Harvoni Side Effects (Page 6)
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I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Get some food grade diatomaceous earth. Google it, saved me and still does, i do a tbsp a day in water at least for the gastro horrors of harvoni.

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I took harvoni for precaution only. I'm now 1 year post harvoni treatment and I now have more problems with gas building up than I had before. What are some ways to alleviate this symptom?

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MrsM, I feel the same as your husband. If I had a clue what life after Harvoni was going to be, I would choose to stay infected. Like I said, many people sail right thru treatment and are fine afterwards. Some of us don't. I had HepC for about 35 years, I stopped drinking almost 30 years ago and led a clean life and I knew how my day, week, month - how my life was going to be. From January of 2017 until April I had at least one test or doctor appt each and every week. If I could get my old life back I would live with HepC.

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Doesn't go away?! This is a life changing drug! If my husband had known the side effects of harvoni.. he would have never taken it!! It has changed him! Brain fog, confusion, joint and muscle pains, feeling of being "out there".. he is depressed about these changes! He took 12 weeks a year ago. He is Hep C free but he said if he had known he would live with the Hep C! Please consider this before taking this medication! The doctor said nothing but headaches and tiredness.

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Popeye and san12, I used to post a lot here but haven't in a couple months. Some people take Harvoni and just sail right thru treatment. Then there is a percentage of us that it just destroys our life. I finished 12 weeks in June of 2015 and this morning had a test still trying to find out what Harvoni did to me. I am a member on another support group that everyone is having all the same problems you guys mention. Most of us are 2 years past treatment. It doesn't go away.

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I did the harvoni treatment for 8 weeks in 2015,in my third week started getting rash like on my legs and severe nerve pain that goes down my legs and I still have the pain . Dr did have me do B12 injections which I still do once a month,I feel exhausted a lot so I think that is a side effect.I am hep c free but there is side effects we have to deal with that are very unpleasant and I don't no if they will ever go away.

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My cousin was on harvoni a year and half ago.He is cured 100 pecent.That is wonderful,but now he seems to exhibit strange behavior.Always feels tired.Lost a lot of energy .Had a few kidney infections (never had one before harvoni).Now he almost acts like he has dimentia .Sleeps horrible ,walks very slowly ,I just wondered if anyone else had these symptoms-He also has anxiety and worries constantly ......Was always a strong person

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welcome to the club, I did 3 months last year and still have the pain you describe, for some this is permanent

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Dont do it if you are not sick. I took it for 12 weeks and cleared HepC but now have chronic auto immune diseases

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Hello, I developed severity of chronic pain like all of you are talking about as a result of another medical procedure that punctured a nerve. Please look up this information and see a pain management doctor. It saved my life and I do have one today. Complex regional pain syndrome (CRPS) formerly reflex sympathetic dystrophy (RSD), "causalgia", or reflex neurovascular dystrophy (RND) is an amplified musculoskeletal pain syndrome (AMPS). It is a chronic systemic disease characterized by severe pain, swelling, and changes in the skin. CRPS often worsens over time.

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Yes..... According to my health professional lower back pain can be caused by many things. Lung infection, Muscle under large thigh muscle and not the back. Gallbladder, kidneys, intestinal blockages, previous injuries etc.

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Methocobalamin?? I think the spellings off. You can read up on it. You want a high % of this Vit B for neauropothy. Vit B depletion is rampid when you have infection. There are a few B vitamins. I took this for a few months and mine subsided.
I had ALL tests including hormones checked as none of us after having this infection are ok really.

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Have you had testing done for Fungul Infection? or Candida overload?

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Thanks for your prayers. Likewise I pray for all that battle this. We should remember our God will do his part. BUT.... are we doing our part? Are we being irrational, hypersensitive or hyper vigilant? PAIN after time plays tricks on us just as the enemy. If you have heard of someone with bad injuries that didnt even notice the more minimal ones until the main pain is removed? See if our body's are riddled with misc. issues and failures due to Hep C then remove one and you'll notice the others. Even others you may not know you had. The enemy is not Harvoni or big Pharma or conspiracy's. Though their may be some truth to that... the enemy is Hep C. I am no proponent of Pharma companies but to get medications like this approved is not only difficult but go through many hands. I know many have posted complications and wish they had not started. For me its saving my life. See Harvoni is killing the virus that wreaked havoc on my liver, kidneys, gallbladder, pancreas, and skin and joints. All these are and were from the enemy Hep C. In most cases Harvoni is the David and Hep C Virus Goliath. Since we all talk to ourselves daily I feel we should try to focus the conversation on healing and not be angry and in pain. Focused on that only brings more. I have read so many blogs and feel the focus is on the wrong thing. Because healing when your acutely ill comes partially by how we think, talk and act and is recommended by the scribes whom left the writings of many for centuries. So focus should be on how great the divine healer is and not just the man made pill. I rethink how I traveled to this moment and realize it was no accident.

My challenges started when a DR felt I had contracted Legionair while at a seminar and sent me in for further diagnostics and to the hospital who said I had pneumonia (cant spell that). I was being treated for both. Weak, muscle pain, irritable, sinus infections, backaches, lethargy, foggy, dizzy, temperamental, low oxygen, thick blood.... 7 doctors later and a few years and time and $ spent and I thought "well i have no certain diagnosis so I think I just need a vacation and a scotch". Some of these irritations went away as I was treating them with nutrients that my body needed for those organs etc to regain momentum and some came back. Harvoni was not the cause. My body was already compromised. An example is my liver that was nearly destroyed by the HEP C or nerve damage from a past car accident or sinus problems from 2 broken noses as a scrapper. Thinking in this way where maybe the body is starting to function properly after killing the infection and its learned to bypass some normal ways trying to heal us and now is having to change again and in so doing other ailments turn up? My skin was getting rashes and sores and not healing well and I felt very ugly. I worked on it and reduced the issues somewhat. Then taking Harvoni it came with a vengeance yet soon subsided. I believe its part of the process but will repost after I am done in a few weeks, have diagnostics and re-evaluate in 6 months. Yet I pray each one of you that you stay focused on whats possible and be faithful and bold in your requests. Amen.

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602 Charlie. Glad to hear something positive. I promise to pray for your healing!

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9th week on HARVONI... Mild to more+ side effects like headaches, intestinal pain, bodyaches, swelling. Yet Hep C itself causes some of this and so to kill it the cells must release it into the blood so wherever its hurting you your sick. but until now none daily really. excepting now having back/lung pain. See Dr this Friday and will address.
BUT I am left with the impretions after being progressively sick for years and what I needed to learn is this.
Hep C is the enemy. What it progressively can do to some peoples body is horrific yet not all of us have the same reaction in our bodies from Hep C> Each of us have individual though some common attacks made on our bodies From Hep C. So what I believe is that in myself for instance it has drastically attacked my liver and I was stated Stage 4 Chirrosis..... and unbelievable as it seams in the natural just received my blood testing and it seems, an act of God for myself. I had worked hard to reduce my AST/ALT levels from 487/440+ to 102/130 ranges and it now shows NORMAL @ 35/43! Astonishingly my Creatinin/Platelets/Billirubin etc.... all these organs I have been watching out for and treating and now they all show normal. I mean all in normal range. Look, we all suffer....or ...die but not unless you want to and our gracious and ever giving God of the most high says stay in faith...and he will fight your battles for you. Amen

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Hi Jim
Thanks for the response. I had a battery of tests today and I will post the outcome (for what it is worth). I read on another forum that people are starting to develop diseases that have been reawakened by Harvoni (they suspect by the impact of changes to the immune system) such as Lyme disease and I think in my case Glandular Fever.
It sure would have been nice to know this before signing up.

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Vanessa, youve just described me to a tee.. I am having the same sinus issues, it took 71 days for anyone to get me on the right antibiotics and because it was such long time before it was stabilized I developed a lesion on the brain. My eyes hurt bad, blurry, seeing spots, I am so wiped out its pathetic as you say... I know this was all because of Harvoni, it was the only med I took, I also have about 25 - 30 side effects that no one has been able to tell me what it is, how to correct and I feel like I am dying a slow death... So you are not alone at all... I wish you a healthy, healthier outcome..
Jim

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Hi all. I wrote in detail about my horrendous experience taking Harvoni last year. I had about 12 side effects and was basically not functioning. I was cured and felt well again about a month after completing the course.
About a month after that I got what I thought was a sinus infection or virus. I have had 3 courses of antibiotics and many doctors appointments. It is now 4 months later and I am worse. It pains me to write this but I am back to feeling afraid again.
I am chronically fatigued, sore throat, muscle aches and a headache that I cannot even describe it is so bad. My eyes even hurt. I am not old and used to enjoy working and looking after my family, now I cannot wait to sit on the couch and do nothing. I am not sleepy, I just cannot make my body do what my mind wants it to.
Tomorrow I am starting testing for other illnesses (more freakin fun) but I have my doubts.
Pathetically, I never thought I would hear myself say this, but I am HOPING to have glandular fever because it fits the symptoms. I fear though that it is Harvoni aftermath. The timing was just too coincidental. I am wondering about my immune system. Did anyone else experience anything like this post Harvoni ?
I know many of you have nerve pain (my sincere sympathies, that must be horrible), but my symptoms seemed quite different from most people.
Thanks for reading
Vanessa

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Tony, you are experiencing some common Harvoni side effects that they don't like to admit to. Unfortunately there are many more. There are open support groups around.

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