Harvoni Side Effects (Page 9) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

REPLY

REPORT

@Scared Mom - so sorry to hear about your son! May I ask how old he is?

For something this serious I would definitely let his doctor know asap (if you haven't already) so that they may treat him or refer him to an appropriate specialist. Also, since your son is experiencing a more serious side effect, please consider reporting this to the FDA through Medwatch. It is important for them to be aware when a medication poses a potentially life-threatening situation.

https:/­/­www.accessdata.fda.gov/­scripts/­medwatch/­index.cfm?action=consumer.reporting1

Also, if you are very concerned about possible suicidal behavior, please consider contacting the National Suicide Prevention Lifeline at 1-800-273-8255. It's not just for people who are suicidal, but for people concerned about a loved one.

And lastly, please write back. I think we're all concerned about you guys over here and are always ready to be of support in any way we can!

REPLY

Was this helpful? 2

Yes I finished 12 weeks of Harvoni 9 weeks ago and I am still having severe pain in low back, hips, fingers, wrists,and feet. I got a steroid shot this week and my dr is checking me for RA. Gilead is not telling us all the facts about this drug. I was debilitated for 12 weeks on the drug from side effects. I can't figure out how to start a post on this forum.
good luck
luna

REPLY

Was this helpful? 2

I have the overall pain that everyone else on here has complained about... Went in to talk to Primary Dr. about Fibromyalgia, my mom has it and apparently can be genetic. No test for Fibro , so Dr did tests to rule out other issues. Found I was low in Vitamin D,(now on 12,000iu 1xweek for12 weeks) and I have signs of RA.. Can't get in to see a Arthritis Dr till end of October. I only took it 4 1/2 weeks. I couldn't risk further damage to my recently replaced Knee. I really wish we would have been told of the side effects , or at the least the doctors acceptance that the complaints we all have were real!! I hope your Dr is able to help you, I was super lucky and my Primary Dr completely understand about Harvoni and I feel better just since starting the Vitamin D.

REPLY

Was this helpful? 2

I also have ringing of the ears after 3 months on Harvoni and blood test with high RA!

REPLY

Was this helpful? 2

Hi Marie
I am in week 12 of Harvoni and the ringing in my ears started at week 11. Its a dreadful feeling. Are you finished treatment ?

I am at the point where I do not trust this drug anymore AT ALL. I dont think I could even list what I have been through in the last 11
weeks. I am angry. I signed up for a slight headache and now I fear for my current and future health which is EXACTLY what I was trying to avoid by taking Harvoni. If they knew nothing about the side effects they had a responsibility to tell us that. I would not have risked it.

REPLY

Was this helpful? 2

Christine, this is as good of place to post as any. I had HepC for approx 37 years and tried all the other treatments. Like you I saw 98% cute rate and just very minor side effects. Some people seem to have only minor side effects, but others like me felt like death warmed over while taking it and after finishing treatment (almost 16 months now) other problems pop up and my many doctors have no idea why. There is only one good thing I can say for Harvoni and that is after 16 months and 5 rna tests I am still HepC free. Me? I wish I never heard of Harvoni. But I believe each person has to make their own decision whether to take it or continue. The word is slowly coming out that there are other side effects than Gilead will admit to, so think about and make your own decision.

REPLY

Was this helpful? 2

How long I have been done with harvoni for 2 months now and since I've been done I've been hospitalized one time emergency now because of severe Facial Pain and swollen joints. My ankles are swollen like a balloon I am in severe pain with Facial Pain and joint pain as well as nerve pain down my legs. These are all during treatment pains and they are worse now then they were during treatment. The post treatments symptoms are worse than the ones I was having during the treatment period while I am hep C free I am suffering from all new issues and none of my doctors want to listen to me. They all tell me I'm imagining things and yet I'm not I feel like garbage I have a hard time getting out of bed I have no energy and yet I can't sleep and the pain in my joints so long with the swelling prevent me from doing anything during the day. Before I started my treatment my worst symptoms is that I would be a little tired but I would still be able to function today I can't even function. What a mistake it was for me to take this because now I have absolutely no quality of life. I also have no doctors that give a crap about anything I said. I am totally totally depressed I am in so much nerve pain down my right leg as well as my ankles swelling up and my right foot swelling up to the size of a balloon I have been on constant antibiotics for infections that I never got before and none of them are going away. I have no idea what's going on except to say that I was never this sick prior to harvoni and no one wants to listen to me. I blame harvoni, I blame the FDA and I blame Gilead. They knew exactly what they were peddling and all they care about is the dollar yes it clears that hep C but it also creates so many other side effects and all they care about is the almighty dollar. I can't even blame the doctors because I don't believe the doctors were told the truth. But I blame the doctors on if they don't believe the patients like me when I go in and tell them these are on the issues and they are related to the harvoni. They run all these kinds of tests and they say that they find nothing causing these issues, well all I can say is something is causing them. I'm telling you I believe the harvoni masks the symptoms. All I know is I wish I never took it it has totally ruined my life,,, wishing that I dont wake up because of all the problems I'm having today... I don't have a life that's worth waking up for..... No I'm not suicidal,,,, but I just don't like living the way I am,,, I just hate feeling sick and having all this pain and swollen joints all the time with all this pain,,, It's disgusting what they have done to me and the FDA should be ashamed of themselves for allowing this drug on the market. I just wish I could find a brave enough attorney willing to sue these guys in Vero Beach Florida,,, The VA allowed this to happen as well to many of us Veterans

REPLY

Was this helpful? 2

The nerve pain in my legs started when I was three weeks in taking the harvoni , I called the company and talked to the docs there of course they said this was not a side effect. I finished my 8 weeks and that was ayear ago and my liver is clean but the pain in my legs is excruciating. I am going to see a neurologist which was suggested by my primary doc who said maybe it was a side effect from harvoni. I did report this to the FDA and suggest anyone with major issues from this medicine do the same so it can be investigated.

REPLY

Was this helpful? 2

I meant to say Gilead (not Billy dont know where that came from, sorry my mind is just not right) should be ashamed of themselves as well as the FDA... I was also reading where Dannyneedlesca wrote he is taking Hatton? I have never heard of it nor was I able to find any information about it... But LY, thank you for giving me something else to look into. They've done blood work, ultrasounds, catscans and all have been normal yet everything is the size of a balloon, the doctors haven't a clue, they wont say it was or is the Harvoni, they just don't know. I have also been recently diagnosed with 2 sinus cavity cysts, never had these either, but the facial pain is like no other. My biggest concerns are the swollen joints, feet and ankles, the feeling of my skin ripping along the top of my thighs which I've been told is related to my very bad nerve pain going down the leg as well as the constant hand, knee and back pain and last my memory loss. I am forgetting everything, I don't mean like oh where are my keys type thing, I mean I can be talking or writing and forget what I am talking or thinking about... What makes all this very, very scary is I am tired, depressed, always having to fight to see my doctor and when I do all I hear is that nothing is wrong when she can clearly see the visible part, but cant tell me what's causing it or why and for the parts she cant see it's like I am not believed, it makes it more depressing and hurtful because there is definitely something wrong yet NO ONE will even consider the Harvoni.. I am tired, all the time, I have headaches all the time, I am depressed, combined with all these other issues what quality of life is it. Being Hep C free and having all these issues is no bargain or trade off.... I wish someone would help me, some doctor would care enough to say I care, I know and I want to try and help you feel better but no, they don't care, Gilead doesn't care, the FDA doesn't care, who cares but me. I have no answers or tools to fix anything... I wish I never did this. What life I have left is looking bleak at best, now the VA and Harvoni are giving me the royal screwing, again, not helping and not even listening, what a crappy hep c free life...

REPLY

Was this helpful? 2

I thought I was doing the right thing by getting on this as fast as I did. I found out hep c pos, within about 6 months of contracting, and in 2 yrs, went to an F3.
I had no hep c symptoms before harvoni. I can't even walk to the end of street and back now, without being tired. I am a fit person, 5 9, and usually 130. Lost 12 pounds in 2 months. My eyesight is shot, never mind my teeth have wore right down as well, just in 2 months of treatment. It is not from hep c damage. I did not have any symptoms. I wish I'd never done this treatment.

REPLY

Was this helpful? 2

New Day, do you want to hear something more depressing? You and I paid for the development of Harvoni!!!! The scientists that discovered the building blocks of Harvoni worked for the VA. When they were almost ready to test, Gilead bought the lab and did the finish work. And to make things worse Gilead has moved Harvoni to one of their companies in Ireland to avoid paying taxes on the prices they charge.

REPLY

Was this helpful? 2

Keith , the group I am in, IS the one, Jenny was talking about... But in fact yes it was support with the side effects, the encouragement, etc. But now, well, I feel I am on my own. .. I am not so sure I agree with most or all there, who say, **just to be grateful to be alive*!?
Yeah sure I am, and no I do not want liver cancer, but it would be nice, to live pain free.. I had many more years then what they did no doubt.
Sorry if I sound harsh....
Hell. I'm not giving up yet. I didn't go through a year of drug abuse injecting, 2 almost ods, at my age, just to become drug free, and live with pain, because of a med. If I fought through that, I will fight through this too.
I no longer have a support group, just here, I guess. :)

REPLY

Was this helpful? 2

high, i just started taking this med,i am on day 27 , i am 59 years old, i keep reading how bad this med is ,i am weak, and tired ,lazy, single with no support other than doc, yes, and i got to work, has anyone feel better after this treatment?, what gives us another ten years? , hpc c, can get really bad, i have a friend that had to do it old way V.vet, he thinks he feels better, i do not, my side hurts like, but i have alot of other health problems also, yea i am depressed, but after reading all these bad reviews , i what to stop, well i just was reading ,thanks for your time

REPLY

Was this helpful? 3

First, have you had the RNA test? Are you clear? That would be one good sign. My experience from being on 5 of these boards is that if you get hit hard with side effects, first we are the minority, most don't. If you get hit hard it will either be very slow recovering from the side effects, or some not at all. I finished treatment almost 18 months ago and some of my problems have not improved, and there are a couple in my other group that finished treatment longer ago than I. Most people end up getting treated by our primary docs for the problems - GI's tend to turn you loose after treatment.

REPLY

Was this helpful? 2

hey Vicki, I too did thevPeg/Interferon back in 2008, I was on it for four months but I'd lost way too much weight & was really sick & ended up in hospital for a week? the hepatology Dr pulled me off it, preferring to give the liver a rest & let me gain some weight again? earlier this year I saw the same specialist again & he put me on Harvoni & 6 months later I am hep c free, til I have my bloods done in January? I now have cirrhosis & markers for Hepato Cellular Carcinoma, thus far they don't seem too fazed about it, only chemotherapy & radio frequency therapy seem to be out of thevpicture for me? too much damage already from abuse, cirrhosis progression, bad lifestyle choices in the past! oh well something will come up? I hope? most people I know that have done it have been fairly trouble free post treatment! I had some back pain (for many years now) & some leg discomfort! some nausea for the last 6 week's of treatment, this seems to recur almost daily as the day progresses! I'm glad the hep c is gone? the nausea should pass at some point? Its worth Irvin the long run, as it's one less thing to be worried about if successful! my doctor explained it in a way that made good sense? good luck to anyone beginning treatment or pondering it?

REPLY

Was this helpful? 2

I completed the Harvoni treatment but in the first month of taking it I was hospitalized for pancreatitis which was a side affect from the drug. Now my vision is blurred and my liver enzymes were higher so an immediate MRI was scheduled with and without contrast to check my binary tree or something. I have constant pain in my liver but they try and tell me I have no pain because the liver has no pain. Whatever! I hurt on my right side for years and kept asking why was I hurting because I'd went through breast cancer, complete hysterectomy, gallbladder took out and still no relief!!! I was told 2 yrs later I had hep c and have had it over 30 yrs. I recived a blood transfusion in the 80a when I lost a baby. No one ever reached out to me to let me know I could have gotten hep c from contaminated blood. I'm at stage 4 liver disease and I never feel good! Wish you the best! Pretty sure we are the guinea pig for data collection and to be in medical books in the future!

Lisa M

REPLY

Was this helpful? 2

Hi everyone, I just wanted to give an update after my original post. I was having painful side effects my first 2 weeks taking Harvoni and was debating whether or not to stop treatment, but after about 3 weeks the pain went away. I started taking it at night and that really seemed to help me a lot, since most of the pain was within the first few hours of taking it. I finished the whole 8 weeks of my treatment and have not had any lasting side effects since it ended. My blood work shows no signs of the virus anymore but I have to go back in a couple months. I'm glad it all worked out and I was able to finish, and Im really hoping the long term effects are not damaging. Thank you for your input a couple months ago, it really helped me out.

REPLY

Was this helpful? 2

I work in retail part time. I can't work long eight hour day much anymore due to severe pain in my feet and hands now. I couldn't make enough to live on disability. Not the hand out sort of person. I will keep truckin...... but hell it's hard these days!

REPLY

Was this helpful? 2

Hello all,

I'm so sorry many of you are feeling bad. I don't have any good answers other than to get on board with the legal case that's being put together against Harvoni. I took it for 12 weeks, did get some headaches and fatigue. I worked full time thru it, just came home and went straight to bed. After 6 weeks on it, my ears started ringing and have never stopped. I completed this med Jan 25, 2016. I didn't have any trouble taking it, but did notice tendinitis pop up in various places after I finished it. First my hand, then an elbow, etc. I wore a hand brace for awhile and that healed up ok. Same with my elbow. My doctor said it was likely the Harvoni that caused the tendons to swell like that. Anyway I no longer have Hep C, tho I do have stage four compensated cirrhosis. I don't feel as great as I expected, still tired and foggy often, but I guess that's because I have cirrhosis. The pain in my side went away tho, and I can eat again. I no longer look like walking death. Harvoni seems to do different things too different people. I hope you all find some comfort in your lives, and if you can't get to feeling well, maybe just sue the heck out of Gilead. Possibly there will be a treatment to reverse some of these awful effects that people are suffering with. I hope!

REPLY

Was this helpful? 2

Coming up on 22 months of sickness after taking 8 weeks of Harvoni. Dr. Internet provided me with an explanation (no thanks to my health care provider). I'm no longer producing stomach acid. Consequences? Not digesting food & slowly starving to death. Low vitamin B12 left me with numb hands & feet & neuropathic pain in my face. Low iron means no energy. Now sensitive to tylenol & ibuprofen. Health care provider suggested alcohol for pain relief, once I refused opioids (wrap your head around that one! )

Have added digestive enzymes to successfully assimilate protein. Doing my own daily vitamin B12 shots (2 nurse practitioners & a naturopath poohpoohed it & failed to tell me that I did not need a prescription for injectable B12). Added iron supplementation plus a multi-vitamin designed for bipolar disorder. Currently feel at least 50% better than I did at Christmas. I have sensation back in my fingers!

I'm now hopeful for the future. Couldn't have said that last year. Now to learn to stop being angry and start looking forward to the rest of my life.

Fingers crossed that other Harvoni-damaged people are as fortunate.

REPLY

Was this helpful? 2

Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels li...

59 REPLIES

I stopped the first interferon based meds for hep c1 because of severe rotational dizziness on the slightest movement; t...

5 REPLIES

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigatio...

109 REPLIES

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased...

263 REPLIES

Curious, I've started my 5th week of treatment and am wondering if anyone has experienced similar side effects as me...

52 REPLIES

I'm 64 yrs old, geno 3 hvc, I have emphasemia, fibroscan 7.1 (not too bad), viral load high. I'm considering tx,...

1 REPLY

I need to know of any side effects that may occur while taking this medication. ## Are there any risks to taking this me...

487 REPLIES

side effects of cherrifer vitamins ## I chanced upon your site researching for side effects of Cherifer. You sent me an ...

281 REPLIES

I have been on suboxone now for just under a month. I think it is an amazing drug, i have had no cravings or interest in...

262 REPLIES

I am taking one capsule a day of this vitamin with my breakfast, but have very severe nausea after taking it. Is this co...

185 REPLIES