Harvoni Side Effects (Page 28)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Oh dear, I am having migraines and also heart flutters. Last week I think I had a mild stroke, bp was 169/113/103...no paralysis but many symptoms are remaining. I am almost 24 weeks post treatment.

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I am week 11 of 12 of Harvoni... I have never been so ill as when during this treatment, I only had hep c for under 3 years when starting treatment, but my liver was just over F3. I am 48. Contracted from short drug use few years ago. (no drug use 2 yrs now). From day 3 of treatment, Ive had respiratory illness on and off bronchitus twice, and now pnemonia. Before treatment I did yoga every day sometimes twice, walked daily...Felt healthy. My legs have been very weak through treatment from first day. I have read here some have leg problems after treatment ends. I am noticing now, with the weakness, I tickling like feeling, like something is lightly touching my legs about halfway down calfs...it seems strange, then I read here about the nerve thing... Is the feeling I am feeling the nerves...It is very strange... I'm in a group for harvoni...A lot of them were part of the trials in 2014....They say there side effects were not bad. I figure cause they were so sick anyway, some waiting for liver transplants, a couple had transplants of liver already, and severe joint pain, plus other ailments from years of having hep c... They even said, it seems like anyone with a lower viral count and having hepc less time, those people seem to have more side effects.. Almost all of them did the interferon treatments, and compare the sides to that... I am just looking to connect with others, who are seeking info on the truth about this med, whatever you call it.... This is not in my head....AND i AM NOT SURE it will even pass. I have stopped taking the med a couple days ago... I was cleared from the virus 4 weeks into treatment. No more for me.

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LouT, it sounds like you are going thru the classic problems many of us have. I was cleared in week 3, and am now about 17 months post treatment, and have many side effects that started during or shortly after Harvoni treatment. About Gilead saying very few side effects.... First, they just plain don't want to admit. Second you mentioned very few side effects during trials. Trials were several small groups of a couple hundred well evaluated patients selected for best results. Now many many thousands have been given Harvoni with many issues that would have made you ineligible for the tests. Most of the main Harvoni support groups will try to quiet you down if you complain about side effects, especially if you claim they persist after treatment. I am in one that is all patients that have had major side effects, and you are supported. I wish you the best! Hang in there!

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Thanks for replying Keith. And yes too, the group I am in is *Patients helping *Patients*, won't mention name though. I posted a question similar to the one above, there, and was told that most of that is probably from hep c itself.! But I never had any of that before, what so the trade-off for cure, is the hep c symptoms.!?!? I am sure if I say more i will be booted off, just a feeling. Thanks again.

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Getting through my Harvoni treatment was the hardest thing I've ever done. I have had lung surgery and it wasn't half as difficult. I also took Interferon with ribaviron for 6 months twice. It was difficult but nothing compared to Harvoni. When I was on interferon, I had lots of support from my medical providers. They told me what to expect and prescribed drugs that helped me with the side effects. This was not the case with Harvoni and I would never have taken it had I known it would be so hard.

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Lou, the side effects from the HepC itself???? I doubt that. We have one guy in our group that unfortunately has to be in the VA health system, but had NO problems from Hep. He was just considered a "perfect candidate" and he now is a mess, and can't get anyone to listen to him. Leg problems.... That seems to be a side effect just about all of us have. Swelling so docs look for blood clots, and painful nerve problems that also docs look for but again find no reason. Also chest/heart pain. I am one of the few that my primary doc will listen to me, check for reasons, but finds nothing. But he at least listens, most docs give up.

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I thought I was doing the right thing by getting on this as fast as I did. I found out hep c pos, within about 6 months of contracting, and in 2 yrs, went to an F3.
I had no hep c symptoms before harvoni. I can't even walk to the end of street and back now, without being tired. I am a fit person, 5 9, and usually 130. Lost 12 pounds in 2 months. My eyesight is shot, never mind my teeth have wore right down as well, just in 2 months of treatment. It is not from hep c damage. I did not have any symptoms. I wish I'd never done this treatment.

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In my group ALL of us wish we never took Harvoni! It has destroyed all our lives.

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No one seems to believe on Facebook's page that Harvoni has caused the severe sides during and post treatment. They all defend Harvoni and say it must be pre existing conditions and encouraged me to take it. Which I do not believe and have since left that group. Thanks to you all I wouldn't touch Harvoni etc and am self treating.

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I'm having the same pain and I'm 36 ...I just hope this med want be one of those meds that later on they recall bc someone becomes really bad off

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Jenny, that is why many people find other smaller support groups that do not judge you. Lou found one and I found one. My group only has about 35 people in it and I don't know where Lou goes. In our group we do what our name says, we support. We don't tell you you are crazy or it just has to be from something else. To the 35 old - sorry forgot your name - it will be next to impossible to get Harvoni recalled. First not everyone has side effects. Two, the one thing Gilead says is 97%+ cure rate and that is true. I have all the site effects and I was infected for 40 years. Third, Harvoni is selling like hot cakes and at roughly a hundred thousand per treatment they are making billions. They don't care if the end up paying out a couple hundred million. Just the cost of doing business..... So basically we are on our own. Find a group of people in the same place you are that will listen to you. Many in my group are trying yoga, vitamins, acupuncture, and other self help methods that we share with each other. Find some people are out there that will listen to you and not judge you. Good luck.

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I know the group,, I am in it currently. You're so right. Someone once even asked if some , in the group were being paid to promote.

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Hey friends,

I haven't posted in a while, it's to depressing to read what Gilead has done to us. I read this and my prayers would be answered if they yanked this altogether. Why no firm has jumped in on legal action is beyond me. I do delight in seeking their stock plummet. We along with VETS and native Americans sure were exploited. Who was responsible for the contracts with the government to have this paid for at these prices? That's the devil!

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New Day, do you want to hear something more depressing? You and I paid for the development of Harvoni!!!! The scientists that discovered the building blocks of Harvoni worked for the VA. When they were almost ready to test, Gilead bought the lab and did the finish work. And to make things worse Gilead has moved Harvoni to one of their companies in Ireland to avoid paying taxes on the prices they charge.

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Keith , the group I am in, IS the one, Jenny was talking about... But in fact yes it was support with the side effects, the encouragement, etc. But now, well, I feel I am on my own. .. I am not so sure I agree with most or all there, who say, **just to be grateful to be alive*!?
Yeah sure I am, and no I do not want liver cancer, but it would be nice, to live pain free.. I had many more years then what they did no doubt.
Sorry if I sound harsh....
Hell. I'm not giving up yet. I didn't go through a year of drug abuse injecting, 2 almost ods, at my age, just to become drug free, and live with pain, because of a med. If I fought through that, I will fight through this too.
I no longer have a support group, just here, I guess. :)

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To 550... I go to the VA and I turned down their treatment offers. I have Geno type 3 that Harvoni doesn't work on. It was something similar that supposed to be stronger. Apparently Type 3 is way more progressive than the others. I was diagnosed in '95, but was probably infected years before due to years, from '75-'95, of IV drug use and tattoos. I was on Interferon for 18 mos. that began in '95. I'm doing fairly well at 63, raising my 13 yr. old granddaughter and I don't have to work because I draw my husbands SS or Widow's Pension, so that helps. I do not seem to have any energy but I'm still here and not in a lot of pain. After reading all of these negative remarks I've just opted out of the treatment. I don't feel 20 but I don't feel at deaths door either. I pray about it and Thank God for my healing. I also pray for each of you who are going thru this terrible pain and all these side effects. I hope there are better days ahead for us all. Stay strong as possible and as positive as possible.

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I had nerve problems in my legs. Some mornings I woke up and stand and my legs would lose strength and I would grab hold of something to keep from falling. I had serious memory problems. It took 16 months from the first day I took a pill for the medicine to exit and leave my body. I couldn't get enough rest while being affected by the medicine and I couldn't even remember what day it was. I went to bed one night knowing it was Saturday woke up the next morning thinking it was Monday. My body and my mind wouldn't wake up in the mornings. Some mornings I couldn't even go to work. I was asleep half the day. I couldn't even wake up. I was let go from my job (that I loved very much) of 7 years! I'm 55 yrs of age, built a career for myself and now I can hardly even get a job. I'm working with the North Carolina foreclosure prevention foundation to try to save my house, they're trying to foreclose on it I'm so far behind. I need help. Does anyone know someone who can help me with this?

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high, i just started taking this med,i am on day 27 , i am 59 years old, i keep reading how bad this med is ,i am weak, and tired ,lazy, single with no support other than doc, yes, and i got to work, has anyone feel better after this treatment?, what gives us another ten years? , hpc c, can get really bad, i have a friend that had to do it old way V.vet, he thinks he feels better, i do not, my side hurts like, but i have alot of other health problems also, yea i am depressed, but after reading all these bad reviews , i what to stop, well i just was reading ,thanks for your time

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James, you sound like you only have the normal, listed side effects. The ones that most of us have (including me) you would not be going to work. Ringing in your ears so that you are always asking what did you say? Pain in one or both legs that narcotic pain killers barely touch, racing heart and pain in chest and left arm so you think you are having a heart attack. While some side effects with some people develop after finishing Harvoni, most start while on it. I am really against Gilead not coming forth with all the side effects, you sound like you just have the lighter side effects. HepC is bad enough that if you think you can finish your treatment, please try. If they get worse, make your decision then.

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