Harvoni Side Effects For My Wife - Concerned Husband
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Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels like there is pressure in her head. Anyone else have anything similar? Thanks

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Re: HepCFree (# 11)

Totally agree i finished treatment 3 yrs ago ,no virus now but I have breathing problems numb feet many infections I could go on so many problems now,I felt better pre treatment Gilliard no support at all,I would not have shaken someone s hand from Gilliard maybe shook something else ,can't see why people don't believe that some of us have really bad effects from Gilliard .thanks

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Re: Verwon (# 1)

Hi Verwon I'm not sure where you get your information but ,just about everyone I know who has been on Epclusa or Harvoni have Poste treatment Edema abdominal bloating nausea and neuropathy seems to be one of the most common system along with anxiety exhaustion numb swollen feet ect,when I spoke to the so called liver experts experts in my area they were very helpful pre treatment but Poste treatment not helpful at all ,there favourite line being "oh IV never heard of that happening before ' I'm 2 yrs Poste treatment no hcv ATM but feel as if my immune system is stuffed I actually felt better pre treatment oh nearly forgot besides all the side effects I mentioned my knees are so swollen I have trouble walking somedays , my advice is don't believe everything experts say .thanks.

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Re: Von (# 56)

I took it in 2015 towards the end of the year and I got peripheral neuropathy in my feet as a side effect of harvoni. I wouldn't wish it on anyone. When I contacted Gilead of course they denied it so I contacted the FDA and they sent me a 12 page list of the side effects of it...

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The side effects will only get worse. Some people don't get them at all. I had to quit after nine days. The Harvoni was killing my red blood cells faster than I could make them and I ended up in the heart unit. There are other drugs the harvoni may not be for her.

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Re: erna (# 54)


Indeed it is hellish. I would not recommend it to anyone who is "healthy", i.e. limited liver damage, good blood work. Doctors are still pushing Harvoni and refusing to acknowledge the hellish permanent side effects that diminish quality of life. Please do your homework before starting this med. It is good for some and horrible for others. Three years post tx and so wish I had never taken Harvoni.

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The more into treatment the more nasty side effects will arrive! I think my Hysterectomy surgery was easier to survive than Harvoni treatment! I regret that I was talked into taking this hellish treatment!

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Has your wife fully recovered from treatment? Or does she have long term side effects from Harvoni?

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Yup me too!! So sorry for your wife.my left leg has been going numb and brain fog ..like dementia

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Re: Bkenut10 (# 50)

Never assume that anyone contracted this disease through risky behavior. I, and many others, didn't. Also, just because you have tolerated the medicine well does not mean that it hasn't caused severe problems for some. To those who are suffering with a lot of pain, I recommend gentle exercise specifically designed for your needs by a physical therapist in a warm, therapeutic pool followed by relaxation in the pool for as long as you need, then a day or more of rest until you feel better and then return to the therapeutic pool. Eventually, this will rebuild your strength and reduce your pain, but it is a long process. I have been doing this for almost a year and the progress is very slow. Massage and chiropractic adjustments can also be helpful. Self trigger point massage with a theracane was extremely helpful for me. Calcium with vitamin D3 can help rebuild bone, if a doctor says it is safe for you to take. High protein diet to rebuild muscle. Try to remove all toxins from your diet and environment. You and your doctors will have to figure out what is best for you. Trial and error until you get it right. The body can repair itself when you nurture it, but it ain't easy, although it is important to be relaxed, as that helps the body repair itself. And if you can go live directly on a beach, you'll find it to be very healing. I'm not able to do this.

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Re: jimmy7141 (# 42)

First you need to be honest about how you got to this point. I personally am happy to have a option to cure this viral infection. Risk taking is how I contracted the virus. And if its a risk taking this drug so be it. I have one friend that died because his virus was too far advance, but also have a acquaintance that took it and has been find. I am noticing side affect such joint pain, but I just up my work out. I am 65 and in the 3rd and final month. I think its worth mentioning that I have not lose a day of work nor had to change my normal activities. However because it best not to drink while on Harvoni (and I haven't) I have become my wife's designated driver (lol).

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Re: Bkenut10 (# 47)

Keep us posted on your recovery. Exercising in a warm, therapeutic pool is very helpful for body aches.

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Re: Bobvie (# 46)

The FDA has opened their adverse effects to the public. We are not allowed to post direct links but you should be able to find it. I also have a detailed report from them but again I am not allowed to post my email. {edited for privacy}

Editor's note: Direct links to the FDA / CDC / NIH, drug manufacturers, .gov, and .edu sites ARE allowed and encouraged, so please feel free to reference them in the future.

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Re: Carol (# 2)

I am in my 3rd month. Yes I have joint pain but it moves around my body from fingers to knees to my feet. From what I am reading it is not uncommon. My count are almost zero out after only three weeks. Looking forward to my final blood work and the follow up exam. I find that keeping up with my work-out routine seem to help keep the pain in check. May God bless you as he did me with the power of choice!

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How do i go about. Requesting fda info or who do i do this throu i am 24 days into tteatmwnt and its not going like i jave thought at all i can bately walk or move at all the pain is so severe .. Plz

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Hi Marion. I'm so sorry about everything you've gone through on this drug. My mother was treated with interferon treatment 15 years ago which was absolute hell, but it did bring down her viral load considerably. Now Dr.'s want her to go on Harvoni because of swollen liver. She is 72, has Alzheimer's, cops, diabetic. I'm really afraid for her to go on this drug. Any advice ??

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are you still taking the meds? if not find another doc, that will listen to you, I have a lot of those same things wrong, and have had blood work over and over for the last 4 months, hpc gone on day 52, of stop taking this med, because I fell out of it,at work, or blacked out because of weakness, 14hour days, ect, drinking lots of water, still 5 months hpc ,free, and feel bad all the time, yes it is over whelming, hope this helps!

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Please note that although I have been trying, I have not improved really at all. I am still weak, cognitively impaired, have pain and nausea. I get short of breath and anxiety attacks every day. My gastroenterologist will not admit that it is related to the Harvoni even though he knows what side effects I went through. My short term memory is horrible and I went to a neurologist who says nothing abnormal. I have lost my career and my life. The only positive thing is I supposedly don't have Hep C, at least it's below their parameters.

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not a doc - I would stop treatment, but what stage is her liver in? It is not worth it. I've taken it and the doc keeps pushing you to take it. I pray for you guys.

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It's not good to deny problems because you believe it is being positive.

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Yes, to the takers if this medicine, they are not listing all side effects, my brother has been deathly sick since taking this. It has messed with his lungs and heart, in and out of hospital and they will NOT ADMIT it's from this pill.

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