Harvoni Side Effects (Page 17) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Is there any data anywhere that comments on the criteria for bad sides (i.e. male/female, weight, perhaps less if certain supplements taken/not taken etc). I've been offered Harvoni and am on a waiting list. Don't want to touch it after reading all your negative reviews here and many others. I have a feeling any drugs coming after Harvoni inc. epiclusa will just offer more of same, at same time I want to be free of hep c, which I've had for 35 years. Difficult one.

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I have to agree with most people on here, I wish I'd never heard of Harvoni! I made it 4 1/2 weeks and decided my life was better living with HepC than the cure. I HURT everywhere!!! Couldn't walk, No Energy, started taking it at night cause I wasn't sleeping at all.
I keep wondering if we all aren't still part of the study?? If your cured , Why all the testing months and years after? I really believe they don't know if it works long term... If it really cures? ..or like cancer comes back? .... I did Interferon injections 19 years ago and while on them my levels dropped, so it was working.... But as soon as I ended treatment it was back ... Had flu like symptoms EVERY day after following the injections, for a year. Was able to work through the treatment. Granted I was only 36 at the time and single mother of 2 (9 yr & 2) it didn't make me as sick as Harvoni. I have been off Harvoni for 6 weeks now and I still don't have my energy back. My left leg with the knee replacement doesn't buckle anymore but I now have Rheumatoid arthritis... Joints are super achy, EVERYTIME I stand up!! I have issues that I can't explain, food doesn't taste right anymore, I'm having to take pain medication just to function... It's small doses cause I don't tolerate strong meds,and they make me depressed, which is also worse since being on Harvoni. I've been getting random pimple like sores on my body, mostly my head?
Ultimately it's up to each individual user whether you want to continue to put up with the side effects of Harvoni or not? If I had known ALL the side effects, I would have thought twice before taking it. Knowing now that it effects joints/bones, I would not have done it. My GI Dr should never have even suggested it to me, with my hip and knee replacements. Knee was still in the healing process, had only been 2 1/2 months since surgery. Total set back! I wish everyone luck who continues. I couldn't do IT, and I'm still not feeling well after stopping.

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For anyone recommending someone to continue the medication, it is not your business. You are not a doctor, not that they know much about this drug at all except they get paid by Gilead. Look it up. There is a website that shows how much they are getting paid from each Pharmaceutical company. There is potential if someone stops before completing treatment, they will heal. It may take time but that can happen. You have no idea what others are experiencing and there are many deaths reported by those who were healthy to start with. The longer you take this poison, the more damage it will do to your body. Enough said.

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I only recommended finishing because it seems like once you have side effects stopping treatment early doesnt' stop the lasting side effects. It only means your now sick and still have Hep C. I agree that you have to decide for yourself to start or not. But what if your liver status is dangerous? Sometimes people have to treat and deal with the lasting effects because otherwise they will have the last of their liver functions taken away from Hep C. There is a balance here to consider.

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@Jim we are so sorry to hear this. I say "we" by now we have become somewhat of a community. Many of us know each other from other sites.

I would encourage you to write the FDA, I wrote the President of Gilead told him my REAL story phases of my life. Addiction, to recovery to forced Harvoni attempt. The depression and anxiety seeps through my pores and I can't seem to get help. My insurance a midi aid HMO doesn't pay for therapy. There is a wait list almost a ur at a post grad center what good is that?

That's not going to cure you ( the letters) but if enough get to the FDA they may I say may yank this from population the damage it is doing MUST be made public, non stop. Regarding your healing, I can't imagine the denial you are getting from your docs. I also now have RA and my pain management Dept has been doing everything to get me out of there. It seems there was an investigation regarding Harvoni unfortunately no one gets held accountable for anything these days only is as whistleblowers. That's not fair, it's unAmerican but if you knew this prior I know you wouldn't have gone on treatment. You may have helped another person. When and how to educate the doctors, hopefully some might read this as we thin out. Yes we have value, if one life is saved from suffering we succeeded. This is a form of Poison to bad we were exploited. We wish you health and healing. Please keep us posted yes we all matter.

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Hi Jim
I really feel for you. What an ordeal.
Perhaps you could fire every doctor you have seen so far and try to find someone else to help you. Easier said than done I know.
I hope you find some help soon.

I understand the frustration. I was told by a doctor that I was sick with another illness as it was not harvoni causing my issues. I was also villified on a hepatitis forum for being critical of Harvoni.THIS is where we are at.I think it is going to take a long time until this is recognised.
I believe you Jim. For what it is worth. This is not in our minds !
Thanks Keith and Maryann for the FDA info.

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I am so sorry to hear this. FYI I wrote to the president of the company. After 8 months of their "meddling" I got a letter cold as ice back saying report side effects to FDA and or we consider this case closed. Translation Gilead doesn't give one s*** about any of us, something we all know NOW we got duped. The doctors are in bed with the company and Gilead knows what's really in this poison. Viscous they show NO empathy for any of us, it's all about the stock and then NOT us. I would first CHANGE doctors if that's the doc or hospital that put you on this poison. NOW they all work together to cover up for one another. Find a new team and maybe just maybe they can reverse the damage. Of course your health comes first but if I were you I would also go to every lawyer I can (most are scared to death of this company so far) and push. Try and get someone to take their case and set a precedent so that Gilead is held accountable. This Corp giant isn't helping humanity, they are acting like parasites that exploit ppl that have ONE life if it were there would they like to give you back some money for you pain and suffering? Continue to keep us posted, we will keep you and everyone else in our prayers who is suffering from this awful over sold garbage. May you find peace and healing.

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I had the same issues...my doctor did all kinds of test and nothing showed up..even. went to physical theropy...my dr. Said my vitamin d level is extremely low and put me on 55,000 m.g. of vitamin once a week for 12 weeks...I'm now 7 weeks into the vitamin d I see its helping my pain...hope this helps...God Bless You

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Hi Jim
Dont give up. There is an answer to your problem. It just has not come to light yet.
We were duped into being unwitting guinea pigs but we have to believe it will be solved.
I have not walked down the street for 3 months due to a neuropathy fall. My injuries are mysteriously not getting better. Yeah right its a **** mystery.
This might sound like a crazy idea but how about consulting an infectious disease specialist in HIV.
I know we dont have that but I have read about strange miochondrial toxicity symptoms turning up in HIV patients who took antivirals.
It is accepted in that client group that antivirals have long term strange side effects and they treat it.
It may not be the answer but maybe somewhere to start ? I dont think you would be dismissed if you consulted someone who had dealt with antivirals for a decade.
Just a thought.
You WILL get to the bottom of this.
Its a matter of when.

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I just saw a new pain management doc this week. It seems that NOW there are a lot more people who are going for nerve blocks etc due to Harvoni I am finally happy to say that all my medical is out of that hospital where each Dept covered for the deception of the GAstro Dept.

Amazed at how we were the victims and got and continue to get blamed.

If any doctors are reading this please think twice that his medication was made for ppl in LATE stage liver disease, pre transplant. It defies logic with all our negative life changing sides they would still push this in people. Big pharma at work, be careful do your research this is NIT a safe medication!

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Jim I feel for you.....I understand because I am going through it at 18 months post treatment myself. Have you had your Vit. D or B12 levels checked? I have come up since treatment as unable to get B12 from food. And others have as well. Please have that run next blood work, it's not part of the normal blood panels.

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Vanessa, I have never heard the term Harvoni hangover. However in my over private support group we have about 40 members and between us we have had every single side effect you mention. I myself have had them 16 months post treatment and still continue. And like you, doctors continue to say I don't know what you have, but it's not from Harvoni.... Didn't have these problems before, came on either during Harvoni or immediately after finishing, so doc, where do YOU think they came from?

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I received an email from HepatitisCentral saying FDA is now requiring a boxed warning On ALL HCV drugs, Harvoni, Sovalda, Daklinza and many more can lead to reactivation of HEPATITIS B.. Scary that it's supposed to destroy Hep C but does nothing for HepB?? But at least the FDA is looking at some kind of adverse side effect. I stopped at 5 weeks, but it was too late, I'm not the same person I was before treatment. Stomach issues, eyes blurry, joints ache worse then before, depressed and only way to function is pain meds. I'm hypersensitive to most medicine so 1/2 a 5/325 Norco 2-3xs a day is all can handle. Can't sleep without it. Wonder what the rest of my life is going to be like. Only 55 feel years older... Upset with what Harvoni did to me.

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I finished 17 months ago and still feel like hell. All of your symptoms as well as neuropathic pain in face, feet and hands. Shortage of doctors so I have only a nurse practitioner who refuses to refer me to a specialist or even do blood tests to figure out what is happening. I too was amazingly healthy before the treatment. Now I spend half of my day in bed. I wish I had better news for you. I'm meeting with a naturopath this week to see if she has any suggestions. Frankly, I'm ready to just give up.

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I am week 11 of 12 of Harvoni... I have never been so ill as when during this treatment, I only had hep c for under 3 years when starting treatment, but my liver was just over F3. I am 48. Contracted from short drug use few years ago. (no drug use 2 yrs now). From day 3 of treatment, Ive had respiratory illness on and off bronchitus twice, and now pnemonia. Before treatment I did yoga every day sometimes twice, walked daily...Felt healthy. My legs have been very weak through treatment from first day. I have read here some have leg problems after treatment ends. I am noticing now, with the weakness, I tickling like feeling, like something is lightly touching my legs about halfway down calfs...it seems strange, then I read here about the nerve thing... Is the feeling I am feeling the nerves...It is very strange... I'm in a group for harvoni...A lot of them were part of the trials in 2014....They say there side effects were not bad. I figure cause they were so sick anyway, some waiting for liver transplants, a couple had transplants of liver already, and severe joint pain, plus other ailments from years of having hep c... They even said, it seems like anyone with a lower viral count and having hepc less time, those people seem to have more side effects.. Almost all of them did the interferon treatments, and compare the sides to that... I am just looking to connect with others, who are seeking info on the truth about this med, whatever you call it.... This is not in my head....AND i AM NOT SURE it will even pass. I have stopped taking the med a couple days ago... I was cleared from the virus 4 weeks into treatment. No more for me.

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No one seems to believe on Facebook's page that Harvoni has caused the severe sides during and post treatment. They all defend Harvoni and say it must be pre existing conditions and encouraged me to take it. Which I do not believe and have since left that group. Thanks to you all I wouldn't touch Harvoni etc and am self treating.

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I'm having the same pain and I'm 36 ...I just hope this med want be one of those meds that later on they recall bc someone becomes really bad off

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Jenny, that is why many people find other smaller support groups that do not judge you. Lou found one and I found one. My group only has about 35 people in it and I don't know where Lou goes. In our group we do what our name says, we support. We don't tell you you are crazy or it just has to be from something else. To the 35 old - sorry forgot your name - it will be next to impossible to get Harvoni recalled. First not everyone has side effects. Two, the one thing Gilead says is 97%+ cure rate and that is true. I have all the site effects and I was infected for 40 years. Third, Harvoni is selling like hot cakes and at roughly a hundred thousand per treatment they are making billions. They don't care if the end up paying out a couple hundred million. Just the cost of doing business..... So basically we are on our own. Find a group of people in the same place you are that will listen to you. Many in my group are trying yoga, vitamins, acupuncture, and other self help methods that we share with each other. Find some people are out there that will listen to you and not judge you. Good luck.

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I know the group,, I am in it currently. You're so right. Someone once even asked if some , in the group were being paid to promote.

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Hey friends,

I haven't posted in a while, it's to depressing to read what Gilead has done to us. I read this and my prayers would be answered if they yanked this altogether. Why no firm has jumped in on legal action is beyond me. I do delight in seeking their stock plummet. We along with VETS and native Americans sure were exploited. Who was responsible for the contracts with the government to have this paid for at these prices? That's the devil!

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