years. I lived with the virus since 97 with no mental health issues.
Blood work before viral load 1 million. 1st 30 day blood work 15. One five. I had a very difficult time with the headaches and many other symptoms that were not mentioned to me.. I charged headfirst into this medication excited to finally face this dirty secret I had tucked away. I live an active lifestyle. This medication hit hard after day 4 or 5. I was unable to think, read, eat, concentrate, had rage/anger and a host of psychological stress.

The symptoms for me have persisted after stopping the 12 week cycle like I never stopped talking the medicine. 3 days after last dose my immune system crashed like nothing I've ever seen and I caught the flu. It lasted the better part of three weeks and developed into a horrible fluid and cough in my lungs which only aggravated the foggy confusing migraine headaches and disorientation. I have been experiencing all kinds of psychological trauma and repressed memories (hallucinating possibly) I thought I was losing my mind. I had set a goal to finish this medicine even though my body was screaming throughout the 12 weeks. All I did was focus on the last pill...then FINALLY DONE!..I was completely blindsided by how long the side effects would remain.this medicine is still coursing through me no matter how much water I drank or drink..to say I'm scared is an understatement.. WTF did we just take?

It is day 30 after stopping and I'm just barely starting to see mild relief in the mornings.. even eating three healthy meals a day and drinking lots of fluids..but no matter what I do the headaches and confusion creep back in by mid/end of day. That's with no added stress. My days now consist of minimal physical exertion, moving/walking/talking/bright light, cleaning spray aggravates my headaches. Daily chores are almost impossible. Overwhelming. By evening it's difficult to rest/sleep. Ok this is for me as well as anyone else reading..I am seeing relief in the mornings. I keep my meals scheduled like clockwork. Eating before I'm hungry seems to keep my head from pounding. I see my regular doctor in a week. I made it this far. I am seeing SLIGHT relief in the morning. Just be patient for a little more time..you got through it. Stay strong.. Keep reaching out to people. It's all psychological now. It's over..you will feel better soon.

Was this helpful? 6
13

Hi everone. I stopped harvoni 3 days ago. Im feeling a little weird & energy is at a low. I was hoping for a speedy recovery, but that aint happening. As for long term effect, they wouldnt know, as its a new drug, we might grow another head or some such thing, they dont know!!! Forgive my dramatics, just kidding. Im hopeful though, its better than being a contagious pariah. Dont you agree?

Was this helpful? 3
Page:First Page2Last Page

More Discussions:

withdrawal symptoms lipitor

How long before muscle aches and weakness subside after discontinuing Lipitor ## Had been on 10mg for 4 years. recently ...

204 REPLIES
Withdrawal Symptoms Belviq

I've taken belviq twice a day for 3 months (i think- one bottle worth). I didn't refill the RX and now, 4 days l...

30 REPLIES
Withdrawal symptoms from vimpat

I started taking vimpat i think last June or July. Not too sure, the meds have messed with my mind big time. Stayed at 2...

13 REPLIES
Withdrawal Symptoms from Plavix Clopidogrel

I have been on Clopidogrel 75mg after having a slight heart attack thought to have been caused by a blood clot in a smal...

6 REPLIES
Withdrawal symptoms after 4 months?

I came off A almost 4 months ago. It was very hard at first (I cut the dose in half for a few weeks and then I took away...

4 REPLIES
Withdrawal symptoms from Viibryd

I started taking Viibryd approximately 6 months ago. Had a shaky start. Started with 10 mg and then went to 20 mg in a w...

4 REPLIES
Withdrawal symptoms from long-term lisinopril usage

I had used lisinopril/hct for 20 years. It started off with one pill per day, but ten years ago doc prescribed 2 pills p...

3 REPLIES
Withdrawal Symptoms and Length for Fiorcet with Codeine

Hello. I had been taking fiorcet codeine ( for over a year. Recently, one of my primary care doctors told me to stop tak...

3 REPLIES
withdrawal symptoms for loratab

I have been taking generic loratabs for RA for a long time. I'm worried about symptoms I'm having, like not slee...

3 REPLIES
Withdrawal symptoms of Eliquis

I am a soon to be 71 year-old female with paroxysmal A-Fib--started 5 years ago. I take Eliquis 5 mg/twice daily. I gene...

2 REPLIES