Harvoni Side Effects (Page 11) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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It goes away about a month to month in a half later

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I started having reallly severe piercing lower back pain after being on the Harvoni for about a month. I think part of it was because i was tired on the medication so i didn't take walks as usual and just wasn't very active. i slept more deeply and my back was so bad in the morning that I could barely stand it. It worried me as i had never experienced anything like this before.Even going to the chiropractor didn't help. I realize that i may have brought some of this on myself as i had reduced my arthritis medication as i felt didn't want to take anyting on top of the Harvoni. Anyway, thanks god, after some days and i got a little more active and took a little extra arthritis medicatiion to make up for what i missed, i started feeling better. And epson salts baths really helped. i still have a ways to go... i hope we all start feeling better

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Hi! I'd like to say it gets better but.. Have you finished your pills? I finished in Feb and am hep c free but now left knee is so bad most time have to walk with walker.. Have to break up grocery shopping to 3 days as unable to stand pain in leg, lower back. I'm supposed to have a ct scan on knee but.. See your Dr and let the fda know of more side effects than their talking about. Good luck!

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I have finished the regimen and didn't really have too much of a problem with the meds.Since then, I have lost right at 45 lbs. Food doesn't taste good. I am a very good cook and can't eat my own cooking. I have gotten weak and short of breath. Any real exertion and I feel like my chest is going to implode, I can't continue because I have NO strength in my legs. I have eaten out and wasted my money because of the taste problem. There are a very few things that I tolerate the taste of to see if I can keep what weight I have left. I also have what feels like nerve explosions in my legs and feet.I have been off of the Harvoni for about 3 months and see no change in myself. I'm retired and had a part time job that I cannot do any more.My friends are always asking me why I'm losing so much weight and all I can say is that the side effects, which seem to be here to stay. I had planned to move to Missouri to be with my kids and grandkids, BUT, now those plans are on hold until this crap goes away. Yes, this has definitely been a life changing event, and I DON'T LIKE IT ONE BIT !!!

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I'm sorry all of you are experiencing similar side effects as there are miserable and debilitating. What I think is really imperative is we all report these issues to the FDA. People need to know what they will experience when taking Harvoni! I have made a report, its quite easy. Please consider doing this.

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In my last post I was referring to whether or not your side effects left? {edited for privacy}

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Recently took told to take for 6months, severe alcohol relapses, nerve damage in legs and back.Is anyone else had similar effects?

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Definetly have lower back and joint pain...it's been 9 months since treatment and symptoms have gotten better but have not gone away....I'm curious to see if they will release a study next year on the side effects...I don't see any alcohol relapse...I am very grateful for the treatment

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Hi Steff, So sorry for your problems after Harvoni. I too have been damaged but differently from your problems. I communicate with about 50 people who have problems. If interested, you can contact me. {edited for privacy}.

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I have a friend who is in about week 6 of Harovoni and reports stomach ache spasms just after eating, which then travel up her spine to her head. She spoke with a specialist who said that it is caused by a reaction between the gut. The Harvononi impairs the guts ability to convert some sugars because of the reaction of changed seratonin levels in the gut and as a consequence, the pain and a range of other side effects are experienced. Solution: Do not eat any foods with sugar. There is a special diet required. My friend has been on the diet only one day and is already feeling much better. I hope that helps

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In reply to the question re Suboxone: I was on Methadone throughout my treatment. I have strange nerve issues now, but not confirmed with an MRI yet. I know Methadone is quite different to Suboxone, but others from my clinic on Suboxone took this HepC trial and I haven't heard of any negative symptoms. Of course, everyone is different and this treatment is still in trial so none of us know the long term side effects..... maybe find a specialist who was involved in Harvoni clinical trials that treated groups on drug maintenance programs?

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Today was my 7th day on Harvoni. I have noticed just a little bit of a queasy stomach. Nothing too bad though. Also I get a little light headed or dizzy for about an hour after taking.

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I finished the 28 week treament in Jan2016 other than some diaherra now & then with sinus trouble was my only side effect the virus is no longer detectable but have had back pain with some stomach issues since finishing the meds which was the 19 th of jan

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Thank you everyone for there comments on the side effects. It has been ten months since I have been off Harvoni. I am still having side effects. I now have nerve problems in my neck and joint problems as well in my hands. I also still have nausea and insomnia . I hope these problems go away but it has already been almost a year. I am also great full that the virus is gone but just wish I was told the truth from the start. There was not only one side effect slight headache as I was told but many others and it looks like permanent side effects. Oh I also lost a lot of my hair as well . Best of luck to everyone if they are still taking Harvoni and GOD BLESS ALL

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If you are taking just the Harvoni, no. If you are taking ribavirin with it the symptoms can no horrific. I was taking 1000mg of ribovirin and one orange Harvick a day. I became so enimic after 2 weeks they stopped me down 400mg on the ribovirin. Two days later the VA had me admitted to the hospital with heart issues. I couldn't even walk my dog. My enimia level before the start of meds was 15. When they dropped me 400mg my level was 11. Going into the hospital it was an 8. A level of 6 is deadly. I quit the meds.

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Please note that I should have written Hepatologists, not Hematologists.

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I would like to know why those who post on this thread are not allowed to communicate with each other privately. I can understand the confidentially concern, but one should be allowed to publish their personal email if they wish to share some things with another blogger. Who is this site protecting? Certainly not the individuals who are asking for information from those who are willing to share their experience with Harvoni.

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Indeed..be careful what you wish for. Also there is a lot of help out there for getting Harvoni. If you call Gilead they may be able to help you. Please know that there are many long term side effects that people are experiencing that no one told us about. There is a new drug called Zepatier that is now on the market. I do not know anything other than it is supposedly "more safe than Solvaldi" and is less expensive than Harvoni. Perhaps that I another avenue for you. I have been damaged by Harvoni so again.....be careful what you ask for.

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Thank you for your warning to the patient who admonished those who have been damaged by Harvoni. I, myself, will never take a drug again that hasn't been on the market for over two years. At that point, I would carefully review the side effects and ensure that they are all reported to the FDA.

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Jane, I may never take another drug again .....ever. I knew better than to take something new on the market but was "suckered in" by the sales pitch of the doctor that Harvoni was so safe. HA!!!!! In fact today, I spoke with a woman whose other was vibrant and active...took Harvoni...and is no longer with us. Take care all.....

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